Yu pikin gɛt Nyuroblastoma'? Mek wi lan bɔt di Dinutuximab vaysin!

a andastan aw i mos hevi fo no se yu smohl pikin geht sik lek `Neuroblastoma`. Na dis kayn tɛm, wan tawzin kwɛstyɔn dɛn kin kam na yu maynd, ɛn yu kin fil bad ɛn fred. Bɔt mɛmba se, mɛrɛsin sayɛns dɔn rili go bifo dɛn tɛm ya. So, tritmɛnt dɛn de we dɛn kin gi fɔ dɛn kayn tin ya. Wan pan dɛn kayn spɛshal mɛrɛsin ya na `Dinutuximab`. Tide, wi go tɔk jɔs bɔt dis `Dinutuximab` vaysin, aw fɔ gi am to di pikin, ɛn us tin dɛn fɔ tek tɛm wit.

Us kayn mɛrɛsin na `Dinutuximab`?

Fɔ tɔk am simpul wan, `Dinutuximab` na wan drɔg we de pan wan spɛshal klas ɔf drɔgs we dɛn kɔl `Monoclonal Antibody` . Tink bɔt am, yu nɔ tink se wi gɛt wan imyun sistɛm na wi bɔdi we de fɛt sik dɛn? semweso, dis `Monoclonal Antibody` na protin bak we dεn mek spεshal wan na di labכtכri. Di spɛshal tin we dis wan gɛt na dat dɛn mek am fɔ tɔch ɛn atak sɔm patikyula sɛl dɛn lɛk kansa sɛl dɛn dairekt wan. `Dinutuximab` dεn kin yus spεshal fכ trit wan kayn kεnsar we dεn kכl `Neuroblastoma`, we kin apin pan pikin dεm .

Yu kin si dis mɛrɛsin ɔnda di brand nem `Unituxin`. Dis nɔto kɔmɔn mɛrɛsin, bɔt na rili pawaful mɛrɛsin we dɛn kin gi ɔnda di sɔpɔtishɔn fɔ spɛshal dɔktɔ dɛn. So, i rili impɔtant fɔ mek wi ɔndastand dis gud gud wan.

Us sityueshɔn dɛn kin gi pikin dɛn dis mɛrɛsin?

As a bin dɔn tɔk, dɛn kin yuz `Dinutuximab` mɔ fɔ trit wan kansa we dɛn kɔl `Neuroblastoma` we kin apin to yɔŋ pikin dɛn, dat na pikin dɛn we yɔŋ lɛk 1 ia . `Nyuroblastoma` na wan kayn kansa we de apin na di nεv sεstem. Na kansa we dɛn kin si pan pikin dɛn.

Sɔntɛnde, dɔktɔ dɛn kin disayd fɔ yuz dis mɛrɛsin fɔ ɔda sik dɛn. Bɔt na di dɔktɔ nɔmɔ go disayd afta i dɔn tek tɛm chɛk yu pikin in kɔndishɔn. So, aks yu dɔktɔ ɔ fama ɛni kwɛstyɔn we yu gɛt bɔt aw fɔ yuz dis mɛrɛsin.

Wetin na de impɔtant tin fɔ tɛl di dɔktɔ bifo yu bigin fɔ tek di mɛrɛsin?

Dis rili impɔtant. Bifo yu bigin `Dinutuximab` tritmɛnt, i impɔtant fɔ tɛl di mɛdikal tim bɔt sɔm infɔmeshɔn bɔt yu pikin in wɛlbɔdi kɔndishɔn. Bikɔs di tritmɛnt go bifo ɛn sef, dipen pan da infɔmeshɔn de.

Na sɔm tin dɛn we wi fɔ rili tɔk:

• Infεkshכn dεm naw: If di pikin gεt infεkshכn naw, lεk fiva כ kol.
• Kidni sik: If di pikin gɛt ɛni prɔblɛm we gɛt fɔ du wit di kidni.
• Liva sik: If yu gɛt ɛni sik we gɛt fɔ du wit liva.
• Di blɔd sɛl dɛn nɔ bɔku: Dis min se di wayt blɔd sɛl dɛn, di rɛd blɔd sɛl dɛn, ɔ di pletlɛt dɛn nɔ bɔku.If dɛn dɔn no se yu gɛt dis sik bifo tɛm, we dɛn tin ya dɔn ridyus, infɛkshɔn ɛn blɔd kin izi fɔ kam.
• Lɔng ɔr brith sik: Kɔndishɔn lɛk fɔ at fɔ blo, asma.
• Bɛlɛ: Ivin if pikin de tek dis mɛrɛsin, dɛn fɔ tɛl di pɔsin we de tek di mɛrɛsin (e.g. di mama) if i gɛt bɛlɛ ɔ i tink se i go gɛt bɛlɛ (especially we yu tink bɔt di envayrɔmɛnt ɛn aw fɔ ol di mɛrɛsin). (Dis nɔ min se di pikin gɛt bɛlɛ, bɔt i kin impɔtant fɔ tɔk bɔt di mama ɔ di pɔsin we de kia fɔ am. Ɔ, if yɔŋ gyal pikin de tek dis mɛrɛsin, dɛn fɔ tɔk bɔt dis spɛshal wan. Insay di ɔrijinal atikul, "Nɔ gɛt bɛlɛ we yu de tek dis mɛrɛsin" de tɔk bɔt di pɔsin we de tek di mɛrɛsin.) Mɔtalman, if yu gyal pikin de tek dis mɛrɛsin, if i gɛt bɛlɛ, i de plan fɔ gɛt bɛlɛ, ɔ if yu saspek se i kin geht bele, yu foh tehl yu dokta kwik kwik wan.
• Fɔ gi yu pikin in mama in bɛlɛ: If yu de gi yu pikin in bɛlɛ. (Dis kin apin bak fɔ gi yu pikin in bɛlɛ if yu na mama we de tek dis mɛrɛsin.)
• Alɛji: If yu pikin gɛt alɛji to Dinutuximab, ɛni ɔda mɛrɛsin, it, day, ɔ tin dɛn we de mek i nɔ pwɛl, i impɔtant fɔ tɛl am .

Fɔ tɛl di dɔktɔ bɔt dɛn tin ya we yu nɔ ayd dɛn rili impɔtant fɔ mek di pikin sef.

Aw yu kin gi pikin dis mɛrɛsin?

`Dinutuximab` nɔto mɛrɛsin we yu kin tek na os as pil. i de gi di pikin as `infushכn insay wan vein` . Jɔs lɛk aw yu de gi salin.

Dis tritmɛnt na ɔspitul ɔ klinik we dɔktɔ ɔ nɔs we tren kin gi am . So dɛn go de wach yu pikin gud gud wan we dɛn gi am dis mɛrɛsin. Dis nɔto mɛrɛsin we yu kin kɛr go na os.

Tɔk to yu dɔktɔ we de mɛn pikin dɛn bɔt aw fɔ gi yu pikin dis mɛrɛsin. Insay sɔm kes dɛn we dɛn kin pik, dɛn kin gi dis mɛrɛsin to pikin dɛn we yɔŋ lɛk wan ia . Bɔt spɛshal tin dɛn de we wi fɔ tek tɛm wit ɛn tin dɛn we wi fɔ wɔri bɔt.

Wetin fɔ du if dɛn ad di mɛrɛsin in doz?

Sɔntɛm, if yu tink se dɛn dɔn gi yu pikin tumɔs pan dis mɛrɛsin, kɔl pɔyzin kɔntrol sɛnta ɔ ɔspitul imejensi rum wantɛm wantɛm . Nɔ west tɛm.

Impɔtant: Dɛn dɔn gi dis mɛrɛsin fɔ yu pikin nɔmɔ. Nɔ gi dis mɛrɛsin to ɛni ɔda pɔsin fɔ ɛni rizin .

Wetin a go du if a mis apɔntinmɛnt fɔ tek mɛrɛsin?

I rili impɔtant fɔ gi di mɛrɛsin di rayt tɛm ɛn nɔ skip di tɛm we dɛn dɔn sɛtul. If fɔ sɔm rizin yu nɔ ebul fɔ go na ɔspitul/klinik fɔ gi yu pikin di mɛrɛsin di de we dɛn dɔn sɛtul, kɔl yu dɔktɔ ɔ wɛlbɔdi pɔsin wantɛm wantɛm ɛn tɛl dɛn.Dɔn dɛn go tɛl yu wetin fɔ du nɛks.

Dis mɛrɛsin kin miks wit ɔda mɛrɛsin dɛn?

Di intarakshɔn bitwin dinutuximab ɛn ɔda mɛrɛsin dɛm we yu pikin kin de tek nɔr dɔn stɔdi gud gud wan yet. Dis min se i pɔsibul fɔ mek sɔm mɛrɛsin dɛn gɛt prɔblɛm we dɛn tek am wit am.

So, gi yu dɔktɔ wan kɔmplit list fɔ ɔl di mɛrɛsin dɛn we yu pikin de tek, lɛk vaytamɛn, ɛvbɔdi, mɛrɛsin dɛn we nɔ gɛt prɛskrishɔn, ɛn tin dɛn fɔ it. Dɔn bak, tɛl yu pikin (if na big pɔsin) if i de smok , drink rɔm, ɔ yuz ɔda drɔgs. Sɔm tin kin miks wit dis mɛrɛsin.

Wetin yu fɔ pe atɛnshɔn mɔ to we yu de gi yu mɛrɛsin?

Yu pikin kin fil smɔl nɔr wɛl ɔr kin fil fayn wae i de tek dis mɛrɛsin. Dis kin bi nɔmal tin ɔr kin bi sayn fɔ wan sayd ɛfɛkt. So, if yu notis ɛni nyu sayn ɔ chenj, tɛl yu dɔktɔ . Yu fɔ kɔntinyu fɔ tek di mɛrɛsin lɛk aw dɛn tɛl yu fɔ tek am, ilɛksɛf yu nɔ fil fayn, te yu dɔktɔ tɛl yu fɔ stɔp.

Pe atɛnshɔn mɔ to dɛn tin ya:

• Chenj dɛn we yu de si: If i tan lɛk se yu pikin nɔ de si fayn, i nɔ izi fɔ si na brayt layt, ɔ i notis ɛni chenj na in yay , tɛl yu dɔktɔ wantɛm wantɛm .
• Siriɔs alɛji: Sɔntɛnde dis mɛrɛsin kin mek yu gɛt siriɔs alɛji. Fɔ ridyus dis risk, dɔktɔ dɛn go gi yu pikin ɔda mɛrɛsin bifo yu gi yu Dinuuximab. Gi di mɛrɛsin jɔs lɛk aw dɛn tɛl yu fɔ gi am.
• Sayn dɛn we de sho se i gɛt di sik: If yu pikin gɛt fiva, kol, ɔ ɔda tin dɛn we de sho se i gɛt kol, lɛk in trot we de at, kɔf, ɔ in nos we de rɔn , kɔl yu dɔktɔ wantɛm wantɛm . Nɔ de mɛn yusɛf. Dis mɛrɛsin kin ridyus yu pikin in ebul fɔ fɛt infɛkshɔn. So, tray fɔ mek yu pikin nɔ de nia pipul dɛn we sik as yu ebul .
• Bɛlɛ (fɔ yɔŋ uman dɛn): If yu na yɔŋ uman we de tek dis mɛrɛsin, yu fɔ avɔyd fɔ gɛt bɛlɛ we yu de tek di mɛrɛsin ɛn fɔ 2 mɔnt afta yu dɔn stɔp di mɛrɛsin . If yu de plan fɔ gɛt bɛlɛ ɔ yu tink se yu gɛt bɛlɛ, tɛl yu dɔktɔ wantɛm wantɛm. Dis mɛrɛsin kin mek di pikin we nɔ bɔn yet gɛt siriɔs sayd ɛfɛkt. Aks yu dɔktɔ ɔ fama fɔ no mɔ.
• Fɔ gi yu pikin in mama in bɛlɛ: Nɔ gi yu pikin in mama in bɛlɛ we yu de tek dis mɛrɛsin.

Wetin na di sayd ɛfɛkt dɛm we dis mɛrɛsin kin gɛt?

Lɛk ɔl di mɛrɛsin dɛn, Dinutuximab kin mek sɔm sayd ɛfɛkt dɛn. Sɔm pan dɛn fɔ ripɔt to yu dɔktɔ wantɛm wantɛm. Sɔm pan dɛn nɔ kin siriɔs, bɔt if dɛn kɔntinyu fɔ de ɛn dɛn kin mɔna yu, yu fɔ tɛl yu dɔktɔ .

Di sayd ɛfɛkt dɛn we yu fɔ ripɔt to yu dɔktɔ ɔ pɔsin we de kia fɔ yu wɛlbɔdi biznɛs wantɛm wantɛm:

• Alɛji: Skin de rɔsh, it, tin dɛn we tan lɛk ɛkzema, fes, lip, ɔ tɔng we de swel.
• Blɔd we de na di urine.
• Chenj dεm na di vishכn: blכr vishכn, sεnsitiv to layt (difεlεnt fכ si).
• Blɔd nɔ kin bɔku: Dis mɛrɛsin kin mek di wayt blɔd sɛl dɛn, rɛd blɔd sɛl dɛn, ɛn di pletlɛt dɛn nɔ bɔku. Dis kin mek di risk fɔ gɛt infɛkshɔn ɛn blɔd bɔku.
• Pen, tingling, swɛt na yu an ɔ fut.
• Di sik dɛn we kin mek pɔsin sik.
• Di ed we kin at bad bad wan.
• Sayn dɛm fɔ se yu gɛt di sik: fiva ɔ kol, kɔf, trot we de at.
• Sayn ɛn simptom dɛm fɔ blɔd prɛshɔn we de dɔŋ: yu ed de tɔn, yu de fɔdɔm, yu de fɔdɔm, yu taya ɔ yu wik we yu nɔ kɔmɔn.
• Sayn ɛn simptom dɛm fɔ lɛ potashɔm nɔ bɔku: di mɔsul dɛn de twitch ɔ pen, yu chɛst de pen, yu de tɔn, yu de fɔdɔm, yu nɔ de blo fayn, yu at de bit fast ɔ i nɔ de bit ɔltɛm.
• Swel na di ankles, fut, an.
• Taya pasmak (`taya`).
• Trɔbul fɔ pas urine ɔ chenj na di amount of urine.
• We yu de gɛt mɔ wet.

Sayd ɛfɛkt dɛn we nɔ kin nid fɔ go to dɔktɔ, bɔt yu fɔ ripɔt to yu dɔktɔ if dɛn kɔntinyu fɔ de ɔ we de mɔna yu:

• Rɔnbɛlɛ.
• I nɔ kin want fɔ it igen.
• Fɔ vɔmit.

Impɔtant: Dis list nɔ gɛt ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu pikin gɛt ɛni ɔda sayn, duya go to yu dɔktɔ.

Aw yu kin kip dis mɛrɛsin?

Yu nɔ nid fɔ wɔri bɔt dis. Bikɔs `Dinutuximab` na mɛrɛsin we dɛn kin gi na ɔspitul ɔ klinik, yu nɔ nid fɔ kɛr am go na os ɛn kip am. So yu nɔ nid fɔ wɔri se di mɛrɛsin go bad ɔr go put am na yu pikin dɛn an.

Fɔ dɔn, tin dɛn fɔ mɛmba (Take-Home Message) .

`Dinutuximab` na wan rili impɔtant ɛn pawaful drɔg we dɛn kin gi fɔ wan siriɔs kansa kɔndishɔn lɛk `Neuroblastoma`. We yu de du dis tritmɛnt, yu nid fɔ rili tek tɛm wit di pikin. Jɔs lɛk aw dɔktɔ ɛn nɔs dɛn de chɛk di pikin ɔltɛm, na so i rili impɔtant fɔ mek una, as mama ɛn papa, pe atɛnshɔn to di chenj dɛn we di pikin de chenj ɛn di bad tin dɛn we kin apin to am.

• If yu notis ɛni smɔl chenj ɔ tin we de mɔna yu, tɛl yu dɔktɔ wantɛm wantɛm. Nɔ shem ɔ ignore am as sɔntin we smɔl.
• Fɔ fala yu dɔktɔ in instrɔkshɔn dɛn di rayt we. Nɔ mis di apɔntinmɛnt fɔ mɛrɛsin ɔ chɛk-ap.
• Tek yu at. Dis joyn nɔto wan we yu de go tru yu wan. Dɔktɔ, nɔs, fambul, ɛn padi dɛn ɔl de wit yu.

A op se dis infɔmeshɔn dɔn ɛp yu fɔ gɛt sɔm ɔndastandin bɔt dis mɛrɛsin. A de wish yu pikin fɔ wɛl kwik kwik wan!

` Dinutuximab, Nyuroblastoma, Kansa, Pikin Kansa, Monoclonal Antibodi, Vaksin, Sayd Ifɛkt