Sɔm sik dɛn de, fɔ ɛgzampul, lɛk Thalassemia, usay pipul dɛn we gɛt dɛn sik dɛn de fɔ gi blɔd ɔltɛm. We wi kɔntinyu fɔ gɛt blɔd dis kayn we, di ayɛn we de na wi bɔdi kin go ɔp pas di wan we wi nid. Di ekstra ayɔn we kin gɛda na di bɔdi dis kayn we kin pwɛl impɔtant ɔgan dɛn lɛk wi at ɛn liva. So, wan spɛshal injɛkshɔn we dɛn kin gi fɔ pul dis ay aynɔ we pasmak na di bɔdi, dɛn kɔl am Deferoxamine. Tide, wi go tɔk bɔt dis mɛrɛsin insay simpul wɔd dɛn.
Us kayn mɛrɛsin na Deferoxamine?
Fɔ tɔk am simpul wan, Deferoxamine na drɔg we de wok lɛk magnet fɔ mek wi gɛt bɔku bɔku ayɛn na wi bɔdi. We dis drɔg go insay di bɔdi, i kin tay pan di ayɔn patikyula dɛn we pasmak. Dɔn, wi kidni dɛn kin pul dis ayɛn we dɛn tay tru di urine. Dis de ridyus di ayron lɛvɛl na di bɔdi to sef lɛvɛl ɛn i de stɔp fɔ pwɛl di ɔgan dɛn. Dɛn kɔl dis ‘chelation therapy’.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu yuse dis mɛrɛsin
Bifo yu bigin fɔ tek Deferoxamine, yu fɔ tɛl yu dɔktɔ dɛn tin ya, bikɔs yu fɔ tek tɛm bad bad wan we yu de yuz dis mɛrɛsin wit dɛn sik ya.
| Di tin we de apin to yu | Wetin mek yu fɔ tɛl di dɔktɔ? |
|---|---|
| Kidni sik ɔ i nɔ kin izi fɔ pis | Bikɔs dis mɛrɛsin kin kɔmɔt na di bɔdi tru di kidni dɛm, i impɔtant fɔ no bɔt aw di kidni de wok. |
| At sik (At we nɔ de wok fayn) . | Di dɔktɔ fɔ no bɔt di tin dɛn we di mɛrɛsin kin du, bikɔs if yu gɛt bɔku ayɔn, dat kin afɛkt di at. |
| Liva sik | Fɔ no bɔt aw di liva de wok impɔtant fɔ plan di tritmɛnt. |
| Ɛni kayn infekshɔn | Sɔm infɛkshɔn kin mek dis mɛrɛsin wɔs. |
| If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ | Dis na drɔg we kin ambɔg di pikin we i gɛt bɛlɛ, so i rili impɔtant fɔ tɔk bɔt am. |
| If mama de gi in pikin in bɛlɛ | Yu fɔ tɔk to yu dɔktɔ if di mɛrɛsin pas to yu pikin tru in mama in milk ɔ nɔ pas am. |
| Alɛji to ɔda mɛrɛsin, it ɔ tin dɛn | If yu gɛt alɛji fɔ deferoxamine ɔ ɛni ɔda tin, i impɔtant fɔ no dis bifo yu gɛt tritmɛnt. |
Aw fɔ yuz di mɛrɛsin?
Dɛn kin gi dis mɛrɛsin as injɛkshɔn. Dɛn kin gi am tu we dɛn:
1. Insay vein: As injεkshכn we dεn gi insay vein.
2. Ɔnda di skin: As injɛkshɔn we dɛn kin gi ɔnda di skin.
Dɛn kin gi dis vaysin na ɔspitul ɔ klinik. Bɔt sɔntɛnde, dɛn kin tich di pɔsin we sik aw fɔ tek di mɛrɛsin na os. If na so i bi, dɛn kin yuz spɛshal pɔmp (infusion pump). Tru dis pɔmp, dɛn kin pas di mɛrɛsin smɔl smɔl insay di bɔdi fɔ sɔm awa.
If yu de yuz dis mɛrɛsin na os, fala di instrɔkshɔn dɛn we yu dɔktɔ ɔ nɔs gi yu di rayt we . Nɔ chenj di doz, di tɛm we yu fɔ gi am, ɔ di we aw yu fɔ gi am.
Impɔtant: Nɔ ɛva trowe nidul ɛn sirinj dɛn we yu dɔn yuz na di dɔti. Dɛn fɔ put dɛn na spɛshal kɔntena (shap kɔntena) we dɛn gi. If yu nɔ gɛt wan, aks yu dɔktɔ ɔ nɔs fɔ wan.
Speshal okasiɔn dɛn
- Yɔŋ pikin dɛn: We dɛn gi am to yɔŋ pikin dɛn, mɔ we dɛn gi am bɔku ɛn fɔ lɔng tɛm, i kin gɛt smɔl ifɛkt pan di pikin in gro. So, di dɔktɔ go de chɛk di pikin in ayt ɛn wet ɔltɛm.
- Pipul dɛn we dɔn pas 65 ia: Pipul dɛn we dɔn ol kin fil di bad tin dɛn we dis mɛrɛsin de du, so dɛn kin gi dɛn smɔl doz.
Wetin kin apin if yu tek bɔku mɛrɛsin?
If yu tink se yu dɔn tek bɔku mɛrɛsin, nɔ panik ɛn du sɔntin wantɛm wantɛm. As soon as i pɔsibul.Kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital. Ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Prɔblɛm kin de wit ɔda mɛrɛsin dɛn? (Intarakshɔn dɛn)
Yɛs, sɔm mɛrɛsin dɛn kin miks wit Deferoxamine. So, yu fɔ tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek, lɛk vaytamɛn dɛn, ɛbul mɛrɛsin dɛn, ɛn sɔpɔtmɛnt dɛn.
- Nɔ ɛva tek: If yu de tek dis mɛrɛsin, nɔ tek ayɛn sɔpɔtmɛnt fɔ ɛni rizin . Na bikɔs wi kin tek dis mɛrɛsin fɔ pul di ayɛn we pasmak na di bɔdi.
- Tek tɛm wit dɛn tin ya:
- Vitamin C (Askɔrbik asid) .
- Prochlorperazine (wan mɛrɛsin we de mek pɔsin nɔ vɔmit) .
- Gallium-67 (wan tin we dɛn kin yuz fɔ skan sɔm) .
Ɛspɛshali we i kam pan vaytamɛn C, nɔ tek vaytamɛn C fɔ yusɛf pas yu dɔktɔ tɛl yu fɔ tek am. Sɔntɛnde, i kin fayn fɔ tek smɔl vaytamɛn C wit difɛroksamin fɔ mek di we aw dɛn de pul di ayɔn wok fayn fayn wan. Bɔt dɛn fɔ jɔs du dis ɔnda dɔktɔ in advays.
Tin dɛn we yu fɔ tink bɔt we yu de tek mɛrɛsin
- Chek-ap ɔltɛm: Yu mɛdikal tim go de wach yu gud gud wan ɔl di tɛm we yu de trit yu. Yu go nid fɔ de du blɔd tɛst ɔltɛm.
- Yu si ɛn yɛri: Dɛn kin chɛk yu yay ɛn yɛri bifo ɛn we yu de du tritmɛnt. If yu notis ɛni chenj na yu yay ɔ yɛri, ɔ if yu si se yu yes de ring, tɛl yu dɔktɔ wantɛm wantɛm.
- Diziz: Dis mɛrɛsin kin mek yu fil diziz ɔr slip. So, nɔ du tin dɛn we denja lɛk fɔ drayv ɔ fɔ yuz mashin te yu no aw dis mɛrɛsin de afɛkt yu. Fɔ mek yu nɔ gɛt diziz, tinap smɔl we yu de grap we yu sidɔm ɔ we yu de na bed.
- Yurin kɔlɔ: Yu urine kin tɔn rɛd-brawn kɔlɔ we yu de tek dis mɛrɛsin. Dis na nɔmal tin ɛn i nɔ fɔ mek pɔsin fred.
- Bɛlɛ ɛn kɔntrol fɔ bɔn pikin: Dis rili impɔtant . Dis mɛrɛsin kin mek di pikin gɛt siriɔs prɔblɛm wit di pikin if i tek am we i gɛt bɛlɛ. So, i impɔtant fɔ yuz wan we we pɔsin kin abop pan fɔ kɔntrol di pikin we yu de du di tritmɛnt ɛn fɔ wan mɔnt afta yu dɔn stɔp di tritmɛnt. Tɔk to yu dɔktɔ bɔt dis ɛn pik di rayt we fɔ du am.
Di sayd ɛfɛkt dɛn we di mɛrɛsin kin gɛt
Lɛk ɛni mɛrɛsin, Deferoxamine kin gɛt sayd ɛfɛkt. Sɔm pan dɛn siriɔs, ɛn ɔda wan dɛn kin kɔmɔn.
| Sayd ɛfɛkt we pɔsin kin gɛt | Tɔk bɔt |
|---|---|
| Sayd ɛfɛkt dɛn we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip, tong ɔ trot. |
| Vishɔn kin chenj | Blɔr vishɔn, chenj na di kɔlɔ vishɔn. |
| Prɔblɛm fɔ yɛri | Yu nɔ de yɛri fayn, i de ring na yu yes. |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva, kol, kɔf, trot we de at. |
| Di sayn dɛm we de sho se di kidni dɔn pwɛl | di urine we de kכmכt dכn, di ankכl, an, כ fut de swel. |
| Lɔw blɔd prɛshɔn | Diziz, faint, blurred vishɔn. |
| I nɔ kin izi fɔ yu fɔ blo | Fɔ blo shɔt, i nɔ kin izi fɔ blo. |
| Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Pen/rɛdnɛs na di say we dɛn injɛkshɔn | Rɛd, swel, ɔ pen usay dɛn gi di injɛkshɔn. |
| Bɛlɛ pen, dayarɛa | Bɛlɛ de at, i de blo. |
| Diziz we pɔsin kin gɛt | Fɔ fil se yu gɛt smɔl diziz. |
Mɛsej we dɛn kin kɛr go na os
- Deferoxamine na mɛrɛsin we de ɛp fɔ pul di aynɔ we pasmak na di bɔdi tru di urine.
- Ɔltɛm tɛl yu dɔktɔ bɔt ɛni ɔda sik, mɛrɛsin we yu de tek, ɛn alɛji we yu gɛt.
- Nɔ tek ayɛn tablɛt we yu de tek dis mɛrɛsin. Nɔ tek vaytamɛn C if yu nɔ gɛt dɔktɔ advays.
- If yu gɛt ɛni chenj na yu yay, yu yɛri, yu gɛt alɛji, ɔ yu nɔ ebul fɔ blo, tɛl yu dɔktɔ wantɛm wantɛm .
- Mek shɔ se yu yuz di rayt we fɔ kɔntrol di pikin we yu de tek dis mɛrɛsin ɛn fɔ wan mɔnt afta yu dɔn stɔp.
- If yu gɛt ɛni kwɛstyɔn ɔ tin we de mɔna yu, nɔ ɛva fred fɔ tɔk bɔt am wit yu dɔktɔ.
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