Yu gɛt Phenylketonuria, ɔ PKU as wi ɔl no, wan kɔndishɔn we de mek di amino asid phenylalanine na yu blɔd go ɔp? So, yu go mɔs no gud gud wan se Pegvaliase na spɛshal injɛkshɔn we dɛn kin gi fɔ kɔntrol dis lɛvɛl. Yu go mɔs gɛt bɔku kwɛstyɔn dɛn na yu maynd bɔt dis mɛrɛsin. Nɔ wɔri, tide wi go tɔk bɔt dis mɛrɛsin, aw i de wok, di sayd ɛfɛkt dɛm ɛn aw fɔ yuz am sef wan simpul we we yu go ɔndastand.
Fɔ tɔk am simpul wan, wetin na dis mɛrɛsin we dɛn kɔl Pegvaliase?
Dis na di ɛksplen we simpul pas ɔl. Pipul wae gɛt PKU gɛt wan kɔndishɔn wae dɛn bɔdi nɔr kin ebul fɔ brok fayn fayn wan, ɔr dayjɛst, wan tin wae dɛn kɔl phenylalanine. Dɔn dis kin bɔku na di blɔd ɛn i kin pwɛl di bren ɛn di nervɔs sistɛm.
So, wetin di Pegvaliase injεkshכn de du na dat i de εp yu bכdi. dat min se i de εp yu bכdi fכ brok dכn dis fεnylalanin we yu bכdi nכ kin ebul fכ brok dכn. Dɔn i kin stɔp fɔ bɔku na yu blɔd ɛn dɛn kin kɔntrol di lɛvɛl dɛn. Dɛn kin sɛl dis mɛrɛsin ɔnda di brand nem Palynziq .
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu yuse dis mɛrɛsin
Okay, bifo yu bigin dis mɛrɛsin, yu fɔ rili ɛn ɔnɛs fɔ tɔk to yu dɔktɔ bɔt dɛn tin ya. Nɔ ayd dɛn tin ya, bikɔs dis rili impɔtant fɔ yu sef.
- Alɛji: If yu gɛt ɛni alɛji, nɔto jɔs to Pegvaliase, bɔt to ɛni ɔda mɛrɛsin, it, day, ɔ tin we de mek yu nɔ gɛt am, mek shɔ se yu tɛl yu dɔktɔ bɔt am.
- Bɛlɛ: If yu gɛt bɛlɛ ɔ yu plan fɔ bɔn pikin jisnɔ, yu fɔ tɛl yu dɔktɔ.
- If yu na mama we de gi pikin in bɛlɛ: If yu na mama we de gi pikin in bɛlɛ, mek shɔ se yu tɛl yu pikin bɔt dat bak.
Bay dis infɔmeshɔn, di dɔktɔ go disayd if dis mɛrɛsin fayn fɔ yu ɔ nɔ fayn fɔ yu, ɛn wit us tin dɛn fɔ tek tɛm gi am.
Aw fɔ yuz di mɛrɛsin kɔrɛkt wan?
Dis na wan kayn injεkshכn we yu kin injεkt כnda di skin na os. Bɔt nɔ wɔri. Yu dɔktɔ ɔ nɔs we tren go ɛksplen to yu klia wan ɛn gud gud wan aw fɔ gi am ɛn aw fɔ pripia di mɛrɛsin.
- Tek di doz nɔmɔ we dɛn tɛl yu fɔ tek: Tek di doz we yu dɔktɔ tɛl yu fɔ tek, jɔs di tɛm we dɛn tɛl yu. Nɔ stɔp fɔ tek di mɛrɛsin te yu dɔktɔ tɛl yu fɔ stɔp.
- Fɔ trowe nidul ɛn sirinj dɛn fayn fayn wan: Dis rili impɔtant. Nɔ ɛva trowe nidul ɛn sirinj dɛn we yu dɔn yuz na di dɔti.Dɛn fɔ put dɛn insay spɛshal tik tik plastic kɔntena (shap kɔntena). If yu nɔ gɛt wan, aks yu dɔktɔ aw fɔ gɛt wan.
- Speshal Instrɔkshɔn: Yu go gɛt spɛshal instrɔkshɔn liflet (MedGuide) we dɛn gi yu dis mɛrɛsin. Rid am gud gud wan ɛvri tɛm. Nɔ shem fɔ aks yu dɔktɔ if ɛnitin de we yu nɔ ɔndastand.
Mɛmba se na fɔ yu nɔmɔ dɛn gi dis mɛrɛsin. Nɔ ɛva sheb am wit ɛni ɔda pɔsin.
Tin dɛn we yu fɔ tek tɛm wit mɔ we yu de tek mɛrɛsin
Yu dɔktɔ go de wach yu kɔndishɔn ɔltɛm we yu de tek dis mɛrɛsin. Dis kin inklud blɔd wok.
I rili impɔtant: Wach fɔ di bad bad alɛji!
Wan tin we yu fɔ tek tɛm pasmak we yu de yuz dis mɛrɛsin na di pɔsibul fɔ mek yu gɛt siriɔs alɛji, ɔ anafylaksis. Dis na imejensi we kin mek pɔsin in layf de pan denja.
Bikɔs ɔf dis risk, yu dɔktɔ go gi yu wan mɛrɛsin we dɛn kɔl epinephrine auto-injector . Na tin we tan lɛk pen. Dɛn go tɛl yu ɛn yu fambul bɔt aw ɛn ustɛm fɔ yuz am if yu gɛt alɛji.
I impɔtant fɔ kip dis wit yu ɔltɛm. Kip dis klos to yu ɛnisay we yu go, ivin we yu de na os.
Dɔn bak, kip di Patient Wallet Card we dɛn gi yu wit yu ɔltɛm ɛn sho am to ɛvri dɔktɔ ɛn nɔs we de trit yu.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, dis wan kin gɛt sɔm bad bad tin dɛn. Sɔm kin apin kwik kwik wan, ɛn ɔda wan dɛn kin kɔmɔn. Mek wi brok dem down.
| Sayd ɛfɛkt/simptom | Diskripshɔn ɛn wetin fɔ du |
|---|---|
| Siriɔs sayd ɛfɛkt dɛm we dɛn fɔ ripɔt to di dɔktɔ wantɛm wantɛm | |
| Siriɔs alɛji ɔ Angioedema | Skin rash, ayv, it, swel na di fes, yay, lip, tong, an ɔ fut, i nɔ izi fɔ swɛla, i nɔ izi fɔ blo. If ɛni wan pan dɛn tin ya apin, tɛl yu dɔktɔ wantɛm wantɛm ɛn go na di ɔspitul ETU we de nia yu. |
| Riakshɔn dɛn we pɔsin kin du wit infushɔn | Chɛst pen, i nɔ kin izi fɔ blo, yu nɔ kin blo fayn, yu kin fɔdɔm, yu kin fil lɛk yu ed de tɔn. Go to dɔktɔ wantɛm wantɛm. |
| Sayd ɛfɛkt dɛm wae nɔr kin denja, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Prɔblɛm dɛn we de na di dijestiv sistɛm | Dayarɛa, bɛlɛ pen, vɔmit. |
| Ɔda disɔda dɛn we kin apin | Diziz, ed pen, jɔyn pen. |
| Diskɔmfɔt na di say we dɛn injɛkshɔn | Pen, rɛd, ɔ swel na di say we dɛn injekt am. |
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. Apat frɔm dat, if yu gɛt ɛnitin we nɔ kɔmɔn, tɔk to yu dɔktɔ bɔt dat.
Wetin a go du if a tek bɔku mɛrɛsin ɔ a mis fɔ it?
Ovadosage
Imajin se if yu tink se yu dɔn tek dis mɛrɛsin pasmak, tu tin dɛn de we yu fɔ du wantɛm wantɛm.
1. Go na di ɔspitul we de nia yu in Imejɛnsi Tritmɛnt Yunit (ETU) .
2. Kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital.
If yu mis wan doz fɔ mɛrɛsin (Missed Dose) .
Nɔ wɔri. Nɔ tek dabl doz fɔ mek di doz we yu mis. Dat kin denja. Ɔl wetin yu fɔ du na fɔ fɔgɛt bɔt di doz we yu mis ɛn tek di nɛks doz na di tɛm we dɛn dɔn sɛtul.
Aw fɔ kip mɛrɛsin fayn fayn wan?
Fɔ mek di mɛrɛsin kɔntinyu fɔ gɛt di kwaliti, i rili impɔtant fɔ kip am fayn fayn wan.
- Di bɛst we: I bɛtɛ fɔ kip am na frij. Bɔt nɔ ɛva put am na friza. Dat min se nɔ fɔ friz am.
- Rum tɛmpracha: If nid de, yu kin kip am na rum tɛmpracha we go rich 25 digri sɛlshiɔs (77 digri F) fɔ 30 dez. Bɔt if yu du dat, ɛnitin we lɛf afta 30 dez, yu fɔ trowe am. I nɔ fayn fɔ put am bak na frij.
- Ɔda pɔynt dɛn: Ɔltɛm, kip mɛrɛsin na di fɔs tin we dɛn pak am. Protɛkt frɔm layt. Kip am usay pikin ɛn animal dɛn we yu lɛk nɔ go ebul fɔ rich. Trowe di mɛrɛsin we dɔn pas.
Mɛsej we dɛn kin kɛr go na os
- Pegvaliase na spɛshal injɛkshɔn we dɛn kin gi fɔ kɔntrol di lɛvɛl we di phenylalanine de na di blɔd fɔ pipul dɛn we gɛt PKU.
- Di big risk wae yu de yuse dis mɛrɛsin na wae yu gɛt siriɔs alɛji. So , ɔltɛm kɛr di epinephrine auto-injector we yu dɔktɔ gi yu.
- Bifo yu bigin fɔ tek di mɛrɛsin, tɛl yu dɔktɔ bɔt ɔl yu mɛrɛsin, alɛji, ɛn ɔda mɛrɛsin dɛn we yu de tek.
- Fɔ fala di instrɔkshɔn dɛn gud gud wan bɔt aw fɔ yuz di mɛrɛsin ɛn aw fɔ pul di nidul dɛn.
- If yu gɛt ɛnitin we nɔ kɔmɔn, mɔ we i nɔ izi fɔ blo, we yu de swel, ɔ we yu de fil pen na yu chɛst, go to dɔktɔ wantɛm wantɛm.
- If yu gɛt ɛni kwɛstyɔn ɔr dawt bɔt dis mɛrɛsin, nɔr frayd fɔ tɔk to yu dɔktɔ bɔt am.
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