Wetin kin apin to di pikin if yu gɛt rubɛla we yu gɛt bɛlɛ? Lɛ wi no bɔt Congenital Rubella Syndrome!

As mama we go bi mama, sɔntɛnde yu kin fred smɔl ɛn wɔri ilɛksɛf yu gɛt kol? I rili nɔmal. Na bikɔs yu de tink bɔku bɔt yu valyu pikin we de na yu bɛlɛ. Na dat mek, tide wi go tɔk bɔt aw i kin afɛkt di pikin we de na di bɛlɛ if di mama gɛt rubɛla we i gɛt bɛlɛ. Dis na wetin dɔktɔ dɛn kin kɔl Congenital Rubella Syndrome (CRS) . Pan ɔl we di nem lɔng smɔl, lɛ wi ɔndastand am simpul wan.

Wetin na di Congenital Rubella Syndrome we pɔsin kin gɛt?

Fɔ tɔk am simpul wan, di sik we dɛn kɔl congenital rubella syndrome (CRS) na wan sɛt ɔf wɛlbɔdi prɔblɛm we kin apin to pikin dɛn we mama we gɛt bɛlɛ gɛt rubella (we dɛn kin kɔl bak Jamani mizɛl). di wod "congenital" ya min "present at born."

we di rubella vayrus go insay di pikin in bכdi, i kin afekt di divεlכpmεnt fכ di pikin in difrεn we dεm. Dɛn tin ya kin mek prɔblɛm ivin afta dɛn bɔn di pikin. Fɔ ɛgzampul, katarakt ɔ at sik we dɛn bɔn wit. Di kayn we aw CRS kin tranga kin difrɛn frɔm wan pɔsin to ɔda pɔsin. Bɔku tɛm, di sik kin siriɔs if di mama gɛt rubɛla ali we i gɛt bɛlɛ, mɔ bifo 13 wik.

Aw dis sik kin kɔmɔn?

Insay kɔntri dɛn lɛk Amɛrika, di wan dɛn we kin gɛt di sik we dɛn kɔl congenital rubella syndrome (CRS) kin rili smɔl bikɔs dɛn kin yuz di rubella vaysin bɔku bɔku wan. Bɔt, na tin we de mek wi wɔri se, if wi luk di wan ol wɔl , na lɛk 100,000 CRS kes dɛn kin ripɔt ɛvri ia. Insay wi kɔntri bak, dɛn put di rubɛla vaysin insay di nashɔnal vaysin program, so dɛn dɔn kɔntrol dis sityueshɔn. Bɔt, fɔ mek pipul dɛn no bɔt sɔntin rili impɔtant.

Wetin na di sayn dɛm wae de sho se pɔrsin gɛt di sik we dɛn kɔl congenital rubella syndrome?

De sayn dɛm ɛn aw dis CRS sik kin tranga kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin, lɛk aw a bin dɔn tɔk. Di kwik we di pikin gɛt bɛlɛ wit rubɛla, na di mɔ di pikin go gɛt siriɔs sik dɛn. Sɔntɛnde, if di CRS kɔndishɔn nɔr tranga, nɔr kin si sayn wae de sho klia wan wae dɛn bɔn am.

Dis na sɔm pan di fɔs sayn dɛm we pɔsin kin si jɔs afta di pikin bɔn:

• Di wet we dɛn bɔn we dɛn bɔn smɔl.
• Sɔntɛnde yu kin si blu-pepul sɛkɔral spat ɔ blista na yu pikin in skin. Sɔm pipul dɛn kin kɔl dis "blueberry muffin rash" bikɔs i tan lɛk di spat dɛn we de pan bluberi muffin.
• Pɔpul, rɛd, ɔ brawn spat ɛn pat dɛn na di skin (Purpura).
• di pikin in ed sכm pas di nכmal (Microcephaly).

Dis na ɔda sayn dɛm we kin apin jɔs afta dɛn bɔn di pikin:

• Katarakt we dɛn bɔn wit ɛn di prɛshɔn we de go ɔp na di yay (Glaucoma).
• Di sik we dɛn kin gɛt we dɛn bɔn wit at. Difrɛn kayn dɛn de. fכ egzampl, ol dεm bitwin di chεmba dεm na di at (Ventricular Septal Defects, Atrial Septal Defects), prכblεm wit di bכdi vεsul dεm na di at (Patent Ductus Arteriosus, Peripheral Pulmonary Artery Stenosis) εn dכkta dεm go εksplen dεn tin ya to yu mכr ditayli.
• Divεlכpmεnt Delay: Dis min se di pikin de let fכ kray, sidon, waka, εn tכk, as i fit fכ in ej.
• di liva כ di splin de big (Hepatosplenomegaly).
• I nɔ de yɛri fayn igen. Sɔntɛnde dis kin go bifo te i def ɔl.
• Hemolytic anemia kin kam bikɔs di rɛd blɔd sɛl dɛn kin brok.
• Intɛlektual Disabiliti.
• Nyumonia.
• Inflameshɔn na di bren ɛn di mɛninges (Meningoencephalitis).
• Pigmɛnt Rɛtinopati we pɔsin kin gɛt.
• Bɔn sik dɛn.
• Di limf no dɛm we dɔn swel.

Impɔtant: Bebi dɛn we dɛn bɔn wit Kɔnjɛnital Rubɛla Sindrɔm (CRS) kin gɛt mɔ risk fɔ gɛt insulin-dipɛndent dayabitis ɛn tayroyd sik leta na dɛn layf.

Wetin na di rizin fɔ dis?

Di men tin we kin mek yu gɛt di sik we dɛn kɔl congenital rubella syndrome (CRS) na we yu gɛt rubella we yu gɛt bɛlɛ. afta dat di rubella vayrus de pas frכm di mama tru di plasεnta εn i de infεkt di pikin we de insay di bεlε. di vayrus kin pwεl di sεl dεm na di pikin εn i kin afekt di divεlכpmεnt fכ difrεn כgan dεm na di pikin. Dis na di rizin we mek wɛlbɔdi prɔblɛm dɛn de we kin de we dɛn bɔn am.

Imajin aw dis risk tan lɛk:

• If di mama gɛt rubɛla insay di fɔs 12 wiks we i gɛt bɛlɛ , CRS kin afɛkt lɛk 85% pan di pikin dɛn we dɛn jɔs bɔn.
• if i infεkt bitwin 13 εn 16 wiks we uman bεlε , i kin afekt te to 50% pan di nyu bכbi dεm.
• if i infεkt insay di sεkכn haf fכ di sεkכn trimεst , i kin afekt bכt 25% pan di nyu bכbi dεm.

Rubella na wan sik we wan vayrɔs we dɛn kɔl `(RuV)` kin kam wit. Di men sayn na we yu gɛt rɛd, itchy rash we kin bigin na yu fes ɛn spre ɔlsay na di bɔdi. Dis nɔ kin bɔku naw na bɔku kɔntri dɛn bikɔs ɔf di vaysin. Bɔt, rubɛla stil de na sɔm say dɛn na di wɔl.

Bebi dεm we gεt CRS kin spre di sik?

Yɛs, dat impɔtant. Dɔktɔ dɛn kin tek pikin we gɛt rubɛla sindrom we dɛn bɔn wit fɔ at le wan ia. כltu, if di pikin ol 3 mכnt εn tu rεbεla tεst, wan mכnt apat, kam bak `nεgεtiv` (we min se di vayrus nכ de), den i nכ de kכntayshכn igen. So, wi fɔ tek tɛm spɛshal fɔ protɛkt ɔda pipul dɛn insay da tɛm de.

Aw yu kin no dis CRS kɔndishɔn?

Bɔku we dɛn de fɔ no if pɔsin gɛt di sik we dɛn kɔl congenital rubella syndrome:

• Fɔ chɛk fɔ si if uman gɛt bɛlɛ: Insay bɔku kɔntri dɛn, na standad tin fɔ chɛk fɔ si if pɔsin gɛt rubɛla ɛn sɔm ɔda infɛkshɔn dɛn we pɔsin gɛt ali we uman gɛt bɛlɛ. If yu gɛt sɔm sayn dɛm fɔ rubɛla we yu gɛt bɛlɛ, yu dɔktɔ go ɔda fɔ mek dɛn du tɛst fɔ no if yu gɛt di sik. Dɔn dɛn go ɛksplen to yu di risk fɔ mek yu pikin gɛt CRS.
• di pikin we yu de no di pikin we yu bεlε: If yu gεt rubεla we yu bεlε, yu dכkta kin se yu fכ du sכm spεshal tεst fכ si if di vayrus dכn spre to yu pikin. fכ egzampl, amniocentesis, chorionic villus sεmpl, εn fetal bכdi sεmpl. Dɛn tɛst ya na mɔ kɔmplikɛt tɛst, ɛn yu dɔktɔ go jɔs du dɛn if nid de.
• di sik afta dεn bכn di pikin: afta dεn bכn di pikin , dεn kin du bכdi tεst (ELISA tεst) fכ chεk fכ antibodi dεm fכ di rubεla vayrus na di pikin in bכdi. yu kin tεst urine sεmpl, saliva sεmpl, כ nasal swab bak fכ si if di pikin gεt di rubella vayrus. di dכkta kin oda dεn tεst dεm ya if dεn no se di mama bin gεt rubεla we i bεlε, כ if di pikin de sho sayn dεm fכ CRS.

If dɛn kɔnfyus se yu pikin gɛt rubɛla, di mɛdikal tim go tɛl yu fɔ du sɔm ɔda tɛst dɛn fɔ chɛk di pikin in ɔl wɛlbɔdi ɛn fɔ no us ɔda wɛlbɔdi prɔblɛm dɛn we CRS kin kam wit.

Wetin na di tritmɛnt dɛm fɔ dis?

Bɔt i sɔri fɔ no se, no mɛrɛsin ɔ dairekt tritmɛnt nɔ de fɔ di sik we dɛn kɔl congenital rubella syndrome (CRS). Dɔn bak, sɔm pan de ifɛkt dɛm, lɛk wae pɔrsin nɔr de yɛri fayn ɛn wae pɔrsin nɔr de tink fayn, kin de fɔ ɔltɛm, we min se dɛn kin de fɔ ɔl yu layf. Bɔt sɔm sayn dɛn lɛk ɛmolaytik anemia ɛn intastitial nyumonia, dɛn kin ebul fɔ kɔntrol ɔ trit. Sɔm at sik dɛn kin trit bak wit ɔpreshɔn.

Yu pikin in mεdikal tim go mek wan patikyula tritmεnt plan bay di simptom dεm we yu pikin de si εn wetin i nid. Dis kin nid fɔ mek bɔku spɛshal pipul dɛn ɛp am.

If mi pikin gɛt CRS, wetin a fɔ ɛkspɛkt?

Congenital rubella syndrome nɔ kin afɛkt ɔl pikin di sem we, ɛn di kayn we aw i kin tranga kin difrɛn. I go tek sɔm tɛst ɛn asɛsmɛnt fɔ ɔndastand gud gud wan aw CRS dɔn afɛkt yu pikin. I kin tek bɔku tɛm. Bɔt nɔto yu wan de pan dis waka. Yu pikin in mɛdikal tim go de wit yu ɛvri step na di we, fɔ ɛksplen wetin na CRS ɛn aw i go afɛkt yu pikin in fiuja ɛn yu famili.

A kin ebul fɔ mek dis CRS kɔndishɔn nɔ apin?

Yɛs! Dis na di tin we impɔtant pas ɔl. Congenital Rubella Syndrome (CRS) na wan sik wae kin pasmak fɔ avɔyd!

di bεst we fכ du dis na fכ gεt di imunayz fכ di rubεla vayrus bifo yu gεt bεlε. Dat min se yu fɔ gɛt di rubella vaysin.

Insay Sri Lanka, wi kin gi pikin dɛn di MMR vaysin, we de protɛkt frɔm mizɛl, mɔmp ɛn rubɛla. Dɛn kin gi di fɔs doz bitwin 9-12 mɔnt ɛn di sɛkɔn doz we i ol 3 ia (dɛn tɛm ya kin difrɛn smɔl dipen pan di nashɔnal vaksin schedule, so chɛk wit yu lokal wɛlbɔdi ɔfisa).

If yu nɔ bin gɛt di vaysin we yu bin smɔl, ɔ if yu nɔ shɔ bɔt am, i impɔtant fɔ tɔk to yu dɔktɔ bɔt fɔ gɛt am naw. If yu gɛt di vaysin as big pɔsin, mɛmba fɔ avɔyd fɔ gɛt bɛlɛ fɔ 28 dez (lɛk wan mɔnt) afta yu dɔn gɛt di vaysin. Dis na advays we rili impɔtant.

Aw a go tek kia ɔf mi pikin we gɛt CRS?

Dipen pan di wɛlbɔdi prɔblɛm dɛn we yu pikin gɛt wit CRS, i kin nid fɔ kɔntinyu fɔ gɛt mɛrɛsin ɛn tritmɛnt as dɛn de ol. I impɔtant fɔ mek yu advatayz fɔ yu pikin ɛn mek shɔ se dɛn gɛt di bɛst mɛrɛsin ɛn sɔpɔt we dɛn nid. Dis go ɛp yu pikin fɔ liv di bɛst layf.

Congenital rubella syndrome na wan sik we kin gɛt siriɔs impak pan di pikin in wɛlbɔdi. Bɔt di gud nyus na dat, dɛn kin ebul fɔ avɔyd am bɔku tɛm wit di rubɛla vaysin (MMR vaysin). Ɛnitɛm we i pɔsibul, go to yu dɔktɔ bifo yu gɛt bɛlɛ fɔ mek shɔ se yu protɛkt yu frɔm rubɛla ɛn ɔda sik dɛn we pɔsin kin gɛt. Na big ɛp fɔ yu ɛn yu pikin.

Di tin dɛn we impɔtant pas ɔl fɔ mɛmba (Take-Home Message) .

Sɔm tin dɛn de we yu fɔ mɛmba frɔm wetin wi dɔn tɔk bɔt:

• Congenital rubella syndrome (CRS) na siriɔs sik we kin apin to pikin if mama we gɛt bɛlɛ gɛt rubella.
• dis kin mek di pikin gεt difrεn hεlth prכblεm dεm (ay, yes, at, bren) frכm we i bכn.
• Di impɔtant tin na dat dɛn kin ebul fɔ avɔyd dis bɔku bɔku wan wit di MMR vaysin.
• If yu de op fɔ bɔn pikin, aks yu dɔktɔ if yu protɛkt yu frɔm rubɛla bifo yu gɛt bɛlɛ . Gɛt di vaysin if nid de.
• If yu gɛt di MMR vaysin, nɔ gɛt bɛlɛ fɔ at le wan mɔnt.
• If yu dɔn gɛt bɛlɛ ɛn yu tink se yu gɛt rubɛla, go to dɔktɔ wantɛm wantɛm.

Wi op se dis infɔmeshɔn go fayn fɔ yu. Famili we gɛt wɛlbɔdi na di big big gladi-at!

` Kɔnjɛnital Rubɛla Sindrom, CRS, Rubɛla, Jaman Mizl, Bɛlɛ, Rubɛla vaysin, MMR vaksin, Pikin wɛlbɔdi, Kɔnjɛnital sik dɛn