Sɔntɛnde, di nem dɛn fɔ di mɛrɛsin dɛn we dɔktɔ dɛn kin gi wi kin kɔmplikt smɔl, nɔto so? Bɔt we wi jɔs ɔndastand aw dɛn mɛrɛsin dɛn de kin afɛkt wi bɔdi, i kin rili fil fri. Tide wi de tɔk bɔt wan pan dɛn kayn spɛshal mɛrɛsin ya, we na Burosumab, we dɛn kin gi as injɛkshɔn. Dis na tritmɛnt we rili impɔtant, mɔ fɔ di wan dɛn we gɛt wan sik we dɛn kɔl X-linked hypophosphatemia (XLH).
Wetin kin rili apin wit dis mɛrɛsin?
Fɔ tɔk am simpul wan, X-linked hypophosphatemia (XLH) na wan sik we di kidni dɛn kin pul tumɔs pan di minral fɔsfɛt we wi bɔdi nid. As yu go dɔn no, fɔsfɛt impɔtant fɔ mek wi bon dɛn strɔng. we di fכsfεt lεvεl dכn, di bon dεm kin wik, brit, εn na pikin dεm, i kin stכnt fכ gro, εn i kin mek di bon dεm εn di jכint dεm fil pen.
Dis na di say we di Burosumab vaysin de kam in. Dis vaksin de wok bay we i de kɔntrol di rilis fɔ di fɔsfɛt frɔm di bɔdi ɛn briŋ di fɔsfɛt lɛvɛl na di blɔd bak to nɔmal. dis de mek di bon dεm gεt di fכsfεt we dεn nid εn bigin fכ gro strכng.
Impɔtant tin na dat, Burosumab na tritmɛnt we de kɔntrol di sik, nɔto fɔ mɛn am. Dis drɔg na in dɛn kin no mɔ wit di brand nem CRYSViTA.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin tritmɛnt
Bifo yu bigin dis tritmɛnt, yu fɔ rili tɛl yu dɔktɔ sɔm tin dɛn bɔt yu wɛlbɔdi prɔblɛm, bikɔs da infɔmeshɔn de go ɛp dɛn fɔ disayd if dis mɛrɛsin fayn fɔ yu ɔ nɔ rayt.
- If yu gɛt ɛni sik we gɛt fɔ du wit di kidni .
- If yu gɛt alɛji fɔ dis Burosumab mɛrɛsin, ɛni ɔda mɛrɛsin, it, ɔ day.
- If yu gɛt bɛlɛ , ɔ yu de ɛkspɛkt pikin jisnɔ.
- If yu na mama we de gi pikin in bɛlɛ .
Nɔ ayd dɛn tin ya frɔm di dɔktɔ, bikɔs i rili impɔtant fɔ yu sef.
Aw yu kin yuz dis mɛrɛsin?
Dis nɔto mɛrɛsin we yu kin tek na os. Burosumab na injɛkshɔn ɔnda di skin . Na pɔsin we tren fɔ kia fɔ wɛlbɔdi biznɛs na ɔspitul ɔ klinik de gi yu.
Yu kin gi dis to smɔl pikin dɛn?
Yɛs, insay sɔm spɛshal kes dɛm, dɛn kin gi dis tritmɛnt to pikin dɛm we yɔŋ lɛk 1 ia. Bɔt wi nid fɔ fala spɛshal tin dɛn fɔ tek tɛm wit. So, if yu de gi yu pikin dis mɛrɛsin, go to yu dɔktɔ we de mɛn pikin dɛn bɔt am.I rili impɔtant fɔ tɔk to dɛn gud gud wan ɛn no di ditel dɛn.
Wetin a go du if a gɛt bɔku mɛrɛsin?
Dis nɔ kin apin bikɔs dɛn kin gi am na ɔspitul. Bɔt if yu tink se yu dɔn tek dis mɛrɛsin tumɔs, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm. Ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Impɔtant: Dɛn dɔn gi yu dis mɛrɛsin fɔ yu nɔmɔ. Nɔ sheb dis mɛrɛsin wit ɛni ɔda pɔsin fɔ ɛni rizin.
Wetin a fɔ du if a mis wan doz?
I rili impɔtant fɔ go na ɔspitul/klinik di de dɛn we dɛn dɔn sɛtul ɛn di tɛm we dɛn dɔn sɛtul fɔ mek dis tritmɛnt go bifo. Nɔ mis ɛni wan pan dɛn mɛrɛsin ya fɔ ɛni rizin. If yu nɔ ebul fɔ go di de we dɛn dɔn sɛtul, kɔl yu dɔktɔ wantɛm wantɛm ɛn tɛl am bɔt am, ɛn gɛt advays fɔ di nɛks de we go kam.
Ɔda mɛrɛsin dɛn we yu nɔ fɔ yuz wit dis mɛrɛsin
Bɔku mɛrɛsin dɛn de we yu nɔ fɔ tek wit Burosumab, so i rili impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek.
If yu de tek dɛn mɛrɛsin ya, mek shɔ se yu tɔk bɔt dɛn:
- Kalsitriɔl we dɛn kɔl
- Fɔsfɛt we dɛn kin tek bay mɔt
Dis list nɔ kɔmplit. So tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek (inklud vaytamɛn, ɛbul mɛrɛsin, ɛn tin dɛn we de ɛp yu fɔ it). Dɔn bak, tɔk tru bɔt if yu de smok, drink rɔm, ɔ yuz ɔda drɔgs.
Tin dɛn we yu fɔ tink bɔt we yu de du tritmɛnt
If yu sik nɔr de bɛtɛ, ɔr if i tan lɛk se dɛn de wɔs, tɛl yu dɔktɔ. Yu dɔktɔ go wach yu gud gud wan we yu de tek dis mɛrɛsin. I go nid bak fɔ du blɔd tɛst ɔltɛm fɔ chɛk tin dɛn lɛk yu fɔsfɛt lɛvɛl.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, Burosumab kin mek sɔm pipul dɛn gɛt sayd ɛfɛkt. Sɔm pan dɛn tin ya kin siriɔs, so i impɔtant fɔ no bɔt dɛn.
| Tayp fɔ di sayd ɛfɛkt | Tɔk bɔt |
|---|---|
| Sayd ɛfɛkt dɛn we dɛn fɔ ripɔt to di dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Skin rash, it ɔ ayv, swel na di fes, lip ɔ tong. |
| Prɔblɛm dɛn na di say we dɛn injɛkshɔn | Pen, rɛd, ɔ inflamɛns na di say we dɛn injɛkshɔn. |
| Tin dɛm fɔ tɛl yu dɔktɔ if dɛn kɔntinyu ɔr de mɔna yu | |
| Kɔmɔn sayd ɛfɛkt dɛn | Bak pen, kɔnstipɛshɔn, diziz, fiva, ed pen, mɔsul pen, tut infɛkshɔn, vɔmit. |
Dis list nɔto ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu gɛt ɛni ɔda sayn we nɔ kɔmɔn, duya go to dɔktɔ.
Mɛsej we dɛn kin kɛr go na os
- Burosumab na spεshal injεkshכn we de kכntro di fכsfεt lεvεl na di bכdi εn dεn de gi am fכ di kכndishכn X-linked hypophosphatemia (XLH).
- Na pɔsin we tren fɔ mɛn pipul dɛn we de wok na ɔspitul ɔ klinik kin gi dis vaysin.
- Bifo yu bigin fɔ trit yu, tɛl yu dɔktɔ bɔt ɔl yu mɛrɛsin ɛn ɔda mɛrɛsin dɛn we yu de tek.
- Nɔ ɛva skip di tɛm dɛn we yu dɔn sɛtul fɔ tek mɛrɛsin. If yu nɔ ebul fɔ go fɔ ɛni rizin, tɛl yu dɔktɔ wantɛm wantɛm.
- If yu gɛt alɛji (lɛk we yu skin rɛd, swel), go to dɔktɔ wantɛm wantɛm.
- If yu gɛt ɛni kwɛstyɔn bɔt dis mɛrɛsin, nɔ fred fɔ aks yu dɔktɔ.
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