Yu dɔn ɛva notis wan rɛd-brawn spat na yu pikin ɔ yu yon bɔdi? Sɔntɛm yu jɔs strok di ples saful wan wit yu finga, ɛn wantɛm wantɛm di ples tɔn rɛd, bigin fɔ it, ɛn wan smɔl blista kɔmɔt pan am. If yu sabi dis ɛkspiriɛns, i rili impɔtant fɔ no bɔt di kɔndishɔn we wi de tɔk bɔt tide.
Fɔ tɔk am simpul wan, wetin na Urticaria Pigmentosa?
Urticaria Pigmentosa na wan kayn ayv we kin apin na di skin. Dɛn kin si am mɔ pan yɔŋ pikin dɛn ɛn yɔŋ pipul dɛn. na tru tru wan fכm fכ wan kכndyushכn we dεn kכl `mastocytosis'.
Naw yu kin de wɔnda wetin na `mastocytosis`. I rili simpul. ``mast sεl dεm`` na spεshal tכp sεl dεm na wi bכdi in imyun sistεm. Dɛn tan lɛk di wan dɛn we de gayd di bɔdi in sikyɔriti. we fכ sכm rizin dεn mast sεl dεm ya kin gɛda pasmak na wan εria na di skin, wi kin kכl am Urticaria Pigmentosa. כltu, dεn mast sεl dεm ya nכ kin kכmכt nכmכ na di skin, bכt sכmtεm na כda כgan dεm lεk di bon dεm εn di intestכn dεm. afta dat i de tכn to wan kכndishכn we dεn kכl ``sistεmik mastosaytosis``. Bɔt nɔ wɔri, bɔku tɛm, Urticaria Pigmentosa na pikin dɛn kin jɔs de na di skin.
Insay dis sik, we brawn spat de na di skin, i kin rɛd, i kin swɛla, i kin it, ɛn i kin go ɔp lɛk se motoka dɔn bang am. pan mεdikal tεm, dεn kכl dis sik ``Darier in sayn.''
Wetin mek sɔntin lɛk dis kin apin?
di men rizin fכ dis na di ``mast sel`` we wi bin tכk bכt bifo. Dis na wan kayn wayt blɔd sɛl we de kɔmɔt na wi bon mɛrɔ. Dɛn sɛl ya de ɔlsay na wi bɔdi, mɔ usay wi kin kam nia di tin dɛn we de na do lɛk di skin, di lɔng, ɛn di intestinal. we sכmtin lεk jεm go insay di bכdi, dεn mast sεl dεm ya de rilis wan kεmikכl we dεn kכl ``histamine`` fכ εp fכ protεkt di bכdi.
Urticaria Pigmentosa de kכz fכ wan jεnεtik mכtεshכn we de mek dεn mast sεl dεm ya de kכmכt pasmak na di skin. dis jεnεtik chenj kin apin we di pikin stil de na di bεlε. Bɔt nɔto sɔntin we mama ɛn papa gɛt frɔm pikin dɛn . Dɛn nɔ dɔn fɛn di rayt tin we mek dis chenj chenj yet.
If big pipul dɛn gɛt dis sik, i kin tranga smɔl. dεn kכl am `indolent sistεmik mastosaytosis`. insay dis kes, di mast sεl dεm kin kכmכt na ples dεm lεk di bon mכro apat frכm di skin. na sכm tεm, dis kכndyushכn kin divεlכp to kεnsar kכndyushכn we dεn kכl `mast sεl lukimiya`. Bɔt bak, dɛn tin ya na tin dɛn we nɔ kin apin so ɔltɛm . 99% pan di Urticaria Pigmentosa we kin apin pan pikin dεm nכ kin so bad.
Wetin na di sayn dɛm fɔ dis sik?
Di men ɛn klia simptom na di `Darier in sayn` we wi bin tɔk bɔt. Dat min se di brawn spat dɛn kin rɛd ɛn it we dɛn rɔb am. Apat frɔm dat, sɔm pipul dɛn kin gɛt dɛn sik ya bak.
| Di sayn we de sho se di sik de | Wan simpul ɛksplen |
|---|---|
| Di at we de blo | At rit de go ɔp lɛk se yu de fil se yu de fred. |
| Dayarɛa (bɛlɛ de at) . | i kin kכz bay di mast sεl aktibכshכn na di dijestiv sistεm. |
| Fɔ mek yu flash | Di fes ɛn di ɔp pat na di bɔdi kin rɛd wantɛm wantɛm. |
| I nɔ izi fɔ blo (Wheezing) . | Wan ‘chiz-chiz’ sawnd we yu de blo, we fiba di wan we pɔsin we gɛt asma kin mek. |
| Fɔ mek pɔsin nɔ ebul fɔ du natin | Yu nɔ kin no natin bikɔs yu blɔd prɛshɔn kin go dɔŋ wantɛm wantɛm. |
| Ed de at | Ed de at. |
Mɔ pas 75% pan di wan dɛn we gɛt Urticaria Pigmentosa na pikin dɛn we nɔ rich 10. pan bɔku pikin dɛn, dis sik kin jɔs de na di skin ɛn i kin bɛtɛ we dɛn de ol.
Aw dɔktɔ kin no bɔt dis?
Bɔrku tɛm, yu dɔktɔ kin ebul fɔ no dis sik izi wan bay wae i luk di spat dɛm na yu skin ɛn chɛk fɔ Darier in sayn. No ɔda tɛst nɔ nid fɔ de.
Bɔt if ɛni dawt de se dis sik nɔ jɔs de pan di skin bɔt i dɔn afɛkt ɔda pat dɛn na di bɔdi bak, di dɔktɔ kin tɛl yu fɔ du dɛn tɛst ya.
- Blɔd tɛst (`Blɔd kɔnt`): Lan bɔt di difrɛn kayn ɛn amɔnt dɛn we de na di blɔd.
- di sεrum triptaz tεst: I de chεk fכ si if wan εnzym de na di bכdi we di mast sεl dεm de kכmכt.
- Bone density scan: Si aw yu bon dɛn strɔng.
- wan bon mכro tεst: I de chεk if di bon mכro de prodyuz hεlty sεl dεm.
Di we aw dɛn kin trit di sik ɛn aw fɔ kɔntrol di sik
Di gud nyus na dat fɔ bɔku pikin dɛn, Urticaria Pigmentosa go sɔlv insɛf as dɛn de ol . No patikyula tritmɛnt nɔ de fɔ mek nyu spat dɛn nɔ fɔm. Di say dɛn we dɔn de kin tek sɔm ia fɔ lɛ dɛn nɔ de igen.
As lɔng as di sik na di skin nɔmɔ, dɛn nɔ kin nid ɛni big tritmɛnt. Yu dɔktɔ kin tɛl yu fɔ ɛp yu fɔ kɔntrol yu sik dɛn:
- Antihistamines we dɛn kin tek bay mɔt: Kɔntrol di it ɛn swɛlin.
- Kɔtikosterɔyd krim: Put am na say dɛn we de it.
- Cromolyn sodium: Na mɛrɛsin we dɛn kin gi fɔ trit di sayn dɛm lɛk fɔ vɔmit ɛn dayarɛa.
- EpiPen: Na divais we dɛn kin gi pipul dɛn we gɛt siriɔs alɛji (anaphylactic reaction) fɔ yuz we dɛn gɛt imejensi. Nɔto ɔlman nid dis.
Tin dɛn we yu fɔ avɔyd mɔ
De tin wae impɔtant pas ɔl na dis sik na fɔ de fa frɔm tin dɛm wae kin mek di sik wɔs, dat na tin dɛm wae kin mek di spat dɛn it ɛn rɛd.
| Mɛrɛsin dɛn we yu fɔ avɔyd | Ɔda tin dɛn we yu fɔ avɔyd |
|---|---|
| Aspirin we dɛn kin yuz | Fɔ ɛksesaiz (especially we yu de tray tranga wan) . |
| Rum | Fɔ rɔb di skin tranga wan wit tawɛl |
| Di mɛrɛsin dɛn we de mek pɔsin fil pen lɛk mɔfin ɛn kɔdin (`Opiates`) . | Fɔ was insay ɔt wata |
| Tiamin (Vitamin B1) we de na di bɔdi. | Drink dɛn we gɛt ɔt |
| Quinine (`Quinine` - wan mɛrɛsin fɔ malaria) . | Fɔ de na di san pasmak |
| Dextromethorphan (wan mɛrɛsin fɔ kɔf) . | Fɔ de na say we kol pasmak |
| Sɔm mɛrɛsin dɛn we de mek pɔsin nɔ fil fayn ɛn ɛkstrem day | Spays, hot it dɛn |
Impɔtant: If yu ɔ yu pikin nid fɔ tek mɛrɛsin fɔ ɔda sik, mek shɔ se yu tɛl yu dɔktɔ bɔt Urticaria Pigmentosa.
Yu tink se prɔblɛm dɛn kin apin?
rεli rεli, dis kכndishכn kin progrεs to `sistεmik mastosaytosis`. Dɛn kayn pipul ya kin gɛt bɔku alɛji we dɛn kɔl `anaphylactic shock`, we kin mek dɛn layf de pan denja. If yu gɛt sɔm sayn dɛn lɛk fɔ mek yu nɔ ebul fɔ blo fayn ɛn yu nɔ de no natin , yu fɔ go na ɔspitul in imejensi dipatmɛnt (ETU) wantɛm wantɛm .
כda komplikashכn dεm fכ sistεmik mastosaytosis inklud:
- Ɔstioporosis: Di bon dɛn kin wik.
- Saytopenia: I de mek di blɔd sɛl dɛn we de na di bɔdi nɔ bɔku.
- Liva prɔblɛm dɛn.
- Kansa (we nɔ kin bɔku).
Bak, dɛn tin ya na kɔmplikeshɔn dɛn we nɔ kin apin so ɔltɛm. Dɛn nɔ kin bɔku pan pikin dɛn we gɛt Urticaria Pigmentosa.
Mɛsej we dɛn kin kɛr go na os
- Urticaria Pigmentosa na wan sik we de ambɔg pikin dɛn mɔ. I nɔ kin pas ɔ i nɔ kin gɛt frɔm mama ɛn papa.
- di men sayn na dat we dεn rכb wan brawn spat, i de rεd, swεla, εn i de it (`Darier in sayn`).
- Nɔr frayd pasmak, bikɔs dis sik go bɛtɛ fɔ insɛf fɔ bɔrku pikin dɛm as dɛn de ol.
- Di bɛst we fɔ mɛn di sik na fɔ de fa frɔm it, mɛrɛsin, ɛn tin dɛn we de mek di sik wɔs.
- If yu ɔ yu pikin gɛt ɛni wan pan dɛn sik ya, mek shɔ se yu go to dɔktɔ fɔ no di kɔrɛkt tin bɔt di sik ɛn di advays we i nid.
💬 Comments (0)
No kɔmɛnt nɔ de yet. Ad yu kɔmɛnt ya fɔ di fɔs tɛm.
Ad yu kɔmɛnt