Yu ɔ pɔsin we yu sabi gɛt Siklɔs Disease? If na so i bi, yu go mɔs no se di bɔdi kin at ɔltɛm, di briz kin shɔt, ɛn di blɔd we dɛn kin gi am ɔltɛm. Wi nɔr fɔ tɔk se fɔ liv wit dis sik kin tranga. So tide wi go tɔk bɔt wan rili impɔtant mɛrɛsin we de ɛp fɔ kɔntrol dɛn sik ya. Dat na Haydroksiyuria.
Fɔ tɔk am simpul wan, wetin na Hydroxyurea?
Hydroxyurea na wan mɛrɛsin wae dɛn kin yuse fɔ trit di sayn dɛm wae de sho se yu gɛt siklɛt sik . As yu no, insay siklɛt sik, wi rɛd blɔd sɛl dɛn kin chenj shep ɛn bi siklɛt shep. Dis kin mek dɛn sɛl ya stik togɛda ɛn stɔp na smɔl smɔl blɔd vesel dɛn. Dis kin mek yu gɛt siriɔs pen kraysis ɛn akyu chɛst sindrom.
So wetin dɛn haydroksi yuria pils ya de du na fɔ ɛp di rɛd blɔd sɛl dɛn fɔ kip dɛn rayt rawnd ɛn fleksibul shep . Da we de, dɛn nɔ kin gɛda togɛda. Da we de, di blɔd go bɛtɛ, ɛn ɔl di tisu dɛn na di bɔdi kin gɛt di rayt ɔksijɛn. Dis kin mek bak dɛn nɔ nid fɔ tek blɔd ɔltɛm.
Sɔntɛnde, dɔktɔ dɛn kin gi dis mɛrɛsin fɔ ɔda sik dɛn bak. If yu gɛt ɛni kwɛstyɔn bɔt am, yu kin aks yu dɔktɔ.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu tek dis mɛrɛsin
Dis rili impɔtant. Hydroxyurea nɔto wan saiz-fit-ɔl mɛrɛsin. So bifo yu dɔktɔ gi yu dis mɛrɛsin, i nid fɔ gɛt kɔmplit pikchɔ bɔt yu wɛlbɔdi. If yu gɛt ɛni wan pan di sik dɛn we de dɔŋ ya, mek shɔ se yu tɛl yu dɔktɔ bɔt am.
| Wɛlbɔdi kɔndishɔn ɔ chans | Wetin mek yu fɔ tɛl di dɔktɔ? |
|---|---|
| If yu gɛt bɛlɛ, yu de tray fɔ gɛt bɛlɛ, ɔ yu de gi pikin in bɛlɛ | Dis rili impɔtant. Dis mɛrɛsin kin ambɔg di pikin we de na in bɛlɛ. So i rili impɔtant fɔ tɔk bɔt dis opin wan. |
| If yu gɛt sik na yu kidni ɔ yu de pan ɛmodayalis | Bikɔs dɛn kin pul mɛrɛsin kɔmɔt na di bɔdi tru di kidni, i impɔtant fɔ no aw di kidni de wok. |
| If yu gɛt liva sik | Di mɛrɛsin dɛn kin afɛkt di we aw di liva de wok. |
| If yu gɛt HIV ɔ AIDS | Sɔm HIV mɛrɛsin kin miks wit dis mɛrɛsin. |
| If yu gɛt ay yurik asid lɛvɛl na yu blɔd ɔ yu gɛt gaut. | Dis mɛrɛsin kin afɛkt di yurik asid lɛvɛl. |
| If yu gɛt wund na yu leg ɔ ɔlsa | Dis mεrεsin kin afekt di skin lεsin dεm sכmtεm. |
| If yu jɔs dɔn gɛt ɔ yu de gɛt redyushɔn tɛrapi | Sayd ɛfɛkt kin apin bitwin redyushɔn tɛrapi ɛn dis mɛrɛsin. |
| If yu jɔs dɔn gɛt ɔ yu de kam fɔ gɛt di vaysin | I nɔ fayn mɔ fɔ tek layf vayrɔs vaysin. |
| If yu gɛt alɛji to haydroksiyuria ɔ ɛni ɔda mɛrɛsin ɔ it | I rili impɔtant fɔ tɛl di dɔktɔ bɔt ɛni alɛji. |
Okay, so aw a fɔ yuz dis mɛrɛsin?
Dis na sɔntin bak we wi fɔ mɛmba. As di dɔktɔ se, i rili impɔtant fɔ tek di kɔrɛkt doz di rayt tɛm.
- Tek dis pil wit wan glas wata .
- Gɛt di abit fɔ tek yu mɛrɛsin di sem tɛm ɛvride. Da we de, yu nɔ go fɔgɛt.
- If i nɔ izi fɔ yu fɔ swɛla di pil, yu kin sɔlv am insay wan ti spɔnj wata ɛn swɛla am wantɛm wantɛm.
- Nɔ ɛva chenj di mɛrɛsin ɔ stɔp fɔ tek di mɛrɛsin if yu dɔktɔ nɔ advays yu . If yu gɛt ɛni sayd ɛfɛkt, yu dɔktɔ go tɛl yu if yu fɔ chenj di doz ɔ stɔp fɔ tek am.
- Fɔ ol dis mɛrɛsin kin denja. So was yu an fayn fayn wan wit sop ɛn wata bifo yu ol di pil ɔ bɔtul ɛn afta yu dɔn ol am. If i pɔsibul, wɛr glɔv we yu de ol di mɛrɛsin. Dis impɔtant mɔ fɔ uman dɛn we gɛt bɛlɛ ɔ we de plan fɔ gɛt bɛlɛ, ɛn fɔ mama dɛn we de gi pikin dɛn bɛlɛ.
Mɛmba se dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ sheb am wit ɛni ɔda pɔsin fɔ ɛni rizin.
Wetin fɔ du if yu mis wan doz fɔ mɛrɛsin?
If yu fɔgɛt fɔ tek wan doz, tek am jɔs lɛk aw yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz, skip di doz we yu mis ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek dabl doz.
Wetin a go du if a tek bɔku mɛrɛsin?
If yu tink se yu dɔn tek bɔku mɛrɛsin, go na di ɔspitul we de nia yu Imejɛnsi Tritmɛnt Yunit (ETU) wantɛm wantɛm . Ɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital .
Tin dɛn we yu fɔ tek tɛm wit mɔ we yu de tek di mɛrɛsin
Yu nid fɔ tek tɛm smɔl bɔt di chenj dɛn we de apin na yu bɔdi we yu de tek haydroksiyuria.
- Yu fɔ chɛk yu blɔd ɔltɛm: Yu dɔktɔ go tɛl yu fɔ du blɔd tɛst ɔltɛm. Dɛn kin yuz dɛn tɛst ya fɔ chɛk if di mɛrɛsin de wok ɛn if i de kɔz ɛni sayd ɛfɛkt. Nɔ skip dɛn tɛst ya.
- Risk fɔ gɛt infɛkshɔn: Dis mɛrɛsin kin mek yu bɔdi in imyuniti smɔl. Dat min se yu kin sik mɔ. So if yu gɛt sɔm sayn dɛn lɛk fiva, kol, ɔ trot we de at, nɔ fɔ tek mɛrɛsin fɔ yusɛf ɛn go to dɔktɔ . Tray fɔ de fa frɔm pipul dɛn we sik.
- Vaysin: Tɔk to yu dɔktɔ bɔt ɛni vaysin we yu nid fɔ gɛt. Sɔm layf vayrɔs vaysin dɛn nɔ kin fayn we yu de tek dis mɛrɛsin.
- Risk fɔ gɛt kansa: If yu tek dis mɛrɛsin fɔ lɔng tɛm, i kin mek yu gɛt sɔm kayn kansa smɔl, mɔ di kansa na yu skin. Nɔ wɔri, dis risk kin ridyus. Limit yu fɔ de pan strɔng san as mɔ as yu ebul. If yu kin go na do na di san, wɛr klos we kɔba yu bɔdi fayn, wɛr sanglas, ɛn yuz gud tin fɔ protɛkt yusɛf frɔm di san.
- Bɛlɛ ɛn Bɔn Kɔntrol (KRITICAL):
- Fɔ uman dɛn: We yu de tek dis mɛrɛsin ɛn fɔ 6 mɔnt afta yu dɔn stɔp di mɛrɛsinYu fɔ avɔyd fɔ gɛt bɛlɛ bikɔs dis mɛrɛsin kin mek yu bɔn we nɔ gɛt bɛlɛ gɛt siriɔs prɔblɛm. Yu fɔ gɛt tɛst fɔ mek shɔ se yu nɔ gɛt bɛlɛ bifo yu bigin di mɛrɛsin. Tɔk to yu dɔktɔ bɔt aw fɔ kɔntrol bɔn pikin we fayn fɔ yu.
- Fɔ man: If yu patna ebul fɔ gɛt bɛlɛ, yu fɔ yuz kɔndɔm we yu de du mami ɛn dadi biznɛs we yu de tek dis mɛrɛsin ɛn fɔ at le wan ia afta yu dɔn stɔp di mɛrɛsin.
- Fɔ gi pikin in mama in bɛlɛ: Tɔk to yu dɔktɔ bɔt aw fɔ gi pikin in mama in bɛlɛ we yu de tek dis mɛrɛsin. Sɔntɛm yu go nid fɔ ajɔst yu tritmɛnt plan.
- Fɔ bɔn pikin: Dis mɛrɛsin kin afɛkt di we aw yu ebul fɔ bɔn pikin. If yu gɛt ɛnitin fɔ wɔri bɔt dis, tɔk to yu dɔktɔ.
Wetin na di sayd ɛfɛkt dɛm we di mɛrɛsin kin gɛt?
Lɛk ɛni mɛrɛsin, haydroksiyuria kin mek pɔsin gɛt sayd ɛfɛkt. Bɔt nɔto ɔlman kin gɛt dɛn. Lɛ wi tek wan luk pan wetin na dɛn sayd ɛfɛkt ya.
| Sayd ɛfɛkt dɛn we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
|---|---|
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip, tong ɔ trot. |
| Ɛmolaytik anemia | Taya we nɔ kɔmɔn, diziz, ed we de at, i nɔ kin izi fɔ blo, yu urine dak, yu skin ɔ yu yay kin yɔlɔ. |
| Sik we de prɛd | Fiva, kol, kɔf, trot we de at, wund we nɔ de wɛl, pen we yu de pis. |
| Prɔblɛm dɛn we de na di skin | Di skin kin swel, i kin rɛd, i kin gɛt blista, ɔ i kin gɛt sos na di skin. |
| Blɔd we nɔ de kɔmɔt fayn | Ivin smɔl kɔt kin mek di skin tɔn blu ɛn blɔd bɔku. |
| Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Banbɛlɛ | Dray bɛlɛ |
| Dray skin | Skin kin fil lɛk se i dɔn dray. |
| Ed de at | Smɔl ed we de at |
| Vɔmit | Fɔ fil lɛk se yu de vɔmit |
Dis list nɔ kin gɛt ɔl di sayd ɛfɛkt dɛn. If yu notis ɛnitin we nɔ kɔmɔn apat frɔm dɛn tin ya, tɔk to yu dɔktɔ bɔt am.
Aw fɔ kip di mɛrɛsin?
- Kip am usay pikin ɛn animal dɛn we yu lɛk nɔ go ebul fɔ rich .
- Stɔr am na tɛmpracha bitwin 20 ɛn 25 digri sɛlshiɔs (rum tɛmpracha).
- Kip di bɔtul kap tayt tayt wan.
- Nɔ yuz mɛrɛsin dɛn we dɔn pas. Aks yu dɔktɔ aw fɔ trowe dɛn sef wan.
Mɛsej we dɛn kin kɛr go na os
- Hydroxyurea na impɔtant mɛrɛsin we de ɛp fɔ kɔntrol di sayn dɛm fɔ siklɛt sik.
- Tek di doz we yu dɔktɔ tɛl yu ɔltɛm, di rayt tɛm. Nɔ ɛva chenj ɔ stɔp di doz if yu nɔ gɛt advays.
- Nɔ gɛt bɛlɛ we yu de tek di mɛrɛsin. I impɔtant fɔ mek uman ɛn man fala di we dɛn we dɛn dɔn tɛl dɛn fɔ mek dɛn nɔ bɔn pikin.
- Wear glɔv, mɔ we yu de ol di mɛrɛsin. Wash yu an fayn fayn wan bifo ɛn afta yu dɔn ol di mɛrɛsin.
- Notis yu dɔktɔ wantɛm if yu gɛt sɔm sayn dɛn lɛk fiva, blɔd we nɔ kɔmɔn, ɔ we yu gɛt siriɔs alɛji.
- Tɛl yu dɔktɔ bɔt ɛni ɔda mɛrɛsin, vaytamɛn, ɔ sɔpɔtmɛnt we yu de tek.
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