Yu tink se wan ol pɔsin de na yu famili, sɔntɛm yu mama, yu papa, ɔ yu grani ɛn granpa, we de fɔgɛt mɔ ɛn mɔ ɛn i tan lɛk se i de wɔri smɔl? I tan lɛk bak se dɛn leg dɛn de drɛg na grɔn we dɛn de waka, ɛn i tan lɛk se dɛn bɔdi stif smɔl? Yu kin yɛri tin dɛn lɛk, "Udat na dat sidɔm na di chia?" we no oda posin de na di rum? We yu si tin dɛn lɛk dis, sɔntɛm yu kin fred. Yu kin wɔnda if dis na Alzaima, ɔr ɔda tin. Tide wi de tɔk bɔt wan kɔndishɔn wae kin kam wit dɛn kayn sik ya, bɔt dɛn nɔr kin tɔk bɔt am bɔrku na sosayti. Dat na Lewy Bɔdi Dimɛnshɔn.
Fɔ tɔk am simpul wan, wetin na Lewy Body Dementia (LBD)?
Okay, mek wi put am rili simpul. Wi gɛt bɔku bɔku sɛl dɛn na wi bren. Dɛn sɛl ya kin tɔk to dɛnsɛf fɔ kɔntrol ɔl wetin wi de tink, du, ɛn du. pan wan kכndyushכn we dεn kכl Lewy bכdi dimεnshכn (LBD), wan abnכmal kayn protin we dεn kכ l Lewy bכdi dεm de bigin fכ kכmכt insay di bren sεl dεm. Tink bɔt am lɛk bɔku bɔku dɔti na wi os. Dis we aw di prɔtin dɛn we wi nɔ want kin bɔku kin pwɛl di bren sɛl dɛn ɛn i kin mek dɛn nɔ wok fayn. Dis kin afɛkt di we aw i de mɛmba, di we aw i de tink, di we aw i de muv di bɔdi, ɛn di we aw i de biev.
Dis na sik we de go bifo . Dat min se di sik nɔ kin kam wantɛm wantɛm. Dɛn kin bigin fɔ wɔs smɔl smɔl ɛn smɔl smɔl dɛn kin wɔs as tɛm de go. LBD na di sɛkɔn kayn dis maynia sik wae kin kam pan big pipul dɛm, afta Alzaima sik.
Di impɔtant tin na dat, dis nɔto jɔs nɔmal ol ol. Dis na mεdikal kכndyushכn wae dεn kin trit εn kכntrכl. So i impɔtant fɔ no bɔt dis.
Tu men kayn dis LBD de.
Yes, tu men kayn LBD de. Di sayn dɛm fɔ dɛn tu tin ya rili fiba. Bɔt di men difrɛns na us sayn dɛn kin bigin fɔs. Sɔm pipul dɛn kin bigin wit prɔblɛm fɔ mɛmba fɔs, ɔda wan dɛn kin bigin wit tin dɛn lɛk we i nɔ kin izi fɔ waka fɔs.
Lɛ wi si wetin na dɛn tu kayn dɛn ya.
| Tayp fɔ di LBD | Ki Ficha |
|---|---|
| Dimɛnshɔn wit Lewy bɔdi (DLB) . | Na dis kayn wae, prɔblɛm wit aw pɔrsin de tink ɛn mɛmba kin bigin fɔs, lɛk Alzaima sik. Prɔblɛm fɔ muv, lɛk fɔ stiff ɛn fɔ shek, kin bigin leta, ɔ kin bigin di sem tɛm wit prɔblɛm wit mɛmori. |
| Pakinsin sik wae de mɛk pɔrsin gɛt dis maynia sik | Insay dis kayn, prɔblɛm wit bɔdi muvmɛnt kin bigin fɔs. Semweso lɛk di sik we dɛn kɔl Parkinson. Tin dɛn lɛk fɔ shek yu an, fɔ at fɔ waka, ɛn fɔ stif, kin kam fɔs. Prɔblɛm fɔ mɛmba ɛn tink kin kam leta, sɔm tɛm dɛn kin kam te to wan ia afta dat. |
Wetin kin bi di sayn dɛm fɔ dis sik?
LBD kin prɛzɛnt wit difrɛn difrɛn simptom dɛm. Dɛn sayn ya nɔ kin apin di sem we fɔ ɔlman. Dɛn kin difrɛn frɔm wan pɔsin to ɔda pɔsin. Sɔm sayn dɛm kin de wan de ɛn nɔr kin de di nɛks de. Na so di sik tan.
Lɛ wi brok dɛn sayn ya to pat.
| Tayp we gɛt kwaliti dɛn | Tin dɛn fɔ si |
|---|---|
| Di Simptom dɛn we pɔsin kin gɛt we i de ɔndastand | |
| Fɔ si tin dɛn we nɔ de (Visual Hallucinations) . | Dis na wan tin we rili kכmכn fכ LBD dεm. I kin mek yu fil lɛk se yu de si pipul dɛn, animal dɛn, ɔ shep dɛn we nɔ rili de. |
| Fluktueshɔn pan atɛnshɔn ɛn kɔnshɛns | Wan tɛm, yu kin rili wach ɛn tɔk to pipul dɛn, ɛn di nɛks tɛm, yu kin slip bad bad wan ɛn tin dɛn kin ambɔg yu. Dɛn stet ya kin chenj ivin di sem tɛm pan di de. |
| I nɔ kin ebul fɔ mɛmba ɛn disayd fɔ du sɔntin | Fɔ fɔgɛt tin, i nɔ kin izi fɔ disayd fɔ du sɔntin, ɛn nɔ ebul fɔ fɛn wɔd dɛn. |
| Di Simptom dɛn we de sho se pɔsin de muv | |
| Rigiditi fɔ di bɔdi | Di mɔsul dɛn kin stif, we kin mek i nɔ izi fɔ bɛn ɔ stret di an ɛn fut dɛn. |
| Di we aw pɔsin kin shek shek | An dɛn we de shek shek, mɔ we yu de rɛst. |
| Slowing of muvmɛnt | Slow waka spid, drɛg fut, fɔdɔm ɔltɛm ɛn lɔs balans. Di we aw pɔsin nɔ de sho insɛf na in fes. |
| Prɔblɛm dɛn we pɔsin kin gɛt we i de slip | |
| REM Slip Bihayvya Disɔda | Dis na bak wan rili impɔtant fɔs sayn. Tin dɛn lɛk fɔ ala we yu de slip, fɔ flay yu an ɛn yu fut, ɛn fɔdɔm na bed. |
| Fɔ slip pasmak na di de | Fɔ fil se yu de slip pasmak na de, pan ɔl we yu de slip fayn na nɛt. |
| Di Simptom dɛm fɔ di Mud & Bihayvya | |
| Pwɛl at | Fɔ lɛf fɔ intres pan ɛnitin, fɔ fil bad ɛn fɔ fil bad ɔltɛm. |
| Fɔ wɔri ɛn nɔ gɛt rɛst | Fɔ fil se yu de fred ɛn wɔri fɔ natin. |
| Di lay lay tin dɛn we pɔsin kin du | Fɔ biliv tranga wan pan tin dɛn we nɔto tru. Fɔ ɛgzampul, sɔmbɔdi de tray sikrit wan fɔ pɔyzin yu ɔ tif yu mɔni. |
Wetin mek dis sik kin apin? Wetin na di tin dɛn we kin mek pɔsin gɛt dis sik?
Infakt, dɔktɔ dɛn stil nɔ no di rayt rizin we mek sɔm pipul dɛn kin gɛt Lewy bɔdi na dɛn bren ɛn ɔda wan dɛn nɔ kin no. Bɔt dɛn dɔn no sɔm tin dɛn we kin mek pɔsin gɛt dis sik mɔ ɛn mɔ.
- Ej: Dis sik kin kam pan pipul dɛm wae dɔn pas 50 ia.
- Famili histri: If yu fambul we de nia yu famili dɔn gɛt LBD ɔr Pakinsin sik, yu kin gɛt dis sik smɔl.
- jin dεm: dεn fכnshכn sכm jin dεm lεk `(APOE)` εn `(GBA)`, de mek di risk fכ gεt di sik bכku. Bɔt dis nɔ min se ɔlman we gɛt dɛn jin dɛn de go gɛt LBD.
Aw dɔktɔ kin no kɔrɛkt wan bɔt dis sik?
Dis na di prɔblɛm we bɔku pipul dɛn gɛt. No wan tɛst nɔ de we go ebul fɔ no LBD kɔrɛkt wan. So, dɔktɔ go jɔyn difrɛn tin dɛn, pul ɔda sik dɛn, ɛn kam fɔ no di rayt tin. Dis kin min se wan tim we gɛt spɛshal pipul dɛn we de wok togɛda.
Di diagnostik prɔses kin go lɛk dis.
1. Tɔk bɔt yu mɛdikal histri: Aks bɔt yu sik, ustɛm dɛn bigin, ɛn if ɛnibɔdi na yu famili dɔn gɛt dis kayn sik.
2. Fɔ chɛk yu bɔdi ɛn yu nyurolɔjik: Dis go chɛk yu mɛmori, tink, balans, ɛn mɔsul trɛnk.
3. Dɛn kin ɔda difrɛn tɛst dɛn:
- Blɔd tɛst: Chɛk if dɛn sik ya na ɔda mɛrɛsin (e.g. we yu nɔ gɛt vaytamɛn, tayroyd prɔblɛm).
- Bren skan: Dɛn kin yuz CT ɔ MRI skan fɔ chɛk if ɔda prɔblɛm dɛn de, lɛk we pɔsin gɛt tumbu na in bren ɔ we i gɛt strok. Sɔm spɛshal kayn skan (SPECT, PET) kin gi infɔmeshɔn bak bɔt aw di bren de wok.
- Slip stɔdi: Dis kin ɛp fɔ kɔnfɔm if ɛni sayn de fɔ slip.
4. Fɔ aks fɔ ɛp frɔm spɛshal dɔktɔ dɛn:Fɔ aks fɔ ɛp frɔm dɔktɔ we de mɛn nyuro, dɔktɔ we de mɛn pipul dɛn we gɛt sik, ɔ dɔktɔ we de mɛn pipul dɛn we dɔn ol.
bay we dεn kכmbayn כl dis infכmeshכn, dכkta dεn kin kכnklud se dis na "probable LBD."
Yu tink se tritmɛnt de fɔ dis? Aw a go ebul fɔ kɔntrol di sayn dɛm?
Pan ɔl we dis kin tan lɛk se i sɔri, di tru tin na dat, no mɛrɛsin nɔ de fɔ LBD yet, ɛn no we nɔ de fɔ mek i nɔ divɛlɔp.
Bɔt nɔ mek dat mek yu at pwɛl! Bɔrku tritmɛnt ɛn we fɔ mɛn di sik de we kin kɔntrol di sik ɛn mek layf izi fɔ di pɔsin ɛn in famili.
Dɛn kin mek di tritmɛnt plan bay di sikman in sayn dɛm ɛn di stej we di sik de.
Di mɛrɛsin dɛn we dɛn kin yuz
Di dɔktɔ kin gi yu difrɛn mɛrɛsin dɛn fɔ kɔntrol difrɛn sayn dɛn.
- Impruv mεmכri εn tinkin: Mεdikeshכn dεm we dεn kכl `(Cholinesterase inhibitors)` (e.g. `rivastigmine`, `donepezil`) de εp sכm pipul dεm.
- Fɔ prɔblɛm wit muvmɛnt: Carbidopa-levodopa, we na wan mɛrɛsin we dɛn kin yuz fɔ mɛn di sik we dɛn kɔl Parkinson, kin ɛp fɔ mek pɔsin stif ɛn shek.
- Fɔ kɔntrol di hallucinations: Sɔntɛnde dɛn kin yuz antipsychotics. Bɔt bikɔs dɛn mɛrɛsin ya kin gɛt sayd ɛfɛkt pan pipul dɛn we gɛt LBD, dɔktɔ dɛn kin tek tɛm gi dɛn.
- Fɔ pwɛl hat: Dɛn mɛrɛsin wae de mek pɔrsin fil bad.
- Fɔ slip prɔblɛm: Mɛrɛsin lɛk `(Clonazepam)` ɛn `(melatonin)`.
Tɛrapi ɛn Sɔpɔt
Jɔs lɛk mɛrɛsin, dɛn tritmɛnt ya kin ɛp bak fɔ mek layf izi.
- Ɔkupeshɔn tɛrapi: I de ɛp yu fɔ du ɛvride wok (it, drɛs) fɔ yusɛf ɛn sef wan.
- Fizik tritmɛnt: I de ɛp fɔ mek di bɔdi gɛt trɛnk ɛn balans, fɔ mek i izi fɔ waka, ɛn fɔ mek i nɔ fɔdɔm.
- Spich therapy: I de ɛp fɔ mek yu nɔ ebul fɔ tɔk ɛn fɔ swɛla.
Apat frɔm ɔl dɛn tin ya, i rili impɔtant fɔ mek yu kɔntinyu fɔ du tin wit kol at ɛn ɔltɛm . Dis kin mek di pɔsin nɔr de wɔri ɛn nɔr kin rɛst.
Ustɛm i bɛtɛ fɔ go to dɔktɔ?
If yu ɔr sɔmbɔdi na yu famili, mɔr wan ol pɔrsin, bigin fɔ si tin dɛm wae nɔr de (hallucinations), wit ɛni chenj na yu mɛmori, waka, ɔr bihayvya, duya nɔr ignore am. Mek shɔ se yu go to dɔktɔ ɛn tɔk bɔt am.
If yu dɔn no se yu gɛt LBD, i impɔtant fɔ go to yu dɔktɔ fɔ mek dɛn chɛk yu ɔltɛm. If yu notis ɛni chenj na yu sik ɔr nyu sayn, yu fɔ tɛl yu dɔktɔ.
Tin dɛm fɔ no bɔt aw fɔ liv wit dis sik
Bikɔs dis sik kin go bifo, as tɛm de go, i kin at fɔ mek di pɔsin disayd fɔ insɛf ɛn du di wok dɛn we i fɔ du ɛvride. So, e fayn fɔ tɔk bɔt ɛn plan fɔ tumara bambay wae de pɔrsin stil gɛt maynd.
Na avrej, dɛn kin se pɔsin we gɛt LBD kin liv bitwin 5 ɛn 8 ia afta dɛn dɔn no se i gɛt am, bɔt dis kin difrɛn bad bad wan frɔm wan pɔsin to ɔda pɔsin. Sɔm pipul dɛn kin liv lɔng pas dat.
Fɔ liv wit dis sik na prɔblɛm fɔ di pɔsin ɛn di famili we de kia fɔ am. Bɔt mɛmba se nɔto yu wangren de. If yu gɛt di rayt mɛrɛsin, sɔpɔt, ɛn no, dis joyn kin izi.
Mɛsej we dɛn kin kɛr go na os
- Lewy Body Dementia (LBD) nɔr kin jɔs fɔgɛt tin. Na kɔmpleks tin wae kin afɛkt ɔltin frɔm mɛmori, muvmɛnt, slip, ɛn bihayvya.
- Halucination ɛn akt ɔut drim kin bi di men ɛn fɔs sayn dɛm fɔ dis sik.
- Pan ɔl we dɛn nɔ go ebul fɔ mɛn dis sik ɔltogɛda, bɔku mɛrɛsin ɛn tritmɛnt dɛn de we kin kɔntrol di sayn dɛm ɛn mek layf izi.
- If yu ɔr pɔrsin wae yu lɛk de sɔfa wit dɛn kayn sik ya, nɔr panik ɛn go to dɔktɔ kwik kwik wan. Di kwik we dɛn no di sik, na di mɔ i izi fɔ mɛn am.
- Sɔpɔt fɔ di pɔsin ɛn di wan dɛn we de kia fɔ am rili impɔtant. Fɔ mek yu gɛt kol at ɛn fɔ de du tin ɔltɛm, dat kin ɛp yu fɔ kɔntrol di sik dɛn we yu kin gɛt.
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