Yu ɔ yu pikin gɛt wan sik we dɛn kɔl PROS? Dɔktɔ dɛn kɔl am PIK3CA-Related Overgrowth Spectrum. Fɔ tɔk am simpul wan, na wan sik we di tisu dɛn na sɔm pat dɛn na di bɔdi kin gro abnɔmal wan ɛn kwik kwik wan. Na wan sik wae nɔr kin bɔrku, ɛn e kin tranga fɔ kɔntrol am. Bɔt tide wi go tɔk bɔt wan mɛrɛsin we dɛn kin yuz fɔ mɛn am. Na wan pil we dɛn kɔl Alpelisib. Lɛ wi tek tɛm luk wetin na dis mɛrɛsin, aw i de wok, ɛn wetin yu nid fɔ tek tɛm wit we yu de yuz am.
Wetin na dis mɛrɛsin we dɛn kɔl Alpelisib?
Alpelisib (brand nem Vijoice) na wan mɛrɛsin we dɛn kin yuz fɔ kɔntrol di sayn dɛm fɔ PROS. Wan prɔtin de na wi bɔdi we de ɛp di sɛl dɛn fɔ gro ɛn sheb. Na pipul dɛm wae gɛt PROS, dis prɔses kin tu bɔku smɔl. So wetin dis mεdisin de du na fכ blכk di akshכn fכ di protin we de mek di sεl dεm gro kwik kwik wan. afta dat, dεn kin kכntro di tisu dεm we nכ nid fכ gro bכku bכku wan. Dis kin ɛp fɔ ridyus de sik ɛn mek layf izi.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin fɔ tek mɛrɛsin
Bifo yu bigin fɔ tek Alpelisib, i rili impɔtant fɔ tɔk to yu dɔktɔ bɔt yu wɛlbɔdi kɔndishɔn kɔmplit wan. Mek shɔ se yu tɛl dɛn bɔt dɛn tin ya mɔ:
- Dayabitis: Tɛl yu dɔktɔ if yu ɔ sɔmbɔdi na yu famili gɛt dayabitis.
- Lɔng sik: If yu gɛt ɛni sik we gɛt fɔ du wit lɔng.
- Alɛji: Tɛl wi if yu gɛt ɛni alɛji to Alpelisib ɔ ɛni ɔda mɛrɛsin, it, ɔ day.
- Bɛlɛ: I impɔtant fɔ tɛl yu dɔktɔ if yu gɛt bɛlɛ, yu de tray fɔ gɛt bɛlɛ, ɔ if yu patna go gɛt bɛlɛ.
- Fɔ gi pikin in mama in bɛlɛ: If yu de gi pikin in mama in bɛlɛ, mek shɔ se yu tɔk bɔt dat bak.
Bay dis infɔmeshɔn, di dɔktɔ go disayd if dis mɛrɛsin fayn fɔ yu ɔ nɔ fayn fɔ yu.
Aw ɛksaktɔli yu kin yuz dis mɛrɛsin?
I rili impɔtant fɔ fala yu dɔktɔ in instrɔkshɔn dɛn gud gud wan bɔt aw fɔ yuz dis mɛrɛsin.
- Dɛn tablɛt ya fɔ tek bay mɔt. Tek dɛn wit wan it .
- Gɛt di abit fɔ tek yu mɛrɛsin di sem tɛm ɛvride. Da we de, yu nɔ go fɔgɛt.
- Nɔ brok ɔ chew di tablɛt. Swɛla am ɔl.
- Kɔntinyu fɔ yuz dis tritmɛnt te yu dɔktɔ tɛl yu fɔ stɔp.
Wetin yu kin du if i nɔ izi fɔ pɔsin fɔ swɛla pils?
Sɔm pipul dɛn kin gɛt prɔblɛm fɔ swɛla pils. Fɔ dis kayn pɔsin, yu kin tek di mɛrɛsin dis we:
1. Put 4-8 tebul spɔnj (2-4 ɔns) wata insay wan klin kɔp.
2. Ad yu mɛrɛsin pils to am ɛn lɛf am fɔ lɛk 5 minit.
3. Dɔn, krɔs di slais dɛn fayn fayn wan wit klin spun.
4. Stir gud gud wan ɛn drink di miksɔp wantɛm wantɛm afta i dɔn sɔlv.
5. Neks, ad ɔda 2-4 tebul spɔnj (1-2 ɔns) wata to di sem kɔp, rins di spun we yu dɔn yuz fayn fayn wan, ɛn drink da wata de bak. Dis impɔtant so dat dɛn nɔ go west ɛni mɛrɛsin.
6. Du dis sote no mo pies lef fo di kop.
Impɔtant: Dɔktɔ kin gi dis mɛrɛsin ɔnda sɔm tin dɛn, ivin fɔ pikin dɛn we ol lɛk 2 ia. Bɔt spɛshal tin dɛn de we wi fɔ tek tɛm wit. So, du wetin di dɔktɔ tɛl yu fɔ du di rayt tin.
Wetin a go du if a mis wan doz ɔ a vɔmit?
- If yu mis wan doz: If yu mis wan doz, tek am as yu mɛmba. Bɔt if i pas 9 awa pas di tɛm we yu dɔn sɛtul, skip da doz de ɔltogɛda. Tek yu nɛks doz na di tɛm we dɛn dɔn sɛtul. Nɔ ɛva tek tu dos wan tɛm.
- If yu vɔmit: If yu vɔmit afta yu dɔn tek di mɛrɛsin, nɔ tek ɔda pil. Tek yu ɔspitul doz na di tɛm we yu dɔn sɛtul di nɛks de.
Ɔda mɛrɛsin dɛm wae kin miks wit dis mɛrɛsin
Ɔda mɛrɛsin dɛm wae yu de tek kin intarakt wit Alpelisib. Dis kin mek di Alpelisib wok fayn ɔ i nɔ go wok fayn, ɔ i kin mek di risk fɔ gɛt di sayd ɛfɛkt dɛn go ɔp. So tɛl yu dɔktɔ bɔt ɛni wan pan dɛn tin ya:
- Sɔm mɛrɛsin dɛn we dɛn kin yuz fɔ mek pɔsin sik (e.g. carbamazepine, phenobarbital, phenytoin) .
- Rifampin bin de du am
- St. John’s wort (dis na ɛbul sɔpɔtmɛnt) .
- Warfarin (wan tin we de mek blɔd tan) .
Dis list nɔ kɔmplit. So tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn, vaytamɛn dɛn, ɛbul prɔdak dɛn, ɛn sɔpɔtmɛnt dɛn we yu de tek. I kin ɛp yu fɔ mek di tritmɛnt plan we sef fɔ yu.
Speshal tin dɛn we yu fɔ no bɔt we yu de tek mɛrɛsin
Yu nid fɔ tek tɛm smɔl bɔt di chenj dɛn we de apin na yu bɔdi we yu de tek dis mɛrɛsin.
- Si yu dɔktɔ ɔltɛm: Yu dɔktɔ go nid fɔ si yu ɔltɛm fɔ si aw di tritmɛnt de afɛkt yu. I go ɔda bak fɔ mek dɛn du blɔd tɛst. Nɔ skip ɛni wan pan dɛn.
- Siriɔs sik dɛn we kin apin na di skin:Dis mɛrɛsin kin mek sɔm pipul dɛn gɛt siriɔs skin riakshɔn. Dɛn tin ya kin apin sɔm wik ɔ mɔnt afta dɛn dɔn bigin fɔ tek di mɛrɛsin. Tɛl yu dɔktɔ wantɛm wantɛm if yu gɛt rash wit sɔm sayn dɛm lɛk fiva ɔ kol. Dɛn rash ya kin tɔn rɛd ɔ pepul, dɔn blista ɛn di skin kin bigin fɔ pul. Dɔn bak, if yu notis ɛnitin we de rɛd na yu skin wit yu fes, lip, ɔ yu nɛk ɔ yu an we de swel, tɛl yu dɔktɔ wantɛm wantɛm.
- Di wata we nɔ de na yu bɔdi: Tɛl yu dɔktɔ if yu gɛt bad bad dayarɛa, yu gɛt nɔys, yu de vɔmit, ɔ yu de swet pasmak. If yu lɔs bɔku wata na yu bɔdi, dat kin mek yu denja we yu de tek dis mɛrɛsin.
- Ay blɔd shuga (Hyperglycemia): Dis mɛrɛsin kin mek yu blɔd shuga bɔku. Dis risk kin pasmak pan pipul dɛm wae dɔn ɔlrɛdi gɛt dayabitis. Tɛl yu dɔktɔ if yu gɛt sɔm sayn dɛn lɛk fɔ tɔsti we yu nɔ kɔmɔn, yu de pis ɔltɛm, yu taya pasmak, ɔ yu nɔ de si fayn .
- Bεlε εn we dεn de gi pikin bεlε:
- If yu tek dis mɛrɛsin we yu gɛt bɛlɛ, dat kin mek di pikin gɛt siriɔs prɔblɛm wit di pikin. So, yu fɔ tek tɛst fɔ mek shɔ se yu nɔ gɛt bɛlɛ bifo yu bigin fɔ tek di tritmɛnt.
- Yu fɔ yuz wan we we rili wok fɔ mek yu nɔ bɔn pikin ɔl di tɛm we yu de tek di pil, ɛn fɔ wan wik afta yu tek di las doz .
- If yu patna ebul fɔ gɛt bɛlɛ, i impɔtant fɔ yuz kɔndɔm we yu de du mami ɛn dadi biznɛs we yu de tek di pil ɛn fɔ wan wik afta di las doz.
- Nɔ gi pikin in bɛlɛ we yu de tek dis mɛrɛsin ɛn fɔ wan wik afta di las doz.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, Alpelisib kin mek yu gɛt sayd ɛfɛkt. Sɔm pan dɛn tin ya kin siriɔs, so i impɔtant fɔ no bɔt dɛn.
| Sayd ɛfɛkt dɛm we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
|---|---|
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na yu fes, yay, lip, tong, an ɔ fut, i nɔ izi fɔ swɛla ɔ blo. |
| I nɔ kin izi fɔ yu fɔ blo | Dray kɔf, shɔt briz, ɔ i nɔ kin izi fɔ blo. |
| Di blɔd shuga we bɔku (Hyperglycemia) . | I nɔ kin izi fɔ mek yu tɔsti bɔku, yu kin pis bɔku tɛm, yu kin taya pasmak, yu nɔ kin si fayn. |
| Pankriaytis we gɛt sik | Bɛlɛ pen bad bad wan (espɛshali na di bak), pen we kin wɔs afta yu it ɔ we yu tɔch yu bɛlɛ, fiva, nɔs, vɔmit. |
| Bɔrku sik dɛn we kin kam pan pɔsin in skin | di skin de rεd, blista, di skin de kכl (ivin insay di mכt), fiva εn di gכm de swel. |
| Bɛlɛ pen bad bad wan | Bɛlɛ pen bad bad wan wantɛm wantɛm, stɔl we gɛt blɔd, fiva, nɔs, vɔmit. |
| Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
|---|---|
| Rɔnbɛlɛ | Dray skin |
| Di ia we de lɔs | Ed de at |
| Sɔm na yu mɔt ɔ yu trot | Pen, rɛd, ɔ swel na yu mɔt ɔ trot. |
Impɔtant: Dis list nɔ gɛt ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu gɛt ɛni sayn we nɔ kɔmɔn, go to dɔktɔ.
Wetin yu kin du if yu tek bɔku mɛrɛsin?
If yu tink se yu dɔn tek bɔku mɛrɛsin, go na ɔspitul Imejɛnsi Yunit (ETU) wantɛm wantɛm. Ɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital .
Dɛn dɔn gi yu dis mɛrɛsin fɔ yu nɔmɔ. Nɔ sheb am wit ɛni ɔda pɔsin fɔ ɛni rizin.
Aw yu kin kip ɛn trowe di mɛrɛsin dɛn fayn fayn wan?
- Fɔ kip di mɛrɛsin: Ɔltɛm kip di mɛrɛsin usay pikin ɛn animal dɛn we yu lɛk nɔ go ebul fɔ rich . Di rum tɛmpracha (bitwin 20-25 digri sɛlshiɔs) na di bɛst. Nɔ yuz mɛrɛsin dɛn we dɔn pas.
- Aw fɔ trowe am: Aks yu dɔktɔ bɔt di bɛst we fɔ trowe di mɛrɛsin dɛn we yu nɔ yuz ɔ we dɔn pas. Sɔm mɛrɛsin dɛn nɔ fɔ flash dɔŋ di tɔylɛt. If dat nɔ pɔsibul, yu kin pul di pils dɛn na di bɔtul, miks dɛn wit sɔntin lɛk kɔfi grɔn we dɛn dɔn yuz, dɔti, ɔ pusi dɔti, ɛn put dɛn insay bag we dɛn tay tayt ɛn put dɛn na di dɔti.
Mɛsej we dɛn kin kɛr go na os
- Alpelisib na wan drɔg we de kɔntrol di growth fɔ di tisu we dɛn nɔ want we wan kɔndishɔn we dɛn kɔl PROS kin mek.
- Ɔltɛm tek dis mɛrɛsin lɛk aw yu dɔktɔ tɛl yu, di tɛm we dɛn tɛl yu fɔ tek, wit it.
- Tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin ɛn sɔpɔtmɛnt dɛn we yu de tek.
- If yu notis ɛni bad bad sik na yu skin, sayn dɛn we de sho se yu gɛt bɔku shuga na yu blɔd, ɔ yu nɔ ebul fɔ blo, tɛl yu dɔktɔ wantɛm wantɛm.
- Tek tɛm bad bad wan fɔ avɔyd bɛlɛ we yu de du di tritmɛnt ɛn fɔ wan wik afta yu dɔn trit yu. Nɔ gi pikin in bɛlɛ bak dis tɛm.
- Dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ ɛva sheb am wit ɔda pipul dɛn.
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