Yu dɔktɔ dɔn gi yu wan mɛrɛsin we dɛn kɔl Eliglustat as tritmɛnt fɔ tayp I Gaucher sik? Dɛn kin kɔl dis mɛrɛsin di brand nem CERDELGA. If na so i bi, dis atikul go rili impɔtant to yu. Lɛ wi tɔk bɔt dis drɔg, ɛn di tin dɛn we wi fɔ no bɔt we yu de yuz am, insay wan simpul ɛn stret we.
Wetin rili dɛn kin yuz dis mɛrɛsin fɔ?
Fɔ tɔk am simpul wan, Eliglustat na tritmɛnt fɔ lɔng tɛm fɔ Gaucher sik tayp I pan big pipul dɛm. Bɔt nɔto ɔlman de gi am. Fɔ mek shɔ se dis mɛrɛsin fayn fɔ yu bɔdi, yu dɔktɔ go du wan spɛshal tɛst fɔs. Na afta da tɛst de nɔmɔ i go disayd if dis mɛrɛsin fayn fɔ yu ɔ nɔ fayn fɔ yu.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin fɔ tek mɛrɛsin
Okay, naw sɔm tin dɛn de we yu fɔ rili tɔk to yu dɔktɔ bifo yu bigin dis mɛrɛsin. Bikɔs i rili impɔtant fɔ yu sef fɔ mek yu dɔktɔ gɛt kɔmplit pikchɔ bɔt yu wɛlbɔdi. If yu gɛt ɛni wan pan dɛn tin ya, mek shɔ se yu tɛl dɛn bɔt am.
- If yu gɛt at sik , yu dɔn gɛt at atak bifo, ɔ yu at nɔ de bit ɔltɛm .
- If yu gɛt sik na yu kidni .
- If yu gɛt liva sik .
- If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ.
- If yu na mama we de gi pikin in bɛlɛ.
- If yu bin dɔn gɛt alɛji fɔ eliglustat ɔ ɔda mɛrɛsin, it, ɔ day.
Aw a fɔ yuz dis mɛrɛsin?
I rili impɔtant fɔ fala di rayt instrɔkshɔn fɔ yuz dis mɛrɛsin.
- Dis mɛrɛsin kin kam insay di fɔm fɔ kapsul. Tek am wit yu mɔt wit wan glas wata .
- Tek am jɔs lɛk aw di dɔktɔ tɛl am, di rayt tɛm.
- I rili impɔtant: Nɔ brok, krɔs, ɔ chew dis kapsul. Swɛla am ɔl.
- Wan ɔda tin we rili impɔtant na fɔ nɔ ɛva tek dis mɛrɛsin wit grep jus. Dɛn tu tin ya kin mek pɔsin gɛt siriɔs riakshɔn.
- Yu kin tek dis mɛrɛsin wit it ɔ yu nɔ it am. Bɔt if yu bɛlɛ at, i go fayn fɔ tek am wit it.
- Nɔ stɔp fɔ tek dis mɛrɛsin wantɛm wantɛm if yu dɔktɔ nɔ advays yu.
Wonin: Dɛn dɔn gi yu dis mɛrɛsin fɔ yu nɔmɔ. Nɔ ɛva sheb am wit ɛni ɔda pɔsin.
Wetin a go du if a tek bɔku mɛrɛsin?
If yu tink wantɛm wantɛm se yu dɔn tek dis mɛrɛsin tumɔs, nɔ de te. Wantɛm wantɛm, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital , ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Wetin fɔ du if yu mis wan doz fɔ mɛrɛsin?
If yu fɔgɛt fɔ tek wan doz, nɔ wɔri. Tek di nɛks doz na di tɛm we dɛn dɔn sɛtul. Nɔ tek tu doz wan tɛm fɔ mek di doz we yu dɔn fɔgɛt.
Ɔda mɛrɛsin dɛm wae kin miks wit dis mɛrɛsin
Dis na pat we rili impɔtant. Ɔda mɛrɛsin dɛm wae yu de tek kin intarakt wit Eliglustat. So, gi yu dɔktɔ wan kɔmplit list fɔ ɔl di mɛrɛsin dɛn we yu de tek, lɛk di mɛrɛsin dɛn we dɛn kin gi yu ɛn di mɛrɛsin dɛn we yu kin bay ɛn we yu nɔ kin bay, ɔyl dɛn, ɛn sɔpɔtmɛnt dɛn. Dɔn bak, tɛl yu dɔktɔ if yu de smok ɔ drink rɔm.
| Mɛrɛsin dɛn we nɔ fɔ tek wit Eliglustat | |
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| Ɔda mɛrɛsin dɛm wae kin intarakt wit Eliglustat | |
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Dis list nɔ kɔmplit, so i bɛtɛ fɔ tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek.
Wetin na di sayd ɛfɛkt dɛm we kin apin we yu de tek di mɛrɛsin?
Lɛk ɛni mɛrɛsin, dis kin mek sɔm pipul dɛn gɛt sayd ɛfɛkt. Sɔm pan dɛn tin ya kin siriɔs, so i impɔtant fɔ no bɔt dɛn.
| Tayp fɔ di sayd ɛfɛkt | Karakta |
|---|---|
| Siriɔs sayd ɛfɛkt dɛm we dɛn fɔ ripɔt to di dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip ɔ tong. |
| Denja chenj dɛn na di at rit | Chest pen, diziz, at bit fast ɔr nɔr de bit ɔltɛm, fil lɛk yu chɛst de bit, fɔdɔm, trɔbul fɔ blo. |
| Kɔmɔn sayd ɛfɛkt dɛm wae yu fɔ tɛl yu dɔktɔ if dɛn kɔntinyu ɔr de mɔna yu | |
| Prɔblɛm dɛn we de na di dijestiv sistɛm | Bɛlɛ pen, dayarɛa, nɔs. |
| Ɔda dizayd dɛn | Ed pen, pen na di limb ɔ bak, taya. |
Aw yu fɔ kip yu mɛrɛsin?
- Kip fa frɔm pikin dɛn.
- Stɔr am na di tɛmpracha bitwin 20 ɛn 25 digri sɛlshiɔs (68-77 Fɛnayt).
- Trowe di mɛrɛsin we dɔn pas.
Mɛsej we dɛn kin kɛr go na os
- Eliglustat na wan patikyula mɛrɛsin fɔ Gaucher sik tayp I. Yu dɔktɔ go tɛst yu fɔ si if dis fit yu fayn.
- Nɔ drink grep jus ɔltogɛda we yu de tek dis mɛrɛsin.
- I impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn, vaytamɛn dɛn, ɛn ɛbul prɔdak dɛn we yu de tek.
- Kɔl yu dɔktɔ wantɛm wantɛm if yu gɛt sɔm sayn dɛn lɛk we yu de fil pen na yu chɛst, yu ed de tɔn, ɔ yu at de bit we nɔ fayn.
- Dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ ɛva sheb am wit ɔda pipul dɛn. If yu gɛt ɛni kwɛstyɔn bɔt di mɛrɛsin, tɔk to yu dɔktɔ.
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