Yu go mɔs gɛt ɔlkayn rash ɛn bɔmp na yu skin, nɔto so? Sɔntɛnde, dɛn kin peel ɛn it bɔku. Bɔku tɛm wi kin tink se dɛn tin ya na jɔs nɔmal alɛji, ɛkzema, ɔ psoriasis. Bɔt wan prɔblɛm we de kɔntinyu fɔ de na di skin we nɔ de bɛtɛ fɔ lɔng lɔng tɛm, sɔntɛnde kin bi sɔntin we siriɔs smɔl. Dat na wan pan dɛn rare kɔndishɔn dɛn we wi ɔl fɔ no bɔt.
Wetin na Kutan T-sεl Limfoma (CTCL)?
Fɔ tɔk am simpul wan, CTCL na wan kayn blɔd kansa we nɔ kin bɔku ɛn we kin afɛkt wi skin. Di skin na di big pat na wi bɔdi. Dis kansa kin afɛkt wi skin dairekt wan. i rili de pan wan big grup fכ kεnsar dεm we dεn kכl `(non-Hodgkin lymphoma)`.
Naw yu go de wɔnda aw kansa we de na di blɔd kin rich na di skin. wεl, wi bכdi gεt wan kayn wayt bכdi sεl we dεn kכl ``limfosayt``. Dɛn tin ya na impɔtant pat pan wi bɔdi in imyun sistɛm. wan kayn pan dεn limf sεl dεm ya dεn kכl am ``T-sεl``. insay CTCL, dεn T-sεl dεm ya kin bi kεnsar sεl dεm εn bigin fכ divayd we dεn nכ kin kכntro. Dɔn dɛn kansa sɛl ya kin kam na di skin ɛn gɛda. Na da tɛm de di sayn dɛm na di skin kin bigin fɔ sho.
Nɔ fred fɔ se na kansa. Bɔrku pipul dɛm wae gɛt CTCL kin kɔntrol di sik afta tritmɛnt (`remission`). So dɛn kin liv nɔmal layf ɛn nɔ gɛt bɔku prɔblɛm. Bɔt na nɔmal tin fɔ fil bad we yu kam fɔ no se yu gɛt kansa. Yu dɔktɔ ɛn di mɛdikal tim de ɛp yu ɔltɛm.
Wetin na di men kayn CTCL?
Difrɛn kayn CTCL dɛn de. Bɔt pan dɛn, tu men kayn dɛn de we dɛn kin si. Lɛ wi ɔndastand dɛn tin ya klia wan.
| Di kayn kansa we yu gɛt | Tɔk bɔt |
|---|---|
| Maykɔsis fungoides we de na di bɔdi | Dis na di kayn we we kɔmɔn pas ɔl, we kin afɛkt lɛk af pan di wan dɛn we gɛt CTCL. Di spɛshal tin we i gɛt na dat i de gro sloslo.Na ya, di T-sεl dεm we gεt kansa kin de na di skin. Bɔt sɔntɛnde, sɔm kin travul bak to di limf no dɛm ɛn di blɔd. di kansa sεl dεm we de travul go na di bכdi dis we dεn kכl dεm Sézary sεl dεm. |
| Di sik we dɛn kɔl Sézary syndrome | Dis na wan kayn CTCL we de gro fast fast . If na so i bi, yu kin si bɔku bɔku Sézary sɛl dɛn na yu skin ɛn blɔd. Sɔmtɛm di maycosis fungoides kin bi siriɔs ɛn divεlכp to Sézary syndrome. Pipul wae gɛt dis sik kin notis chenj na dɛn skin kɔlɔ ɔlsay na dɛn bɔdi. |
Wetin kin bi di sayn dɛm fɔ dis sik?
Di sayn dɛm fɔ CTCL kin difrɛn frɔm wan pɔsin to ɔda pɔsin. Dɛn kin rili fiba bak wit kɔmɔn sik dɛn na di skin. Na dat mek i kin tranga fɔ no if i gɛt dis sik.
- Lumps we de apin na di skin. Sɔntɛnde, dɛn tin ya kin krak ɛn tɔn to sɔri.
- Di ia we de lɔs .
- Wan sik we tan lɛk rash we kin apin ɔlsay na di bɔdi ɛn we kin it ɔltɛm .
- Di we aw di pat dɛn we nɔ gɛt kɔlɔ de apin na di skin.
- Itchy, sɔmtɛm skel, plek dɛm we dɔn rayz frɔm di skin.
- di gland dεm we de swεla ( na di trot , di armpit dεm, di groin, εn כda tin dεm).
- di skin we de na di an ɛn di fut tik ɛn rɔf .
Wetin mek dis kayn sik kin apin?
dεn tεl wi se insay CTCL, T-sεl dεm kin bi kεnsar sεl dεm. Bɔt dɔktɔ dɛn stil nɔ no di rayt tin we mek dis kin apin. Bɔt tu tin dɛn de we dɛn kin tink se kin ɛp fɔ du sɔntin.
1. di jεnεtik vεryכnt dεm: di jin dεm de kכntro di wok we wi sεl dεm de du. Risach pipul dεm dכn si se chenj (mכtεshכn) dεm na sכm jin dεm kin mek dis sik.
2. Infεkshכn: Imajin wetin kin apin we wi bכdi gεt siriכs infεkshכn. Wi imyun sistɛm de rɛdi fɔ fɛt. Dat min se wi bon mכro de bigin fכ mek wayt blכd sεl dεm, spεshal wan limfosayt dεm, kwik kwik wan. I tan lɛk se faktri de ramp ɔp prodakshɔn wantɛm wantɛm. We yu de wok kwik kwik wan, sɔntɛnde mistek kin apin. na so mistek dεm na di DNA fכ di sεl dεm kin apin, we kin mek di chans fכ di kεnsar sεl dεm fכ divεlכp bכku.
Di tin we impɔtant pas ɔl na dat CTCL nɔto sik we pɔsin kin gɛt. Ɛn i nɔto sɔntin we yu go ebul fɔ du.
Udat de pan denja fɔ gɛt dis sik?
Dis na jɔs tin dɛn we kin mek pɔsin gɛt prɔblɛm. Nɔto ɔlman we gɛt dɛn go gɛt dis sik.
- Fɔ di wan dɛn we dɔn pas 50 ia .
- Man dεm de pan risk sכmtεm pas uman dεm.
- Fɔ pipul dɛm wae gɛt wik imyun sistɛm (fɔ ɛgzampul, di wan dɛm wae dɔn gɛt ɔgan transplant).
- Sɔm stɔdi dɛn sho se pipul dɛn we kɔmɔt na Afrika.
Aw dɔktɔ kin fɛn dis?
We yu go to dɔktɔ fɔ yu skin prɔblɛm, i go aks yu fɔs bɔt di sayn dɛn we yu gɛt. Dɔn dɛn go chɛk yu skin gud gud wan. Bɔt fɔ kɔnfɔm if yu gɛt CTCL, yu nid fɔ du sɔm tɛst dɛn.
| Tɛst | Fɔ tɔk am simpul wan... |
|---|---|
| Skin biopsy we dɛn kin du | Dis na di tɛst we impɔtant pas ɔl. Wetin dɛn kin du ya na fɔ tek wan smɔl pat pan di skin frɔm wan lɛsin ɔ spat ɛn chɛk am ɔnda maykroskɔp. Dis kin no kɔrɛkt wan if kansa sɛl dɛn de. |
| Blɔd tɛst dɛn | Dis kin ɛp fɔ chɛk fɔ si if di kansa sɛl dɛn (Sézary cells) de na di blɔd, ɛn ɔda tin dɛn we nɔ fayn. |
| Limf node bayɔpsi | If limf node we dɔn swel, dɛn kin tek wan smɔl pat pan am ɛn chɛk am fɔ si if di kansa dɔn swɛla to am. |
| Test dɛn fɔ tek imej | Tεst lεk CT skan כ PET skan kin fכ no if di kansa dכn spre to di כgan dεm we de insay di bכdi. |
Wetin na di tritmɛnt dɛm fɔ CTCL?
Dɛn kin trit CTCL bay di kayn, stej, ɛn yu ɔl wɛl bɔdi. No wan saiz tritmɛnt nɔ de fɔ ɔlman. Yu dɔktɔ go mek wan tritmɛnt plan we go fayn fɔ yu.
- Krim ɛn ɔntmɛnt we dɛn kin put pan di skin: Dɛn tin ya na krim we gɛt mɛrɛsin lɛk stɛroyd. Dɛn tin ya kin du fɔ di sik pipul dɛn we de na di fɔs stej.
- Layt tɛrapi (Phototherapy): Na spɛshal kayn ɔltra vayolɛt (UV) layt de go na di skin fɔ pwɛl di kansa sɛl dɛn.
- Ekstrakכrporal fכtofεresis (ECP): Dis na tritmεnt we kכmpleks sכmtεm. Na ya, dɛn kin tek sɔm pan yu blɔd, pas am na mashin, usay dɛn kin trit am wit drɔg ɛn layt fɔ trit di kansa sɛl dɛn, dɔn dɛn kin put am bak insay yu bɔdi.
- Radieshɔn tɛrapi: Dɛn kin yuz ay ɛnaji rayt fɔ pwɛl di kansa sɛl dɛn na di skin.
- Immunotherapy: Wi de gi drɔgs we de mek wi yon imyun sistɛm wok ɛn mek i fɛt di kansa sɛl dɛn.
- Kimotɛrapi: Na pawaful mɛrɛsin dɛn we de kil kansa sɛl dɛn. Dɛn kin gi dɛn tin ya as pils ɔ injɛkshɔn.
Aw layf go tan lɛk wit dis sik?
Dis na di big kwɛstyɔn we de na ɔlman in maynd. כl di tכp dεm fכ CTCL de gro rili slo. So, dɛn nɔ de mek pɔsin in layf de pan denja. Pan ɔl we dɔktɔ dɛn nɔ kin ebul fɔ mɛn dis sik kpatakpata, tritmɛnt kin ebul fɔ kɔntrol di sayn dɛn fayn fayn wan.
Bɔt wi nid fɔ ɔndastand di trut bak. Lɛk ɛni kansa, CTCL kin kil pɔsin if i rich di say dɛn we i dɔn go bifo.
Na dat mek wi se i rili impɔtant fɔ go to dɔktɔ jɔs afta yu notis ɛni chenj na yu skin . Di kwik we yu bigin fɔ gɛt tritmɛnt, na di mɔ yu go gɛt bɛtɛ chans fɔ gɛt bɛtɛ layf.
Stɔdi dɔn sho se 9 pan ɔl 10 pipul dɛm wae dɛn no se gɛt dis sik na in fɔs stej (stej I ɔ II) stil de alayv afta 10 ia. Dat na 90% sɔvayv rɛt. Fɔ di wan dɛn we gɛt advans sik, di rit na 53% nɔmɔ. Dis na jɔs statystik dɛn. Di bɛst pɔsin fɔ no ustɛm yu sik na yu dɔktɔ.
Aw wi go tek kia ɔf wi skin ɛn ridyus di prɔblɛm?
Natin nɔ de we wi kin du fɔ mek wi nɔ gɛt CTCL, bikɔs dɛn nɔ go ebul fɔ chenj di tin dɛn we kin ambɔg am. Bɔt fɔ kip wi imyun sistɛm strɔng, i fayn fɔ ɔl sik dɛn.
Dɔn bak, if yu gɛt CTCL, i rili impɔtant fɔ tek kia ɔf yu skin.
- Kip yu skin wet: Yuz gud mɔstɔrayza afta yu dɔn was ɛn ɔl di de. Dis go ɛp fɔ mek i nɔ dray, i nɔ de rɔtin, ɛn i nɔ de it.
- Protɛkt yusɛf frɔm infɛkshɔn na yu skin: Yuz sop we nɔ gɛt sɛnt ɛn tin fɔ was yu klos. Wear klos we de kɔba yu skin we yu de go na do na di san, ɛn put tin dɛn we de protɛkt yu frɔm di san. Wear klos we nɔ tay ɛn we de mek pɔsin blo.
- Stɔp fɔ skrach: It na di big prɔblɛm we dɛn sik pipul ya kin gɛt. We dɛn skrach, dɛn kin brok di skin ɛn baktri kin go insay, ɛn dis kin mek pɔsin gɛt infɛkshɔn. So, kɔntrol di skrach as yu ebul. Yu kin gɛt fridɔm bay we yu du tin dɛn lɛk fɔ was wit kol wata, was wit ɔtmil wata, ɛn yuz antihistamines we yu dɔktɔ tɛl yu fɔ du.
Wetin na di bɛst tɛm fɔ go to dɔktɔ?
We yu dɔn bigin fɔ trit yu, yu dɔktɔ fɔ si yu ɔltɛm. Bɔt if ɛnitin lɛk dis apin insay da tɛm de, mek shɔ se yu tɔk to yu dɔktɔ.
- If yu notis ɛni nyu chenj na yu skin .
- If yu fil se yu gɛt infεkshכn na yu skin (e.g., i rεd, i de pen, i swel, כ pus de kכmכt).
- If yu gɛt fiva we pas 100.4 Fɛnayt (38 Sɛlshiɔs) .
Bɔku tɛm, we wi gɛt rash ɔ mol na wi skin, wi kin tink se na nɔmal tin. Nɔbɔdi nɔ tink se i kin bi kansa we nɔ kin bɔku lɛk dis. Bɔt di tin we impɔtant pas ɔl na dat, if yu si chenj na yu skin, nɔ ignore am ɛn sho am to dɔktɔ. Sɔntɛm i nɔ kin bi kansa. Bɔt if na so i bi, fɔ bigin tritmɛnt kwik kwik wan na di bɛst tin we yu go du fɔ yu layf.
Mɛsej we dɛn kin kɛr go na os
- CTCL na wan kayn blɔd kansa we nɔ kin bɔku ɛn we kin afɛkt di skin. Di sayn dɛm wae i kin gɛt kin rili fiba di kɔmɔn sik dɛm na di skin lɛk ɛkzema ɛn psoriasis.
- If yu gɛt prɔblɛm wit yu skin we nɔ de dɔn ɛn we nɔ de bɛtɛ fɔ lɔng tɛm, nɔ ignore dɛn ɛn go to dɔktɔ.
- Di kwik we dɛn no dis sik, na di mɔ chans fɔ mek dɛn gɛt tritmɛnt fayn fayn wan ɛn fɔ gɛt bɛtɛ layf.
- CTCL nɔto sik we pɔsin kin pas. Tritmɛnt kin kɔntrol di sayn dɛm ɛn kɔntinyu fɔ gɛt gud kwaliti layf.
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