Yu dɔktɔ dɔn gi yu ɔ pɔsin na yu famili wan mɛrɛsin we dɛn kɔl Glycerol Phenylbutyrate? Na drɔg we gɛt sɔm kayn nem we nɔ kɔmɔn, so yu kin gɛt bɔku kwɛstyɔn bɔt am. Nɔ wɔri, tide wi go tɔk jɔs bɔt dis mɛrɛsin, wetin i de du, aw fɔ yuz am, ɛn us tin dɛn fɔ tek tɛm wit.
Fɔ tɔk am simpul wan, wetin na dis mɛrɛsin?
Glycerol Phenylbutyrate (we dɛn kin kɔl bak di brand nem RAVICTI) na wan mɛrɛsin we dɛn kin yuz fɔ kɔntrol di amɔnia we de na di blɔd fɔ pipul dɛn we gɛt yuria saykl dizayd .
Tink bɔt am, we wi bɔdi de yuz prɔtin, i de mek amonia as dɔti tin. pan hεlty pכsin, di yuria saykl de kכnvכlt dis amonia to yuria we nכ de du bad εn i de kכmכt na di urine. Bɔt pan pɔsin we gɛt yuria saykl disɔda, di bɔdi nɔ kin ebul fɔ du dis wok fayn fayn wan. Dɔn, amonia kin gɛda na di bɔdi ɛn pwɛl di bren ɛn di nervɔs sistɛm.
Dis mɛrɛsin de ɛp fɔ pul di amonia we pasmak na di bɔdi. Bɔt wan tin we wi fɔ mɛmba. Dis nɔto mɛrɛsin we de mɛn di sik ɔltogɛda. Dis na jɔs mɛrɛsin we de ɛp fɔ kɔntrol di sik.
Bɔku tɛm, we dɛn gi yu dis mɛrɛsin, yu go nid fɔ fala spɛshal it we nɔ gɛt bɔku prɔtin we yu dɔktɔ tɛl yu fɔ it, ɛn sɔntɛm yu go tek ɔda it dɛn we yu de it.
Tin dɛn we yu fɔ tɛl yu dɔktɔ bifo yu tek mɛrɛsin
Bifo yu bigin dis mɛrɛsin, i impɔtant fɔ tɛl yu dɔktɔ dɛn tin ya. Nɔ ayd dɛn tin ya, bikɔs dɛn rili impɔtant fɔ mek yu sef.
| Situeshɔn we yu nid fɔ ripɔt | Wetin mek dat impɔtant? |
|---|---|
| Prɔblɛm dɛn we de na di intestinal | Di bɔdi kin afɛkt di we aw di mɛrɛsin de tek am. |
| Kidni, liva ɔ pankrias sik | Bikɔs di mɛrɛsin de kɔmɔt na di bɔdi tru dis ɔgan, dɛn kin nid fɔ chenj di doz if mɛrɛsin de. |
| Alɛji dɛn we pɔsin kin gɛt | Mek shɔ se yu tɛl yu dɔktɔ if yu gɛt ɛni alɛji fɔ dis mɛrɛsin, ɔda mɛrɛsin, it, tin dɛn we de mek yu nɔ pwɛl, ɔ tin dɛn we yu kin yuz fɔ kɔla. |
| If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ | Yu fɔ tɔk to yu dɔktɔ bɔt if di mɛrɛsin go afɛkt di pikin we de na di bɛlɛ. |
| If dɛn de gi di pikin in mama in bɛlɛ | Kɔnsul yu dɔktɔ fɔ no if di mɛrɛsin de pas to di pikin tru in mama in milk. |
Aw ɛksaktɔli a kin yuz dis mɛrɛsin?
Dis mεdisin de kam insay di fכm fכ wan כral sכlushכn, so na fכ no dεn tin ya.
- Tek bay mɔt: Dis na mɛrɛsin we dɛn kin tek wit mɔt.
- Mekɔp kɔrɛkt wan: Yuz di spɛshal spun, kɔp, ɔ sirinj we de wit di mɛrɛsin fɔ mɛzhɔ am . Nɔ yuz ti spɔnj ɔltɛm na os, bikɔs dɛn nɔ kin rili kɔrɛkt.
- Tek wit it: I bɛtɛ fɔ tek dis mɛrɛsin wit it ɔ, fɔ bebi, wit fɔmula .
- Tek am di rayt tɛm: Tek di mɛrɛsin di tɛm we dɛn tɛl yu fɔ tek am, di tɛm we yu tɛl yu fɔ tek am, lɛk aw yu dɔktɔ tɛl yu fɔ tek am. Nɔ tek pas di mɔni we dɛn tɛl yu fɔ tek.
- Nɔ stɔp: Nɔ stɔp fɔ tek di mɛrɛsin wantɛm wantɛm if yu nɔ gɛt dɔktɔ advays.
- We dɛn gi am pikin dɛn: Sɔntɛnde dɛn kin gi dis mɛrɛsin ivin to pikin dɛn we dɛn jɔs bɔn. Bɔt spɛshal tin dɛn de we wi fɔ tek tɛm du. So, tek tɛm tɔk to yu dɔktɔ we de mɛn pikin dɛn bɔt dis ɛn gɛt advays.
Wetin fɔ du if di doz fɔ di mɛrɛsin go ɔp (ɔvados)?
If yu tink se yu dɔn tek bɔku mɛrɛsin, di fɔs tin we yu fɔ du na fɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital . Ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu. Nɔ delay dis.
Wetin fɔ du if yu mis wan doz fɔ mɛrɛsin?
If yu fɔgɛt fɔ tek wan doz, tek am jɔs lɛk aw yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz, skip di doz we yu mis ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ tek tu dos di sem tɛm fɔ ɛni rizin.
Ɔda tin dɛm wae kin miks wit dis mɛrɛsin
Ɔda mɛrɛsin dɛn we yu de tek kin miks wit dis mɛrɛsin, so tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek (inklud vaytamɛn, ɛbul mɛrɛsin, ɛn sɔpɔtmɛnt).
| Di kayn drɔgs wae kin mek pɔrsin gɛt kɔnflikt (ɛgzampul) . |
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| Notis: Dis nɔto kɔmplit list. Tɛl yu dɔktɔ bak if yu de smok, drink rɔm, ɔ yuz ɔda drɔgs. |
Sɔm sayd ɛfɛkt dɛn we pɔsin kin gɛt we i tek di mɛrɛsin
Lɛk ɛni mɛrɛsin, dis wan kin mek sɔm bad bad tin dɛn apin. Sɔm siriɔs, sɔm kɔmɔn.
| Sayd ɛfɛkt dɛm we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm |
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| Sayd ɛfɛkt dɛm we dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu ɔ de mɔna am |
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If yu gɛt ɛni ɔda kayn sik we nɔ kɔmɔn we dɛn nɔ tɔk bɔt na dis list, tɔk to yu dɔktɔ bɔt dɛn bak.
Aw a fɔ kip di mɛrɛsin?
- Kip fa frɔm pikin dɛn.
- Stɔr am na rum tɛmpracha, bitwin 20 ɛn 25 digri sɛlshiɔs (68-77 Farenheit).
- Trowe di mɛrɛsin dɛn we dɔn pas.
Mɛsej we dɛn kin kɛr go na os
- Glycerol Phenylbutyrate nɔto drɔg we de mɛn yuria saykl dizayd, na drɔg we de ɛp fɔ kɔntrol di amonia lɛvɛl na di blɔd.
- Tek dis mɛrɛsin ɔltɛm wit it, yuz di spɛshal mɛzhɔmɛnt kɔp we de kam wit am.
- Fɔ fala di it we nɔ gɛt bɔku prɔtin we yu dɔktɔ tɛl yu fɔ du.
- Nɔ stɔp fɔ tek di mɛrɛsin if yu dɔktɔ nɔ advays yu.
- If yu tek bɔku mɛrɛsin ɔ yu gɛt siriɔs sayd ɛfɛkt, go to dɔktɔ wantɛm wantɛm.
- Tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn we yu de tek (inklud vaytamɛn ɛn tradishɔnal mɛrɛsin).
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