Lɛ wi lan ɔltin bɔt sistiamin kapsul dɛn insay wan simpul we.

Dɔktɔ dɔn gi yu ɔ pɔsin we yu sabi wan mɛrɛsin we dɛn kɔl cysteamine? If na so, e fayn fɔ lan smɔl bɔt dis mɛrɛsin. Yu kin fil smɔl strenj we yu yɛri di nem, bɔt nɔ wɔri. Lɛ wi tɔk bɔt am simpul wan, lɛk se yu de tɔk to yu padi.

Us kayn mɛrɛsin na cysteamine?

Fɔ tɔk am simpul wan, sistiamin na wan mɛrɛsin we de ɛp fɔ brok wan tin we dɛn kɔl sistin na wi bɔdi. Speshal, dεn kin yus am fכ trit wan kכndyushכn we dεn kכ l nεfropatik sistinosis . Dis na sik we kin ambɔg yɔŋ pikin ɛn big pipul.

Tink bɔt am, we tin dɛn na wi bɔdi nɔ de wok fayn, sɔm tin dɛn kin gɛda pasmak. fכ egzampl, pan pכsin we gεt nεfropatik sistinosis, wan amino asid we dεn kכl sistin de kכmכt na di bכdi, spεshal wan na di kidni dεm. Dis kin pwɛl di kidni dɛn. Sistiamin de ɛp fɔ ridyus di sistin.

Impɔtant tin fɔ mɛmba: Dis mɛrɛsin nɔto kɔmplit mɛrɛsin fɔ di sik. Bɔt, i kin ɛp fɔ kɔntrol di sik ɛn ridyus di bad bad tin dɛn we i kin du. So, i impɔtant fɔ yuz am jɔs lɛk aw yu dɔktɔ tɛl yu fɔ yuz am.

Sɔntɛnde, dɔktɔ kin gi dis mɛrɛsin fɔ ɔda sik dɛn. If yu gɛt ɛni kwɛstyɔn bɔt am, aks yu dɔktɔ ɔ fama. Dis mɛrɛsin kin de bak ɔnda di brand nem Cystagon .

Wetin a fɔ tɛl di mɛdikal tim bifo a yuz dis mɛrɛsin?

Bifo yu bigin fɔ yuz sistamin, mek shɔ se yu tɛl yu dɔktɔ ɔ di tim we de kia fɔ yu wɛlbɔdi biznɛs bɔt:

• If yu gɛt ɛni wan pan dɛn tin ya:
• Bɔn prɔblɛm (e.g., wik bon, izi fɔ brok) .
• Pwɛl hat ɔr ɔda prɔblɛm dɛn na yu nervɔs sistɛm
• If yu gɛt histri bɔt blɔd sik
• If yu dɔn gɛt bɛlɛ blɔd trade (istri bɔt bɛlɛ blɔd) .
• Liva sik - biכs bכku mεdikeshכn dεm na di liva de proכses.
• Sɔm kayn sik wae kin mɛk pɔrsin fil lɛk wae yu gɛt epilepsy
• Di kɔndishɔn na di skin ɔ di tin dɛn we pɔsin kin fil fɔ du
• Prɔblɛm dɛn na di bɛlɛ ɔ di intestinal
• If yu gɛt alɛji fɔ dis:
• Fɔ sistamin
• Di drɔg we dɛn kɔl penisilamin
• Ɛni ɔda mɛrɛsin, it, day ɔ tin we de mek i nɔ pwɛl
• If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ.
• If yu na mama we de gi pikin in bɛlɛ.

I rili impɔtant fɔ tɛl yu dɔktɔ ɔl dis infɔmeshɔn, bikɔs na da tɛm de nɔmɔ dɛn go ebul fɔ disayd if dis mɛrɛsin fayn fɔ yu ɔ if yu nid fɔ tek spɛshal kia.

Aw a fɔ yuz dis mɛrɛsin?

Dis mɛrɛsin kin kam insay di fɔm fɔ kapsul we yu kin tek wit yu mɔt. Tek am wit wan glas wata. Fɔ fala di tin dɛn we de na di prɛskrishɔn lɛbl jɔs lɛk aw yu dɔktɔ dɔn tɛl yu.

• Sɔntɛnde yu kin opin di kapsul ɛn miks di mɛrɛsin to it we gɛt paoda. Bɔt chɛk wit yu dɔktɔ ɔ fama bifo yu du dat.
• Tek di mɛrɛsin di rayt tɛm, di rayt we . Nɔ tek am mɔ ɔ mɔ pas aw yu dɔktɔ tɛl yu fɔ tek am.

If yu gi pikin dɛn dis mɛrɛsin:

Dɛn kin gi dis mɛrɛsin bak fɔ pikin dɛn we dɛn dɔn pik. Bɔt mek shɔ se yu tɔk bɔt dis wit yu dɔktɔ we de mɛn pikin dɛn ɛn fala wetin i tɛl yu fɔ du. Sɔntɛm spɛshal tin dɛn de we yu fɔ tek tɛm wit we yu de gi pikin dɛn mɛrɛsin.

Wetin fɔ du if yu tek bɔku mɛrɛsin? (Ovadosage):

If yu tink se yu dɔn tek dis mɛrɛsin tumɔs, kɔl pɔyzin kɔntrol sɛnta ɔ di imejensi rum we de nia yu wantɛm wantɛm. Nɔ west tɛm.

Impɔtant: Dɛn dɔn gi yu dis mɛrɛsin fɔ yu nɔmɔ. Nɔ ɛva sheb am wit ɔda pipul dɛn, ilɛksɛf dɛn gɛt di sem sayn dɛn we yu gɛt.

Wetin fɔ du if yu mis wan doz fɔ mɛrɛsin?

If yu fɔgɛt fɔ tek wan doz, tek am jɔs lɛk aw yu mɛmba. Bɔt if i nɔ rich 2 awa te yu tek yu nɛks doz, skip di doz we yu mis ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek dabl doz ɔ ɛkstra doz.

Us ɔda tin dɛn kin miks wit dis mɛrɛsin?

Dɛn nɔr de ɛkspɛkt dis mɛrɛsin fɔ mek ɛni big intarakshɔn. Bɔt dis list nɔ kin gɛt ɔl di intarakshɔn dɛn.

So, tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn we yu de tek (we dɛn gi yu ɔ we yu nɔ de it), ɔyl dɛn, ɛn di tin dɛn we yu de yuz fɔ it. Dɔn bak, tɛl yu dɔktɔ if yu de smok, drink rɔm, ɔ yuz drɔgs we nɔ rayt. Sɔm tin kin miks wit yu mɛrɛsin.

Wetin na di tin dɛm we yu fɔ tek tɛm wit we yu de yuz dis mɛrɛsin?

• Si yu dɔktɔ fɔ mek dɛn chɛk yu ɔltɛm. Yu go nid fɔ du blɔd tɛst ɔltɛm fɔ chɛk yu blɔd kɔnt we yu de tek dis mɛrɛsin.
• Yu kin fil lɛk se yu de slip ɔ yu de ed de tɔn.Yu kin gɛt diziz. Nɔ drayv, yuz mashin, ɔ du ɛnitin we nid fɔ de wach te yu no gud gud wan aw dis mɛrɛsin de afɛkt yu.
• Nɔ tinap ɔ sidɔm wantɛm wantɛm, mɔ if yu dɔn ol. Dis kin mek yu nɔ gɛt diziz ɛn fɔdɔm.

Wetin na di sayd ɛfɛkt dɛm we dis mɛrɛsin kin gɛt?

Lɛk ɛni mɛrɛsin, sistiami kin mek sɔm sayd ɛfɛkt dɛn. Sɔm kin siriɔs, ɛn ɔda wan dɛn nɔ kin siriɔs.

Di sayd ɛfɛkt dɛn we dɛn fɔ ripɔt to dɔktɔ ɔ pɔsin we de kia fɔ wɛlbɔdi biznɛs wantɛm wantɛm:

• Alɛji: yu skin de rɔsh, yu de it ɔ yu de ayv, yu fes, yu lip, ɔ yu tɔng de swel.
• Bon pen ɔ brok brok.
• Prɔblɛm fɔ blo.
• Di chenj dɛn we de apin na di we aw pɔsin de si tin.
• Kɔnfyushɔn, pwɛl hat, ɔr ɔda tin wae kin chenj in maynd.
• Dak urine.
• Ay pen.
• Fɔ fil se yu nɔ ebul fɔ waka ɔ yu gɛt layt, yu kin fɔdɔm.
• Simptom dɛm lɛk fiva ɔ kol, trot we de at.
• Jɛnɛral sik filin ɔr simptom dɛm we tan lɛk flu.
• Nɔs, fɔ vɔmit.
• Pɔpul skin lɛshɔn dɛn.
• Ring na di yes.
• Di sik dɛn we kin mek pɔsin sik.
• Trɔbul fɔ pas urine ɔ chenj na di amount of urine.
• Blɔd ɔ brus we nɔ kɔmɔn.
• Fɔ fil wik ɔ taya we nɔ kɔmɔn.
• Yu yay ɔ skin we de yɔlɔ – Dis kin bi liva prɔblɛm.

If yu si sɔntin lɛk dis, go to dɔktɔ kwik kwik wan.

Sayd ɛfɛkt dɛn we nɔ kin nid fɔ go to dɔktɔ (bɔt dɛn fɔ ripɔt to dɔktɔ if dɛn kɔntinyu fɔ de ɔ we de mɔna yu):

• Kɔnstipɛshɔn ɔ dayarɛa.
• Di we aw pɔsin kin slip.
• Ed de at .
• I nɔ kin want fɔ it igen.
• Bɛlɛ de pwɛl.
• Breath we nɔ fayn.

Dis list nɔ kin gɛt ɔl di sayd ɛfɛkt dɛn. If yu notis ɛnitin we nɔ kɔmɔn, tɛl yu dɔktɔ. If yu want, yu kin ripɔt di sayd ɛfɛkt dɛn bak to di FDA (Food and Drug Administration) na 1-800-FDA-1088.

Aw a fɔ kip mi mɛrɛsin?

• Kip am usay pikin dɛn nɔ go ebul fɔ rich. Dis rili impɔtant.
• Stɔr am na rum tɛmpracha (bitwin 20 ɛn 25 digri sɛlshiɔs, ɔ 68 ɛn 77 digri Fahrenheit).
• Stɔr am na dray ples, fa frɔm dairekt layt .
• Trowe di mɛrɛsin we dɔn pas ɛn yu nɔ yuz am.

Fɔ dɔn, tin dɛn fɔ mɛmba (Take-Home Message) .

Okay, so wi don tok plenti boht cysteamine. Mɛmba se dis na impɔtant mɛrɛsin wae de ɛp fɔ trit wan sik wae dɛn kɔl nephropathic cystinosis.

Di tin we impɔtant pas ɔl na fɔ tek dis mɛrɛsin jɔs lɛk aw yu dɔktɔ tɛl yu, insay di rayt doz, di rayt tɛm. Nɔ ɛva chenj di doz ɔ stɔp fɔ tek di mɛrɛsin fɔ yusɛf.

• If yu gɛt ɛni kwɛstyɔn ɔ tin we de mɔna yu, nɔ shem fɔ aks yu dɔktɔ, fama, ɔ pɔsin we de kia fɔ yu wɛlbɔdi biznɛs.
• Yu fɔ no bɔt di bad tin dɛn we kin apin to yu, mɔ if yu notis ɛni wan pan di bad bad tin dɛn we wi dɔn tɔk bɔt, ɛn go to dɔktɔ wantɛm wantɛm.
• Go fɔ mek dɛn chɛk yu dɔktɔ ɔltɛm.

Dis infɔmeshɔn pepa na jɔs sɔmtin. Sɔntɛm i nɔ go kɔba ɔltin. Yu dɔktɔ na di bɛst pɔsin fɔ gi yu di advays we fit yu pas ɔl fɔ di tin we de apin to yu. So, tɔk to am bɔt ɔltin ɛn mek dɛn sɔlv am. Wi de wish yu fɔ wɛl kwik kwik wan!

` Sistiamin, nεfropatik sistinosis, sistin, Sistagon, dכg, kidni sik