Koj puas xav tias koj nkees thiab qaug zog txhua lub sijhawm? Koj puas pom tias nws nyuaj rau ua pa txawm tias koj taug kev nrawm nrawm? Cov no yuav yog cov cim qhia ntawm kev tsis muaj ntshav txaus, lossis qhov peb feem ntau hu ua "kev tsis txaus ntshav." Rau qee tus neeg, qhov kev tsis muaj ntshav txaus no yog los ntawm cov kab mob caj ces zoo li Beta Thalassemia. Rau lwm tus, nws yuav yog los ntawm cov mob zoo li Myelodysplastic Syndromes (MDS). Yog li, cov neeg zoo li no feem ntau xav tau kev hloov ntshav. Tab sis hnub no peb yuav tham txog tshuaj tiv thaiv tshiab, uas tau los kho cov mob no. Ntawd yog Luspatercept.
Hais yooj yim xwb, Luspatercept yog dab tsi?
Xav txog tias peb cov pob txha pob txha yog ib lub Hoobkas uas tsim cov qe ntshav liab. Cov qe ntshav liab nqa cov pa oxygen thoob plaws peb lub cev. Lawv yog cov uas muab txoj sia rau peb thiab lub zog ua haujlwm. Tam sim no, rau cov neeg uas muaj kab mob zoo li Beta Thalassemia thiab Myelodysplastic Syndrome (MDS), lub Hoobkas no tsis zoo li qub. Qhov ntawd txhais tau tias lawv tsis tsim cov qe ntshav liab kom raug.
Nov yog qhov uas cov tshuaj Luspatercept (lub npe lag luam: 'REBLOZYL') los txog. Cov tshuaj tiv thaiv no zoo li tus thawj coj ntse. Nws mus rau lub Hoobkas pob txha thiab hais tias, "Okay, cia peb ua kom raug. Ua kom muaj ntau cov qe ntshav liab zoo, noj qab nyob zoo, thiab tiav." Hauv lwm lo lus, cov tshuaj no ua yog pab peb lub cev tsim cov qe ntshav liab noj qab nyob zoo. Qhov no muab sijhawm zoo rau peb los txo cov ntshav ntxiv lossis txawm tias txwv tsis pub lawv hloov pauv kiag li.
Cov tshuaj tiv thaiv kab mob no muab rau koj li cas?
Cov tshuaj no tsis yog ib yam tshuaj uas koj coj mus tsev tau. Luspatercept yog ib yam tshuaj txhaj rau hauv daim tawv nqaij. Tom qab koj tus kws kho mob sau ntawv rau koj, cov neeg ua haujlwm kho mob uas tau kawm tiav hauv tsev kho mob lossis chaw kho mob yuav muab tshuaj rau koj. Feem ntau koj yuav tsum tau txhaj tshuaj txhua peb lub lis piam. Yog li koj tsis tas yuav txhawj txog nws, lawv yuav saib xyuas lub sijhawm.
Qhov tseem ceeb tshaj plaws, txoj kev kho mob no tseem tsis tau pom zoo rau menyuam yaus, yog li tam sim no, xav txog qhov no ua kev kho mob rau cov neeg laus.
Tej yam koj yuav tsum qhia rau koj tus kws kho mob ua ntej pib kho mob
Nws yog ib qho tseem ceeb heev uas yuav tsum qhia rau koj tus kws kho mob txog koj keeb kwm kev noj qab haus huv ua ntej pib noj tshuaj twg. Tshwj xeeb tshaj yog ua ntej pib siv Luspatercept, yog tias muaj ib qho hauv qab no uas cuam tshuam rau koj, koj yuav tsum qhia rau lawv txog qhov ntawd.
| Qhov xwm txheej koj yuav tsum tau tshaj tawm | Vim li cas nws thiaj tseem ceeb? (Piav qhia yooj yim) |
|---|---|
| Yog tias koj lub qhov ntswg tau raug tshem tawm | Lub qhov ntswg yog ib lub cev uas lim cov ntshav thiab ua ntau yam haujlwm ntsig txog cov ntshav. Nws tsis muaj peev xwm cuam tshuam rau kev kho mob. |
| Yog koj muaj ntshav siab | Cov tshuaj no qee zaum ua rau ntshav siab nce siab, yog li tus kws kho mob yuav ceev faj txog qhov ntawd. |
| Yog tias koj tau muaj cov ntshav txhaws ua ntej | Muaj kev pheej hmoo me me ntawm cov ntshav txhaws thaum siv cov tshuaj no, yog li nws tseem ceeb heev yog tias koj tau muaj ib qho ua ntej. |
| Yog koj yog ib tug neeg haus luam yeeb | Kev haus luam yeeb ua rau muaj kev pheej hmoo ntawm cov ntshav txhaws, yog li nws tseem ceeb heev uas yuav tsum qhia rau koj tus kws kho mob txog qhov kev coj cwj pwm no. |
| Yog tias koj tab tom sim cev xeeb tub lossis cev xeeb tub | Qhov no tseem ceeb heev. Cov tshuaj no tuaj yeem ua rau muaj kev phom sij loj rau tus menyuam thaum cev xeeb tub. Yog li ntawd, nws yog ib qho tseem ceeb uas yuav tsum siv cov tshuaj tiv thaiv kev yug menyuam kom txaus thaum lub sijhawm kho mob thiab rau ob peb lub hlis tom qab tso tseg. |
| Yog tias leej niam pub mis rau nws tus menyuam | Tsis paub meej tias cov tshuaj no puas hla mus rau tus menyuam hauv mis niam, thiab yuav muaj li cas yog tias nws hla mus. Yog li ntawd, koj yuav tsum nrog koj tus kws kho mob tham thiab txiav txim siab zoo tshaj plaws. |
| Lwm yam tshuaj, kev ua xua | Qhia rau koj tus kws kho mob yog tias koj muaj kev tsis haum rau Luspatercept lossis lwm yam tshuaj lossis khoom noj. Tsis tas li ntawd, qhia rau koj tus kws kho mob txog txhua yam tshuaj thiab cov vitamins uas koj noj. |
Tej yam yuav tsum nco ntsoov thaum lub sijhawm kho mob
Cov neeg kho mob yuav saib xyuas koj zoo thaum lub sijhawm koj tau txais kev kho mob no.
- Kev kuaj ntshav tsis tu ncua: Cov qauv ntshav raug coj mus kuaj tsis tu ncua thiab kev kuaj xws li "Kev suav tag nrho cov ntshav" raug ua los xyuas koj cov qe ntshav liab thiab seb cov tshuaj puas ua haujlwm.
- Kev ntsuas ntshav siab: Koj cov ntshav siab yuav raug ntsuas txhua zaus koj tuaj txhaj tshuaj tiv thaiv kab mob.
- Kev tswj kom tsis txhob xeeb tub: Raws li tau hais ua ntej lawm, nrog koj tus kws kho mob tham txog txoj kev tiv thaiv kom tsis txhob xeeb tub thiab ua raws li qhov ntawd.
- Tsis txhob ncua koj lub sijhawm teem tseg: Nco ntsoov mus txhaj tshuaj raws li hnub teem tseg. Yog tias koj mus tsis tau, hu rau lub tsev kho mob ua ntej thiab qhia rau lawv paub.
Yuav ua li cas yog tias qhov koob tshuaj nce ntxiv (overdose)?
Qhov no yog muab rau hauv tsev kho mob, yog li ntawd qhov muaj feem yuav tshwm sim no tsawg heev. Txawm li cas los xij, yog tias koj xav tias koj tau raug rau ib yam dab tsi zoo li no, koj yuav tsum mus rau Chav Kho Mob Thaum Muaj Xwm Ceev (ETU) tam sim ntawd. Los yog hu rau Lub Chaw Qhia Txog Tshuaj Lom Hauv Tebchaws ntawm Tsev Kho Mob Colombo National kom tau txais lus qhia.
Cia peb kawm txog cov kev mob tshwm sim.
Ib yam li lwm yam tshuaj, Luspatercept tuaj yeem ua rau muaj kev phiv. Txawm li cas los xij, tsis yog txhua tus neeg tau txais lawv. Qee qhov yog qhov hnyav thiab yuav tsum tau qhia rau koj tus kws kho mob tam sim ntawd. Qee qhov yog qhov qub thiab ploj mus tom qab ob peb hnub.
| Cov kev mob tshwm sim uas yuav tsum tau qhia rau koj tus kws kho mob tam sim ntawd | |
|---|---|
| Kev Ua Xua | Tawv nqaij ua pob khaus, khaus, o ntawm lub ntsej muag, daim di ncauj, tus nplaig lossis caj pas, ua pa nyuaj. |
| Cov tsos mob ntawm cov ntshav txhaws | Mob tam sim ntawd, o, liab ntawm ib ceg. Mob hauv siab, ua pa nyuaj. Cov no txaus ntshai heev. |
| Ntshav Siab Nce | Mob taub hau hnyav tam sim ntawd, kiv taub hau, pom kev hloov pauv. |
| Teeb meem ntawm cov hlab ntsha | Mob nraub qaum hnyav, loog lossis tsis muaj zog ntawm ob txhais ceg, tsis muaj zog sib npaug, tsis tswj tau txoj hnyuv lossis zais zis. |
| Cov kev mob tshwm sim uas feem ntau tsis loj heev, tab sis yuav tsum tau qhia rau tus kws kho mob yog tias lawv tseem muaj | |
| Mob lub cev | Mob pob txha, pob qij txha, thiab cov leeg. |
| Qaug zog thiab kiv taub hau | Qaug zog, kiv taub hau. |
| Mob taub hau thiab mob plab | Mob taub hau dav dav, tsis xis nyob hauv plab lossis mob. |
Nco ntsoov, yog tias koj pom muaj tej yam txawv txawv uas tsis nyob hauv daim ntawv no, tsis txhob ntshai qhia rau koj tus kws kho mob txog qhov ntawd. Koj paub koj lub cev zoo tshaj plaws.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Luspatercept yog ib qho tshuaj txhaj tshuaj siab heev uas siv los kho cov ntshav tsis txaus uas tshwm sim los ntawm cov mob xws li beta thalassemia thiab MDS.
- Qhov no ua rau peb lub cev cov pob txha pob txha ua haujlwm zoo thiab ua rau muaj cov qe ntshav liab noj qab haus huv ntau ntxiv.
- Kev kho mob no yog muab rau hauv tsev kho mob lossis chaw kho mob los ntawm cov neeg ua haujlwm tau kawm tiav.
- Ua ntej pib kho mob, koj yuav tsum qhia rau koj tus kws kho mob txog koj cov ntaub ntawv kev noj qab haus huv (tshwj xeeb tshaj yog cev xeeb tub, ntshav txhaws, thiab ntshav siab).
- Nco ntsoov siv cov tshuaj tswj kev yug me nyuam kom tsim nyog kom tsis txhob cev xeeb tub thaum lub sijhawm kho mob thiab ob peb lub hlis tom qab ntawd.
- Yog tias koj pom muaj cov cim qhia txog kev phiv tshuaj txaus ntshai, xws li cov ntshav txhaws lossis kev ua xua hnyav, nrhiav kev pab kho mob tam sim ntawd.
- Yog tias koj muaj lus nug txog cov tshuaj no, tsis txhob yig nug koj tus kws kho mob.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus