Yu dɔn ɛva yɛri bɔt wan sik we di prɛshɔn na di smɔl smɔl blɔd vesel dɛn we de insay di lɔng dɛn kin go ɔp wantɛm wantɛm? I tan lɛk se sɔntin stɔp na wata paip ɛn di prɛshɔn de go ɔp. Na dat CTEPH bi. Pan ɔl we di nem kin tan lɛk se i lɔng smɔl, i izi fɔ ɔndastand. Na wan sik wae nɔr kin bɔrku, bɔt na impɔtant wan wae wi ɔl fɔ no bɔt.
Fɔ tɔk am simpul wan, wetin na CTEPH?
CTEPH na ay blɔd prɛshɔn na di lɔng dɛn. Na mεdikal, wi kin kכl dis `(Pulmonary Hypertension)`. Bɔt dis difrɛn frɔm di nɔmal ay blɔd prɛshɔn. Wan patikyula rizin de we mek CTEPH kin apin. dat min se, di bכdi kכlכt dεm we bin dכn stכk bifo na di bכdi vεsul dεm na di lכng `(Pulmonary Embolism)` nכ de sכlv fayn fayn wan .
Imajin se pɔsin gɛt blɔd we de na in lɔng. Nɔmal wan, di tin dɛn we wi bɔdi de du fɔ sɔlv dɛn blɔd ya as tɛm de go. Bɔt pan sɔm pipul dɛn, dɛn blɔd ya nɔ kin sɔlv ɔl. Bifo dat, dɛn kin ol, we tan lɛk skata we kin lod na di blɔd vesel dɛn. As tɛm de go, dis skata kin mek di blɔd vesel dɛn smɔl.
We di blɔd vesel dɛn smɔl, di at kin gɛt fɔ wok tranga wan fɔ pɔmp blɔd tru dɛn vesel dɛn de we smɔl. Dis kin mek di prɛshɔn we de insay di blɔd vesel dɛn na di lɔng dɛn go ɔp tumɔs. Na dat wi kin kɔl CTEPH (Chronic Thromboembolic Pulmonary Hypertension) .
Di impɔtant tin na dat dis sik kin apin nɔmɔ pan pipul dɛm wae gɛt histri bɔt pulmonary embolism. If di prɛshɔn na di lɔng dɛn bɔku we nɔ gɛt da kayn histri de, i kin bi ɔda mɛrɛsin.
Aw CTEPH de afɛkt yu bɔdi?
Di rayt say na wi at de pɔmp blɔd we nɔ gɛt ɔksijɛn ɛn we nɔ klin to di lɔng dɛn fɔ mek i klin. naw, we di bכdi vεsεl dεm na di lכng dεm de sכmtεm sכmtεm bikoz fכ CTEPH εn di prεshכn de go כp, di rayt say na di at gεt fכ fεs wan big tin fכ push dis bכdi to di lכng dεm.
Dis kin mek wi gɛt tu men prɔblɛm dɛn:
1. Fɔ lod di at pasmak: We yu de wok tranga wan lɛk dis ɔltɛm, di rayt say na di at kin bigin fɔ wik. Dis tan lɛk wata pɔmp we de wok tranga wan fɔ ful-ɔp ples we dɔn blok. As tɛm de go, di pɔmp kin wik.
2. di כksijεn we de dכn na di bכdi: di bכdi nכ de ebul fכ pas fayn fayn wan na di lכng dεm εn pik כksijεn. Dis kin mek di ɔksijɛn lɛvɛl na di bɔdi go dɔŋ. Dis na wetin wi kin gɛt as sayn dɛm lɛk fɔ taya ɛn fɔ blo shɔt.
Us tin dɛn kin mek pɔsin gɛt CTEPH?
As wi bin dɔn tɔk, di men tin we kin mek i apin na bikɔs di blɔd we dɔn fɔm na di lɔng dɛn nɔ kin sɔlv ɔl. Bɔt sɔm pipul dɛn kin gɛt dis sik. Lɛ wi tek wan luk pan wetin na dɛn tin ya we kin mek wi gɛt prɔblɛm.
| Risk factor | Tɔk bɔt |
|---|---|
| Di kayn blɔd we dɛn gɛt | Fɔ gɛt blɔd tayp we nɔto ‘O’. |
| Sik dɛn we kin mek pɔsin blɔd klɔt | If yusɛf ɔ sɔmbɔdi na yu famili gɛt wan sik we de mek yu blɔd klɔt (e.g. Antiphospholipid Syndrome ). |
| Fɔ pul di splin | Splenectomy (we dɛn kin du ɔpreshɔn fɔ pul di splin) . |
| Infεkshכn dεm we kin de fכ lכng tεm | Infεkshכn dεm we kin de fכ lכng tεm lεk bon infεkshכn (osteomyelitis) . |
| Ɔda tin dɛn we kin apin to pɔsin we sik | Sɔm kayn kansa ɛn sik dɛn lɛk Inflammatory Bowel Disease . |
| Ɔda tin dɛn we kin apin | Fɔ bi uman, fɔ gɛt pesmɛka na yu at, ɛn fɔ tek tritmɛnt wit tayroyd ɔmon na tin dɛn we kin mek yu gɛt infɛkshɔn. |
Wetin kin bi di sayn dɛm fɔ dis sik?
Di sayn dɛm fɔ CTEPH nɔr kin klia fɔs. Dɛn kin divɛlɔp smɔl smɔl. Yu kin tink se dis na jɔs nɔmal taya. Bɔt i rili impɔtant fɔ pe atɛnshɔn to dɛn sayn ya.
| Di sayn we de sho se di sik de | Mɔ infɔmeshɔn |
|---|---|
| I nɔ kin izi fɔ yu fɔ blo | I kin apin mɔ we yu de tray tranga wan, lɛk we yu de waka ɔ klaym stej. As di sik de go bifo, dis diskɔmfɔt kin apin ivin we yu jɔs tinap. |
| Taya pasmak ɛn taya pasmak | Fɔ fil taya ɔltɛm ivin we yu nɔ du ɛni wok. |
| Chɛst de pen ɔ tayt | Dis pen kin kam bikɔs di at gɛt fɔ wok tranga wan. |
| Swel na di leg ɛn ankles (Edima) . | Bikɔs di at nɔ de wok fayn, wata kin gɛda na di bɔdi, we kin mek di leg dɛn swel. |
| Diziz ɛn fɔdɔm (Syncope) . | Dis kin apin we di bren nɔ gɛt bɛtɛ ɔksijɛn. |
| Di at we de blo | Fɔ fil lɛk se yu kin yɛri yu yon at bit. |
| Blu dikɔlareshɔn (Cyanosis) . | di lip dεm εn di finga tכp dεm de tכn blu biכs di כksijεn we de na di bכdi nכ de. |
If yu gɛt dɛn sik ya, mɔ if yu gɛt histri bɔt blɔd we dɔn klɔt na yu lɔng, duya go to yu dɔktɔ wantɛm wantɛm.
Aw dɛn kin no se pɔsin gɛt CTEPH?
We yu go to dɔktɔ, i go aks yu bɔt di sik dɛn we yu gɛt ɛn chɛk yu. If ɛni saspek de se yu gɛt CTEPH, dɛn go rikɔmɛnd fɔ du sɔm tɛst fɔ kɔnfirm di diagnosis.
- V/Q skan: Dis de luk aw bכdi de fכlכ to di lכng dεm εn aw briz de muv tru dεm. Dis skan kin no usay di blɔd de klɔt, bikɔs di blɔd nɔ de flɔ.
- Transthoracic Echocardiogram (TTE): Dis kin chɛk di prɛshɔn na di rayt say na di at ɛn aw di at wik.
- CT Pulmonary Angiogram: Dis na spɛshal CT skan we kin si klia wan ol blɔd we de klɔt ɛn di blɔd vesel dɛn we de na di lɔng dɛn we de smɔl.
Fɔda tɛst fɔ kɔnfɔm
Wae dɛn dɔn kɔnfirm di sik, dɛn kin du sɔm ɔda tɛst fɔ no aw i siriɔs ɛn plan tritmɛnt.
- Rayt At Kateshɔn: Dis na di kɔrɛkt we fɔ mɛzhɔ di prɛshɔn na di pulmonari. dεn kin put wan sכmכl tכb (kateta) tru wan bכdi we de insay di bכdi insay di rayt say na di at εn di men blכd vesel we de go na di lכng, εn dεn kin mכsu di prεshכn.
- Exercise Stress Test: Dɛn kin du dis tɛst fɔ si aw yu at ɛn yu lɔng dɛn de wok we yu de du ɛksɛsayz.
Wetin na di tritmɛnt dɛm fɔ dis?
Di gud nyus bɔt CTEPH na dat na sik we pɔsin kin mɛn. Bɔku pan di sik pipul dɛn kin fil fayn if dɛn du dɛn ɔpreshɔn ɔ ɔda tritmɛnt dɛn. Tu men tritmɛnt dɛn de we yu kin du.
1. Pulmonary Endarterectomy (PTE) we dɛn kin pul na di bɔdi:
Dis na ɔpreshɔn we dɛn kin du fɔ opin in at. We dɛn de du dis, di dɔktɔ dɛn we de du ɔpreshɔn kin opin di men blɔd vesel dɛn na di lɔng ɛn skrap ɛni ol blɔd we dɔn klɔt ɛn ska tisu we go dɔn gɛda insay. Pan ɔl we dis na ɔpreshɔn we rili kɔmpleks, if i wok fayn, i gɛt bɔku chans fɔ mɛn di sik kpatakpata.
2. Pulmonari Balɔn Angioplasti (BPA):
Dɛn kin yuse dis tritmɛnt fɔ pipul dɛm wae gɛt blɔd klɔt na dɛn vein dɛm wae tu smɔl fɔ ɔpreshɔn. insay dis tritmεnt, dεn kin put sכm sכm tכb (kateta) insay wan vein na di leg εn dεn kin yuz sכm sכm balכn na di εnd fכ inflate εn mek di vein we sכmכt big. Dis nɔto big tin lɛk ɔpreshɔn.
Ɛni wan pan dɛn tritmɛnt ya kin mɛn CTEPH ɔlmost kɔmplit wan. Afta tritmɛnt, bɔrku pipul kin liv nɔrmal layf.
Sɔntɛnde, fɔ di wan dɛn we nɔ ebul fɔ du ɔpreshɔn ɔ we stil gɛt sɔm ay prɛshɔn na dɛn lɔng afta dɛn dɔn ɔpreshɔn, dɛn kin gi spɛshal mɛrɛsin (e.g., Riociguat) fɔ kɔntrol da prɛshɔn de.
Tin dɛm fɔ no we yu de liv wit CTEPH
Yu layf go bɛtɛ pasmak afta yu dɔn gɛt tritmɛnt, bɔt sɔm tin dɛn de we yu fɔ no bɔt.
- Di tin dɛn we de mek blɔd tan fɔ yu layf: Yu go nid fɔ tek tin dɛn we de mek blɔd tan fɔ di res ɔf yu layf fɔ mek blɔd nɔ klɔt mɔ. I impɔtant fɔ fala yu dɔktɔ in instrɔkshɔn dɛn di rayt we.
- Di it: If yu de tek mɛrɛsin lɛk `Warfarin`, yu fɔ tek tɛm wit it dɛn we gɛt vaytamɛn K (lɛk kabij, spinach, brɔkoli). Tɔk to yu dɔktɔ bɔt dis.
- Nɔ smok: Fɔ smok kin rili ambɔg yu lɔng. If yu na pɔsin we de smok, i rili impɔtant fɔ lɛ yu lɛf fɔ smok ɔltogɛda.
- Layt ɛksesaiz: Layt ɛksesaiz, lɛk fɔ waka, kin ɛp fɔ mek yu gɛt mɔ trɛnk. Bɔt mek shɔ se yu go to yu dɔktɔ bifo yu bigin ɛni ɛksesaiz program. Dɛn kin rifer yu to wan rihabiliteshɔn program we dɛn kɔl ``Pulmonary Rehabilitation.''
- Mental wɛl bɔdi: If yu liv wit sik lɛk dis fɔ lɔng tɛm, dat kin mek yu fil strɛs, wɔri, ɔr pwɛl hat. If yu de fil dis kayn we, nɔ shem fɔ tɔk to yu dɔktɔ ɔ pɔsin we de nia yu.
Mɛsej we dɛn kin kɛr go na os
- CTEPH na wan ay blɔd prɛshɔn we kin kam bikɔs ol blɔd klɔt kin stɔp na di blɔd vesel dɛm na di lɔng.
- Nɔ kɔnfyus dis wit nɔmal ay blɔd prɛshɔn.
- If yu gɛt sɔm sayn dɛn lɛk we yu nɔ de blo fayn, yu taya pasmak, ɔ yu leg dɛn de swel, mɔ if yu gɛt histri bɔt blɔd we de klɔt, go to dɔktɔ wantɛm wantɛm.
- Bɔku tɛm, dɛn kin wɛl dis sik ɔltogɛda if dɛn du ɔpreshɔn ɔ ɔda we dɛn.
- Ivin afta yu dɔn gɛt tritmɛnt, fala wetin yu dɔktɔ tɛl yu fɔ du, mɔ we i kam pan aw fɔ tek mɛrɛsin dɛn we de mek yu blɔd tan.
💬 Comments (0)
No kɔmɛnt nɔ de yet. Ad yu kɔmɛnt ya fɔ di fɔs tɛm.
Ad yu kɔmɛnt