Yu kin fil taya bak ɔltɛm dɛn tɛm ya, ɛn yu nɔ ebul fɔ du ɛnitin? Yu kin fil wik ivin afta yu dɔn du smɔl smɔl wok dɛn? Sɔntɛm yu jɔs tɔn blu ɛn si brus na yu bɔdi? Ɔ yu kin gɛt sik lɛk kol ɔ fiva we kin kam bak ɔltɛm? Pan ɔl we wi kin tink se dɛn tin ya na nɔmal tin, sɔntɛnde dɛn tin ya kin bi sayn fɔ se wi gɛt siriɔs sik insay wi bɔdi. Tide, wi de tɔk bɔt dɛn kayn sik dɛn ya we nɔ kin bɔku, bɔt we kin bɔku pasmak, we wi fɔ no bɔt.
Wetin rili na aplastik anemia?
Fɔ tɔk am simpul wan, aplastik anemia na siriɔs blɔd sik, bɔt we nɔ kin apin so ɔltɛm, we kin apin we wi bon mɛrɔ nɔ ebul fɔ mek inof nyu blɔd sɛl.
Tink bɔt wi bon mɛro lɛk blɔd faktri. Dis faktri de mek tri tin dɛn we wi bɔdi nid:
1. Rɛd blɔd sɛl: Na sɛl dɛn we de kɛr ɔksijɛn ɔlsay na di bɔdi.
2. Wait blɔd sɛl: Na sɛl dɛn we de fɛt jem ɛn protɛkt wi frɔm sik.
3. Plɛtlɛt: Na sɛl dɛn we kin stɔp fɔ blɔd we wund de.
Insay pɔsin we gɛt aplastik anemia, dis faktri we de mek blɔd, we na di bon mɛro, kin stɔp fɔ wok wantɛm wantɛm. Di prodakshɔn kin stɔp ɔlmost. So ɔl di tri kayn blɔd sɛl dɛn we di bɔdi nid kin lɔs. Dis kin mek yu gɛt bɔku prɔblɛm dɛn lɛk siriɔs infɛkshɔn, prɔblɛm wit blɔd, ɛn at sik. Pan ɔl we tritmɛnt dɛn de fɔ dis sik, di wangren we fɔ mɛn dis sik kpatakpata na fɔ transplant stem sɛl.
Aw dis sik kin kɔmɔn?
Dis nɔto sik we bɔku pipul dɛn kin gɛt. Ivin na divɛlop kɔntri dɛn, na lɛk tu pipul dɛn nɔmɔ de ambɔg pan wan milyɔn. Dat min se i nɔ kin apin so ɔltɛm. Pan ɔl we dis sik kin apin pan ɛni ej, i kin apin mɔ pan yɔŋ pipul dɛn we ol bitwin 15 ɛn 25 ia ɛn pipul dɛn we dɔn pas 60 ia .
Wetin na di sayn dɛm fɔ dis sik?
Bɔrku tɛm, dɛn sik ya kin kam smɔl smɔl, fɔ sɔm wik ɔr mɔnt. So yu nɔ go notis big difrɛns wantɛm wantɛm. Bɔt fɔ sɔm pipul dɛn, di sayn dɛn kin apin wantɛm wantɛm pan siriɔs we. Lɛ wi tek wan luk pan wetin na dɛn sik ya ɛn wetin mek dɛn kin apin.
| Di sayn we de sho se di sik de | Wetin mek dat kin apin? (Simply) |
|---|---|
| I kin taya pasmak, i kin fɔdɔm ivin we i de klaym stɛp, ɛn i kin at fɔ blo (dyspnea). | biכs di nכmba f כ di rεd bכdi sεl dεm we de kכri di כksijεn we di bכdi nid de dכn. |
| Vayral infɛkshɔn ɔltɛm (kol, flu) ɛn tek lɔng tɛm fɔ wɛl. | Bikɔs di nɔmba fɔ di wayt blɔd sɛl dɛn we de fɛt di jεm dεm de dכn. |
| Blɔd izi wan frɔm ivin smɔl wund, jɔs tɔn blu na say dɛn, blɔd de kɔmɔt na yu nos ɔ yu gɔm. | bikɔs di nɔmba fɔ di pletlɛt dɛn we de stɔp di blɔd de go dɔŋ. |
| Pale skin, diziz, ed we de at ɔltɛm. | Nɔto inɔf ɔksijɛn de go na di bren ɛn bɔdi, ɛn dis na bikɔs di rɛd blɔd sɛl dɛn de go dɔŋ . |
| Fiva. | As sayn fɔ infɛkshɔn, bikɔs ɔf di lɔw imyuniti na di bɔdi. |
Mɛmba se nɔr frayd fɔ tink se yu gɛt dis sik jɔs bikɔs yu gɛt kɔmɔn kol ɛn fil taya smɔl. Bɔt if yu gɛt sik we nɔ kin bɛtɛ fɔ sɔm wiks ɛn yu kin fil taya pasmak di sem tɛm, yu fɔ rili go to dɔktɔ.
Wetin mek sɔntin lɛk dis kin apin?
Nɔto ɔltɛm i pɔsibul fɔ no di rayt rizin. Bɔt bɔku tɛm, sɔntin we rili strenj kin apin. Fɔ tɔk am simpul wan, di difɛns sistɛm na wi bɔdi (immune system) de go hayway ɛn atak in yon bon mɛro. I tan lɛk se wi yon ami de atak wi yon impɔtant ɔgan dɛn. dis atak de pwεl di stεm sεl dεm na di bon mכro, di sεl dεm we de mek nyu bכdi sεl dεm.
Bɔku rizin dɛn de we mek di imyun sistɛm kin kɔmprɔmis dis we.
Bikɔs ɔf sɔm mɛrɛsin kɔndishɔn dɛn
- Di sik dɛn we pɔsin kin gɛt we i de fɛt insɛf:Insay sik dɛm lɛk lupus, wi imyun sistɛm kin atak wi yon bɔdi.
- Vayral infεkshכn: Sɔm kayn vayrɔs, fɔ ɛgzampul Epstein-Barr vayrɔs, saytomegalovayrɔs (CMV), Parvovirus B19, ɛn HIV, kin mek dis sik.
- Paroxysmal nocturnal hemoglobinuria: Dis na we di rεd bכdi sεl dεm de brok dכn kwik kwik wan.
- Bεlε: Na sכm tεm, dis kכndyushכn kin apin bak we uman bεlε.
Di tin dɛn we kin mek pɔsin gɛt frɔm dɛn mama ɛn papa
Dɛn tin ya nɔ kin apin so ɔltɛm. Sɔm sik dɛn we pɔsin kin gɛt frɔm in mama ɛn papa kin mek di bon mɛrɔ nɔ wok fayn. Fɔ ɛgzampul:
- Fankɔni anemia
- Diskeratosis we dɛn bɔn wit
- Shwachman-Diamond sindrom we gɛt di sik
Sɔm mɛrɛsin dɛn ɛn kemikal dɛn
- Di tritmɛnt fɔ kansa: Redyushɔn ɛn kemotɛrapi kin pwɛl di bon mɛrɔ.
- Sɔm mɛrɛsin dɛn: Sɔm mɛrɛsin dɛn we dɛn kin gi fɔ sik dɛn we pɔsin kin gɛt we i de fɛt insɛf.
- We yu gɛt kemikal: If yu de yuz kemikal dɛn we de mek yu gɛt kansa lɛk asɛnik ɛn bɛnzin fɔ lɔng tɛm, dat kin mek yu gɛt prɔblɛm bak.
Wetin na di poshubul sayd efεkt (komplikεshכn) dεm we dis kin gεt?
We di blɔd sɛl dɛn lɔs, bɔku tin dɛn we de apin na di bɔdi kin ambɔg, ɛn dis kin mek i gɛt siriɔs prɔblɛm dɛn.
- Sivɛri Anemia: I kin mek yu taya pasmak, yu at kin bit kwik kwik wan, ɛn yu at kin pwɛl.
- Siriɔs infɛkshɔn: If yu nɔ gɛt wayt blɔd sɛl, ivin wan kɔmɔn jem kin mek pɔsin in layf de pan denja.
- Blɔd we pɔsin nɔ ebul fɔ kɔntrol: Bikɔs di pletlɛt dɛn nɔ de, ivin smɔl wund kin mek i blɔd pasmak. Blɔd we de kɔmɔt insay di bren kin rili denja.
- At sik: Anemia kin mek di at wok tranga wan, ɛn dis kin mek di at chenj (arrhythmia) ɔr at nɔr de woke fayn.
- Myelodysplastic syndrome: Dis na bon mכro sik bak, εn risk de fכ mek yu gεt blɔd kansa lεk lukimiya.
Aw dɔktɔ kin fɛn dis?
We yu go to dɔktɔ, i go tek tɛm lisin to yu sik dɛn fɔs ɛn chɛk yu. Dɔn, if i saspek dis sik, i go ɔda sɔm patikyula tɛst dɛn.
| Tɛst | Wetin yu si pan dis? |
|---|---|
| Kɔmplit blɔd kɔnt (CBC) . | Yu kin jɔs chɛk aw yu rɛd blɔd sɛl, wayt blɔd sɛl, ɛn pletlɛt dɛn nɔ bɔku. |
| Pɛriferal blɔd smyuɛl | Dɛn kin yuz maykroskɔp fɔ chɛk aw yu blɔd sɛl dɛn shep ɛn aw dɛn tan. |
| rεtikulכsayt kכnt | dεn de mכsu di כmכnt כf di rεd bכdi sεl dεm we nכ machכ we di bon mכro de mek. if dis amount sכm, i de kכnfכm se di bon mכro nכ de wok. |
| Bon mכro aspirashכn εn bayopsi | Dis na di tɛst we impɔtant pas ɔl fɔ kɔnfɔm di diagnosis. afta dεn gi am layt anεsthεtik, dεn de tek sכm sכm bon mכro frכm di hip bon εn tεst am. if di bon mכro sεl dεm rili lכs, dεn kin kכnfכm di diagnosis. |
Wetin na di tritmɛnt dɛm fɔ dis?
Di we aw dɛn kin trit am kin dipen pan tin dɛn lɛk yu ej, aw di sik tranga, ɛn di tin we kin mek i sik.
Sɔntɛnde, if di sik na bikɔs ɔf kansa tritmɛnt, fɔ chenj di tritmɛnt kin mek di sik bɛtɛ. If yu gɛt smɔl smɔl blɔd sɛl ɛn yu nɔ gɛt ɛni big big sayn (moderate aplastic anemia), yu dɔktɔ kin disayd nɔ fɔ trit yu ɛn jɔs wach yu kɔndishɔn.
Bɔt if siriɔs tin apin, i nid fɔ gɛt tritmɛnt.
- Immunosuppressants: As wi bin dɔn tɔk, dɛn kin gi dɛn mɛrɛsin ya fɔ stɔp wi imyun sistɛm fɔ atak wi bon mɛrɔ. Antitaymosayt globulin (Atgam®) ɛn Sayklɔspɔrin (Sandimmune®) na dɛn kayn mɛrɛsin ya.
- Blɔd transfyushɔn: Dis nɔ de mɛn di sik, bɔt i kin kɔntrol di sayn dɛn lɛk fɔ taya ɛn fɔ blɔd we pɔsin kin gɛt we i nɔ gɛt rɛd blɔd sɛl ɛn pletlɛt fɔ sɔm tɛm.
- Antibayɔtik: We di wayt blɔd sɛl nɔ bɔku, i kin mek i gɛt infɛkshɔn. So, dɛn kin gi dɛn mɛrɛsin ya fɔ trit infɛkshɔn we kin apin.
- Allojenik stεm sεl transplant:Dis na di wangren we fɔ mɛn dis sik kpatakpata. wetin dεn de du ya na fכ dכn di bon mכro we dεn dכn pwεl kכmplit wan εn injεkt stεm sεl dεm we dεn tek frכm hεlty pכsin (a matched donor) insay di bכdi. dis nyu sεl dεm de go εn setul na di bon mכro εn bigin fכ mek nyu hεlty bכdi sεl dεm. Dis tritmɛnt kin fayn fɔ yɔŋ pipul dɛm.
Ɛni bad tin de we di tritmɛnt kin du?
Yɛs, di sayd ɛfɛkt dɛn kin difrɛn difrɛn wan bay di we aw dɛn de trit am.
- Graft-versus-host disease: Na komplikashכn we kin apin we dεn de transplant stεm sεl. If na so i bi, di nyu sɛl dɛn we dɛn dɔn transplant kin atak di pɔsin in bɔdi.
- Di risk fɔ gɛt infɛkshɔn kin bɔku: Di mɛrɛsin dɛn we de stɔp di imyun sistɛm kin ridyus di ebul fɔ fɛt di jem dɛn mɔ.
- Ayɔn we pasmak: If pɔsin kin gi am blɔd bɔku tɛm, dat kin mek di ayɔn we de na di bɔdi go ɔp we i nɔ nid fɔ du am.
I pɔsibul fɔ liv wit dis sik?
Di rεt wae yu de liv de dipכnt pan bכku tin, inklud yu ej εn di tritmεnt wae yu de gεt. sכm stכdi dεm sho se afta stεm sεl transplant tritmεnt, di fayv ia sכvayv rεt na כlmost 100% pan pikin dεm εn pipul dεm we nכ rich 40 ia.
Mɛmba se dɛn statystik ya na jɔs wan avrej fɔ wan big grup fɔ pipul dɛn. Di tin we de apin to yu kin difrɛn frɔm dis. So nɔ fred fɔ dɛn nɔmba dɛn ya. Na yu dɔktɔ nɔmɔ go ebul fɔ gi yu di bɛst infɔmeshɔn.
Na dis kansa?
Nɔ, aplastik anemia nɔto kansa. Bɔt pipul dɛm wae gɛt dis sik kin gɛt smɔl chans fɔ gɛt blɔd kansa lɛk lukimiya tumara bambay.
If yu gɛt dis sik, aw yu kin kia fɔ yusɛf?
De tin wae impɔtant pas ɔl na fɔ fala yu tritmɛnt plan ɛksaktɔli ɛn pe atɛnshɔn to yu sayn dɛm. Apat frɔm dat, tink bɔt dɛn tin ya.
- Nɔ du tin dɛn we go mek yu fɔdɔm tranga wan ɛn wund. I bɛtɛ fɔ avɔyd spɔt lɛk futbɔl, ɔki, ɛn rɛslɛshɔn, bikɔs yu kin blɔd izi wan.
- Protɛkt yusɛf frɔm jem. Yu kin gɛt infɛkshɔn mɔ. Was yu an ɔltɛm wit sop ɛn wata. Stay away frɔm pipul dɛm wae gɛt kol ɔr bɛlɛ at. Aks yu dɔktɔ us vaysin dɛn we rayt fɔ yu.
- Gɛt bɔku rɛst. Anemia kin mek yu fil taya bad bad wan. I kin mek i nɔ izi bak fɔ du di wok dɛn we yu de du ɛvride. So yu fɔ slip fayn. Rɛst jɔs lɛk aw yu fil taya, nɔ put am bifo.
- It tin dɛn we gɛt fayn fayn tin dɛn fɔ it. If yu it di rayt tin, dat kin mek yu gɛt mɔ trɛnk. I bɛtɛ fɔ go to pɔsin we sabi bɔt it bɔt dis.
- Du sɔm layt ɛksesaiz. Layt ɛksesaiz lɛk fɔ waka kin ɛp fɔ ridyus strɛs. Bɔt mek shɔ se yu tɔk to yu dɔktɔ bifo yu bigin fɔ du nyu ɛksesaiz.
Wetin na di bɛst tɛm fɔ go to dɔktɔ?
I impɔtant fɔ de tɔk to yu dɔktɔ ɔltɛm. Mɔ,
- If yu gɛt fiva we pas 38°C (102°F).
- If yu sik dɛn de wɔs.
- If yu gɛt blɔd we yu nɔ ebul fɔ kɔntrol, go na di ɔspitul we de nia yu in Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm.
Dis sik, pan ɔl we i nɔ kin apin so ɔltɛm, i siriɔs. Wi kin ɔndastand se wi de wɔri ɛn fil bad. Bɔt mɛmba se, ilɛksɛf dɛn nɔ ebul fɔ no di tin we mek i kam, dɛn kin trit am ɛn sɔntɛnde i kin mɛn am kpatakpata. Yu dɔktɔ go ɛksplen di bɛst tritmɛnt fɔ yu ɛn di bad tin dɛn we i kin du.
Mɛsej we dɛn kin kɛr go na os
- Aplastik anemia na wan sik we nɔ kin apin so ɔltɛm bɔt we kin rili siriɔs we di bon mɛro kin stɔp fɔ mek blɔd sɛl dɛn.
- Fɔ taya fɔ lɔng tɛm, fɔ gɛt infɛkshɔn ɔltɛm, ɛn fɔ izi fɔ brus ɔ fɔ blɔd na di men sayn dɛm we yu fɔ wach fɔ.
- Nɔ ignore di sayn dɛm lɛk dis. Fɔ tru, yu go si dɔktɔ ɛn gɛt advays.
- Spɛshal blɔd tɛst ɛn bon mɛro bayɔpsi impɔtant fɔ no di sik klia wan.
- Tritmɛnt dɛn de fɔ dis, ɛn we pɔsin transplant stem sɛl, i go ebul fɔ mɛn di sik kpatakpata.
- We yu de liv wit dis sik, i impɔtant fɔ tek tɛm fɔ protɛkt yusɛf frɔm infɛkshɔn ɛn injury.
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