Yu kin fil taya ɛn yu kin taya ɔltɛm? Yu kin si am se i nɔ kin izi fɔ yu fɔ blo ivin we yu de waka kwik kwik wan? Dɛn tin ya kin bi sayn dɛm fɔ anemia, ɔr wetin wi kin kɔl "blɔd dɛfisiɛns." Fɔ sɔm pipul dɛn, dis anemia kin kam wit wan sik we dɛn kin gɛt frɔm dɛn jɛnɛtiks lɛk Beta Thalassemia. Fɔ ɔda pipul dɛm, i kin bi bikɔs ɔf tin dɛm lɛk Myelodysplastic Syndromes (MDS). So, bɔku tɛm, pipul dɛn lɛk dis kin nid fɔ gɛt blɔd. Bɔt tide wi go tɔk bɔt wan nyu, advans vaysin we dɔn kam fɔ trit dɛn sik ya. Dat na Luspatercept.
Fɔ tɔk am simpul wan, wetin na Luspatercept?
Imajin se wi bon mɛro na faktri we de mek rɛd blɔd sɛl. Rɛd blɔd sɛl dɛn kin kɛr ɔksijɛn go ɔlsay na wi bɔdi. Na dɛn de gi wi layf ɛn di trɛnk fɔ du wok. Naw, pan pipul dɛm wae gɛt sik dɛm lɛk Beta Thalassemia ɛn Myelodysplastic Syndrome (MDS), dis faktri nɔr de wok fayn smɔl. Dat min se dɛn nɔ de mek di rayt rɛd blɔd sɛl dɛn.
Dis na di say we di drɔg Luspatercept (brand nem: `REBLOZYL`) de kam in. Dis vaysin tan lɛk smat supavaysa. I go na di bon mכro faktri εn se, "Okay, mek wi du am rayt. Mek mכr gud, hεlty, komplit rεd blכd sεl dεm." Fɔ tɔk am simpul wan, wetin dis mɛrɛsin de du na fɔ ɛp wi bɔdi fɔ mek mɔ rɛd blɔd sɛl dɛn we gɛt wɛlbɔdi. Dis de gi wi big chans fɔ ridyus di nɔmba fɔ di blɔd we dɛn de transfyushɔn ɔ ivin stɔp am ɔltogɛda.
Aw dɛn kin gi dis vaysin?
Dis nɔto mɛrɛsin we yu kin kɛr go na os. Luspatercept na wan injɛkshɔn we dɛn kin put ɔnda di bɔdi. Afta yu dɔktɔ tɛl yu am, na ɔspitul ɔ klinik we gɛt trenin go gi yu di injɛkshɔn. Yu go nid fɔ gɛt di injɛkshɔn lɛk ɛvri tri wik. So yu nɔ nid fɔ wɔri bɔt am, dɛn go tek kia ɔf di tɛm.
Di tin we impɔtant pas ɔl na dat, dɛn nɔ dɔn gri fɔ dis tritmɛnt yet fɔ pikin dɛn, so fɔ naw, tek dis tritmɛnt fɔ big pipul dɛn.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin tritmɛnt
I rili impɔtant fɔ tɛl yu dɔktɔ bɔt yu kɔmplit wɛlbɔdi histri bifo yu bigin ɛni mɛrɛsin. Ɛspɛshali bifo yu bigin Luspatercept, if ɛni wan pan dɛn tin ya apin to yu, yu fɔ rili tɛl dɛn bɔt am.
| Situeshɔn we yu nid fɔ ripɔt | Wetin mek i impɔtant? (Simpul ɛksplen) |
|---|---|
| If dɛn dɔn pul yu splin | di splin na wan ɔgan we de filta blɔd ɛn du bɔku wok dɛn we gɛt fɔ du wit blɔd. If i nɔ de, i kin afɛkt di tritmɛnt. |
| If yu gɛt ay blɔd prɛshɔn | Sɔntɛnde, dis mɛrɛsin kin mek di blɔd prɛshɔn go ɔp, so di dɔktɔ go tek tɛm mɔ bɔt dat. |
| If yu dɔn gɛt blɔd klot bifo | Smɔl risk de fɔ mek blɔd klɔt we yu de yuz dis mɛrɛsin, so i rili impɔtant if yu bin dɔn gɛt am bifo. |
| If yu na pɔsin we de smok | Smok kin mek yu blɔd klɔt mɔ ɛn mɔ, so i impɔtant fɔ tɛl yu dɔktɔ bɔt dis abit. |
| If yu de tray fɔ gɛt bɛlɛ ɔ yu gɛt bɛlɛ | Dis rili impɔtant. Dis mɛrɛsin kin mek di pikin gɛt siriɔs prɔblɛm we i gɛt bɛlɛ. So, i impɔtant fɔ yuz di rayt bɔn kɔntrol we dɛn de du di tritmɛnt ɛn fɔ sɔm mɔnt afta dɛn dɔn stɔp. |
| If mama de gi in pikin in bɛlɛ | dεn nכ no bכku if dis mεdisin de pas to di pikin tru in mama in milk, εn wetin go apin if i pas. So, yu fɔ tɔk to yu dɔktɔ ɛn disayd fɔ du di bɛst tin. |
| Ɔda mɛrɛsin dɛn, alɛji | Tɛl yu dɔktɔ if yu gɛt ɛni alɛji to Luspatercept ɔ ɛni ɔda mɛrɛsin ɔ it. Dɔn bak, tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin ɛn vaytamɛn dɛn we yu de tek. |
Tin dɛm wae yu fɔ mɛmba wae yu de trit yu
Di mɛdikal tim go wach yu gud gud wan ɔl di tɛm we yu de gɛt dis tritmɛnt.
- Blɔd tɛst ɔltɛm: Dɛn kin tek blɔd sɛmpul ɔltɛm ɛn du tɛst lɛk ``Ful Blɔd Kɔnt'' fɔ chɛk yu rɛd blɔd sɛl kɔnt ɛn if di mɛrɛsin de wok.
- Blɔd prɛshɔn mɛzhɔmɛnt: Dɛn go chɛk yu blɔd prɛshɔn ɛvri tɛm we yu kam insay fɔ gɛt vaysin.
- Kɔntrol fɔ bɔn pikin: As wi bin dɔn tɔk, tɔk to yu dɔktɔ bɔt wan fayn we fɔ mek yu nɔ gɛt bɛlɛ ɛn fala am di rayt we.
- Nɔ mis yu apɔntinmɛnt: Mek shɔ se yu go di de we yu dɔn sɛtul fɔ tek di vaysin. If yu nɔ ebul fɔ mek am, kɔl di klinik bifo tɛm ɛn mek dɛn no.
Wetin fɔ du if di doz go ɔp (ɔvados)?
Dɛn kin gi dis na ɔspitul, so di chans fɔ mek dis apin rili smɔl. Bɔt if yu tink se yu dɔn gɛt sɔntin lɛk dis, yu fɔ go na di Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm. Ɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital fɔ advays.
Lɛ wi lan bɔt di bad tin dɛn we kin apin to wi.
Lɛk ɛni mɛrɛsin, Luspatercept kin mek yu gɛt sayd ɛfɛkt. Bɔt, nɔto ɔlman kin gɛt dɛn. Sɔm kin siriɔs ɛn yu fɔ tɛl yu dɔktɔ wantɛm wantɛm. Sɔm na nɔmal tin ɛn dɛn kin go afta sɔm dez.
| Sayd ɛfɛkt dɛn we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
|---|---|
| Riakshɔn dɛn we pɔsin kin gɛt we i gɛt alɛji | Skin rash, it, swel na di fes, lip, tong ɔ trot, i nɔ izi fɔ blo. |
| Di sayn dɛn we de sho se Blɔd dɔn Klɔt | Wantɛm pen, swel, rɛd na wan leg. Chɛst pen, i nɔ izi fɔ blo. Dɛn tin ya rili denja. |
| Blɔd Prɛshɔn we de go ɔp | Wantɛm we yu ed kin at bad bad wan, yu ed kin tɔn, yu kin si tin chenj. |
| Prɔblɛm dɛn we gɛt fɔ du wit di nerve | Bak pen bad bad wan, yu an ɛn fut dɛn kin swɛla ɔ wik, yu nɔ kin balans, yu nɔ kin ebul fɔ kɔntrol yu bɔdi ɔ yu blad. |
| Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Bɔdi pen | Pen na di bon dɛn, di jɔyn dɛn, ɛn di mɔsul dɛn. |
| Taya ɛn diziz | Taya, diziz. |
| Ɛd we de at ɛn bɛlɛ pen | Jɛnɛral ed pen, bɛlɛ diskɔmfɔt ɔ pen. |
Mɛmba se if yu notis ɛnitin we nɔ kɔmɔn we nɔ de na dis list, nɔ fred fɔ tɛl yu dɔktɔ bɔt am. Yu sabi yu bɔdi pas ɔlman.
Mɛsej we dɛn kin kɛr go na os
- Luspatercept na wan advans injektabl drɔg we dɛn kin yuz fɔ trit anemia we kin kam bikɔs ɔf kɔndishɔn dɛn lɛk beta thalassemia ɛn MDS.
- Dis kin mek wi bɔdi in bon mɛro wok ɛn i kin mek wi gɛt wɛlbɔdi rɛd blɔd sɛl dɛn.
- Dis tritmɛnt na ɔspitul ɔ klinik na pipul dɛn we tren.
- Bifo yu bigin fɔ trit yu, yu fɔ tɛl yu dɔktɔ ɔl yu wɛlbɔdi infɔmeshɔn (espɛshali we yu gɛt bɛlɛ, we yu blɔd de klɔt, ɛn we yu gɛt ay blɔd prɛshɔn).
- Mek shɔ se yu yuz di rayt bɔn kɔntrol fɔ mek yu nɔ gɛt bɛlɛ we yu de trit yu ɛn fɔ sɔm mɔnt afta yu gɛt bɛlɛ.
- If yu notis ɛni sayn we de sho se yu gɛt bad bad sayd ɛfɛkt, lɛk we yu blɔd de klɔt ɔ yu gɛt siriɔs alɛji, go to dɔktɔ wantɛm wantɛm.
- If yu gɛt ɛni kwɛstyɔn bɔt dis mɛrɛsin, nɔ ɛva shem fɔ aks yu dɔktɔ.
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