Imajin se yu bɛlɛ bin de at ɔ kol lɛk wan wik so bifo dis tɛm ɛn yu bin fayn. Bɔt wantɛm wantɛm yu bigin fɔ fil strenj wikɛdnɛs, bigin wit yu fut finga dɛn. Afta wan ɔ tu dez, dis filin kin spre ɔp yu leg, ɛn dis kin mek i nɔ izi fɔ waka. Den yu an dem fil laik se dem go go numb. I kin mek pɔsin fred smɔl fɔ yɛri bɔt sɔntin lɛk dis, nɔto so? Tide wi go tɔk bɔt dis strenj ɛn rare kɔndishɔn we dɛn kɔl Guillain-Barré Syndrome. Pan ɔl we i at fɔ kɔl di nem smɔl, i impɔtant fɔ no bɔt am.
Fɔ tɔk am simpul wan, wetin na Guillain-Barré Syndrome (GBS)?
Guillain-Barré Syndrome (GBS) na wan sik we nɔ kin apin so ɔltɛm we wi bɔdi in yon imyun sistɛm kin go hayway ɛn atak wi yon nervɔs sistɛm, mɔ di periferik nɛv dɛm we de rɔn to wi limb dɛm. Dɛn kin kɔl am bak ɔtoimyun kɔndishɔn .
Tink bɔt di nɛf dɛn we de na wi bɔdi lɛk ilɛktrik waya. Jɔs lɛk aw insuleshɔn de rawnd dɛn ilɛktrik waya ya, na so wan tin de we de protɛkt wi we dɛn kɔl maylin rawnd wi nɛv dɛn. we GBS apin, wi imyun sistεm de atak εn pwεl dis maylin kכva. Dɔn, lɛk se dɛn pul di insuleshɔn fɔ dɛn ilɛktrik waya dɛn de, di signal dɛn we de kɔmɔt na di bren tru di nɛv dɛn nɔ de travul fayn. Na dat mek di an ɛn fut dɛn kin bigin fɔ swɛ ɛn lɔs dɛn layf.
De gud nyus na dat , if yu trit yu fayn fayn wan, bɔrku pipul kin wɛl bak frɔm dis sik , bɔt e kin tek sɔm tɛm.
Udat kin gɛt GBS mɔ? Aw i kɔmɔn?
GBS kin afɛkt ɛnibɔdi we ol ɛni ej. Yɔŋ pikin dɛn, yɔŋ pipul dɛn, ɛn ol pipul dɛn ɔl de pan denja. Bɔt di data sho se pipul dɛm wae ol bitwin 30 ɛn 50 ia kin gɛt dis sik.
Dis na tin we nɔ kin apin so ɔltɛm. Ɔlsay na di wɔl, GBS kin apin pan lɛk wan pan ɛvri 100,000 nyu wan dɛn we gɛt di sik ɛvri ia. Dat min se fɔ avrej, na lɛk wan pan ɛvri 78,000,000 pipul dɛn kin gɛt dis sik ɛvri ia. So i nɔto sik we kin rili kɔmɔn.
Wetin na di men sayn dɛm fɔ GBS?
Insay GBS, di sayn dɛm kin gɛt fɔ du wit di damej pan di periferik nɛv dɛm we de kɔntrol tin dɛm lɛk wi mɔsul dɛm we de muv, pen, tɛmpracha, ɛn tɔch.
I kin bigin wit we di mɔsul dɛn wik ɛn/ɔ we yu nɔ gɛt bɛtɛ trɛnk (paresthesia) . Dɛn sayn ya kin kam wantɛm wantɛm. Dɛn kin bigin na di leg ɛn fut ɛn smɔl smɔl dɛn kin spre ɔp, to di an ɛn fes. We yu leg wik, dat kin mek i nɔ izi fɔ klaym stej ɔ waka.
Di kayn we aw GBS kin tranga kin difrɛn frɔm wan pɔsin to ɔda pɔsin. Sɔm pipul dɛn kin gɛt sɔm kayn sik wae nɔr kin pasmak ɛn dɛn kin wɛl. Ɔda pipul dɛn kin gɛt siriɔs sayn dɛn. Dis dɔŋ ya na sɔm ɔda sayn dɛm wae yu kin si.
| Di sayn we de sho se di sik de | Tɔk bɔt |
|---|---|
| Sɔm mɔsul dɛn kin pen bad bad wan | Dip, shap pen kin de, mɔ na di bak ɛn leg. |
| Paralayz we pɔsin kin gɛt | Di mɔsul dɛn na di leg, an, ɛn fes kin paralayz. If i siriɔs, di wan ol bɔdi kin paralayz. |
| I nɔ kin izi fɔ yu fɔ blo | We di chɛst mɔsul dɛn wik, dat kin mek i nɔ izi fɔ blo. Dis kכndyushכn kin apun pan lεk 1 pan 3 pipul dεm wae gεt GBS. |
| I nɔ izi fɔ tɔk ɛn swɛla | Dis kכndyushכn (dysphagia) kin apin if di mכsul dεm na di trot εn mכt afekt. |
| I nɔ izi fɔ muv di yay dɛn | We di yay mɔsul dɛn wik, dat kin mek i nɔ ebul fɔ si fayn ɛn i nɔ kin izi fɔ mek di yay muv. |
Di sayn dɛm fɔ GBS kin kam kwik kwik wan fɔ sɔm awa, de, ɔr wik. If yu ɔ pɔsin we yu sabi gɛt in mɔsul dɛn we de wik wantɛm wantɛm, go to dɔktɔ wantɛm wantɛm. I impɔtant fɔ bigin fɔ trit dis sik kwik kwik wan.
Wetin na di denja kɔmplikeshɔn dɛm wae kin kam bikɔs ɔf GBS?
GBS kin mek wi gɛt prɔblɛm dɛn we kin mek wi layf de pan denja if i afɛkt wi ɔtonomik nɛvɔ sistɛm. di כtonom nεv sεstem na di sistεm we de kכntro di wok dεm we wi bכdi de du we wi nכ no. Fɔ ɛgzampul, tin dɛn lɛk at rit, blɔd prɛshɔn, ɛn aw fɔ digest. di disfכnkshכn fכ dis sistεm dεn kכl am dysautonomia .
Di men kɔmplikɛshɔn dɛm we kin apin bikɔs ɔf GBS na:
- Di at we nɔ de wok fayn
- Blɔd prɛshɔn nɔ de stebul (tu ay ɔ tu lɔw) .
- Prɔblɛm dɛn we de na di dijestiv sistɛm
- I nɔ kin izi fɔ kɔntrol yu urine, lɛk fɔ mek yu nɔ gɛt urinary
Bikɔs ɔf di prɔblɛm dɛn we kin apin lɛk dɛn wan ya, bɔku tɛm dɛn kin kip di wan dɛn we gɛt GBS na di ɔspitul in intensiv kia yunit (ICU) ɛn dɛn kin wach dɛn ɔltɛm.
Wetin mek GBS de divɛlɔp? Wetin na di kɔz?
Wi nɔ no yet di rayt tin we kin mek pɔsin gɛt GBS, bɔt dɔktɔ dɛn kin kɔl am wan nyuropathy we kin apin afta pɔsin gɛt di sik, we di imyun bɔdi kin gɛt . Lɛ wi ɛksplen am simpul wan.
1. Pɔst-infɛkshɔn: "Post-infɛkshɔn " min "afta." Dis min se bɔku tɛm di sik kin kam afta ɔda infɛkshɔn dɔn dɔn. Na lɛk 70% pan di pipul dɛm wae gɛt GBS dɔn gɛt sɔm kayn infekshɔn insay wan wik to siks wiks afta di sik bigin.
2. Immune-mediated: Wi don tok abaut dis bifo. Dis sik kin kam bikɔs ɔf wan abnɔmal rispɔns frɔm wi yon imyun sistɛm. Afta dɛn dɔn fɛt wan infɛkshɔn, sɔm pipul dɛn imyun sistɛm kin go hayway ɛn bigin fɔ atak dɛn yon nerv.
3. Nyuropati: Fɔ tɔk am simpul wan, i kin pwɛl di nerv dɛn. insay GBS, di damej na di pεriferal nεv dεm.
Men tin dɛm wae kin mek GBS apin
Risach pipul dεm dכn no bכku big infεkshכn dεm εn כda tin dεm wae de kכntribyut to divεlכpmεnt fכ GBS.
- Daya ɔr infεkshכn na di rεspiretכri: Na lɛk 2 pan ɔl 3 pipul dɛm wae gɛt GBS kin gɛt dayarɛa ɔr infεkshכn na di rεspiretכri sɔm wiks bifo di sayn dεm sho. Dɛn dɔn no se Campylobacter jejuni , we na wan bɔdi we kin mek pɔsin gɛt dayarɛa, na in na di men tin we kin mek pɔsin gɛt GBS.
- Vayral infɛkshɔn: Dɛn dɔn ripɔt se sɔm GBS pipul dɛn kin gɛt vayral infɛkshɔn lɛk flu, saytomegalovayrɔs, Epstein-Barr vayrɔs, ɛn Zika vayrɔs .
- Vaysin: Insay di kes dɛm we nɔ kin apin so ɔltɛm , dɛn dɔn ripɔt se GBS kin divɛlɔp sɔm de ɔ wik afta dɛn dɔn gɛt sɔm vaysin dɛm. Bɔt di impɔtant tin fɔ ɔndastand ya na dat di bɛnifit dɛn we pɔsin kin gɛt we i gɛt di vaysin pas dis prɔblɛm we nɔ kin apin so ɔltɛm . Risach dɔn sho se di risk fɔ gɛt GBS we yu gɛt di flu pas di risk fɔ gɛt GBS we yu gɛt di flu vaysin.
- Ɔpreshɔn:Dɔn bak, na smɔl tɛm nɔmɔ, GBS kin apin afta sɔm ɔpreshɔn dɛn.
Aw dɛn kin no se pɔsin gɛt GBS?
Dɔktɔ dɛn kin no bɔt GBS mɔ bay di sayn dɛn we yu gɛt ɛn di mɛdikal istri. Yu dɔktɔ go aks yu bɔt aw ɛn ustɛm yu sik bigin, ɛn if yu dɔn gɛt ɛni sik we yu jɔs gɛt. Dɔn dɛn go du wan ɛgzam pan dɛn bɔdi, mɔ fɔ chɛk fɔ si if di mɔsul dɛn wik ɛn di dip-tɛndɔn riflɛks dɛn we de dɔŋ, lɛk na di ni dɛn.
Bɔt bikɔs bɔku ɔda nyurolɔjik sik dɛn de we gɛt di sem sayn dɛn we GBS gɛt, di dɔktɔ go tɛl yu fɔ du bɔku tɛst fɔ no ɔda sik dɛn ɛn fɔ no if pɔsin gɛt di GBS.
- Ilɛktromayografi (EMG) ɛn Nɛv Kɔndɔkshɔn Tɛst: Dɛn tɛst ya kin no aw yu mɔsul dɛn ɛn di nɛv dɛn we de kɔntrol dɛn gɛt wɛlbɔdi ɛn aw dɛn de wok.
- Spinal Tap/Lumbar Puncture: Dis involv fכ put sכmכl nidul insay yu lכw bכk fכ tek sכm sכm sεmpl fכ di sεribrospεnal fכluid (CSF), we de rawnd yu bren εn spεnal kכd. כlmost 80% pan di sik pipul dεm we gεt GBS gεt εlevεt protin lεvεl dεm na dis fכluid.
- MRI skan: Dɛn kin advays bak fɔ mek dɛn du MRI skan fɔ yu spayna.
Wetin na di tritmɛnt dɛm fɔ GBS?
If dɛn no se yu gɛt GBS, i go mɔs bi se dɛn go admit yu na di ɔspitul in intensiv kia yunit (ICU) fɔ gɛt tritmɛnt kwik kwik wan fɔ ɛni prɔblɛm we wi bin dɔn tɔk bɔt bifo tɛm, lɛk we i nɔ izi fɔ blo ɛn we yu blɔd prɛshɔn chenj.
No patikyula mɛrɛsin nɔ de fɔ GBS yet. Bɔt tu men tritmɛnt dɛn de we kin mek di sik nɔ bad ɛn shɔt tɛm fɔ mek i wɛl.
| Di we aw dɛn kin trit am | Aw i de wok |
|---|---|
| Plasma Ɛkshɛnj / Plasmafɛrɛsis | Wetin kin apin pan dis na dat, mashin kin tek yu blɔd, separet di plasma frɔm am, filta di bad bad antibodi dɛn we de atak di nerv dɛn, ɛn gi di klin plasma bak to di bɔdi. |
| Intravenɔs Imyunoglobulin Tɛrapi (IVIG) . | Insay dis tritmɛnt, dɛn kin gi di prɔtin (antibodi dɛm) we dɛn kɔl imyunoglobulin, we dɛn tek frɔm bɔku bɔku pipul dɛm we gɛt wɛlbɔdi, insay di bɔdi tru salin. Dɛn gud antibodi ya de blok di akshɔn fɔ bad antibodi dɛm we de atak wi bɔdi in nɛv dɛm. |
If dɛn bigin ɛni wan pan dɛn tritmɛnt ya insay tu wiks afta di sik bigin, di tɛm fɔ wɛl kin shɔt bad bad wan.
Rihabiliteshɔn
As yu sik de go bifo smɔl smɔl, dɛn kin transfa yu to rihabiliteshɔn sɛnta. Na de, difrɛn tritmɛnt pipul dɛn go ɛp yu fɔ gɛt yu trɛnk bak ɛn kam bak to wan lɛvul usay yu go ebul fɔ du ɛvride wok fɔ yusɛf.
- Fizik Tɛrapi: Dɛn kin gi ɛksɛsayz ɛn tritmɛnt fɔ mek di mɔsul dɛn gɛt trɛnk bak ɛn fɔ kɔntrol di pen ɛn stiffness.
- Occupational Therapy: De ɛp yu fɔ lan fɔ du ɛvride wok lɛk fɔ drɛs ɛn it bak sef ɛn izi.
- Spich Therapy: If i nɔ izi fɔ yu fɔ swɛla ɔ fɔ tɔk, wi kin ɛp yu fɔ gɛt dɛn skil dɛn de bak.
Wetin na di fiuja fɔ pɔsin we gɛt GBS?
Bɔrku pipul dɛm wae gɛt GBS kin wɛl pasmak insay sɔm mɔnt. Bɔt sɔm pipul dɛn, mɔ di big pipul dɛn, kin stil gɛt sɔm mɔsul dɛn we wik afta tri ia. De prɔses fɔ wɛl kin tek lɔng tɛm fɔ sɔm pipul dɛm.
Di gud nyus na dat pipul dɛm wae kin wɛl frɔm GBS kin liv nɔrmal layf span . Di risk fɔ day di tɛm we di sik de akyu nɔr pas 2%. Dis kin bi mɔ bikɔs ɔf di advans intensiv kia tritmɛnt dɛn we de tide.
Yu tink se dɛn kin mek dɛn nɔ gɛt GBS?
Bɔku tɛm, dɛn nɔ kin ebul fɔ stɔp GBS. Risach pipul dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin mek sɔm pipul dɛn kin gɛt GBS we dɛn gɛt infɛkshɔn ɛn ɔda wan dɛn nɔ kin gɛt am.
Bɔt wi kin ridyus di risk to sɔm mak bay we wi de protɛkt wisɛf frɔm infɛkshɔn we kin mek wi gɛt GBS.
- Wash yu an fayn fayn wan wit sop ɔltɛm.
- Stay away frɔm pipul dɛm wae gɛt sik dɛm wae kin pas lɛk dayarɛa ɛn kol.
- Fɔ mek yu imyun sistɛm strɔng, it tin dɛn we gɛt fayn fayn tin dɛn ɛn ɛksesaiz.
- Gɛt ɔl yu vaysin dɛn di rayt tɛm.
GBS na siriɔs sik wae kin tɔn yu layf ɔpsayd wan wan. Bɔt di bɛst tin na dat, if dɛn trit dɛn fayn ɛn mek dɛn gɛt wɛlbɔdi, bɔku pipul dɛn kin go bak to dɛn nɔmal layf. Di waka fɔ mek yu wɛl kin lɔng ɛn i kin mek yu taya. Nɔ shek fɔ aks fɔ sɔpɔt frɔm yu dɔktɔ, nɔs, ɛn yu famili ɛn padi dɛn we yu de go.
Mɛsej we dɛn kin kɛr go na os
- Guillain-Barré Syndrome (GBS) na wan sik wae nɔr kin bɔrku bɔt wae kin siriɔs wae wi yone imyun sistɛm kin atak wi nerv dɛm.
- Bɔrku tɛm dis kin apin afta pɔrsin gɛt sik lɛk dayarɛa ɔr infεkshɔn na di say we yu de blo.
- di fכs sayn dεm na fכ sכmtεm sכmtεm εn di mכsul dεm wik we de stat na di leg dεm εn go כp.
- If di sik de wɔs kwik kwik wan (insay sɔm awa ɔ sɔm dez) , go to dɔktɔ wantɛm wantɛm.
- I kin nid fɔ go na ɔspitul, mɔ na say usay dɛn de kia fɔ pipul dɛn we sik bad bad wan.
- Di tritmɛnt dɛm wae dɛn kɔl plasmapheresis ɛn IVIG kin ridyus di kayn sik ɛn kin mek pɔrsin wɛl kwik kwik wan.
- Pan ɔl we di we aw pɔsin kin wɛl kin tek tɛm, bɔku pipul dɛn kin gɛt wɛlbɔdi bak.
💬 Comments (0)
No kɔmɛnt nɔ de yet. Ad yu kɔmɛnt ya fɔ di fɔs tɛm.
Ad yu kɔmɛnt