Yu pikin gɛt rash ɛn bɔdi we nɔ gɛt list? Lɛ wi lan bɔt Juvenile Dermatomyositis (JDM).

Yu pikin kin fil taya pas aw i kin fil, ivin we i de rɔn rawnd ɔ klaym stej? Ɔ, i gɛt rɛd/pepul spat na in fes ɔ in an? If yu gɛt dɛn sik ya, nɔr dismis dɛm as nɔmal. Dis kin bi wan sik wae kin kam pan pikin dɛm, bɔt bɔrku pipul nɔr no bɔt am. Nɔ wɔri, wi go tɔk bɔt am klia wan.

Wetin na Juvenile Dermatomyositis (JDM)?

Fɔ tɔk am simpul wan, Juvenile Dermatomyositis (JDM) na wan sik we de mek wi yon skin, mɔsul, ɛn blɔd vesel dɛn we nɔ fayn na wi imyun sistɛm kin atak wi. Wi kin kɔl dɛn kayn sik ya ɔtoimyun sik. Insay dis, inflamɛns de na di bɔdi. Dis kin mek di skin rɔsh mɔ ɛn di mɔsul dɛn wik . "Juvenile" min dis bikɔs i kin bigin we i yɔŋ, dat na we i smɔl.

Dis sik kin mek i nɔ izi fɔ pikin fɔ grap, rɔn, klaym stej, ɛn ivin du ɛvride wok lɛk fɔ es in an ɛn kɔm in ia. As mama ɔ papa, i kin rili at fɔ si pikin de tray tranga wan lɛk dis. Bɔt di tin we impɔtant pas ɔl na dat if dɛn trit di pikin fayn fayn wan, dɛn kin ebul fɔ kɔntrol dɛn sik ya fayn fayn wan ɛn di pikin kin gɛt gud kwaliti layf .

Udat kin gɛt dis sik pas ɔlman?

JDM kin bigin pan pikin dεm we ol bitwin 5 εn 10. I kin bכku pan gyal pikin dεm pas bכy pikin dεm. Pan ɔl we i kin afɛkt ɛni pikin, i kin apin mɔ pan wayt pikin dɛn.

Big pipul dɛn kin gɛt dɛn sik ya bak. Bɔt i kin apin insay di 40 ɛn 50 ia. Dɛn kɔl am Dɛmatomyosaytis. Dɛn ɔl tu de na di sem grup we gɛt kɔndishɔn.

Wetin na di men sayn dɛm fɔ JDM?

Di pikin kin sho sɔm fɔs sayn dɛm fɔ dis sik ivin bifo dɛn no se i gɛt am. Di men sayn dɛm fɔ dis sik na wae yu skin kin chenj ɛn yu mɔsul dɛm kin wik. Lɛ wi luk dɛn tin ya wan bay wan.

Simptom dɛm wae kin apun pan siriɔs kes dɛm

Bɔku tɛm, dɛn tin ya nɔ kin apin so ɔltɛm. Bɔt if JDM kam tranga, i kin afɛkt di pikin in mɔsul dɛn bak we i de blo ɛn we i de swɛla . Dɛn sayn ya kin bi:

• Fɔd kin stɔp ɔltɛm we yu de swɛla.
• Voys de chenj, i de wik.
• I nɔ izi fɔ blo (Dyspnea).

Wetin na di prɔblɛm dɛn we kin apin if dɛn nɔ trit dɛn?

Nɔ mek yu fred fɔ dis. Dis na bɔt wetin kin apin if yu nɔr gɛt tritmɛnt. Wit di advans tritmɛnt dɛm tide, bɔku pan dɛn tin ya kin avɔyd.

• Di tin dɛn we de na di kalsiɔm: di tin dɛn we at ɛn we tan lɛk ston kin mek ɔnda di skin. Dɛn tin ya kin mek i nɔ izi fɔ muv di mɔsul dɛn.
• di mכsul dεm we de kכntrakt: di mכsul dεm kin tayt εn i kin de ivin we di jכint dεm bεn.
• Ɔlsa: Ɔlsa kin apin na di skin ɔ na di insay.
• I kin wik bad bad wan: Yu kin wik so dat yu nɔ kin ebul fɔ blo ɔ swɛla.

Wetin mek dis JDM de apin? Wetin na di rizin?

Tink bɔt am dis we: wi bɔdi tan lɛk fɔt. Insay de, wan ami de we dɛn kɔl di imyun sistɛm. Dɛn wok na fɔ protɛkt wi bay we dɛn de atak fɔrina ɛnimi dɛn lɛk vayrɔs ɛn baktri. insay wan כtoimyun sik lεk JDM, dis ami de mistek stat fכ atak wi כwn gud sεl dεm (skin, mכsul).

Dɛn nɔ no yet di rayt tin we mek dis imyun sistɛm nɔ de wok fayn, bɔt dɔktɔ dɛn biliv se i kin bi bikɔs ɔf wan kɔmbaynshɔn pan ɔl tu di jɛnɛtik kɔmpɔnɛnt ɛn di tin dɛn we de na di envayrɔmɛnt (fɔ ɛgzampul, wan vayral infɛkshɔn).

Aw dɔktɔ kin no kɔrɛkt wan bɔt dis sik?

We yu kɛr yu pikin go to dɔktɔ, i go fɔs tek tɛm chɛk di pikin, ɛn chɛk fɔ si if i gɛt tin dɛn lɛk di skin we de rɔsh ɛn di mɔsul dɛn we gɛt trɛnk. Apat frɔm dat, dɛn kin du bɔku tɛst fɔ no if pɔsin gɛt di sik.

• Blɔd tɛst: Dɛn tin ya kin chɛk di lɛvɛl we di inflamɛns de na di blɔd ɛn di lɛvɛl we di mɔsul ɛnzaym dɛn we dɛn kin mek we di mɔsul dɛn pwɛl. dεn kin luk bak fכ spεshal protin dεm (autoantibodies) we dεn kin si na JDM.
• ilektromayografi (EMG): dis min se dεn de put rili fayn εlektrod dεm we lεk nidul insay di mכsul dεm εn mεzj dεn ilektrikal aktiviti.
• MRI (Magnetic Resonance Imaging): Dis tεst de yuz big magnet fכ gεt klia pikchכ fכ inflameshn εn swel insay di bכdi, spεshal wan na di mכsul dεm.
• Muscle biopsy: Dis na smɔl ɔpreshɔn fɔ pul wan rili smɔl pat pan di mɔsul tisu ɛn chɛk am ɔnda maykroskɔp. dis rili imכtant fכ kכnfכm if na JDM כ כda mכsul sik (e.g. mכsul distrofi).
• Nailfold capillaroscopy: Dɛn kin yuz spɛshal tin fɔ chɛk di smɔl smɔl blɔd vesel dɛn (capillaries) we de ɔnda di pikin in nel fɔ si if i swel. yu kin si se dεn blכd vesel dεm ya gεt spεshal chenj dεm na pikin dεm we gεt JDM.

Wetin na di tritmɛnt dɛm fɔ JDM?

Di men gol fɔ JDM tritmɛnt na fɔ ridyus inflamɛns na di bɔdi, kɔntrol di simptom dɛm, ɛn ɛp di pikin fɔ liv gud layf. Tritmɛnt kin mek yu nɔr gɛt di sik fɔ sɔm tɛm we di sik nɔr de igen.

Di mɛrɛsin dɛn we dɛn kin yuz

• Kɔtikosterɔyd dɛn:Dis na di men kayn mɛrɛsin wae dɛn kin gi fɔs. Dɛn tin ya kin ridyus di inflamɛns kwik kwik wan. Dɛn kin gi dɛn bɔku bɔku wan fɔs, dɔn dɛn kin ridyus di doz smɔl smɔl as di sayn dɛn de stɔp.
• Methotrexate: Na ɔda impɔtant mɛrɛsin we dɛn kin gi wit ɔ afta kɔtikosterɔyd. I de kɔntrol di wok we di imyun sistɛm de du.
• Hydroxychloroquine: Dis mɛrɛsin kin rili ɛp fɔ kɔntrol di skin we de rɔsh.
• Intravenous immunoglobulin (IVIG): Dis involv fכ gi klin antibodi dεm insay di bכdi tru wan vein. Dis kin blok di antibodi dɛm we de pwɛl wi bɔdi.
• Ɔda mɛrɛsin dɛn: If di sik bad ɔ i nɔ de ansa ɔda mɛrɛsin, di dɔktɔ kin gi yu ɔda mɛrɛsin lɛk sayklosporin ɛn rituximab.

Fɔ chenj di we aw pɔsin de liv in layf ɛn ɔda tritmɛnt dɛn

Apat frɔm mɛrɛsin, dɛn tin ya rili impɔtant bak.

• Fɔ trit yu bɔdi: Wan dɔktɔ we de mɛn yu bɔdi kin tich ɛksesaiz fɔ mek yu mɔsul dɛn strɔng, fɔ mek yu jɔyn dɛn nɔ stif, ɛn fɔ mek yu ebul fɔ chenj di we aw yu de du tin.
• Fɔ protɛkt yusɛf frɔm di san: Dis rili impɔtant. If yu de na di san, i kin mek di skin rash wɔs. So, yu fɔ yuz sɔntin we de protɛkt yu frɔm di san ɔltɛm we gɛt SPF we na 30 ɔ pas dat. Wear hat ɛn sanglas. Nɔ de nia strɔng san bitwin 10 oklɔk ɛn 4 oklɔk na nɛt.
• Gud it: If yu it tin dɛn we gɛt fayn fayn tin dɛn we gɛt vɛjitebul, frut, tin dɛn we nɔ gɛt bɔdi, ɛn ɔl di tin dɛn we yu kin it, dat kin ɛp fɔ mek di bɔdi nɔ inflamɛns.
• Spich therapy: Wan spich therapist de tich pikin dɛm wae gɛt prɔblɛm fɔ swɛla aw fɔ it fayn ɛn ɛksesaiz.

Wetin wi fɔ tink bɔt tumara bambay?

No mɛrɛsin nɔ de fɔ JDM. Bɔt nɔ mek yu fred. Di gud nyus na dat, wit tritmɛnt, bɔku pikin dɛn kin liv rili sakrifays, aktif layf.

Bɔrku pikin dɛn go go na rɛmishɔn insay tu ia afta dɛn bigin tritmɛnt. Yu kin ebul fɔ stɔp fɔ tek di mɛrɛsin da tɛm de. Bɔt yu fɔ kɔntinyu fɔ it gud it, ɛksesaiz, ɛn protɛkt yusɛf frɔm di san fɔ mek di sik nɔ kam bak.

Sɔm pikin dɛn kin gɛt dis sik fɔ lɔng tɛm, ɔr di sayn dɛn kin dɔn ɛn afta dat dɛn kin kam bak. Bɔt, JDM nɔto sik we de mek pɔsin in layf de pan denja. If dɛn gɛt di rayt mɛrɛsin, dɛn kin ebul fɔ kɔntrol di sik fayn fayn wan ɛn pikin dɛn kin liv nɔmal layf lɛk ɔda pikin dɛn.