Ke nalowale nei hoʻi kou kaulike i ka wā e hele ana a ke paʻakikī nei ʻoe i ka neʻe ʻana i kou mau maka? Hiki paha iā PSP (Progressive Supranuclear Palsy)!

Ke ʻike nei ʻoe iā ʻoe iho e nalowale ana kou kaulike a hāʻule i kēlā me kēia manawa āu e hele ai? A i ʻole he mea paʻakikī iā ʻoe ke kāohi i kou mau maka ke hoʻāʻo ʻoe e nānā i lalo? Ua ʻike paha ʻoe i kekahi āu i ʻike ai ua loaʻa i kēia pilikia. ʻO kēia paha kekahi o nā hōʻailona mua o kahi maʻi laha ʻole i kapa ʻia ʻo PSP, a i ʻole Progressive Supranuclear Palsy, a mākou e kamaʻilio ai i kēia lā. Mai hopohopo, e kamaʻilio mākou e pili ana i kēia me nā kikoʻī.

He aha ka PSP (Progressive Supranuclear Palsy)? E hoʻomaopopo maʻalahi kākou!

ʻAe, e nānā kākou i kēia maʻi me ka inoa lōʻihi ʻo PSP (Progressive Supranuclear Palsy). I ka ʻōlelo maʻalahi, he maʻi neurological holomua ia e hōʻino ana i nā ʻāpana o ko kākou lolo. Hiki iā ia ke hoʻopilikia i nā mea e like me ke ʻano o kou hele ʻana, ke ʻano o kou noʻonoʻo ʻana, ke ʻano o kou moni ʻana, a me ke ʻano o kou neʻe ʻana i kou mau maka. Loaʻa iā ia nā inoa ʻē aʻe, me ka Steele-Richardson-Olszewski syndrome.

E nānā, he maʻalahi inā maopopo iā ʻoe kekahi o nā huaʻōlelo ma ka inoa.

• ʻO ke ʻano o "Progressive" , e like me kaʻu i ʻōlelo ai ma mua, e lilo mālie kēia mau hōʻailona i mea ʻino i ka hala ʻana o ka manawa. ʻO ke kumu o kēia, ʻo ia ka nāwaliwali mālie o nā hunaola lolo (kahi maʻi neurodegenerative).
• Ua hui pū ʻia nā huaʻōlelo "Supranuclear" a me "Palsy" e wehewehe i kahi kūlana e hoʻopilikia ai i ka neʻe ʻana o nā maka. ʻO ke ʻano o "Supranuclear" ʻo ia hoʻi, aia ka pōʻino ma luna o nā nuclei i loko o ka lolo e kāohi ana i ka neʻe ʻana o ka maka. ʻO ke ʻano o "Palsy" ʻo ia hoʻi, ua nāwaliwali nā ʻiʻo a i ʻole he paʻakikī ke hoʻohana ʻana iā lākou.

E hoʻomanaʻo, hiki ke huikau ʻia ʻo PSP me ka maʻi Parkinson i kekahi manawa, ʻoiai i nā pae mua o ka maʻi. Kāhea nā kauka i kēia "atypical parkinsonian syndrome" a i ʻole "Parkinson-plus disorder." ʻO ke ʻano kēia, ʻoiai he mau hōʻailona like me ka maʻi Parkinson, he ʻano ʻokoʻa a paʻakikī hoʻi. Akā e hoʻomanaʻo, ʻoi aku ka wikiwiki o ka holomua o PSP ma mua o ka maʻi Parkinson.

ʻOi aku ka maʻamau o kēia maʻi i ka poʻe ma luna o 60 makahiki. He mea kākaʻikahi loa ka loaʻa ʻana o ia ma kekahi ma lalo o 40 makahiki.

He aha nā ʻano nui o ka PSP (Progressive Supranuclear Palsy)?

ʻEhā ʻano nui, a i ʻole phenotypes, o PSP. ʻOiai ke kaʻana like nei kēia mau ʻano āpau i nā hōʻailona like, aia kekahi mau ʻokoʻa liʻiliʻi. ʻO nā ʻano ʻelua maʻamau:

1. ʻO ka maʻi Richardson

2. ʻAno like me ka maʻi o Parkinson (ʻano like me PD - PSP-P)

Hōʻike kēia mau ʻano ʻelua ma kahi o 75% o nā maʻi PSP.

Hiki i kekahi kanaka me ka maʻi Richardson ke loaʻa i nā hōʻailona he nui:

• Nā pilikia me ka hele wāwae a me ke kaulike.
• Nā ʻano ʻē i ka ʻōlelo ʻana (ʻōlelo slurred, loli i ka leo).
• Nā pilikia me ka hoʻomanaʻo a me ka hiki ke noʻonoʻo.
• Ka paʻakikī ke kāohi ʻana i ka neʻe ʻana o nā maka (ʻoi aku hoʻi i ka nānā ʻana i lalo).
• He helehelena me he mea lā e haka pono ana i mua me nā maka ākea.

ʻO ka poʻe me ka maʻi Parkinson-like variant (PSP-P) he mau hōʻailona like me ko Richardson syndrome, akā ʻoi aku ka like me ka maʻi Parkinson. ʻO ka hōʻailona nui ka haʻalulu (ka haʻalulu i hoʻokumu ʻia e nā ʻūlū ʻiʻo makemake ʻole). ʻOi aku ka ʻike ʻia o nā haʻalulu ma mua o nā pilikia kaulike a me nā loli ʻano. ʻOi aku ka pane ʻana o PSP-P i nā lāʻau antiparkinsonian ma mua o nā ʻano PSP ʻē aʻe.

ʻO nā ʻano ʻelua ʻē aʻe he:

• ʻO ka maʻi Corticobasal.
• ʻO ke akinesia maʻemaʻe a me ka paʻa ʻana o ke ala (paʻakikī i ka neʻe ʻana a me ka paʻa ʻana i ka wā e hele ana).

He maʻi maʻamau anei ka PSP (Progressive Supranuclear Palsy)?

ʻAʻole, he maʻi laha ʻole ka PSP. Ua manaʻo ʻia he ʻelima wale nō o kēlā me kēia haneli tausani o ka poʻe i loaʻa i kēia maʻi. Hoʻokahi wale nō o kēlā me kēia haneli tausani i ʻike hou ʻia me kēia maʻi i kēlā me kēia makahiki. No laila hiki iā ʻoe ke ʻike i ke ʻano o kēia mea laha ʻole.

He aha nā hōʻailona o ka PSP (Progressive Supranuclear Palsy)?

Hiki ke ʻokoʻa nā hōʻailona o ka PSP mai kēlā kanaka a kēia kanaka. Hoʻomaka mālie lākou a lilo i mea ʻino i nā makahiki.

ʻO nā hōʻailona mua loa e hiki ke penei:

• Ka nalowale o ke kaulike i ka wā e hele ana a i ʻole e piʻi ana i nā alapiʻi. Hiki i kēia ke alakaʻi i ka hāʻule pinepine ʻana, ʻoiai hoʻi i hope.
• Ka paʻakikī i ka nānā ʻana i lalo me nā maka.
• He helehelena me he mea lā e haka pono ana i mua me nā maka ākea.

ʻO nā hōʻailona ʻē aʻe e ʻike ʻia paha:

• Ke paʻakikī i ka ale ʻana i ka meaʻai a me ka mea inu.
• ʻO ka ʻoʻoleʻa o nā ʻiʻo e paʻakikī ai ka hoʻoneʻe ʻana i ke kino (mobility).
• Paʻakikī i ka ʻōlelo ʻana. Lohi a hūpō paha ka leo. Paʻakikī paha ke haʻi ʻana i nā huaʻōlelo.
• Nā loli o ke ʻano: ke kaumaha, ka apathy, ka huhū.
• Nā loli o ke ʻano.
• Nā loli o ke ʻano: hana ma ke ʻano hoʻowahāwahā, hiki ʻole ke koho i ka pono a me ka hewa.
• Dementia (ka emi mālie ʻana o ka hoʻomanaʻo a me ka naʻauao).
• ʻAʻole hiki ke hiamoe.
• ʻO ka maʻi hiamoe REM (RBD) (ka uē ʻana a me ka lele ʻana o nā lālā i ka wā moeʻuhane).
• ʻIke i ka mālamalama ʻālohilohi (photophobia).

He aha ke kumu o ka PSP (Progressive Supranuclear Palsy)?

ʻAʻole maopopo loa i nā kānaka ʻepekema ke kumu o ka PSP. Eia naʻe,Ua ʻike ʻia he protein i kapa ʻia ʻo "tau" e pili ana i kēia. He protein koʻikoʻi ʻo Tau no ke olakino o ko kākou lolo. ʻO kēia protein ka mea e pale ai i ke ʻano maʻamau o nā pūnaewele lolo (neurons).

Inā loaʻa iā ʻoe ka PSP, hui pū kēia mau protein tau i loko o kou lolo a hana i nā hōʻuluʻulu. A laila hōʻino kēia mau puʻupuʻu o nā protein tau i nā hunaola lolo. Manaʻo nā kānaka noiʻi i kekahi mau kumu kūpono no kēia:

• Nā hoʻololi hoʻoilina kaulele.
• Nā mea hoʻolaha maʻi i ʻike ʻole ʻia.
• He kemika i ʻike ʻole ʻia i loaʻa i ko kākou wahi (ea, wai, meaʻai) e hōʻino mālie ana i kekahi mau ʻāpana koʻikoʻi o ka lolo.

ʻAʻole like ka hopena o ka PSP i nā kānaka a pau. Hoʻopilikia ia i nā ʻāpana like ʻole o ka lolo ma nā pae like ʻole o ka maʻi, i nā kekelē like ʻole. I ka hopena, laha ka PSP i ka hapa nui o ka lolo. I nā pae mua, hoʻopilikia pinepine ka maʻi i ka basal ganglia a me ka brainstem.

ʻO kou lolo ke kuleana no nā hana koʻikoʻi he nui, e like me ke ale ʻana a me ke kūlana. Kōkua pū ka basal ganglia iā ʻoe e mālama i ke kūlana, hoʻoneʻe i kou mau maka, noʻonoʻo, a kaohi i kou mau manaʻo.

He maʻi hoʻoilina anei ka PSP (Progressive Supranuclear Palsy)?

ʻAʻole, he mea kākaʻikahi loa ka PSP. Inā loaʻa iā ʻoe ka PSP, haʻahaʻa loa ka pilikia o nā lālā ʻē aʻe o kou ʻohana, me kou mau kaikaina a me nā keiki, e loaʻa iā ia. No laila, ʻaʻohe mea e hopohopo ai.

He aha nā kumu pilikia no ka hoʻomohala ʻana i ka PSP (Progressive Supranuclear Palsy)?

ʻO ka makahiki ke kumu nui o ka pilikia no ka loaʻa ʻana o ka PSP. Piʻi aʻe kou pilikia o ka loaʻa ʻana o ka PSP ke 60 ou makahiki a ʻoi paha. ʻOi aku ka maʻamau o ke ʻano i nā kāne ma mua o nā wahine.

He aha nā pilikia o ka PSP (Progressive Supranuclear Palsy)?

I ka holomua ʻana o ka PSP, nalowale pinepine ka mana o nā mea maʻi i nā ʻiʻo i loko o ko lākou waha, puʻu, a me ke alelo.

ʻO ka nalowale ʻana o ke kaohi ʻana o nā ʻiʻo puʻu e hiki ai ke paʻakikī ke ale i ka meaʻai a me ka mea inu. Hiki i kēia ke alakaʻi i ka pono no kahi ʻōmole hānai e pale ai i ka paʻa ʻana o ka meaʻai a me nā maʻi umauma.

He nui ka poʻe me PSP i loaʻa nā pilikia me ka hana ʻōpū a me ka ʻōpū mimi. Eia kekahi laʻana:

• Ka paʻa ʻana o ka ʻōpū.
• Paʻakikī i ka mimi ʻana.
• Ka mimi pinepine ʻana i ka pō.
• Ka neʻe ʻana o ka ʻōpū me ka makemake ʻole (ka incontinence o ka ʻōpū).
• Ka hoʻōki ʻana o ka mimi.

Pehea e ʻike ʻia ai ka PSP (Progressive Supranuclear Palsy)?

Hiki i nā kauka ke paʻakikī iki i ka ʻike pololei ʻana i ka PSP. E like me kaʻu i ʻōlelo ai ma mua, hiki ke huikau ʻia me ka maʻi Parkinson, ʻoiai i nā pae mua.ʻAʻohe hoʻāʻo kikoʻī i kēia manawa e hiki ai ke ʻike i ka PSP. Hoʻomaopopo pinepine nā kauka i ka maʻi ma muli o kāu mau hōʻailona a me nā hoʻokolohua kiʻi e lawe i nā kiʻi o kou lolo.

Inā kānalua kāu kauka he PSP kou, e kauoha paha ʻo ia i kahi scan MRI (magnetic resonance imaging) o kou lolo . Hiki i kēia ke kāpae i nā kūlana ʻē aʻe e hiki ke hoʻoulu i kāu mau hōʻailona, ​​​​e like me ka maʻi Parkinson a i ʻole ka hahau ʻana. Eia kekahi, inā hōʻike ka MRI i ka emi ʻana o ka midbrain, hoʻonui ia i ka hiki ke loaʻa iā ʻoe ka PSP.

No ka hoʻomaopopo pololei ʻana i kēia maʻi, pono paha ʻoe e ʻike i kahi neurologist i loea i ka maʻi o Parkinson a me nā maʻi neʻe.

ʻOiai he nui nā hōʻailona o PSP, ʻo ka hōʻailona nui e hōʻoia ana i ka maʻi, ʻo ia ka paʻakikī i ka neʻe ʻana i nā maka i luna a i lalo. ʻO nā hōʻailona maʻamau ʻē aʻe e pili ana i ka hāʻule pinepine ʻana a me ka paʻakikī i ka moni ʻana.

He aha nā lāʻau lapaʻau no ka PSP (Progressive Supranuclear Palsy)?

ʻO ka mea pōʻino, ʻaʻohe lāʻau lapaʻau a lāʻau lapaʻau paha no ka PSP i kēia manawa. Eia nō naʻe, aia kekahi mau lāʻau lapaʻau e hiki ke kōkua i ka kaohi ʻana i kāu mau hōʻailona a hoʻomaikaʻi i kou ʻano ola.

ʻO nā koho lapaʻau e komo pū me:

• Nā lāʻau lapaʻau waha.
• Nā hoʻōla neʻe.
• Nā lāʻau lapaʻau maka.
• ʻO ka gastrostomy endoscopic percutaneous (PEG) - ka hānai ʻana ma o kahi paipu i hoʻokomo ʻia i loko o ka ʻōpū.
• Mālama hoʻomanawanui.

Aia paha he mau hoʻokolohua lapaʻau no PSP hiki iā ʻoe ke komo. E nīnau i kāu hui lapaʻau e pili ana i kēia mau mea.

Nā lāʻau lapaʻau waha

Hiki i nā lāʻau lapaʻau antiparkinsonian ke kōkua i ka kaohi ʻana i nā hōʻailona o PSP. Hiki iā lākou ke hōʻoluʻolu i nā hōʻailona e like me nā pilikia kaulike, ka ʻoʻoleʻa o nā ʻiʻo, ka neʻe lohi, a me nā haʻalulu. Eia naʻe, ʻaʻole like kā lākou hana no nā mea āpau. ʻO nā lāʻau lapaʻau maʻamau no PSP:

• Levodopa (e.g. Atamet®, Rytary®, Sinemet®).
• ʻO Levodopa me nā mea anticholinergic.
• ʻAmantadine (e.g. Symmetrel®).

Hoʻohana ʻia nā lāʻau antidepressant e mālama i ke kaumaha lapaʻau. Hiki i nā kauka ke kuhikuhi i kēia mau mea e kōkua iā ʻoe e hoʻoponopono i nā pilikia olakino noʻonoʻo i hoʻokumu ʻia e PSP. ʻO nā antidepressants i kuhikuhi pinepine ʻia:

• ʻO Fluoxetine (e.g. Prozac®).
• ʻAmitriptyline (e.g. Elavil®).
• ʻImipramine (e.g. Tofranil®).

He ala maikaʻi nō hoʻi ka Psychotherapy (talk therapy) e kōkua ai i nā pilikia olakino noʻonoʻo a me ke ola ʻana me ka maʻi.

Nā lāʻau hoʻoneʻe

Hiki i kēia mau lāʻau lapaʻau ke kōkua i ka hōʻoluʻolu ʻana i kekahi o nā hōʻailona o PSP:

• Hoʻōla kino: Kōkua ka hoʻōla kino i ka hoʻokele ʻana i nā mea e like me ka ʻeha, ka ʻoʻoleʻa, a me ka paʻakikī i ka neʻe ʻana.
• Hoʻōla hana: ʻO kahi mea hoʻōla hana he kanaka nāna e kōkua iā ʻoe e hoʻomaikaʻi i kou hiki ke hana i nā hana o kēlā me kēia lā. Hiki iā lākou ke aʻo iā ʻoe pehea e kū ai, noho ai, neʻe ai a puni, a hoʻohana paha i nā lako like ʻole e hana palekana i kāu hana.
• Hoʻōla ʻōlelo: Kōkua nā mea hoʻōla ʻōlelo i nā kānaka e lanakila ma luna o nā pilikia o ka ʻōlelo a me ke ale ʻana.

Nā lāʻau lapaʻau maka

Hiki i kēia mau lāʻau lapaʻau ke kōkua i nā pilikia maka like ʻole:

• Nā inikini Botox® (botulinum toxin): Inā pilikia ʻoe i ka kaohi ʻana i kou mau lihilihi, hiki i nā inikini Botox ke hoʻomaha i nā ʻiʻo i loko o kou mau lihilihi no kekahi manawa.
• Nā kulu maka a me nā waimaka hana: Hiki i kēia ke kōkua i ka hoʻomaʻū ʻana i kou mau maka inā maloʻo kou mau maka ma muli o ka emi ʻana o ka lubrication maka.
• Nā aniani kūikawā: Kōkua nā aniani kūikawā me nā aniani prism iā ʻoe e ʻike i nā mea ma lalo o kou laina ʻike.
• Nā aniani hoʻopuni: Inā ʻoe e maʻalahi i ka mālamalama ʻālohilohi, ʻo ke kau ʻana i nā aniani ʻeleʻele e hoʻopuni ana i kou mau maka, e like me nā aniani lā, hiki ke hāʻawi i ka hōʻoluʻolu.

ʻO ka Percutaneous Endoscopic Gastrostomy (PEG)

Ke koʻikoʻi ka PSP, hiki paha iā ʻoe ke hōʻea i kahi e hiki ʻole ai iā ʻoe ke ale i kekahi meaʻai a mea inu paha. ʻO ia hoʻi, ʻaʻole hiki iā ʻoe ke ʻai a inu paha. Ma mua o kou hiki ʻana i kēlā manawa, hiki i kāu kauka ke paipai i kahi percutaneous endoscopic gastrostomy (PEG) .

I ka ʻōlelo maʻalahi, ʻo PEG kahi hana kahi e hoʻokomo ai ke kauka lapaʻau i kahi paipu ma o kou ʻōpū i loko o kou ʻōpū. Komo kāu meaʻai, nā lāʻau lapaʻau, a me nā wai i kou kino ma o kēia paipu.

Mālama palekana

He ʻano mālama kūikawā ka mālama palliative e hāʻawi ana i ka hōʻoluʻolu o nā hōʻailona, ​​​​​​ka hōʻoluʻolu, a me ke kākoʻo i ka poʻe e noho ana me nā maʻi koʻikoʻi e like me PSP. Kākoʻo ia ʻaʻole wale i ka mea maʻi, akā, i ko lākou poʻe mālama a me ko lākou ʻohana.

ʻO kēia mālama ma waho aʻe o ka lāʻau lapaʻau āu e loaʻa ai mai kāu mau kauka e kōkua iā ʻoe e hoʻokele i kāu PSP. Hāʻawi ka mālama palliative i ke kākoʻo lapaʻau, pilikanaka, a me ka noʻonoʻo āu e pono ai e noho ʻoluʻolu a hoʻomanawanui i kahi maʻi koʻikoʻi.

He aha ka wānana o ka PSP (Progressive Supranuclear Palsy)? (Manaʻo)

ʻAʻole maikaʻi ka wānana no ka PSP. Hoʻonui ka ʻino o nā hōʻailona i ka hala ʻana o ka manawa, a ʻaʻohe lāʻau lapaʻau i kēia manawa e hoʻohuli a hoʻōki paha i ka PSP. Eia nō naʻe, ʻo ka wikiwiki o kou ʻike ʻia ʻana a hoʻomaka i kahi hoʻolālā lapaʻau, ʻoi aku ka maikaʻi o kou ola.

He nui ka poʻe me PSP e pono ai kahi noho huila. Pono paha lākou i ka mālama manawa hapa a manawa piha paha i loko o ʻekolu a ʻehā mau makahiki o ka maʻi. Eia nō naʻe, ʻokoʻa kēia mai kēlā kanaka a kēia kanaka. I ka hala ʻana o ka manawa, hiki i nā pilikia mai ka PSP ke lilo i mea hoʻoweliweli i ke ola.

He aha ke kūlana o ke ola o kekahi kanaka me ka PSP (Progressive Supranuclear Palsy)?

ʻO ka poʻe me PSP e ola mau no ʻeono a ʻeiwa mau makahiki ma hope o ka hōʻoia ʻana, akā hiki ke loli kēia.

Hoʻonui nā hōʻailona PSP i ka pilikia o ka loaʻa ʻana o ka maʻi pneumonia, kahi mea e make ai. ʻO ke kumu maʻamau o ka make i waena o ka poʻe me PSP ʻo ia ka aspiration pneumonia. ʻO kēia ka wā e komo hewa ai ka meaʻai a me ka mea inu i loko o nā māmā ma o ka windpipe no ka mea ua nāwaliwali nā ʻiʻo o ka puʻu a ʻaʻole i hoʻonohonoho pono ʻia.

Loaʻa i ka poʻe me PSP ka nui o ka pilikia o ka hāʻule ʻana. Hiki i ka hāʻule ʻana ke alakaʻi i nā iwi haki a me nā ʻeha poʻo. ʻO nā hāʻule ʻana e hoʻoulu ai i nā ʻeha koʻikoʻi he kumu maʻamau ia o ka make i waena o ka poʻe me PSP.

Hiki ke pale ʻia ka PSP (Progressive Supranuclear Palsy)?

Ma muli o ka ʻike ʻole o nā kānaka noiʻi i ke kumu o ka PSP, ʻaʻohe ala e pale aku ai i kēia manawa.

Āhea wau e ʻike ai i ke kauka?

Pono ʻoe e ʻike pinepine i kāu hui lapaʻau e nānā i ka holomua o kāu mau hōʻailona a e hōʻoia i ka hana pono ʻana o kāu hoʻolālā lapaʻau.

Inā loaʻa iā ʻoe kekahi mau hōʻailona e hopohopo nei iā ʻoe, e kāhea koke aku i kāu kauka.

He mea paʻakikī ke hoʻomanawanui i ka ʻike ʻana he PSP (Progressive Supranuclear Palsy) kou. E kōkua kāu hui lapaʻau iā ʻoe e hoʻomohala i kahi hoʻolālā hoʻokele hōʻailona pilikino. ʻO ka mea nui loa, ʻo ia ka hōʻoia ʻana e loaʻa iā ʻoe ke kākoʻo āu e pono ai a e noho kālele ana i kou olakino. E hoʻomanaʻo, aia mau kāu hui lapaʻau ma laila e kākoʻo iā ʻoe a me kou ʻohana.

ʻO ka mea hope loa, nā mea nui e hoʻomanaʻo

He maʻi paʻakikī a laha ʻole ka PSP. Eia nō naʻe, he mea nui e makaʻala iā ia, e ʻike mua i nā hōʻailona, ​​a e ʻimi i ke aʻo lapaʻau kūpono a me ka mālama ʻana.

• E hoʻomaopopo i nā hōʻailona mua: E nānā i nā mea e like me ka paʻakikī i ka hele wāwae, ka nalowale o ke kaulike, a me ka paʻakikī i ka nānā ʻana i lalo.
• E ʻimi i ke kōkua lapaʻau: Inā kānalua, e ʻike i kahi neurologist no ka hoʻokolokolo ʻana.
• E hoʻomau i ka mālama ʻana: ʻOiai ʻaʻole hiki ke ho'ōla ʻia ka maʻi, aia nā lāʻau lapaʻau e kāohi i nā hōʻailona a hoʻomaikaʻi i ke ʻano o ke ola.
• E noʻonoʻo i kou olakino noʻonoʻo: He mea nui e noho ikaika i ka noʻonoʻo i ka wā e noho ana me kahi maʻi e like me kēia. E ʻimi i ke aʻo ʻana inā pono.
• E makaʻala i nā lawelawe kākoʻo: Hiki i ka hoʻoikaika kino, ka hoʻoikaika hana, ka hoʻoikaika ʻōlelo, a me ka mālama palliative ke kōkua iā ʻoe.

Manaʻolana wau he kōkua kēia ʻike iā ʻoe. Inā ʻoe a i ʻole kahi mea aloha e kū nei i kēia pilikia, mai ʻeha hoʻokahi. Me ke kākoʻo lapaʻau kūpono a me ka mālama ʻana i nā mea aloha, hiki iā ʻoe ke kū i kēia pilikia.

ʻO PSP, Progressive Supranuclear Palsy, Maʻi lolo, Maʻi Neurological, Parkinson's, Nā Maʻi Neʻe, Kaulike