Imajin se yu ɔ pɔsin we yu sabi de kam fɔ du ɔpreshɔn pan yu bren. Ɛn di dɔktɔ dɛn we de du di ɔpreshɔn want fɔ pul di tisu we nɔ de na di bɔdi kɔrɛkt wan as dɛn ebul, nɔto so? Tide wi de tɔk bɔt wan spɛshal sɔlv we kin kam fɔ ɛp pan dis kayn tin, bɔt wit wan difrɛn we smɔl. Dis kin tan lɛk "majik" we de sho di dɔktɔ we de du di ɔpreshɔn di we pas mɛrɛsin we de mɛn sik.
Wetin na Aminolevulinic Asid?
Fɔ tɔk am simpul wan, dis kin ɛp pas mɛrɛsin, we kin ɛp di dɔktɔ we de du di ɔpreshɔn fɔ no usay di sɛl dɛn we nɔ nɔmal de. Di brand nem fɔ dis na `Gleolan`.
Dis kin wok insay wan we we rili intrestin. We yu drink dis sɔlvushɔn sɔm awa bifo dɛn du di ɔpreshɔn, i kin go insay ɛn atak insɛf to sɔm pan di nɔmal sɛl dɛn na yu bɔdi (espɛshali di bren kansa sɛl dɛn). Dɔn, na di ɔpreshɔn rum, we di dɔktɔ we de du di ɔpreshɔn shayn wan spɛshal blu layt pan di sɛl dɛn, dɛn kin bigin fɔ shayn pink. I tan lɛk se dɛn dɔn mak dɛn wit aylayta pen . Dis kin mek am izi fɔ di dɔktɔ we de du di ɔpreshɔn fɔ no dɛn sɛl dɛn ya ɛn pul dɛn ɔlsay as i pɔsibul ɛn nɔ pwɛl di wɛlbɔdi tisu.
Dat min se pas fɔ mɛn di sik, dis na sɔntin we de ɛp fɔ no di pat dɛn we gɛt di sik kɔrɛkt wan ɛn pul am.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu yuse dis
Bifo yu gi yu dis sɔlvishɔn, yu mɛdikal tim go nid fɔ no yu kɔmplit wɛlbɔdi istri. I impɔtant mɔ fɔ tɛl dɛn if yu gɛt ɛni wan pan dɛn tin ya:
| Di tin we de apin to yu | Wetin mek dat impɔtant? |
|---|---|
| Pɔfyria kɔndishɔn | Dis na tin we nɔ kin apin so ɔltɛm. Prɔblɛm kin apin wit dis sɔlv. |
| Skin kin fil fɔ layt ɔ ɔda sik dɛn na di skin | Dis sɔlvushɔn de mek di skin rili sɛnsitiv to layt, we kin mek wan kɔndishɔn we dɔn de wɔs. |
| Alɛji dɛn we pɔsin kin gɛt | Mek shɔ se yu tɛl wi if yu gɛt alɛji fɔ dis sɔlvushɔn, kɔmpawnd dɛn we dɛn kɔl pɔfyurin, ɔda mɛrɛsin dɛn, it dɛn, day, ɔ tin dɛn we dɛn kin yuz fɔ mek tin nɔ pwɛl. |
| Fɔ gɛt bɛlɛ ɔ fɔ tray fɔ gɛt bɛlɛ | Bikɔs dɛn stil nɔ gɛt kɔmplit data bɔt di tin dɛn we kin apin to di pikin, i impɔtant fɔ tɛl di dɔktɔ bɔt dis. |
| Fɔ gi di pikin in bɛlɛ | I impɔtant fɔ go to dɔktɔ bikɔs dɛn nɔ dɔn kɔnfyus if dis sɔlvushɔn de pas insay mama in milk. |
Aw yu kin yuz dis sɔlv?
Dis nɔto mɛrɛsin we yu kin kɛr go na os.
- Dis na sɔlv we wan mɛdikal tim kin gi yu fɔ drink na ɔspitul ɔ klinik .
- Dɛn kin gi yu dis bitwin 2 ɛn 4 awa bifo dɛn du di ɔpreshɔn.
- Dɛn kin nid spɛshal kia we dɛn de gi dis to yɔŋ pikin dɛn.
Wetin fɔ du if di doz fɔ di mɛrɛsin go ɔp?
Dɛn kin gi dis na ɔspitul say so di chans fɔ mek dis apin rili smɔl. Bɔt if yu tink se sɔntin dɔn apin to yu, yu fɔ ripɔt am wantɛm wantɛm to di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Nashɔnal Ospital ɔ di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul.
Ɔda mɛrɛsin dɛm wae kin intarakt wit dis (Drug Interactions) .
I rili impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek (inklud vaytamɛn ɛn ɛbul mɛrɛsin dɛn). Sɔm mɛrɛsin kin afɛkt di we aw dis sɔlv de wok. Tek tɛm mɔ wit mɛrɛsin dɛn we de mek yu skin fil lɛk layt.
| Kategori fɔ drɔgs | Ɛgzampul dɛn |
|---|---|
| Sɔm diuretik dɛn | chlorothiazide , .hydrochlorothiazide , indapamide , metolazone |
| Sɔm mɛrɛsin dɛn fɔ gɛt dayabitis | glipizide , glyburide |
| Sɔm antibayɔtik dɛn | sulfamethoxazole , tetracyclines |
| Fɛnotiazin dɛn | chlorpromazine , prochlorperazine , thioridazine |
| Ɔda | Sɛnt Jɔn wɔt, vaytamɛn A ɛn ɔda mɛrɛsin dɛn we gɛt fɔ du wit am, vaytamɛn E |
Di impɔtant tin fɔ tek kia ɔf afta yu dɔn tek dis sɔlv na
Dis na di tin we impɔtant pas ɔl . Afta yu tek dis sɔlvushɔn, yu skin kin rili fil fayn. Dis min se yu skin ɛn yay nɔ kin jɔs riak to di san layt, bɔt i kin riak bak to brayt layt na yu os.
- Yu fɔ avɔyd fɔ de na di san dairekt wan fɔ at le 48 awa .
- Ivin insay os, avɔyd dairekt san layt (spɔtlayt, ridin lamp) na yu bɔdi. Kip di rum layt nɔ de shayn bɛtɛ.
- If yu fɔ go na do, wɛr sanglas, hat, ɛn klos we kɔba yu bɔdi ɔlsay .
- I fayn fɔ yuz tin fɔ protɛkt yusɛf frɔm di san, bɔt i nɔ go du fɔ yu. I impɔtant bak fɔ kɔba yusɛf wit klos.
- Nɔ yuz san lamp ɔ tan bed fɔ ɛni rizin.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, dis kin mek sɔm sayd ɛfɛkt, pan ɔl we nɔto ɔlman kin gɛt dɛn.
| Tin dɛn fɔ ripɔt to yu mɛdikal tim wantɛm wantɛm | |
|---|---|
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip, tong ɔ trot. |
| Bɔrku tɛm nɔr kin nid fɔ gɛt mɛrɛsin (bɔt tɛl yu dɔktɔ if i kɔntinyu fɔ de) . | |
| Ɔda sayd ɛfɛkt dɛn |
|
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu notis ɛnitin we nɔ kɔmɔn, tɔk to yu dɔktɔ.
Mɛsej we dɛn kin kɛr go na os
- Aminolevulinic acid nɔto mɛrɛsin we de mɛn wan sik, bɔt na spɛshal sɔlv we de ɛp di dɔktɔ fɔ no di sɛl dɛn we nɔ de wok we dɛn de du di ɔpreshɔn.
- Yu kin drink dis sɔm awa bifo dɛn du yu ɔpreshɔn, na ɔspitul. Yu nɔ go alaw fɔ kɛr am go na os.
- Tɛl yu dɔktɔ bɔt ɛni ɔda mɛrɛsin we yu gɛt (especially porphyria) ɛn ɔl di mɛrɛsin dɛn we yu de tek.
- Impɔtant: Yu skin ɛn yu yay go rili sɛnsitiv to layt afta yu dɔn tek dis sɔlvushɔn, so mek shɔ se yu avɔyd brayt layt ɛn san layt fɔ at le 48 awa .
- If yu gɛt ɛni alɛji (skin rash, swelling), tɛl di mɛdikal tim wantɛm wantɛm.
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