Sɔm pan wi kin gɛt sɔm kayn wɛlbɔdi prɔblɛm dɛn we dɛn bɔn wi wit. Sɔm pan dɛn tin ya nɔ kin apin so ɔltɛm. Bɔt bikɔs ɔf di advans mɛdikal sayɛns tide, wi dɔn ebul fɔ kɔntrol bɔku pan dɛn sik ya ɛn liv nɔmal layf. Carglumic Acid na spɛshal mɛrɛsin we dɔktɔ dɛn kin se fɔ pɔsin we gɛt dis kayn sik we nɔ kin apin so ɔltɛm, we gɛt difrɛn kayn bɔdi, usay di pɔyzin we dɛn kɔl amonia we de na di blɔd kin bɔku. Lɛ wi tɔk bɔt dis tide.
Us kayn mɛrɛsin na Carglumic Acid?
Fɔ tɔk am simpul wan, dɛn kin yuz dis mɛrɛsin we dɛn kɔl Carglumic Acid fɔ mɛn sik dɛn we dɛn kɔl Urea Cycle Disorders (UCDs) .
Tink bɔt wi bɔdi lɛk big big faktri. Afta di bɔdi dɔn yuz di prɔtin dɛn we wi de it, wan pan di dɔti tin dɛn we lɛf na amonia . Dis amonia rili pɔyzin to wi bɔdi, mɔ di bren. pan hεlty pכsin, di yuria saykl de kכnvכlt dis tכxik amonia to wan tin we nכ de du bad we dεn kכl yuria εn afta dat i de kכl am na di urine.
Bɔt pan pɔsin we gɛt yuria saykl disɔda (UCD), dis prɔses nɔ kin apin fayn fayn wan. Dis kin mek pɔyzin amonia kin gɛda na di blɔd instead fɔ pul am na di bɔdi. Dɛn kɔl dis haypaammonemia . Dis kin bi wan sik we rili denja.
Na da tɛm de dis mɛrɛsin we dɛn kɔl Carglumic Acid kin kam fɔ ɛp am. dis mεdisin de wok bay we i de εp di yuria saykl we nכ de wok fayn εn i de ridyus di lεvεl fכ amonia na di bכdi. Dis kin ɛp fɔ ridyus di siriɔs wɛlbɔdi prɔblɛm (lɛk di bren we de pwɛl) we kin kam bikɔs ɔf di bɔku bɔku amonia.
Di tin we impɔtant pas ɔl: Dis nɔto mɛrɛsin fɔ di sik. Bɔt na rili impɔtant tritmɛnt we kin ɛp fɔ kɔntrol di sik ɛn ridyus di prɔblɛm dɛn we kin apin to am.
Tin dɛn fɔ tɛl yu dɔktɔ bifo yu tek mɛrɛsin
Bifo di dɔktɔ gi yu dis mɛrɛsin, i go aks yu sɔm kwɛstyɔn dɛn. Yu fɔ tɔk klia wan bak bɔt dɛn tin ya.
- If yu gɛt alɛji fɔ Carglumic Acid, ɛni ɔda mɛrɛsin, it, it day, ɔ tin dɛn we de mek yu nɔ pwɛl .
- If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ .
- If yu na mama we de gi yu pikin in bɛlɛ .
I rili impɔtant fɔ yu sef fɔ gi dis infɔmeshɔn to yu dɔktɔ.
Aw ɛksaktɔli a kin yuz dis mɛrɛsin?
Dis na di pat we impɔtant pas ɔl na dis atikul. Di we aw fɔ yuz dis mɛrɛsin rili spɛshal. So, mɛmba dɛn step ya gud gud wan.
| Step dɛn we yu fɔ du | Wetin fɔ du |
|---|---|
| 1. Fɔ pik di wata we de insay di wata | Na klin wata nɔmɔ yu fɔ yuz fɔ sɔlv di tablɛt. I rili ban fɔ yuz ɛni ɔda wata (milk, frut drink) ɔ it (rays, yogɔt) fɔ dis. |
| 2. Fɔ pripia di slais | Nɔ swɛla, chew, ɔ krɔs dɛn tablɛt ya ɔl . Tek wan ɔ af tablɛt lɛk aw yu dɔktɔ tɛl yu. |
| 3. Fɔ mɛlt | Sɔlv di tablɛt we dɛn dɔn tɛl yu (e.g. wan tablɛt ɔ af tablɛt) insay at le 2.5 ml wata (lɛk af ti spɔnj) . Drink wantɛm wantɛm afta yu dɔn sɔlv. |
| 4. Tek di ful doz | Dɛn pils ya nɔ kin sɔlv ɔlsay na wata. Wait pis dɛn stil de. So afta yu dɔn drink di mɛrɛsin, ad sɔm mɔ wata to di sem kɔp, was am fayn, ɛn drink da wata de bak . Na da tɛm de nɔmɔ di ful doz go absɔb insay di bɔdi. |
We dɛn gi am to pikin dɛn
Dɔktɔ kin gi dis mɛrɛsin ɔnda spɛshal tin, ivin fɔ pikin dɛn we dɛn jɔs bɔn ɛn pikin dɛn. Bɔt bikɔs i gɛt spɛshal tin dɛn fɔ tek tɛm wit, dɛn fɔ fala di instrɔkshɔn dɛn we di dɔktɔ gi dɛn di rayt we.
Wetin a go du if a mis wan doz fɔ mɛrɛsin?
If yu mis wan doz, tek am jɔs afta yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz, skip di doz we yu mis ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek dabl doz.
Wetin fɔ du if di mɛrɛsin doz go ɔp?
If yu tink se yu dɔn tek mɔ mɛrɛsin pas aw dɛn tɛl yu fɔ tek, go na di ɔspitul Imejɛnsi Dipatmɛnt (ETU) we de nia yu wantɛm wantɛm. Ɔ, kɔntak di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital.Kɔl ɛn gɛt advays.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, Carglumic Acid kin mek sɔm sayd ɛfɛkt. I impɔtant fɔ no bɔt dɛn tin ya.
| Klasifikɛshɔn fɔ di sayd ɛfɛkt dɛn | |
|---|---|
| Siriɔs sayd ɛfɛkt dɛm we dɛn fɔ ripɔt to di dɔktɔ wantɛm wantɛm | |
Sivɛri Alɛji Riakshɔn: Dɛn tin ya nɔ kin apin so ɔltɛm, bɔt dɛn kin rili denja.
| |
| Sayd ɛfɛkt dɛm wae nɔr kin denja, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Fɔ vɔmit | Bɛlɛ de at |
| Rɔnbɛlɛ | Ed de at |
| Fil fɔ it | |
If yu gɛt ɛni ɔda kayn sik we nɔ kɔmɔn we nɔ de na dis list, tɔk to yu dɔktɔ bɔt dɛn bak.
Aw fɔ kip mɛrɛsin fayn fayn wan?
Aw dis mɛrɛsin go wok fayn, dipen pan aw yu de kip am, so fala dɛn instrɔkshɔn ya kɔrɛkt wan.
- Bifo yu opin: If dɛn nɔ opin di mɛrɛsin bɔtul, kip am na frij .
- Afta yu opin: Afta yu opin di bɔtul, kip am na rum tɛmpracha (bitwin 15 ɛn 30 digri sɛlshiɔs) . Nɔ put am na frij igen . Protɛkt frɔm mɔstɔ. Kip di bɔtul kap tayt tayt wan.
- Dispɔz: Wan mɔnt afta yu opin di bɔtul, ɔWe di de we di mɛrɛsin fɔ dɔn pas, trowe ɛni mɛrɛsin we lɛf.
- Sef: Ɔltɛm kip mɛrɛsin usay pikin ɛn animal dɛn we yu lɛk nɔ go ebul fɔ rich.
Dɛn dɔn gi yu dis mɛrɛsin fɔ yu nɔmɔ. Dɛn dɔn disayd di doz bay di mɛrɛsin we yu gɛt. So, nɔ sheb dis mɛrɛsin wit ɛni ɔda pɔsin fɔ ɛni rizin.
Mɛsej we dɛn kin kɛr go na os
- Carglumic Acid na spɛshal mɛrɛsin we dɛn kin gi pipul dɛn we gɛt yuria saykl dizayd (UCD) fɔ ridyus di lɛvɛl dɛn we pɔyzin amonia kin gɛda na di blɔd.
- Nɔ ɛva swɛla dis pil ɔl. Ɔltɛm, sɔlv am insay smɔl wata ɛn drink am wantɛm wantɛm. Rinse di kɔp we yu drink di mɛrɛsin frɔm wit wata bifo yu drink.
- If yu gɛt siriɔs alɛji lɛk fɔ swel na yu fes, yu lip, ɔ yu trot, go na ɔspitul in Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm.
- Stɔr di mɛrɛsin bɔtul na frij bifo yu opin am ɛn na rum tɛmpracha afta yu opin am. Trowe ɛni mɛrɛsin we lɛf insay wan mɔnt afta yu opin am.
- Nɔ stɔp fɔ tek di mɛrɛsin, chenj di doz, ɔ gi am to ɔda pɔsin we yu nɔ gɛt yu dɔktɔ in advays. Ɔltɛm go to yu dɔktɔ fɔ mek dɛn chɛk yu.
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