Inā haʻi aku ke kauka iā ʻoe he ʻano ʻē ko kāu pēpē ma ka ʻaoʻao haʻahaʻa o kona kino, ʻo ia hoʻi, ma ke kua haʻahaʻa, ma nā wāwae, a i ʻole ma nā ʻōnaehana fecal a me urinary, e pūʻiwa loa kekahi makuahine a makuakāne paha e lohe ana. Ua lohe paha ʻoe i ka inoa ʻo 'Caudal Regression Syndrome'? He ʻano lapaʻau kakaʻikahi kēia, akā he mea nui e makaʻala. I kēia lā, e kamaʻilio maʻalahi mākou e pili ana i kēia, ma ke ʻano hiki iā ʻoe ke hoʻomaopopo.
He aha ka Caudal Regression Syndrome?
I ka ʻōlelo maʻalahi, he ʻano laha ʻole kēia i loaʻa i ka wā hānau (he kīnā hānau). I loko o ko mākou kino, ʻo ke ʻano o 'caudal' i ka huelo, ʻo ia hoʻi ka ʻāpana haʻahaʻa loa o ke kino. ʻO ke ʻano o 'Regression' he lohi o ka ulu ʻana a i ʻole ka regression. No laila, ʻo ka mea e hana ʻia ma kēia ʻano, ʻaʻole e ulu pono ka ʻāpana haʻahaʻa o ke kino i ka wā e ulu ana ka pēpē i loko o ka ʻōpū.
Hiki i kēia ke hoʻopilikia i nā ʻōnaehana kino he nui, me ke kua haʻahaʻa, ke kaula kuamoʻo, nā wāwae, ke ala ʻai haʻahaʻa (nā ʻōpū, rectum), a me ke ala mimi (nā puʻupaʻa, ka ʻōpū mimi). I kekahi manawa ua kapa ʻia kēia maʻi ʻo 'sacral syndrome'.
He aha nā kumu o kēia kūlana?
ʻAʻole hiki i nā kauka ke loaʻa i hoʻokahi kumu paʻa 100% no kēia maʻi. Eia nō naʻe, ua manaʻoʻiʻo ʻia i kēia manawa he hui pū ʻana o nā kumu kaiapuni a me nā kumu hoʻoilina ke kuleana i ke kumu o kēia maʻi. E nānā kākou i nā kumu nui i manaʻo ʻia.
| Mea hoʻohuli mana | He wehewehe maʻalahi |
|---|---|
| Ke kūlana olakino o ka makuahine | ʻOiai inā ʻaʻole i kāohi maikaʻi ʻia ka maʻi diabetes o ka makuahine i ka wā hāpai, hiki i ke kiʻekiʻe o ke kō koko ke hoʻopilikia i ka ulu ʻana o ka pēpē i loko o ka ʻōpū. Eia naʻe, ʻaʻole hiki mai kēia ʻano i nā pēpē a pau o nā makuahine me ka maʻi diabetes. Hiki nō hoʻi ke loaʻa i nā pēpē a nā makuahine me ka ʻole o ka maʻi diabetes. Ke hana ʻia nei ka noiʻi ʻana ma kēia pilina. |
| Nā Kumu Hoʻoilina | Aia kekahi manaʻo e hiki ke kumu o kēia ma muli o nā mana hoʻoilina. ʻO ia hoʻi, ʻo kekahi ʻano like ʻole o nā genes i hoʻoili ʻia ma o nā hanauna ke kumu. |
| Nā pilikia i nā wā mua o ka embryo | I ka malama mua o ka hāpai ʻana, hoʻomaka ke ʻano o nā ʻōnaehana kino o ka pēpē. ʻO kekahi hopena a pilikia paha i loko o ka ʻōpū i loko o kēia manawa hiki ke hoʻopilikia i ka ulu ʻana o nā iwi o ka pēpē, ka ʻōnaehana hoʻoheheʻe, a me ka ʻōnaehana mimi. |
| Nā maʻi hoʻolako koko | ʻO kekahi manaʻo ʻē aʻe, ua hoʻokumu ʻia kēia ʻano ma muli o ka emi ʻana o ke kahe koko i ke kino haʻahaʻa o ka pēpē e ulu ana i loko o ka ʻōpū. ʻO ka emi ʻana o ka oxygen a me nā meaʻai mai ke koko e hoʻopilikia i ka ulu ʻana. |
| Nā pilikia me nā ʻiʻo fetal | I nā pule mua o ka ulu ʻana o kahi pēpē, aia ʻekolu mau papa nui o nā ʻiʻo. ʻO ka papa waena o nā ʻiʻo, i kapa ʻia ʻo mesoderm, hāʻawi i nā iwi he nui, nā ʻiʻo, a me nā puʻupaʻa ma ke kino haʻahaʻa. No laila, manaʻo nā kānaka ʻepekema inā he pilikia i ka ulu ʻana o kēia mesoderm, hiki ke hana ʻia kēia ʻano. |
He aha nā hiʻohiʻona nui e ʻike ʻia?
ʻAʻole like nā hōʻailona o nā keiki a pau me kēia maʻi. Loaʻa paha i kekahi mau keiki nā hōʻailona palupalu loa, aʻo kekahi poʻe he mau pilikia koʻikoʻi paha. E nānā kākou i kekahi o nā hōʻailona maʻamau.
| ʻĀpana kino i hoʻopilikia ʻia | Nā hiʻohiʻona i ʻike ʻia |
|---|---|
| iwi kuamoʻo | ʻO ka scoliosis kahi maʻi i nalowale ai a i ʻole kū ʻole ke ʻano o nā iwi kua ma ke kua haʻahaʻa. Hiki i kēia ke hoʻopilikia i ke ʻano o ka umauma a hoʻoulu i nā pilikia hanu. |
| Kino haʻahaʻa | Nā iwi ʻūhā liʻiliʻi, nā puʻupuʻu pālahalaha. Ka ulu ʻana o nā iwi wāwae ma ke ʻano ʻē. Ua huli nā kuli i kēlā me kēia ʻaoʻao a i ʻole nā wāwae i hoʻohuli ʻia i loko/i waho. Ka nalowale ʻana o ka ʻike ma nā wāwae. |
| Nā puʻupaʻa a me ka ʻōnaehana urinary | Ua nalowale kekahi a i ʻole nā puʻupaʻa ʻelua, a ua pili pū nā puʻupaʻa ʻelua. Hiki i kēia ke alakaʻi i nā maʻi pinepine o ke ala mimi a i ʻole ka hāʻule ʻana o nā puʻupaʻa. Paʻakikī ke kāohi i ka mimi ma muli o ka hōʻino ʻia o nā aʻalolo i loko o ka ʻōpū mimi. |
| Nā ʻōpū wahine | I nā keikikāne, aia ka urethra ma lalo o ka penis a i ʻole ʻaʻole puka mai nā testicles mai ke kino. I nā kaikamahine, aia kahi pilina maʻamau ma waena o ka vagina a me ka anus. I kekahi mau keiki, ʻaʻole i ulu piha nā genitals. |
| ʻŌnaehana hoʻoheheʻe | Nā pilikia e like me ka torsion ʻōpū, ka anus i pāpā ʻia, a me ka constipation. |
Pehea e mālama ʻia ai?
ʻAʻohe lāʻau lapaʻau hoʻokahi e kūpono i nā mea āpau no kēia. No ka mea, ʻokoʻa ke kūlana o kēlā me kēia keiki, hoʻoholo ʻia ka lāʻau lapaʻau ma muli o nā pilikia kikoʻī o ke keiki. No kēia, pono e hana pū kahi hui o nā loea ma nā ʻano like ʻole.
He mea nui loa ka ʻike ʻana a me ka hoʻomaka ʻana i ka lāʻau lapaʻau i ka wā hikiwawe loa no kahi keiki me kēia maʻi. Hiki i kēia ke hoʻomaikaʻi nui i ke ʻano o ke ola o ke keiki.
ʻO ka maʻamau, hiki i ka hui lapaʻau ke komo pū me nā loea e like me:
- Nā Kauka Lapaʻau Keiki
- Nā kauka ʻokiʻoki lolo
- Nā kauka lolo
- ʻO nā Urologists (nā kauka lapaʻau e loea ana i ka ʻōnaehana urinary)
- Nā kauka ʻoki kino
- Nā kauka puʻuwai
- Nā kauka nephrologists
ʻO ke ʻoki ʻana i ka wā ʻōpiopio e hoʻoponopono i nā pilikia me ka ʻōnaehana mimi o ke keiki, ka iwi kuamoʻo, ka puʻuwai, ka rectum, a i ʻole nā lālāPono paha e hana ʻia kekahi mau mea. Eia kekahi, hiki ke hāʻawi ʻia nā lāʻau lapaʻau kikoʻī no nā pilikia o ke ala mimi, a pono paha ka physiotherapy no ke ola holoʻokoʻa, ke kākoʻo noʻonoʻo, a me nā lawelawe kākoʻo ʻē aʻe.
Inā loaʻa i kāu keiki kēia maʻi a kānalua paha no ia mea, ʻo ka mea maikaʻi loa e hana ai, ʻaʻole ia e hopohopo, akā e kamaʻilio me kāu kauka a kuhikuhi iā lākou i nā loea e pono ai.
Leka Lawe-Home
- He kīnā hānau laha ʻole ka Caudal Regression Syndrome e hoʻopilikia ana i ka ulu ʻana o ka ʻaoʻao haʻahaʻa o ke kino o kahi keiki.
- ʻOiai ʻaʻole i loaʻa ke kumu kikoʻī o kēia, ʻo ke olakino o ka makuahine i ka wā hāpai (ʻoi aku ka maʻi diabetes i kāohi ʻole ʻia) a me nā kumu genetic paha kekahi o ia mau mea.
- ʻOkoʻa nā hōʻailona mai kēlā keiki a kēia keiki. Hiki ke hoʻopilikia ʻia ka iwi kuamoʻo, nā wāwae, nā puʻupaʻa, ka ʻōpū mimi, a me nā ʻōpū.
- Pono ka lāʻau lapaʻau i kahi hui o nā loea like ʻole, a hoʻolālā ʻia ka lāʻau lapaʻau e like me nā pono o ke keiki.
- He mea nui ka ʻike mua ʻana a me ka hoʻomaka ʻana i kahi hoʻolālā lapaʻau piha e hōʻoia i kahi ola maikaʻi no kāu keiki. E kūkākūkā i nā hopohopo me kāu kauka.
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