Yu dɔn notis wan strenj kɔlɔ na yu pikin in bɔdi ɛn yu de wɔri? Sɔntɛm yu kin fil tranga smɔl we yu tɔch di say we yu de. Yu kin tink se na prɔblɛm wit dɛn skin we kin apin to pikin dɛn, bɔt yu kin tink se dis difrɛn smɔl. Sɔntɛnde lɛk dis, i rili impɔtant fɔ mek wi no bɔt dis. Tide wi de tɔk bɔt wan sik we kin apin to pikin dɛn, bɔt bɔku pipul dɛn nɔ yɛri bɔt am, bɔt i fayn fɔ no bɔt am.
Wetin na Juvenile Localized Scleroderma?
Fɔ tɔk am simpul wan, dis na ɔtoimyun kɔndishɔn we pikin in skin kin tik ɛn tayt we nɔrmal. Wan ɔda nem fɔ dis na `(Morphea)`.
Di wɔd ‘Scleroderma’ insɛf na tu Grik wɔd dɛn mek am. "sclera" min 'had', ɛn "derma" min 'skin'. So di minin na "had skin" . "Localized" min se i spεsifi k , we min se i de afekt כnli limited εria dεm na di bכdi.
Okay, naw mek wi si aw dis kin apin. Wi ɔl gɛt difens sistɛm na wi bɔdi we de protɛkt wi frɔm sik. Wi kin kɔl am di imyun sistɛm. Bɔt pan dis kɔndishɔn, di pikin in yon imyun sistɛm kin mistek bigin fɔ atak in yon skin . Fɔ ansa dis atak, di skin kin bigin fɔ swel (inflammation). dis swεla de mek di sεl dεm na di skin de mek tu mכch wan protin we dεn kכl kolagen.
Tink bɔt am lɛk skata we de fɔm afta yu wund. Bɔt wetin kin apin ya na dat di skin kin at lɛk skata we nɔ gɛt ɛni injuri. Wi kin kɔl dis `(fibrosis)`. Yu kin si dis na yu pikin in bɔdi as say we nɔ gɛt kɔlɔ.
Wetin na di men kayn dis sik?
sεvεra difrεn tכp dεm de fכ dis kכndyushכn, Localized Scleroderma. Ɛni kayn sik kin gɛt difrɛn sayn dɛn smɔl.
| Tayp fɔ sik | Tɔk bɔt |
|---|---|
| Di say we dɛn kɔl Plaque Morphea | Dis na di kayn we we pipul dɛn kin gɛt mɔ. I kin apia lɛk wan ɔ mɔ rawnd ɔ ɔval-shep plek dɛn. Dɛn tin ya kin afɛkt di skin mɔ. Sɔntɛnde, di tisu we de ɔnda di skin kin afɛkt smɔl bak. |
| Linear Morphea we de na di wɔl | insay dis kayn, di spat dεm de sho insay wan patεn we lεk layn. I tan lɛk se sɔmbɔdi dɔn drɔ layn wit rula. Dɛn tin ya kin apin along di pikin in an ɛn leg. Di denja fɔ dis na dat dis stiffness kin afɛkt di mɔsul ɛn bon dɛn we de ɔnda am bak, we kin mek i nɔ izi fɔ bɛn ɛn stret dɛn jɔyn dɛn de. Dis kin afɛkt bak aw di pikin de gro. |
| Jɛnɛralized Mɔfya | pan dis, i pas fכ big spat dεm we de sho pan pas tu pat dεm na di bכdi. Dɛn kin apia bɔku tɛm na di trɔnk ɛn di leg dɛn. Dɛn spat ya kin jɔyn bak ɛn big. |
| Dip Mɔfya | Dis na di kayn we we kin rili bad ɛn we nɔ kin apin so ɔltɛm. I kin afɛkt di tisu dɛn we de dip ɔnda di skin, lɛk di mɔsul ɛn bon dɛn. Di pikin kin gɛt pen bak pan dis kayn. |
Wetin na di sayn dɛm fɔ dis sik?
If na so i bi, de sik kin chenj smɔl smɔl as tɛm de go. Nɔto wetin yu si fɔs, bɔt na wetin yu si afta sɔm tɛm. Lɛ wi si aw dɛn spat dɛn ya kin chenj.
- di εli stej: Fɔs, wan rεdish-pεpul spat de apia na di pikin in skin. Na dis tɛm ya, di skin nɔ kin strɔng yet.
- Midul stej: Afta sɔm dez, dɛn spat ya kin at ɛn swel smɔl. Di sɛntrɔm pan di spat kin tek wan wayt ɔ yɔlɔ waksi shayn. Yu kin si wan pink ɔ pepul halo rawnd am.
- Leta: As tɛm de go, dis swɛlin ɛn stif go stɔp, ɛn di skin na dɛn say dɛn de kin tɔn brawn ɔ ivin wayt ɛn nɔ gɛt in kɔlɔ igen.
Ɔda sayn dɛm wae dɛn kin si pan siriɔs kes dɛm
Sɔm kayn bad bad tin ya, dis sik kin afɛkt di tisu dɛm we de ɔnda di skin bak, so ɔda sayn dɛm kin apin bak.
- Pen ɛn nɔ fil fayn.
- di muvmεnt we di limb dεm εn mכsul dεm de muv sכmtεm.
- If dɛn spat ya apia na di fes, dɛn kin mek prɔblɛm wit di tit ɔ fɔ si.
Pan ɔl we dɛn spat ya kin dɔn we dɛn de trit dɛn, sɔntɛnde dɛn kin bɔn bak.
Wetin na di rizin we mek dis kayn tin de apin?
Infakt, dɛn nɔ dɔn fɛn di rayt tin we kin mek pɔsin gɛt dis sik (Scleroderma) yet . Bɔt dɔktɔ dɛn biliv se na bikɔs ɔf di tin dɛn we de na di bɔdi ɛn di tin dɛn we de arawnd wi.
dis min se sכm pikin dεm gεt jεnεtik prεdispכzishכn fכ gεt dis kayn imyun sistεm riakshכn. Dɔn, sɔntin we de na di say we dɛn de, lɛk infekshɔn ɔ injury na in skin kin mek di sik bigin. Bɔt dis nɔto sik we pɔsin kin pas .
Dɔktɔ, aw yu kin no dis?
We yu kɛr yu pikin go to dɔktɔ, di fɔs tin we i go du na fɔ tek tɛm chɛk di pikin ɛn aks yu bɔt di sayn dɛn we i gɛt. Bɔrku tɛm, dɛn kin no di sik bay aw di say dɛn we de na di skin kin tan.
Bɔt fɔ kɔnfirm di sik ɛn fɔ no aw di sik dip, sɔntɛnde dɛn kin du bɔku tɛst dɛn.
- Skin biopsy: Dis na fɔ tek wan rili smɔl pat pan di skin frɔm di mol ɛn chɛk am ɔnda maykroskɔp. Dis kin mek yu si ustɛm di chenj dɛn we dɔn apin na di sɛl dɛn na di skin.
- MRI skan: Dɛn kin yuz dis fɔ si aw dip di stiffnɛs dɔn afɛkt di skin ɛn if i dɔn afɛkt di mɔsul ɛn bon dɛn we de ɔnda.
Wetin na di tritmɛnt dɛm fɔ dis?
Di men gol fɔ tritmɛnt na fɔ kɔntrol di inflamɛns, stɔp di sik fɔ skata, ɛn fɔ ridyus di tayt na di skin. Bikɔs di kayn sik kin difrɛn frɔm wan pikin to ɔda pikin, di tritmɛnt de bak fɔ da pikin de.
| Di we aw dɛn kin trit am | Tɔk bɔt |
|---|---|
| Kɔtikosterɔyd dɛn | Dis na pawaful mɛrɛsin dɛn we de kɔntrol di swɛlin. Dɛn kin gi dɛn as krim we dɛn kin put pan di skin, pils we dɛn kin tek bay mɔt, ɔ injɛkshɔn na wan vein. |
| Ɔda krim dɛn we dɛn kin put pan pɔsin in bɔdi | Ointment dεm lεk (Calcipotriene, Tacrolimus) de kכntro εn limited di aktiviti fכ di imyun sistεm to da εria de. |
| Imyunmodulating ejen dεm | If di sik bad pasmak, dɛn kin gi am mɛrɛsin dɛn we de stɔp di imyun sistɛm (lɛk Methotrexate, Mycophenolate mofetil). |
| Layt tɛrapi (Fototɛrapi) . | Na tritmɛnt we de yuz ɔltra vayolɛt (UV) rayt fɔ mek di dak say dɛn na di skin sof. Bɔt di dɔktɔ kin tɛl am fɔ tek tɛm du dis bikɔs i kin mek di skin gɛt bad bad tin dɛn. |
| Fizik tɛrapi | Dis kin ɛp bɔku fɔ mek di mɔsul dɛn strɔng, fɔ mek di jɔyn dɛn wok fayn, ɛn fɔ mek di skin ebul fɔ elastik mɔ. |
Mɛmba se di tin dɛn we kin apin kin bɛtɛ pasmak if dɛn no bɔt dis sik ɛn trit am kwik kwik wan . So if yu notis se yu pikin in skin chenj, go to dɔktɔ ɛn nɔ de te.
Aw yu as mama ɔ papa go ɛp yu pikin?
Sɔm simpul tin dɛn de we yu kin du fɔ protɛkt yu pikin in skin.
- Nɔ yuz sop ɛn ditajɛn we gɛt strɔng sɛnt.
- Yuz saful mɔstizayza ɔltɛm we fayn fɔ di skin we gɛt sɛnsitiv.
- We yu de was, yuz wata we wam instead fɔ yuz ɔt wata.
- If yu yuz humidifier fɔ mek di ays nɔ de na os, dat kin ɛp fɔ mek yu skin nɔ dray.
- We yu de go na do, mek shɔ se yu wɛr tin fɔ protɛkt yusɛf frɔm di san.
Aw dis tin kin afɛkt di pikin in layf?
Yu kin fred fɔ yɛri bɔt dis, bɔt di rial gladi at na dat pikin dɛn we gɛt dis sik kin liv nɔmal layf ɛn gladi at .
- Lifespan: Dis sik nɔ de afɛkt di pikin in layf pan ɛni we. Nɔ wɔri bɔt am.
- Ɛvride layf: Natin nɔ de we de ambɔg di pikin fɔ go skul, ple, ple spɔt, ɛn tek pat pan ɔda tin dɛn lɛk aw i kin du. Infakt, ɛksesaiz kin ɛp fɔ mek di mɔsul dɛn strɔng.
- Fɔ it: I nɔ nid fɔ it spɛshal it. If yu it tin dɛn we balans ɛn we gɛt fayn fayn tin dɛn fɔ it, na in nɔmɔ go du fɔ yu.
- Mental wɛlbɔdi biznɛs:Sɔntɛnde, pikin kin fil smɔl smɔl ɔ i kin shem na sosayti bikɔs ɔf di chenj we dɛn de luk pan in skin. Da tɛm de, i rili impɔtant fɔ mek yu ɔndastand dɛn, mek dɛn biliv dɛnsɛf, ɛn ɛksplen se dis nɔto dɛn fɔlt.
Mɛsej we dɛn kin kɛr go na os
- Juvenile Localized Scleroderma na wan sik we nɔ kin apin so ɔltɛm bɔt nɔto siriɔs tin we kin mek di pikin dɛn skin tik.
- Dis na bikɔs wi yon imyun sistɛm nɔ de wok fayn. Dis nɔto sik we pɔsin kin pas.
- If yu notis wan dak ples na yu skin we dɔn chenj in kɔlɔ, i rili impɔtant fɔ go to dɔktɔ wantɛm wantɛm ɛn nɔ de te.
- Dɛn kin kɔntrol dis sik fayn fayn wan if dɛn trit am fayn, ɛn i nɔ kin afɛkt di pikin in layf.
- Di lɔv, sɔpɔt, ɛn ɛnkɔrejmɛnt we mama ɛn papa dɛn de gi, na big trɛnk fɔ mek pikin liv fayn wit dis sik.
💬 Comments (0)
No kɔmɛnt nɔ de yet. Ad yu kɔmɛnt ya fɔ di fɔs tɛm.
Ad yu kɔmɛnt