Yu want fɔ no bak bɔt di Emicizumab injɛkshɔn? Lɛ wi tɔk bɔt am!

Yu gɛt prɔblɛm bak fɔ blɔd bɔku tɛm bikɔs ɔf Ɛmofilia A? I nɔ kin izi fɔ yu fɔ stɔp fɔ blɔd ivin we yu kɔt am smɔl? If na so, tide wi go tɔk bɔt wan nyu mɛrɛsin we go mek big difrɛns na yu layf, we go ɛp fɔ kɔntrol blɔd. Di nem fɔ dis drɔg na Emicizumab. So, lɛ wi si di ditel dɛn bɔt am?

Us kayn mɛrɛsin na Emicizumab?

Fɔ tɔk am simpul wan, Emicizumab na spɛshal injɛkshɔn we de ɛp pipul dɛn we gɛt ɛmofilia A fɔ mek dɛn nɔ blɔd ɔ kɔntrol blɔd if dɛn dɔn ɔlrɛdi de blɔd. Yu no se we yu gɛt ɛmofilia A, yu bɔdi nɔ gɛt wan impɔtant prɔtin (faktɔ VIII) we de ɛp yu blɔd fɔ klɔt? So dis mɛrɛsin de wok bay we i de ɛp fɔ mek da prɔblɛm de difrɛn smɔl, ɛn i de ɛp fɔ mek yu blɔd klɔt. I tan lɛk se yu de riples brij we dɔn brok wit ɔda tin fɔ sɔm tɛm.

Sɔntɛnde, yu dɔktɔ kin yuz dis mɛrɛsin fɔ ɔda mɛrɛsin rizin. So, if yu want fɔ no gud gud wan wetin mek dɛn dɔn gi yu dis mɛrɛsin, mek shɔ se yu aks yu dɔktɔ ɔ di famasi usay yu bay di mɛrɛsin.

Dis drɔg, Emicizumab, de mɔs de na di makit ɔnda di nem Hemlibra . Sɔntɛm yu go dɔn yɛri da nem de bifo.

Wetin na di impɔtant tin dɛn we a fɔ tɛl mi dɔktɔ bifo a yuz dis mɛrɛsin?

Yɛs, dis rili impɔtant. Bifo yu bigin dis emicizumab injɛkshɔn, sɔm tin dɛn de we yu nid fɔ tɛl yu kia tim. Na bikɔs dɛn nid fɔ tink bɔt yu sef.

• If yu gɛt alɛji fɔ dis mɛrɛsin, Emicizumab, ɔ ɛni wan pan di tin dɛn we de insay am, duya tɛl wi fɔs.
• Dɔn bak, if yu gɛt ɛni alɛji to ɛni ɔda mɛrɛsin, it, day, ɔ tin dɛn we de mek yu nɔ pwɛl, duya mek wi no. Ilɛksɛf na smɔl tin, i fayn fɔ mek wi no.
• Yu fɔ rili tɔk bɔt dis bak if yu gɛt bɛlɛ naw, ɔ if yu de op fɔ gɛt bɛlɛ jisnɔ .
• If yu na mama we de gi pikin in bɛlɛ, tɛl yu dɔktɔ bɔt dat bak.

Dis infɔmeshɔn go rili ɛp yu dɔktɔ fɔ pik di tritmɛnt we go fayn ɛn we sef fɔ yu.

Aw ɛksaktɔli a kin yuz dis mɛrɛsin?

Dis na sɔntin bak we wi fɔ ɔndastand. Emicizumab na injɛkshɔn we dɛn kin put ɔnda di bɔdi. Dat min se dɛn kin put am insay di fat layt we de ɔnda di skin, nɔto dip insay di mɔsul. Yu go dɔn si insulin injɛkshɔn fɔ dayabitis, we na di sem tin.

Nɔ wɔri, yu dɔktɔ, nɔs, ɔ ɔda pɔsin we tren fɔ mɛn yu go tich yu klia wan aw fɔ pripia dis mɛrɛsin ɛn aw fɔ gi yusɛf (ɔ pɔsin we go ɛp yu) dis injɛkshɔn. Yu fɔ du am jɔs lɛk aw dɛn tɛl yu.

• I rili impɔtant fɔ tek yu mɛrɛsin ɔltɛm. Tek am jɔs lɛk aw yu dɔktɔ tɛl yu, ɛvri sɔm dez, di rayt tɛm.
• Nɔ ɛva tek pas di doz we yu dɔktɔ tɛl yu fɔ tek, ɔ tek am bɔku tɛm.

I rili impɔtant: Nɔ ɛva trowe yu nidul ɛn sirinj dɛn we yu dɔn yuz na di dɔti. If yu du dat, dat kin mek di pɔsin we de pul di dɔti ɔ ɛni ɔda pɔsin denja. Wan spɛshal kɔntena de we gɛt shap tin dɛn we dɛn mek fɔ ol shap tin dɛn we dɛn kin lɔk tayt tayt wan. Aks yu fama ɔ dɔktɔ fɔ wan. Dɛn go tɛl yu aw fɔ trowe am sef wan we i ful-ɔp.

Wetin go apin if yu gi dis mɛrɛsin to smɔl pikin dɛn?

If yu dɔktɔ disayd se yu pikin nid fɔ gi am emicizumab bikɔs i gɛt ɛmofilia A, tɔk to yu dɔktɔ we de mɛn pikin dɛn bɔt am. Pan ɔl we dɛn kin gi pikin dɛn dis mɛrɛsin pan sɔm spɛshal tin dɛn, sɔm tin dɛn de we dɛn fɔ no bɔt, i kin dipen pan dɛn ej. Yu dɔktɔ go ɛksplen ɔl dis to yu.

Wetin fɔ du if yu aksidɛntli tek bɔku mɛrɛsin?

If dis apin, dat min se if yu tink se yu dɔn tek dis mɛrɛsin tumɔs, nɔ delay ɛn kɔl di pɔyzin kɔntrol sɛnta we de nia yu ɔ di ɔspitul imejensi rum wantɛm wantɛm. Ɔ go de wantɛm wantɛm. Fɔ du tin di rayt tɛm rili impɔtant.

Di bɛst tin fɔ mɛmba na dat dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ sheb yu mɛrɛsin wit ɔda pipul dɛn fɔ ɛni rizin, ilɛksɛf dɛn gɛt di sem sik lɛk yu.

Wetin yu kin du if yu mis apɔntinmɛnt fɔ tek mɛrɛsin?

Oh, i kin apin. Ɔlman kin fɔgɛt fɔ tek in mɛrɛsin sɔntɛnde. If yu mis wan doz fɔ Emicizumab, tek am jɔs afta yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz we yu mɛmba (fɔ ɛgzampul, if na insay 3 dez frɔm yu nɛks doz fɔ wan mɛrɛsin we yu de tek ɛvri 7 dez), skip di doz we yu mis ɛn tek di nɛks doz di tɛm we yu de tek ɔltɛm. Nɔ ɛva tek dɛbul doz, we min se yu fɔ tek ɔl tu di doz we yu mis ɛn di nɛks doz di sem tɛm. If yu nɔ shɔ, aks yu dɔktɔ ɔ fama.

Ɛni ɔda mɛrɛsin de we kin miks wit dis mɛrɛsin?

Yɛs, i fayn fɔ no dis. Sɔm mɛrɛsin dɛn de we kin intarakt wit emicizumab we dɛn tek dɛn togɛda. Fɔ tɔk am simpul wan, we dɛn tek dɛn tu mɛrɛsin ya togɛda, dɛn kin afɛkt di we aw dɛn kɔmpin dɛn de wok, ɔ dɛn kin mek dɛn gɛt mɔ sayd ɛfɛkt.

Na mɔtalman fɔ tek tɛm we yu de yuz emicizumab wit sɔm ɔda tritmɛnt dɛn fɔ ɛmofilia. Sɔm ɛgzampul dɛn na:

• Aktiv prothrombin komplex konsantreyt (aPCC) .
• Faktor VIIa, rikombinant
• Faktɔ VIII

Risk de fɔ gɛt siriɔs sik we dɛn kɔl trombotic microangiopathy (TMA) ɛn blɔd klot we dɛn tek dis mɛrɛsin wit emicizumab. So, if yu nid ɔda tritmɛnt fɔ blɔd we de kɔmɔt wantɛm wantɛm, i impɔtant fɔ tɛl yu dɔktɔ se yu de tek emicizumab.

Dis list nɔ de ɔlsay. So, i impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek – nɔto jɔs di wan dɛn we yu dɔktɔ gi yu, bɔt yu kin tɛl yu bak di vaytamɛn, ɛbul mɛrɛsin, pen kil, ɛn it we yu de bay na di famasi. Dɔn bak, if yu de smok, drink rɔm, ɔ yuz drɔgs we nɔ rayt, i go fayn fɔ mek yu tɛl yu dɔktɔ . Sɔm tin kin miks wit yu mɛrɛsin dɛm.

Wetin ɔda tin a fɔ no bɔt we a de tek dis mɛrɛsin?

We yu de tek Emicizumab, yu dɔktɔ go mɔs ɔda fɔ du difrɛn blɔd tɛst fɔ wach yu wɛlbɔdi. Dɛn kin yuz dɛn tɛst ya fɔ chɛk if di mɛrɛsin de wok ɛn if ɛni prɔblɛm de. So, e impɔtant fɔ mek dɛn du dɛn tɛst ya ɔltɛm.

Wetin na di sayd ɛfɛkt dɛm we dis mɛrɛsin kin gɛt?

Tink bɔt am, ɛni mɛrɛsin we wi tek kin mek wi gɛt smɔl smɔl sayd ɛfɛkt dɛn, nɔto so? Dat na nɔmal tin. Emicizumab kin mek dɛn gɛt dɛn bak. Bɔt nɔr wɔri, bɔrku tɛm dɛn tin ya nɔr kin siriɔs ɛn dɛn go stɔp insay sɔm dez. Bɔt sɔm tin dɛn de we wi fɔ tek tɛm mɔ bɔt.

Di sayd ɛfɛkt dɛn we yu fɔ tɛl yu dɔktɔ ɔ pɔsin we de kia fɔ yu wɛlbɔdi biznɛs wantɛm wantɛm na:

If yu gɛt dɛn sik ya, tɛl dɔktɔ kwik kwik wan, bikɔs dɛn kin rili siriɔs.

• Alɛji: di skin kin rɔsh wantɛm wantɛm, di ayv, di fes, di lip, di tɔŋ ɔ di trot kin swel (we kin mek i nɔ izi fɔ blo).
• Sayn dɛn we de sho se blɔd dɔn rɔtin: Dis kin rili denja. So na fɔ no bɔt dɛn sayn dɛn ya:
• I nɔ izi fɔ blo ɔ i kin mek yu chɛst pen.
• Di urine we yu de pas we de go dɔŋ ɔ chenj wantɛm wantɛm.
• di vishכn de chenj (e.g. blכr vishכn wan wan, dכbl vishכn).
• Wan bad bad ed we kin at we kin at wantɛm wantɛm.
• Pen, swel, rɛd, ɔ wam we yu tɔch yu an ɔ yu leg (espɛshali na di groin eria).
• Bɛlɛ pen bad bad wan.
• Di fes, an, ɔ leg kin swɛt ɔ wik wantɛm wantɛm (espɛshali na wan say na di bɔdi).
• I nɔ izi fɔ tɔk ɔ fil lɛk se wɔd dɛn de slɔp.
• di wayt dεm na di yay כ skin de yכlכ (jaundice).

If yu si ɛnitin lɛk dis, yu fɔ go to dɔktɔ wantɛm wantɛm.

Sayd ɛfɛkt dɛm wae nɔr kin siriɔs, bɔt yu fɔ ripɔt to yu dɔktɔ if dɛn kɔntinyu ɔr de mɔna yu:

Bɔku tɛm, dɛn tin ya kin stɔp insay sɔm dez, bɔt if dɛn kɔntinyu fɔ de ɔ if dɛn kin mek yu nɔ fil fayn, tɛl yu dɔktɔ .

• Rɔnbɛlɛ
• Fiva wit filin fɔ wik
• Ed de at
• Pen na di jɔyn dɛn
• Mɔsul pen, lɛk mɔsul dɛn we de pen
• Sɔm pen, rɛd, it, ɔ swel smɔl na di say we dɛn gi di injɛkshɔn. Bɔku tɛm, dis kin stɔp insay wan ɔ tu dez.

Ivin if dɛn nɔ tɔk bɔt am na dis list, if yu notis ɛnitin we nyu ɔ we nɔ kɔmɔn afta yu dɔn tek dis mɛrɛsin, nɔ fred fɔ tɔk to yu dɔktɔ bɔt am.

Aw a go kip dis mɛrɛsin fayn fayn wan?

I rili impɔtant bak fɔ kip yu mɛrɛsin fayn fayn wan.

• Ɔltɛm kip dis mɛrɛsin na say we smɔl pikin dɛn nɔ go ebul fɔ tɔch am ɛn usay dɛn nɔ go ebul fɔ si am.
• If yu de yuz dis mɛrɛsin na os, yu go gɛt klia instrɔkshɔn bɔt aw fɔ kip am (e.g., na frij ɔ na rum tɛmpracha). Tek tɛm fala dɛn instrɔkshɔn dɛn de.
• Nɔ yuz ɛni mɛrɛsin we dɔn pas di de we i fɔ dɔn we dɛn rayt na di bɔtul ɔ bɔks. Aks yu fama aw fɔ trowe am fayn fayn wan.

Fɔ dɔn, sɔm impɔtant pɔynt dɛn (Take-Home Message) .

Okay, so frɔm wetin wi dɔn tɔk bɔt, a op se yu ɔndastand gud gud wan bɔt di Emicizumab injɛkshɔn. Na sɔm impɔtant tin dɛn we yu fɔ mɛmba:

• Emicizumab na impɔtant ɛn fayn mɛrɛsin we kin ɛp fɔ kɔntrol yu blɔd if yu gɛt ɛmofilia A.
• I impɔtant fɔ tek dis mɛrɛsin di rayt tɛm ɛn di rayt doz, lɛk aw di dɔktɔ se.
• If yu gɛt ɛni kwɛstyɔn ɔ wɔri bɔt dis mɛrɛsin, aw fɔ yuz am, sayd ɛfɛkt, ɔ ɛni ɔda tin, nɔ fred ɔ shem fɔ aks yu dɔktɔ, nɔs, fama, ɔ ɔda pɔsin we de kia fɔ yu wɛlbɔdi biznɛs. Dɛn de de fɔ ɛp yu.
• Yu fɔ no ɔltɛm bɔt di bad tin dɛn we kin apin to yu.If yu gɛt ɛni wan pan di siriɔs sayd ɛfɛkt dɛn we wi bin tɔk bɔt, go to dɔktɔ we nɔ go te.
• Mek shɔ se yu trowe di nidul ɛn sirinj dɛn we yu dɔn yuz fayn fayn wan insay shap kɔntena.
• Nɔ sheb yu mɛrɛsin wit ɔda pipul dɛn.

Mɛmba se dis atikul dɔn jɔs gi yu sɔm men tin dɛn. Ɔlman difrɛn, so na yu dɔktɔ nɔmɔ no wetin bɛtɛ fɔ yu sityueshɔn. So, tɔk to am ɔltɛm ɛn fala in advays. Wi de wish yu gud wɛlbɔdi!

` Emicizumab, Hemlibra, Hemophilia A, Hemophilia A, blɔd, injɛkshɔn, sayd ifɛkt, ɔnda di bɔdi, shap kɔntena