Ke keʻokeʻo nei nā maka o kāu keiki liʻiliʻi? He Retinoblastoma paha ia?

Ua ʻike anei ʻoe he wahi keʻokeʻo ko nā maka o kāu keiki liʻiliʻi i loko o ke apo ʻeleʻele, e like me nā maka o ka pōpoki e ʻālohilohi ana i ke kiʻi? A i ʻole ke ʻano o kekahi maka e like me ke kīkoʻo iki ʻana i kekahi? Hiki i kēia ke ʻoi aku ma mua o nā mea liʻiliʻi wale nō. I kēia lā e kamaʻilio mākou e pili ana i kahi mea e like me ia, ʻoiai ke ʻano o ka maʻi ʻaʻai maka e loaʻa ana i nā keiki ʻōpio. ʻO kēia ka mea a nā kauka e kapa nei he `(Retinoblastoma)`. Mai hopohopo, e kamaʻilio mākou e pili ana i nā mea āpau ma nā ʻōlelo maʻalahi.

He aha maoli ka `(Retinoblastoma)`?

I ka ʻōlelo maʻalahi, ʻo `(Retinoblastoma)` kahi ʻano maʻi kanesa e hoʻomaka ana ma ka papa o nā cell i ʻike i ka mālamalama ma ke kua o ko kākou maka. Kāhea pū mākou i kēia papa ʻo retina. Hana ia e like me ke kiʻiʻoniʻoni i loko o kahi kāmela, ʻo ke kiʻi o ka mea a kākou e ʻike ai ua hoʻopaʻa mua ʻia ma ʻaneʻi. No laila, ʻo `(Retinoblastoma)` ke ʻano maʻamau o ka maʻi kanesa maka i nā keiki ʻōpio.

Hiki iā ia ke hoʻopilikia i hoʻokahi maka wale nō, akā hiki i kekahi mau keiki ke loaʻa nā maka ʻelua. Ma ke ʻano helu, ma kahi o hoʻokahi o ka ʻehā o ka poʻe me ka retinoblastoma e loaʻa nā maka ʻelua. Manaʻo nā kauka ua hana ʻia ia e kahi hana hewa i loko o nā ʻōpio, e ulu ana nā pūnaewele i loko o ka retina. ʻO ka hapa nui o ka manawa, ma kahi o ʻehā o ka ʻelima mau keiki i ʻike ʻia me ka maʻi ma mua o ko lākou ʻekolu makahiki. Eia naʻe, he mea kakaikahi loa, hiki i nā pākeke ke loaʻa ka retinoblastoma. Pehea ʻoe e ʻike ai? Hana ʻia ia i ka wā e hiamoe ai kahi puʻupuʻu liʻiliʻi i hoʻomaka i ka wā kamaliʻi a laila hoʻomaka koke e ulu hou ma hope o nā makahiki he nui.

Aia kekahi mau ʻano nui o ka `(Retinoblastoma)`?

ʻAe, hiki ke loaʻa ka `(Retinoblastoma)` ma nā ʻano nui ʻekolu:

• Unilateral Retinoblastoma: E like me ka inoa e hōʻike nei (ʻo Uni ke ʻano o hoʻokahi, a ʻo lateral ke ʻano o ka ʻaoʻao), hoʻokahi wale nō maka e hoʻopilikia ai kēia ʻano.
• ʻO Bilateral Retinoblastoma: I kēia hihia (ʻo ke ʻano o 'Bi' ʻelua), hoʻopilikia ka maʻi ʻaʻai i nā maka ʻelua o ke keiki.
• ʻO Trilateral Retinoblastoma: He ʻoi aku ka paʻakikī o kēia. ʻO Tri ke ʻano o ʻekolu. Maanei, aia ka maʻi kanesa ma nā maka ʻelua, a eia kekahi, aia ka maʻi kanesa ma kahi ʻekolu, kahi gland liʻiliʻi i loko o ka lolo, i kapa ʻia ʻo ka pineal gland. Ua kapa ʻia hoʻi kēia he pineoblastoma.

ʻO ka hapa nui o ka manawa, ma kahi o 60% o nā maʻi retinoblastoma he ʻano unilateral, ka mea e hoʻopilikia ai i hoʻokahi maka wale nō. ʻO ke koena 40% he ʻano bilateral a me trilateral, ka mea e hoʻopilikia ai i nā maka ʻelua.

Pehea ka maʻamau o kēia maʻi i kapa ʻia ʻo "Retinoblastoma"?

ʻO ka ʻoiaʻiʻo, he ʻano maʻi kanesa kakaikahi loa ka "(Retinoblastoma)".Inā ʻoe e lawe i hoʻokahi miliona mau keiki ma lalo o 20 mau makahiki, ma kahi o 3.3 o lākou e loaʻa ana i kēia. Ma kahi ʻāina e like me ʻAmelika, ma kahi o 300 mau hihia hou i hōʻike ʻia i kēlā me kēia makahiki. Inā ʻoe e lawe i ke ao holoʻokoʻa, ma kahi o 9,000 mau hihia hou i hōʻike ʻia i kēlā me kēia makahiki. No laila, ʻaʻole kēia he mea maʻamau loa.

He aha nā hōʻailona o ka `(Retinoblastoma)`? Pehea mākou e ʻike ai?

Hoʻomaopopo pinepine ʻia kēia ma mua o ka piha ʻana o ke keiki i 3 mau makahiki, no ka mea, ʻaʻole ʻike nā keiki liʻiliʻi pehea e hōʻike ai i ko lākou mau pilikia. No laila, ma ke ʻano he mau mākua, pono mākou e makaʻala loa i nā loli i ʻike ʻia ma nā maka o ke keiki a me nā loli i ke ʻano o ke keiki.

Leukocoria - hoʻokuʻu keʻokeʻo

ʻO kēia ka hōʻailona mua a maʻamau o ka `(Retinoblastoma)`. ʻO `(Leukocoria)` ka wā e ʻike ʻia ai ka pupil o ka maka i kekahi manawa he keʻokeʻo a mālamalama paha, ʻoiai ke kiʻi ʻana i kahi kiʻi me ke kukui uila i kahi pouli. Ua like ia me nā maka o ka pōpoki e ʻālohilohi ana i ka pō. Hiki ke hana kēia ma kekahi maka a i ʻole ma nā maka ʻelua.

E noʻonoʻo ua kiʻi ʻoe i kahi kiʻi o kāu pēpē i kona lā hānau, me ke kukui uila e ʻā ana. Ma hope, ke nānā ʻoe i ke kiʻi, ʻike ʻoe ua ʻālohilohi ke keʻokeʻo ka iris ʻeleʻele o kekahi maka, a ʻo ka maka ʻē aʻe he ʻulaʻula e like me ka mea maʻamau (hopena maka ʻulaʻula). ʻO kēlā ʻano keʻokeʻo ua kapa ʻia ʻo `(Leukocoria)`. Inā ʻike ʻoe i kekahi mea e like me ia, pono ʻoe e hōʻike koke i ke kauka.

Nā hōʻailona ʻē aʻe o ka `(Retinoblastoma)`

Ma waho aʻe o ka `(Leukocoria)`, aia kekahi mau hōʻailona ʻē aʻe e hōʻike ana i kēia maʻi:

• Strabismus (maka kea): I kekahi manawa, ke nānā pololei kekahi maka i mua, e huli paha kekahi maka i loko a i waho paha.
• Ka paʻakikī i ka nānā ʻana i kahi mea e neʻe ana, a i ʻole ka nānā ʻole ʻana iā ia.
• ʻEha maka: ʻAʻole hiki i nā keiki liʻiliʻi ke haʻi aku iā ʻoe i kēia. No laila , e uē pinepine paha lākou ma mua o ka maʻamau, hōʻole e ʻai, pilikia i ka hiamoe, a hoʻomaha mau i ka manawa āpau.
• ʻIke ʻia kekahi maka he nui aʻe ma mua o kekahi (`Buphthalmos`).
• Maka e ʻō aku ana ('Proptosis').
• He ʻūpā koko ma ke alo o ka maka (`Hyphema`).
• Ka pehu ʻana, ka ʻulaʻula, a me ke ʻano o ka maʻi o nā ʻiʻo a puni ka maka ('Orbital cellulitis').

Inā ʻike ʻoe i kekahi a ʻoi aku paha o kēia mau hōʻailona i kāu keiki, mai hoʻowahāwahā iā ia. E ʻike i kahi kauka keiki a kauka maka paha i ka hikiwawe loa.

No ke aha e ulu ai kēia `(Retinoblastoma)`? He aha nā kumu o kēia?

He ʻano maʻi kanesa ka `(Retinoblastoma)`. I ka ʻōlelo maʻalahi, ʻo ke kanesa ka wā e lilo ai kekahi mau ʻāpana i loko o ko kākou kino i hana pono ʻole a hoʻomaka e māhele wikiwiki a me ke kāohi ʻole ʻia.ʻO kēia mahele ke kumu o ka hoʻokumu ʻana o nā puʻupuʻu, e hōʻino ana i nā ʻiʻo olakino a puni. Inā hoʻomau kēia mau hunaola kanesa i ka ulu ʻana ma waho o ke kaohi, hiki iā lākou ke laha i nā ʻāpana ʻē aʻe o ke kino mai kahi i hoʻomaka mua ai lākou. Ua kapa ʻia kēia he metastasis.

No laila, ʻo ke kumu nui o ka ulu ʻana o `(Retinoblastoma)` he hewa i loko o kā mākou mau genes (`DNA`).

ʻO ka ʻokoʻa ma ka ``(DNA)`` ka hoʻomaka

Hoʻohana kā mākou mau pūnaewele i ka "DNA" e like me nā meaʻai i loko o kahi puke kuke. Loaʻa iā mākou kā mākou "DNA" mai ko mākou makuahine a me ko mākou makuakāne. ʻO ia hoʻi, lawe mākou i nā ʻāpana o kā lākou mau puke meaʻai a hana i kā mākou puke meaʻai ponoʻī.

Akā i kekahi manawa, hiki ke loaʻa kahi hewa i loko o kēia `(DNA)`, e like me kahi leka i loko o kēlā meaʻai i kākau hewa ʻia. ʻIke wale kā mākou mau cell pehea e hana ai i ka meaʻai e like me ia ma ka puke. No laila, inā he hewa i loko o `(DNA)`, ʻike pū nā cell pehea e hana hewa ai. ʻO ia ke kumu e ulu ai kekahi mau cell ma waho o ke kaohi a lilo i maʻi kanesa.

Paipai nā kauka i nā keiki me ka retinoblastoma, inā he hoʻoilina a ʻaʻole paha, e loaʻa i ka hoʻāʻo genetic a me ke aʻo ʻana. Paipai pū lākou i nā kaikaina o ke keiki a me nā lālā ʻohana ʻē aʻe e hana i kēia mau hoʻokolohua.

ʻO ka mutation e hoʻoulu ai i ka Retinoblastoma e hoʻopilikia i ka gene i kapa ʻia ʻo RB1. He gene hoʻopau tumor kēia. ʻO nā genes hoʻopau tumor e like me ka ʻōnaehana braking i loko o ko mākou kino. Hoʻomalu lākou i ka mahele cell a me ka ulu ʻana. No laila, inā he mutation i loko o ka gene RB1, me he mea lā ʻaʻole hana ka braking. A laila ulu nā cell i loko o ka retina me ka hiki ʻole ke kāohi a hana i kahi tumor. I kekahi manawa, ʻoiai inā ua holoi loa ʻia (holoi ʻia) ka ʻāpana o ka chromosome i kapa ʻia ʻo 13p nona ka gene RB1, hiki i ka Retinoblastoma ke ulu.

I kekahi manawa, hiki i kekahi poʻe ke loaʻa i kahi puʻupuʻu maikaʻi i kapa ʻia ʻo `(Retinoma)` i loko o ka retina. Ua like kēia me nā mea mua o `(Retinoblastoma).` Akā no kekahi kumu, ua pau kēia mau mea i ka ulu ʻana. Eia naʻe, ma hope, hiki i kēia `(Retinoma)` ke hoʻomaka hou e ulu a lilo i `(Retinoblastoma).`

ʻElua ala nui e loaʻa ai nā hewa i loko o ka `(DNA)`:

• Nā hoʻololi sporadic: Hana ʻia kēia i ka wā e hana hewa ai kahi cell i ka wā e kope ana i ka DNA mai kona mau mākua. Ua like ia me kekahi e hana hewa ana i ka wā e kākau lima ai lākou i kahi meaʻai. Maikaʻi ke ʻano hana mua, akā he hewa ke ʻano hana hou. ʻO kēia ʻano retinoblastoma sporadic ka mea maʻamau e hoʻopilikia wale i hoʻokahi maka.
• Nā hoʻololi hoʻoilina:ʻO ka mea e hana ʻia ma ʻaneʻi, ʻo ka makuahine a i ʻole ka makuakāne, a i ʻole ʻelua, he kīnā i loko o kēia `(DNA)`. A laila, ke loaʻa i ke keiki kahi kope o kēlā `(DNA)`, hele mai ia me kēlā kīnā mua. ʻO ka hoʻololi ʻana o ka genetic e pili ana i ka `(Retinoblastoma)` ua hoʻoilina ʻia ma ke ʻano i kapa ʻia ʻo `(Autosomal dominant inheritance`. ʻO ia hoʻi, inā loaʻa i kekahi o nā mākua kēia hoʻololi ʻana o ka genetic, he 50% ka manawa e loaʻa ai i ke keiki. Inā loaʻa i nā mea ʻelua, aia ma kahi o 75% ka manawa. Eia naʻe, i kekahi manawa, ʻoiai inā ʻaʻohe `(Retinoblastoma)` o nā mākua, hiki i ke keiki ke loaʻa i ka `(Retinoblastoma)` ma o ka hoʻoilina. ʻO ke kumu o kēia, ʻo kekahi poʻe he `mea lawe` o kēia hoʻololi ʻana o ka genetic. ʻO ia hoʻi, ʻoiai he loaʻa iā lākou ka hoʻololi ʻana i loko o ko lākou kino, ʻaʻole lākou e loaʻa i ka maʻi.

Inā ulu ka "Retinoblastoma" ma muli o kahi hoʻololi hoʻoilina i hoʻoilina ʻia, ʻo ia ke ʻano "Bilateral", ka mea e hoʻopilikia ai i nā maka ʻelua. I kekahi manawa, hiki ke hana ʻia ma ke ʻano he "Unilateral", ka mea e hoʻopilikia ai i hoʻokahi maka wale nō.

ʻOi aku ka nui o ka pilikia o ka loaʻa ʻana o ka maʻi i nā hoahānau o ke keiki me ka retinoblastoma. Inā loaʻa ka retinoblastoma i nā mākua ʻelua, ʻo ka pilikia no nā hoahānau o ke keiki i hoʻopilikia ʻia ma waena o 4% a me 7%.

He aha nā pilikia ʻē aʻe e hiki ke hana ma muli o ka `(Retinoblastoma)`?

Hiki i ka Retinoblastoma ke hōʻino i nā ʻiʻo a puni ka maka, a hiki ke alakaʻi i ka nalowale hapa a piha paha o ka ʻike ma ka maka i hoʻopilikia ʻia.

No ka mea he maʻi kanesa kēia, aia ka pilikia o ka laha ʻana o nā pūnaewele `(Retinoblastoma)` (`metastasizing`) i nā ʻāpana ʻē aʻe o ke kino. Inā pālahalaha ia, e lilo ke kūlana i mea weliweli loa. No laila, ʻo kekahi o nā pahuhopu nui o ka mālama ʻana, ʻo ia ke pale ʻana i kēia laha ʻana. ʻO ke ala weliweli loa no kēia maʻi kanesa e laha mai ka maka ma ke aʻalolo optic a i ka lolo. A laila hoʻomaka hou ia ma ke ʻano he maʻi kanesa lolo.

ʻO nā hoʻololi genetic e hoʻoulu ai i ka retinoblastoma e hoʻonui pū i ka pilikia o ka hoʻomohala ʻana i nā ʻano maʻi ʻē aʻe ma hope o ke ola. Aia ma kahi o 1% ka pilikia o ka hoʻomohala ʻana i kahi maʻi ʻaʻai hou i kēlā me kēia makahiki (no ka laʻana, he 20% ka pilikia ma luna o 20 mau makahiki).

ʻO nā ʻano maʻi ʻē aʻe e hiki ke hana pinepine ʻia:

• ʻO Sarcomas: He mau maʻi ʻaʻai kēia e hoʻopilikia ai i ka iwi a me nā ʻiʻo pili.
• Melanomas: He mau maʻi ʻaʻai kēia e hoʻopilikia i nā wahi e like me ka ʻili, nā maka, a me nā membrane mucous i loko o ka waha a me ka ihu.
• Nā maʻi ʻaʻai māmā: Ma muli o ka ʻōnaehana paʻakikī o nā kīʻaha koko i loko o nā māmā, hiki i nā maʻi ʻaʻai e ulu ana ma ʻaneʻi ke laha maʻalahi i nā wahi ʻē aʻe o ke kino.

Pehea e ʻike ai nā kauka i ka `(Retinoblastoma)`? (Diagnosis)

ʻO ka hapa nui o ka manawa, ʻo nā mākua (a i ʻole nā ​​mea mālama) ka mea mua e ʻike i nā kiko keʻokeʻo i kapa ʻia ʻo "Leukocoria". I ka ʻike koke ʻana, haʻi lākou i ke kauka pediatric o ke keiki. A laila hoʻāʻo ke kauka e hōʻoia. I kekahi manawa, hiki i nā kauka ke ʻike i kēia "Leukocoria" i ka wā o nā hoʻokolohua e nānā ana i ka ulu maʻamau o ke keiki.

Inā ʻike kekahi kauka keiki i ka "Leukocoria", ʻo ka hana aʻe, ʻo ia ke kuhikuhi koke i ke keiki i kahi kauka maka a i ʻole kekahi loea mālama maka. E hoʻāʻo kekahi kauka maka e nānā pololei i loko o ka maka e ʻike inā he puʻupuʻu "Retinoblastoma". I ka nānā ʻana i nā maka o nā keiki ʻōpio, i kekahi manawa pono e kau i nā "kulu lāʻau lapaʻau e hoʻonui i nā haumāna" a i ʻole e hāʻawi i ke keiki i ka anesthesia e nānā i nā maka.

He aha ka hana a nā hoʻokolohua scan?

Eia kekahi, he mea hiki ke hana ʻia nā scan. Hiki ke hoʻohana ʻia kēia mau scan e ʻike inā he mau puʻupuʻu e paʻakikī ke ʻike ma ka maka ʻē aʻe, a inā he mau puʻupuʻu i loko o ka lolo e like me ka "Pineoblastoma".

ʻO nā ʻano scan i hoʻohana pinepine ʻia:

• ʻO ke scan Ultrasound: Hōʻike kēia scan i nā hōʻiliʻili calcium, kahi i ʻike pinepine ʻia ma retinoblastoma.
• ʻO ka CT Scan ('Computed Tomography (CT) scan'): Loaʻa i ka '(Retinoblastoma)' nā waihona calcium, no laila hiki ke ʻike maopopo ʻia ma nā CT scan.
• ʻO ke kiʻi MRI (Magnetic Resonance Imaging (MRI) scan): ʻO kēia ke kiʻi maikaʻi loa no ka lawe ʻana i nā kiʻi kikoʻī o nā ʻiʻo like ʻole a me nā ʻano i loko o ke kino. He manawa iki a he pipiʻi. No laila, ʻaʻole pinepine ia ka hoʻāʻo mua i hana ʻia. Eia nō naʻe, he mea nui loa ia e ʻike pono i ka mamao o ka laha ʻana o kahi puʻupuʻu a inā he mau puʻupuʻu ʻē aʻe ma ka maka a i ʻole ka lolo ʻē aʻe.
• ʻO ka nānā ʻana o ka PET (Positron Emission Tomography (PET) scan): Hiki ke hana ʻia kēia hoʻāʻo i ka wā mua o ke kaʻina hana hōʻoia a me ka mālama ʻana a i ʻole ma hope. He mea pono loa ia e ʻike inā ua pālahalaha ka puʻupuʻu (metastasized) i nā wahi ʻē aʻe a i ʻole inā ua hana ʻia nā puʻupuʻu hou ma kahi ʻē.

He aha nā lāʻau lapaʻau no ka `(Retinoblastoma)`?

Aia kekahi mau ʻano e mālama ai i ka `(Retinoblastoma)`. ʻO ka hapa nui, pili ka mālama ʻana i ka hui pū ʻana o kekahi mau ʻano. Hiki ke hana ʻia i ka manawa like a i ʻole kekahi ma hope o kekahi. ʻO nā ʻano lapaʻau nui:

• ʻO Chemotherapy: Pili kēia i ka hoʻohana ʻana i nā lāʻau lapaʻau e hoʻouka pololei i nā hunaola kanesa. Hiki i kēia ke kōkua i kekahi manawa i ka pale ʻana i ke ʻoki kino, kahi e alakaʻi ai i ka makapō . Hiki iā ia ke hoʻēmi i nā puʻupuʻu, e maʻalahi ai i nā lāʻau lapaʻau ʻē aʻe ke pepehi i nā hunaola kanesa i koe. Hiki ke hāʻawi ʻia kēia mau lāʻau chemotherapy ma kahi kūloko, ʻo ia hoʻi ke hoʻokomo pololei ʻia i loko o ka maka (nā inikini i kuhikuhi ʻia), a i ʻole intraarterially, ʻo ia hoʻi ke hāʻawi ʻia i loko o kahi aʻa (intravenous (IV) infusion). ʻO ke ʻano o ka hāʻawi ʻana iā lākou ma muli o ke kūlana a me nā pono o ke keiki.
• Hoʻōla radiation:Hoʻohana kēia i ka ikehu alapine kiʻekiʻe e luku i nā hunaola kanesa. Hiki ke hana ʻia kēia mai waho o ke kino, e like me ka radiation therapy beam waho (EBRT), a i ʻole mai loko mai o ke kino, e like me ka brachytherapy. Eia nō naʻe, pale pinepine ʻia kēia ʻano lapaʻau ma muli o ka pilikia o nā pilikia lōʻihi.
• Nā lāʻau lapaʻau Focal: Ua kapa ʻia kēia mau mea no ka mea "e kālele ana" lākou a luku wale i nā hunaola kanesa. Hiki iā lākou ke hoʻohana i ka thermotherapy, ka mea e hoʻohana ana i ka wela kiʻekiʻe, a i ʻole ka laser therapy, ka mea e hoʻohana ana i ke anu kiʻekiʻe.
• ʻOki kino: ʻO ke ʻoki kino ka mea e hana ʻia ai ke loaʻa ka pilikia o ka laha ʻana o ka retinoblastoma. Hoʻokomo pinepine kēia i ka wehe piha ʻana o ka maka (enucleation). Pale kēia i ka laha hou ʻana o ke kanesa. I ka manawa e hana ʻia ai kēia ʻoki kino, ua nalowale paha ka ʻike o ka maka i hoʻopilikia ʻia.
• Nā lāʻau lapaʻau a me nā ʻano lapaʻau ʻē aʻe: Hiki ke ʻokoʻa loa kēia mau mea. I ka manawa pinepine, kōkua kēia i ka kaohi ʻana i nā hopena ʻaoʻao o nā lāʻau lapaʻau ʻē aʻe. No ka laʻana, nā lāʻau lapaʻau e mālama ai i ka nausea a me ka luaʻi i hoʻokumu ʻia e ka chemotherapy. Nui nā ʻano lāʻau lapaʻau kākoʻo, no laila e hiki i kāu kauka ke aʻo iā ʻoe i nā mea maikaʻi loa no kāu keiki.

He aha ka mea e hana ʻia inā loaʻa i kaʻu keiki kēia maʻi? He aha ka wā e hiki mai ana?

ʻO ka wānana no ke keiki me ka retinoblastoma e hilinaʻi nui ʻia i ka wikiwiki o ka ʻike ʻia ʻana o ka maʻi a me ka hoʻomaka ʻana o ka lāʻau. Eia nō naʻe, ma ke ʻano laulā, kiʻekiʻe loa ka manawa e hoʻōla ai. 95% o nā maʻi retinoblastoma pediatric e hoʻōla piha. Inā ʻike ʻia ka maʻi ma mua o 2 mau makahiki o ke keiki, kiʻekiʻe ka manawa e loaʻa ai kahi hopena maikaʻi me ka ʻole o ka nalowale o ka ʻike.

Pono ka poʻe e ho'ōla ʻia mai ka retinoblastoma i ka nānā ʻana no ke ola holoʻokoʻa e nānā i nā puʻupuʻu hou. ʻO ka maʻamau, pili kēia i nā scan makahiki a me nā hoʻokolohua ʻē aʻe e nānā i nā puʻupuʻu hou. E haʻi aku kāu kauka iā ʻoe i nā hoʻokolohua e pono ai kāu keiki.

Aia kekahi ala e pale aku ai i ka ulu ʻana o `(Retinoblastoma)`?

Hoʻokumu ʻia ka Retinoblastoma e kahi hoʻololi genetic. No laila, ʻaʻohe ala e pale loa ai. Eia nō naʻe, inā ua loaʻa i kekahi o kou ʻohana ka Retinoblastoma, a i ʻole ʻike ʻoe he hoʻololi genetic kou e hoʻokumu ai, hiki i ke aʻo ʻana i ka genetic ke kōkua iā ʻoe e hoʻomaopopo i ka pilikia o ka hoʻoili ʻana i kēlā gene i kāu keiki ke loaʻa iā ʻoe kahi keiki.

Āhea wau e kamaʻilio ai me ke kauka e pili ana i ka `(Retinoblastoma)`?

Pili i ka ``(Retinoblastoma)`` i nā maka o kāu keikiInā ʻike ʻoe i kekahi mau hōʻailona a i ʻole nā ​​loli i kou ʻike, e ʻike koke i ke kauka. Eia kekahi, inā he moʻolelo ʻohana kou a i ʻole kāu hoa no ka `(Retinoblastoma)`, a inā ʻike ʻoe he `(RB1)` gene mutation kou, he manaʻo maikaʻi e noʻonoʻo i ke aʻo ʻana i nā ʻano ma mua o ka loaʻa ʻana o nā keiki.

Nā mea nui e ʻike ai inā ua loaʻa i kekahi o kou ʻohana ka "(Retinoblastoma)"

Inā ua loaʻa i kekahi o kou ʻohana ka maʻi ʻo `(Retinoblastoma),` he mea nui loa ia no kāu keiki a me ke koena o kou ʻohana e hana i nā hoʻokolohua maka maʻamau. ʻO ka gene ``(RB1)`` e hoʻoulu ai i ka ``(Retinoblastoma)`` hiki ke hoʻoulu i kahi ʻano ʻōpū maka maikaʻi ʻole i kapa ʻia ʻo ``(Retinocytoma).``(Retinocytoma)``` hiki ke ulu i loko o nā kānaka o kēlā me kēia makahiki.

He mea hoʻololi ola ka loaʻa ʻana o kahi hōʻailona maʻi kanesa. Akā, e noho me ka manaʻolana. Ke ʻimi mau nei nā kānaka noiʻi a me nā kauka i nā lāʻau lapaʻau hou a maikaʻi hoʻi e hoʻonui ai i nā manawa e ola ai nā keiki me kēia ʻano maʻi kanesa. Inā loaʻa i kāu keiki ka retinoblastoma, makemake paha ʻoe e noʻonoʻo e komo i kahi hoʻokolohua lapaʻau e ʻike i nā lāʻau lapaʻau hou. Eia kekahi, e nīnau i kāu kauka e pili ana i nā hui kākoʻo no nā maʻi kanesa a me ko lākou mau ʻohana. He nui nā mākua a me nā ʻohana e ʻike nei i kēia mau hui he kumu nui o ka ikaika, ka wiwo ʻole, a me ka manaʻolana.

ʻO ka mea nui a mākou e makemake ai e lawe i ka home mai kēia moʻolelo (Leka Lawe-Home)

ʻAe, ua kamaʻilio nui kākou e pili ana i ka `(Retinoblastoma)` i kēia lā, ʻeā? Eia kekahi o nā mea nui e hoʻomanaʻo ai:

• Inā ʻike ʻoe i kahi kiko keʻokeʻo ma ka maka o kāu keiki liʻiliʻi (ʻoi aku hoʻi i nā kiʻi flash), a inā paha ua piholo nā maka, mai hoʻowahāwahā. E ʻike koke i ke kauka.
• He maʻi laha ʻole ka Retinoblastoma akā hiki ke ho'ōla loa ʻia inā ʻike mua ʻia.
• Aia kekahi mau koho lapaʻau, a na nā kauka e koho i ka mea kūpono loa i kāu keiki.
• Inā ua loaʻa i kekahi o kou ʻohana kēia maʻi, e noʻonoʻo i ke aʻo ʻana i nā genetics a me nā hoʻokolohua maka maʻamau.
• Mai hopohopo, ʻaʻole ʻoe hoʻokahi. Nui nā wahi a me nā kānaka e huli ai no ke kōkua i ka manawa e like me kēia.

Manaʻolana wau he mea pono kēia ʻike iā ʻoe. Makemake wau iā ʻoe a me kāu pēpē i ke olakino maikaʻi!

ʻO Retinoblastoma, maʻi ʻaʻai kamaliʻi, maʻi ʻaʻai maka, leukocoria, retina, nā hoʻololi genetic, gene RB1