Yu ɔ pɔsin we de nia yu kin fil smɔl fred ɛn fred we yu yɛri di nem ‘Denileukin Diftitox’ as tritmɛnt fɔ kansa. Dat na rili nɔmal tin. Wi kin fil da we de we wi yɛri bɔt wan nyu drɔg we wi nɔ sabi. Bɔt nɔ fred. Insay dis atikul tide, wi go tɔk bɔt ɔltin we yu nid fɔ no bɔt dis mɛrɛsin we dɛn kɔl Denileukin Diftitox, rili simpul wan, insay wan we we yu go ɔndastand.
Wetin na Denileukin Diftitox?
Fɔ tɔk am simpul wan, Denileukin Diftitox na spɛshal mɛrɛsin we dɛn kin yuz fɔ kil kansa sɛl dɛn, dat na, kemotɛrapi mɛrɛsin . Bɔt dis nɔ tan lɛk drɔg we dɛn kin tek ɔltɛm. Dɛn mek am wit wan spɛshal tin we dɛn kɔl fusion protein .
Tink am laik speshal tren "commando" fo wi militri. Dis drɔg gɛt di spɛshal abiliti fɔ fɛn ɛn atak di kansa sɛl dɛn nɔmɔ we nɔ go ambɔg di nɔmal sɛl dɛn. Dɛn kin yuz am mɔ fɔ mɛn wan patikyula kayn kansa we dɛn kɔl Cutaneous T-cell Lymphoma . So yu dɔktɔ dɔn gi yu dis mɛrɛsin bikɔs i dɔn tek tɛm stɔdi yu sik ɛn disayd se dis na di tritmɛnt we fit fɔ am.
Wetin na de tin wae yu fɔ tɛl di dɔktɔ bifo yu bigin dis tritmɛnt?
Dis rili impɔtant. Fɔ mek shɔ se yu sef, mek shɔ se yu tɛl yu dɔktɔ if ɛni wan pan dɛn tin ya apin to yu bifo yu bigin fɔ trit yu.
- If di albumin we de na di blɔd nɔ bɔku: Albumin na wan men prɔtin we de na wi blɔd. Dɛn fɔ tek spɛshal kia we dɛn de gi dis mɛrɛsin to pipul dɛn we nɔ gɛt bɛtɛ mɛrɛsin.
- If yu gɛt ɛni alɛji: Yu fɔ tɛl wi if yu gɛt ɛni alɛji, nɔto jɔs to Denileukin Diftitox, bɔt bak to ɛni ɔda mɛrɛsin, it, ɔ tin dɛn we de mek yu nɔ pwɛl.
- If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ: Dis mɛrɛsin kin rili ambɔg di pikin we i gɛt bɛlɛ. So tɔk to yu dɔktɔ bɔt dis opin wan.
- If yu na mama we de gi pikin in mama in bɛlɛ: Dis mɛrɛsin kin pas to di pikin tru in mama in milk, so i nɔ fayn fɔ mama dɛn we de gi pikin in bɛlɛ.
Nɔ ayd dis infɔmeshɔn frɔm di dɔktɔ. I rili impɔtant fɔ yu sef fɔ tɛl dɛn tin ya 100% kɔrɛkt wan.
Aw dɛn kin gi di tritmɛnt?
Dis mɛrɛsin nɔto sɔntin we yu kin kɛr go na os. Na injεkshכn we dεn kin gi tru wan vein (infushכn) . So, dɛn kin gi dis tritmɛnt na ɔspitul ɔ klinik., na dɔktɔ ɔ nɔs wokman dɛn nɔmɔ we dɔn gɛt spɛshal trenin pan dis. So mɛmba se yu de na say we sef.
Wetin a go du if a gɛt bɔku mɛrɛsin?
Dɛn kin gi dis na ɔspitul, so di chans fɔ mek dis apin rili smɔl. Bɔt if yu tink se sɔntin lɛk dis dɔn apin to yu, tɛl di dɔktɔ dɛn wantɛm wantɛm. Ɔda we de fɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta wantɛm wantɛm na di Kɔlɔmbɔ Nashɔnal Ospital , ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) we de nia yu .
Tin dɛn we yu fɔ mɛmba we yu de du tritmɛnt
Di mɛdikal tim go tek tɛm wach yu we yu de tek dis mɛrɛsin.
- Blɔd Tɛst: Yu dɔktɔ kin ɔda fɔ mek dɛn du blɔd tɛst ɔltɛm fɔ si aw yu bɔdi de du di mɛrɛsin.
- Alɛji: Sɔm pipul dɛn kin gɛt siriɔs alɛji fɔ dis mɛrɛsin. Fɔ ridyus dis risk, yu dɔktɔ kin disayd fɔ gi yu ɔda mɛrɛsin (pri-medication) bifo yu gɛt Denileukin Diftitox.
- Bεlε εn we yu de gi pikin in bεlε: Dis rili impɔtant. Yu fɔ avɔyd fɔ gɛt bɛlɛ ɔltogɛda we yu de tek dis mɛrɛsin ɛn fɔ 7 dez afta yu dɔn tek di las doz. If yu de plan fɔ gɛt bɛlɛ ɔ yu tink se yu go gɛt bɛlɛ, tɛl yu dɔktɔ wantɛm wantɛm. Yu fɔ avɔyd bak fɔ gi pikin in bɛlɛ dis tɛm.
Sayd ɛfɛkt dɛn we kin apin bikɔs ɔf mɛrɛsin
Lɛk ɛni mɛrɛsin, dis wan kin gɛt sayd ɛfɛkt. Sɔm siriɔs, sɔm kɔmɔn. De impɔtant tin na fɔ no bɔt dɛn sik ya ɛn tek akshɔn kwik if nid de.
| Sayd ɛfɛkt we pɔsin kin gɛt | Tɔk bɔt |
|---|---|
| Di sayn dɛm wae yu fɔ ripɔt to yu dɔktɔ ɔr ɔspitul kwik kwik wan | |
| Siriɔs alɛji dɛn | Skin rash, it, swel na di fes, lip ɔ tong. |
| I nɔ izi fɔ blo | I nɔ izi fɔ blo, i de swɛt. |
| Di sayn dɛm we de sho se di liva dɔn pwɛl | Dak yɔlɔ ɔ brawn urine, yu yay ɔ skin de yɔlɔ, pen na di ɔp rayt say na di bɛlɛ, nɔs, yu nɔ de want fɔ it. |
| Di sayn dɛn we de sho se pɔsin in blɔd prɛshɔn dɔn dɔŋ | Diziz, layt ed, ɛn fɔdɔm. |
| Ɔda siriɔs sayn dɛn | Chɛst pen, at bit kwik kwik wan, yu de si chenj, we yu de gɛt wet wantɛm wantɛm, yu anklɛ, an, fut, fiva ɔ kol. |
| Di sayn dɛm wae nɔr kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Vɔmit ɔ nɔs | Vɔmit ɔ Nɔs |
| Bɛlɛ we de at (dayarɛa) . | Rɔnbɛlɛ |
| Ed de at | Ed de at |
| Kɔf | Kɔf |
| Pen na di jɔyn dɛn | Pen na di jɔyn dɛn |
Prɔblɛm kin de wit ɔda mɛrɛsin dɛn? (Intarakshɔn dɛn)
Dɛn nɔr dɔn stɔdi am gud gud wan aw dis mɛrɛsin de miks wit ɔda mɛrɛsin dɛm, we min se prɔblɛm kin de we wi nɔr no bɔt.
So, i rili impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek . Dis inklud:
- Mɛrɛsin dɛn we ɔda dɔktɔ dɛn kin gi pɔsin.
- Dɛn kin gɛt mɛrɛsin dɛn we nɔ gɛt prɛskrishɔn frɔm di famasi we yu nɔ gɛt prɛskrishɔn.
- Vitamin, ɛbul ɔ Ayurveda/Sinhala mɛrɛsin (ɛrb, it sɔpɔtmɛnt).
- Tɛl wi if yu de smok, drink rɔm, ɔ yuz ɔda drɔgs.
Mɛsej we dɛn kin kɛr go na os
- Denileukin Diftitox na tritmɛnt fɔ wan patikyula kayn kansa na yu skin we dɛn kin gɛt na ɔspitul nɔmɔ.
- Bifo yu bigin fɔ trit yu, mek shɔ se yu tɛl yu dɔktɔ bɔt ɛni alɛji we yu gɛt, ɔl di ɔda mɛrɛsin dɛn we yu de tek, ɛn if yu gɛt bɛlɛ/yu op fɔ gɛt bɛlɛ.
- Nɔ gɛt bɛlɛ ɛn gi pikin in bɛlɛ ɔltogɛda we yu de trit am ɛn fɔ 7 dez afta yu dɔn stɔp am.
- If yu gɛt ɛni siriɔs sayn lɛk fɔ mek yu nɔ ebul fɔ blo fayn, yu chɛst de pen, yu bɔdi de swel, ɔ yu yay ɔ yu skin de yɔlɔ, go to dɔktɔ wantɛm wantɛm.
- If yu gɛt ɛni ɔda kwɛstyɔn bɔt dis mɛrɛsin, nɔ shek fɔ aks yu dɔktɔ. I rɛdi ɔltɛm fɔ ɛp yu.
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