Aw mama ɔ papa go fil if dɛn si smɔl difrɛns na dɛn pikin we dɛn jɔs bɔn in an we dɛn de luk am wit lɔv? I kin mek pɔsin shɔk, i kin mek i fil bad, ɛn sɔntɛm i kin ivin vɛks. I rili nɔmal fɔ de wɔnda se, ‘Wetin mek dis apin to wi pikin?’ Bɔt nɔ wɔri. Tide wi de tok boht dis congenital han difrens. Wi biliv se dis infɔmeshɔn go mek yu gɛt bɔku kɔrej.
Wetin na dis difrɛns we dɛn bɔn wit an?
Fɔ tɔk am simpul wan, dis min se di shep we yu pikin in an shep difrɛn smɔl frɔm di shep we nɔmal an gɛt. di wod "congenital" min "prεsεnt we dεn bכn am." dis min se dis difrεns de apin we di pikin stil de gro na di bεlε.
I nɔmal fɔ mek mama ɛn papa dɛn fil bad, vɛks, ɛn fil gilti we dɛn si sɔntin lɛk dis. Yu kin wɔnda se, "Sɔmtin bin apin to mi we a bin gɛt bɛlɛ?" Yu kin vɛks bak se ivin di dɔktɔ dɛn nɔ bin fɔ dɔn no dis bifo tɛm.
Bɔt fɔ tru , nɔto ɛnibɔdi in fɔlt. Bɔrku pan dɛn kayn tin ya nɔr kin kɔmɔt frɔm dɛn mama ɛn papa. Ɛn dɛn nɔ kin ebul fɔ avɔyd dɛn. Sɔntɛnde, ivin skan nɔ kin ebul fɔ no dɛn. So, duya nɔ blem yusɛf.
Wetin na di men kayn chenj dɛn we kin apin?
di difכmiti dεm we dεn bכn wit di an kin sheb to sεvεra men kεtכgrεf dεm. We dɛn put am dis kayn we, i kin izi fɔ ɔndastand di kɔndishɔn.
| Aw chenj dɛn kin apin | Wan simpul ɛksplen |
|---|---|
| Prɔblɛm dɛn we de mek di wan ol an ɔ di pat dɛn na di an | If yu nɔ de divɛlɔp fayn fayn wan pan di pat ɔ ɔl di an. |
| Prɔblɛm dɛn we kin apin we dɛn de separet an | Finga dɛn kin jɔyn togɛda ɛn dɛn kin stɔp togɛda. |
| Ekstra finga ɔ big big an | Fɔ gɛt mɔ finga pas aw i fɔ gɛt pan an. |
| כnda divεlכpmεnt כ ova divεlכpmεnt fכ di an כ finga dεm | Di sayz fɔ di an, di finga dɛn, ɔ di big an smɔl ɔ big pas aw i kin bi. |
Dɛn kin si sɔm patikyula kayn dɛn
Naw lɛ wi tɔk bɔt sɔm pan di mɔr kɔmɔn spɛshal kɔndishɔn dɛm we de ɔnda dɛn men kategori ya.
Finga dɛn we de stik togɛda (Syndactyly) .
Dis na di kɔmɔn tin we kin apin we pɔsin bɔn wit in an. Insay Grik, "syn" min "togɛda" ɛn "daktylos" min "finga." Fɔ tɔk am simpul wan, dis na we pikin in finga dɛn kin stɔp togɛda. Sɔntɛnde, na di skin nɔmɔ we de bitwin tu finga dɛn kin kɔnɛkt. Wi kin kɔl dis ‘simpul’ kɔndishɔn. Ɔda tɛm dɛn, di bon dɛn, di nerv dɛn, ɛn di blɔd vesel dɛn we de na di finga dɛn kin gɛt kɔnekshɔn bak. Dis na ‘kɔmpleks’ kɔndishɔn.
Fɔ gɛt ɛkstra finga dɛn (Polydactyly) .
"Poly" min "bɔku." Dis min se di pikin gɛt pas fayv finga dɛn na dɛn an. Dis ekstra finga kin bi na di skin ɔ di nerv dɛn nɔmɔ kin atak am. Ɔda tɛm dɛn, i kin gɛt pat dɛn lɛk nɔmal finga ɔ i kin tay pan ɛkstra bon na di an.
Tu men kayn dis de bak:
- Ulnar Polydactyly: Dis na di kayn we we dɛn kin yuz mɔ. na ya, di ekstra dijit de divεlכp na di sayd fכ di sכm finga, di sayd we de kכnekt to di big wan pan di tu bon dεm na wi an, di `(ulna)` bon.
- Radial Polydactyly: insay dis, di ekstra dijit de divεlכp na di sayd fכ di tכmbכl. Dat min se, na di sayd we di `(radius)` bon de. Sɔntɛnde, bɔku bɔku tumbu dɛn kin de na wan an.
Radial Klɔb Han
insay dis kכndishכn, di growth fכ di tכmbכl sayd na di an, dat na di `(radius)` bon, de stכnt. dis de mek di lכw pat pan di an de sכt, i de bεnd insay, εn i de tek wan shep we lεk di lεta "J". Di big an kin rili smɔl ɔ i nɔ kin de atɔl. Di shɔt an kin mek i nɔ izi fɔ di pikin fɔ du wok dɛn we i de yuz in tu an.
Klɛft An
Dis na we wan ɔ mɔ pan di midul finga dɛn na di pikin in an nɔ de. dis de rizulta in wan gap we shep lεk "V", כ cleft, na di palm. dis kכndyushכn kin kam wit כda kכndyushכn dεm lεk sindaktili כ polydaktili.
Wetin mek dis de apin? Wetin na di rizin dɛn?
di pikin in an dεm εn in finga dεm de divεlכp bitwin di fכs εn siks wik we i bεlε. Ɛni disrɔpshɔn insay dis rili sɛnsitiv tɛm kin mek dɛn chenj ya. Tu men tin dɛn de we kin afɛkt dis.
Di tin dɛn we de mek pɔsin gɛt jɛnɛtiks
di jin dεm de gi instrכkshכn fכ aw εvri sεl na wi bכdi de gro εn wok. Dɛn jin ya kin kɔmɔt frɔm mama ɛn papa to pikin dɛn. Sɔmtɛm dɛn jin ya kin chenj (muteshɔn) fɔ dɛnsɛf. if di an chenj, dεn jεnεtik chenj dεm ya kin apin fכ dεn wan we dεn nכ kin kכl dεm. Dɛn nɔ kin bɔku ɛn dɛn kin pas frɔm wan jɛnɛreshɔn to ɔda jɛnɛreshɔn.
Di tin dɛn we de apin na di envayrɔmɛnt
Dis kin afɛkt sɔm infɛkshɔn dɛn we di mama kin gɛt we i gɛt bɛlɛ ɛn sɔm mɛrɛsin dɛn we i kin tek. Fɔ ɛgzampul, di mɛrɛsin we dɛn kɔl thalidomide ɛn sɔm kemotɛrapi mɛrɛsin fɔ kansa. dis tin dεm kin pwεl di hεlty divεlכpmεnt tisu dεm εn chenj di growth prכsεs.
Pan ɔl we sɔm tin dɛn we kin chenj na di an kin ɛksplen bay dɛn tin ya, bɔku tɛm dɛn nɔ kin fɛn ɛni patikyula kɔz.
Ɛni kɔmplikeshɔn de we kin apin bikɔs ɔf dis kɔndishɔn?
Sɔm pikin dɛn kin ebul fɔ adap to am ɛn wok witout ɛni prɔblɛm. Bɔt sɔm pikin dɛn kin gɛt sɔm prɔblɛm dɛn if dɛn nɔ trit dɛn.
- Divɛlɔpmɛnt dilɛys.
- I nɔ izi fɔ du in yon wok ɛn fɔ du tin dɛn we pɔsin kin du ɛvride.
- Limiteshɔn fɔ tek pat pan sɔm spɔt ɛn ɔda tin dɛn.
- Saikɔlɔjik ɛn sɔshal prɔblɛm (fɔ fil se yu nɔ de nia ɔda pipul dɛn, fɔ fil shem, ɛn ɔda tin dɛn).
Us tritmɛnt opshɔn dɛn de?
Bikɔs ɔl pikin difrɛn, dɛn kin disayd aw fɔ trit am bay wetin di pikin nid. Di men gol fɔ tritmɛnt na fɔ inkrisayz di wok we di pikin kin du wit da an de ɛn mek i izi fɔ liv ɛvride. Wan ɔda tin we dɛn want fɔ du na fɔ ɛp di pikin fɔ gɛt rɛspɛkt fɔ insɛf bay we i de mek in an luk fayn te to sɔm mak.
| Di we aw dɛn kin trit am | Tɔk bɔt |
|---|---|
| We yu de strɛch | Jɛntil ɛksesaiz fɔ mek di jɔyn ɛn mɔsul dɛn muv fayn fayn wan. |
| Splinting ɔ fɔ kɔt | Divays dɛn we dɛn kin yuz fɔ ol di an na di rayt pozishɔn ɛn fɔ mek i kɔntinyu fɔ trakshɔn. |
| Fizik tɛrapi | Spɛshal ɛksɛsayz ɛn tritmɛnt dɛn fɔ mek yu an gɛt trɛnk ɛn wok fayn fayn wan. |
| Prostɛtik dɛn we dɛn kin yuz fɔ mek pɔsin in bɔdi | di εksternal fikseshכn divays dεm fכ di absכns כf pat כ bon na di an. |
| Ɔpreshɔn | Dɛn bin de du ɔpreshɔn fɔ separet di finga dɛn we dɛn dɔn fuz, fɔ pul di ɛkstra finga dɛn, ɛn fɔ mek di an shep ɛn wok fayn. |
fכ egzampl, insay di kes fכ sindakti, dεn kin כp di fכs fכ separet di finga dεm. insay di kes fכ polydactyly, dεn kin pul di εkstra finga dεm bay כpεrayshכn εn di rεst fכ finga dεm kin atak bak.
Mɛmba se, tritmɛnt nɔ go ebul fɔ ‘krɔs’ dis chenj ɔltogɛda. Bɔt dɛn kin rili ɛp di we aw di an de wok ɛn aw i de luk fayn. Di tin we impɔtant pas ɔl na fɔ mek yu ɛn yu pikin gri wit dis chenj fayn fayn wan. Dat na di trɛnk we pas ɔl fɔ mek di tritmɛnt go bifo.
Aw yu, as mama ɔ papa, go ɛp yu pikin?
As mama ɔ papa fɔ pikin we gɛt dis sik, bɔku tin dɛn de we yu kin du. Di sɔpɔt we yu de gi yu pikin rili impɔtant.
- Tɔk to yu dɔktɔ: Tɔk to yu dɔktɔ bɔt ɔl di tin dɛn we de mɔna yu ɛn di tin dɛn we yu de fred. Nɔ kip ɛnitin fɔ yusɛf.
- Aks bɔt sɔpɔt grup dɛm: Aks yu dɔktɔ bɔt sɔpɔt grup dɛm wit ɔda mama ɛn papa ɛn pikin dɛm we dɔn gɛt di sem kayn ɛkspiriɛns. We yu de tɔk to dɛn kayn pipul dɛn de, dat kin mek yu ɛn yu pikin gɛt bɔku trɛnk.
- Ɛnkɔrej yu pikin: As yu pikin de gro, ɛp am fɔ ɔndastand se dɛn difrɛn. Tɛl dɛn se nɔto dɛn fɔlt ɛn bɔku tin dɛn de we dɛn kin du fɔ dat.
Kwɛstyɔn dɛn we yu fɔ aks yu dɔktɔ
We yu go to yu dɔktɔ, yu kin aks kwɛstyɔn dɛn lɛk dɛn wan ya:
- Us kayn han difɔmiti mi pikin gɛt?
- Wetin na di bɛst tritmɛnt we yu kin advays?
- Yu tink se mi pikin go ebul fɔ du nɔmal tin dɛn lɛk ɔda pikin dɛn?
- Aw a go ɛp mi pikin fɔ ajɔst to dis chenj?
Pikin dɛn kin adap to dɛn tin ya kwik kwik wan pas aw yu tink. Dɛn wɔl rili wɔndaful. Yu lɔv, sɔpɔt, ɛn fayn abit na di bɛst mɛrɛsin we pikin kin gɛt.
Mɛsej we dɛn kin kɛr go na os
- Nɔto yu fɔlt fɔ mek dɛn bɔn yu pikin wit wan an we nɔ fayn. Nɔ fil gilti fɔ dat.
- Bɔrku pan dɛn kayn tin ya nɔr kin kɔmɔt frɔm ɔda pipul dɛm ɔr kin avɔyd.
- Di men gol fɔ tritmɛnt na fɔ mek di an wok fayn ɛn fɔ mek i luk fayn.
- Pikin dɛn kin adap to dɛn chenj ya kwik kwik wan. Dɛn kin rili ebul fɔ bia.
- Di fayn we aw yu de tink ɛn di lɔv we yu gɛt impɔtant fɔ mek yu pikin gɛt wɛlbɔdi.
- Tɔk to yu dɔktɔ bɔt ɛni kwɛstyɔn ɔ tin we de mɔna yu.
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