Yu gɛt Hereditary Angioedema bak, ɔ HAE fɔ shɔt? If na so, yu go mɔs no aw i nɔ kin fil fayn ɛn aw i kin mek yu fred fɔ gɛt swel wantɛm wantɛm, fɔ no rizin, na difrɛn pat dɛn na yu bɔdi, lɛk yu fes, yu trot, ɛn yu an ɛn fut dɛn. Tide, wi bin want fɔ tɔk bɔt wan spɛshal vaysin we dɔktɔ dɛn kin se fɔ ɛp fɔ mek dɛn nɔ gɛt dɛn swɛlin ya wantɛm wantɛm. Na wan vaysin we dɛn kɔl Lanadelumab.
Fɔ tɔk am simpul wan, wetin na Lanadelumab?
Lanadelumab na mɛrɛsin we dɛn kin gi as injɛkshɔn fɔ mek yu nɔ gɛt atak wantɛm wantɛm fɔ swel (atak) we di sik we dɛn kɔl Hereditary Angioedema (HAE) .
Di impɔtant tin fɔ mɛmba na dat dɛn kin yuz dis fɔ ridyus di chans fɔ swel, nɔto fɔ trit swel wans i dɔn ɔlrɛdi apin. Yu dɔktɔ go dɔn gi yu patikyula mɛrɛsin fɔ yuz if yu gɛt swel wantɛm wantɛm.
Dis drɔg de pan wan grup we dɛn kɔl monoklɔnal antibodi. Fɔ tɔk am simpul wan, na prɔtin we dɛn mek spɛshal wan na lɛbɔtri ɛn i de wok lɛk prɔtin we de na wi bɔdi in imyun sistɛm. i de wok bay we i de kכntro wan prכsεs na di bכdi we de mek HAE inflameshn. Na Sri Lanka, dis drɔg de ɔnda di brand nem TAKHZYRO.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu tek dis mɛrɛsin
Yu dɔktɔ go nid fɔ no yu kɔmplit wɛlbɔdi histri bifo yu bigin dis vaysin. So, mek shɔ se yu tɛl am bɔt dɛn tin ya:
- Alɛji: If yu gɛt ɛni alɛji, nɔto fɔ Lanadelumab nɔmɔ, bɔt fɔ ɛni ɔda mɛrɛsin, it, tin dɛn we de mek yu nɔ pwɛl, ɔ day, duya mek wi no fɔs.
- Bɛlɛ: If yu gɛt bɛlɛ ɔ yu de plan fɔ gɛt bɛlɛ, mek shɔ se yu tɛl yu dɔktɔ.
- Fɔ gi pikin in bɛlɛ: If yu na mama we de gi pikin in bɛlɛ, yu fɔ tɛl yu dɔktɔ bak.
Bay dis infɔmeshɔn, yu dɔktɔ go disayd if dis mɛrɛsin fayn fɔ yu ɔ nɔ rayt fɔ yu, ɛn if na so, us tin dɛn fɔ tek tɛm wit yu.
Aw dɛn fɔ yuz di vaysin?
Dɛn kin gi dis vaysin ɔnda di skin (subcutaneous injection).. Yu dɔktɔ ɔ nɔs go tich yu aw fɔ gi yusɛf dis injɛkshɔn na os. Dɛn go ɛksplen aw fɔ pripia di mɛrɛsin, di kɔrɛkt we fɔ gi di injɛkshɔn, ɛn di rayt say fɔ injɛkshɔn (lɛk di bɛlɛ ɔ di shɔl).
- Fɔ fala di instrɔkshɔn dɛn gud gud wan: I rili impɔtant fɔ tek di rayt doz, di rayt de, jɔs lɛk aw yu dɔktɔ tɛl yu. Nɔ stɔp fɔ tek dis mɛrɛsin te yu dɔktɔ tɛl yu fɔ tek am.
- Fɔ trowe di nidul dɛn we dɛn dɔn yuz: Dis rili impɔtant. Nɔ ɛva trowe yu nidul ɛn sirinj dɛn we yu dɔn yuz na di dɔti. Yuz wan spɛshal kɔntena we dɛn kɔl "sharps kɔntena." If yu nɔ gɛt wan, aks yu dɔktɔ aw fɔ gɛt wan.
- If dɛn gi am to yɔŋ pikin dɛn: Sɔntɛnde dɛn kin gi dis mɛrɛsin fɔ pikin dɛn we dɔn pas 2 ia. Bɔt dɛn fɔ fala spɛshal tin dɛn fɔ tek tɛm wit. So, if yu de gi dis to pikin, tek tɛm tɔk to yu dɔktɔ we de mɛn pikin dɛn bɔt am.
Wetin a go du if a mistek tek bɔku mɛrɛsin?
If yu tink se yu dɔn tek bɔku mɛrɛsin, nɔ panik. Bɔt nɔ tek am layt sɛf.
Di tin we dɛn fɔ du wantɛm wantɛm na fɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital . Ɔda we de fɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu kwik kwik wan.
Impɔtant notis: Dɛn dɔn gi yu dis mɛrɛsin fɔ yu nɔmɔ. Nɔ ɛva sheb dis mɛrɛsin wit ɔda pɔsin.
Wetin fɔ du if yu mis wan doz fɔ mɛrɛsin?
Sɔmtɛm yu kin fɔgɛt fɔ tek di vaysin di de we yu fɔ tek am. If dis apin, tek di doz jɔs lɛk aw yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz we yu mɛmba, skip di doz we yu mis ɛn tek di nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek dɛbul doz fɔ mek di doz we yu mis.
Ɔda tin dɛm wae kin miks wit dis mɛrɛsin
Dɛn nɔr dɔn stɔdi am bɔku bɔku wan yet fɔ si aw dis mɛrɛsin de miks wit ɔda mɛrɛsin dɛm, bɔt dat nɔr min se i sef.
So, fɔ mek yu sef, tɛl yu dɔktɔ bɔt ɔltin we yu de yuz.
- Ɔda mɛrɛsin dɛn we dɔktɔ dɛn kin gi
- Drug dɛn we nɔ gɛt prɛskrishɔn
- Vitamin ɛn tin dɛn we dɛn kin yuz fɔ it
- Ayurveda ɔ Sinhala mɛrɛsin (ɛrb) .
- I rili impɔtant bak fɔ admit opin wan if yu de smok, drink rɔm, ɔ yuz ɔda drɔgs.
Tin dɛn we yu fɔ mɛmba we yu de tek mɛrɛsin
- Fɔ chɛk-ap ɔltɛm: Yu fɔ de tɔk to yu dɔktɔ ɔltɛm. Go na di klinik di de dɛm we i tɛl yu fɔ chɛk yu kɔndishɔn. If yu sik nɔr de bɛtɛ ɔr tan lɛk se yu de wɔs, tɛl yu dɔktɔ.
- Diziz: Sɔm pipul kin fil diziz we dɛn de tek dis mɛrɛsin. So, nɔ tinap ɔ sidɔm wantɛm wantɛm. Tek tɛm mɔ if yu dɔn pas 65 ia . If yu chenj yu pozishɔn ɔltɛm, dat kin ɛp fɔ mek yu nɔ gɛt diziz ɛn fɔdɔm.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, di lanadelumab injɛkshɔn kin mek sɔm sayd ɛfɛkt dɛn. Sɔm pan dɛn tin ya kin rili siriɔs ɛn dɛn kin nid fɔ pe atɛnshɔn to dɛn wantɛm wantɛm. Sɔm dɛn kin kɔmɔn. Mek wi brok dem down.
| Sayd ifekt dɛm fɔ di Lanadelumab vaysin | |
|---|---|
| 🚨 Siriɔs sayd ɛfɛkt dɛm we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Siriɔs alɛji riakshɔn dɛn |
|
| 👍 Sayd ɛfɛkt dɛm we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to dɔktɔ if dɛn kɔntinyu fɔ de | |
| Tin dɛn we pipul dɛn kin si |
|
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn. If yu gɛt ɛni ɔda kayn sik apat frɔm dɛn wan ya, tɔk to yu dɔktɔ bɔt am.
Aw a fɔ kip di mɛrɛsin?
- Kip am fa frɔm pikin dɛn: Nɔ lɛf dis mɛrɛsin usay pikin ɛn animal dɛn we yu de mɛn kin ebul fɔ rich.
- Stɔr am kɔrɛkt wan: If yu de yuz dis mɛrɛsin na os, dɛn go gi yu instrɔkshɔn bɔt aw fɔ kip am (fɔ ɛgzampul, if yu fɔ put am na frij). Fɔ fala dɛn instrɔkshɔn dɛn de jɔs.
- Di mɛrɛsin dɛn we dɔn dɔn: Nɔ yuz di mɛrɛsin afta di de we dɛn dɔn dɔn na di lɛbl. Trowe dɛn fayn fayn wan.
Insay dis atikul, wi jɔs tɔk bɔt Lanadelumab. If yu gɛt ɛni ɔda kwɛstyɔn bɔt dis, nɔ fred fɔ tɔk bɔt am wit yu dɔktɔ.
Mɛsej we dɛn kin kɛr go na os
- Lanadelumab na wan mɛrɛsin we dɛn kin yuz fɔ mek HAE nɔ flay , nɔto fɔ trit di flawa we dɔn de.
- Bifo yu bigin dis mɛrɛsin, tɛl yu dɔktɔ bɔt ɔl yu alɛji ɛn ɔl ɔda mɛrɛsin dɛn we yu de tek.
- Lan di rayt we aw fɔ injekt yusɛf. Ɛn trowe di nidul dɛn we yu dɔn yuz fayn fayn wan insay shap kɔntena.
- If yu gɛt ɛni siriɔs alɛji, lɛk we yu fes, yu lip, ɔ yu trot swel, go to dɔktɔ wantɛm wantɛm.
- Dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ ɛva mek ɔda pɔsin yuz am.
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