Sɔntɛnde yu kin fil taya bad bad wan, yu jɔyn dɛn kin at, ɛn yu finga dɛn kin swel? Sɔm dez yu kin gɛt skin rash, ɛn ɔda de dɛn yu kin fil smɔl fɔ blo. Dɛn sayn ya kin tan lɛk ɔda sik dɛm, so yu kin de wɔnda, "Wetin de apin to mi?" Yu nɔr kin shɔ if dis na wan sik ɔr na kɔmbayn sik. Tide wi go tɔk bɔt wan kɔndishɔn wae kin mek sɔm pan dɛn kayn sik ya kam togɛda, wae kin kɔmplikt smɔl, bɔt i impɔtant fɔ no bɔt. Dɛn kɔl dis Miks Kɔnɛktiv Tisu Diziz (MCTD).
Fɔ tɔk am simpul wan, wetin na MCTD?
MCTD na wan sik we nɔ kin apin ɔltɛm we di ɔtoimyun disɔda kin apin . Okay, so wetin na ɔtoimyun disɔda? Fɔ tɔk am simpul wan, wi gɛt wan imyun sistɛm na wi bɔdi. I tan lɛk ami na wi kɔntri. I wok na fɔ no ɛn atak ɛnimi dɛn lɛk jem, vayrɔs, ɛn baktri dɛm we de kam insay di bɔdi ɛn protɛkt wi frɔm sik. Bɔt sɔntɛnde, wi yon difens nɔ kin go fayn. insted fכ fכrin enimi, dεn de mistek wi כwn hεlty tisu εn sεl dεm fכ "enemi" εn bigin fכ atak dεm. Na dat wi kin kɔl ɔtoimyun sik.
Wetin kin apin na MCTD na dat di simptom dɛm fɔ tri big kɔnɛktiv tisu sik dɛn kin kam togɛda. Na dat mek dɛn kɔl am "miks." Di tri sik dɛm na:
- Systemic lupus erythematosus (SLE): Dis na di sik we wi kin kɔl "lupus" fɔ shɔt tɛm.
- Sklɛrodama: Dis kin bi mɔ we di skin de tik ɛn at.
- Polymyositis: Dis kin mek di mɔsul dɛn wik ɛn inflamɛns.
Apat frɔm dɛn tri men sik ya, sɔm pipul dɛn kin gɛt ɔda sik dɛn bak we gɛt fɔ du wit di kɔnektiv tisu, lɛk dɛmatomyositis , rεumatoid arthritis , ɔ Sjögren’s syndrome . Na dat mek dɔktɔ dɛn kin kɔl dis sik "Overlap Syndrome," ɔ wan sik we sɔm sik dɛn kin ɔvalap.
Wetin na di sayn dɛm fɔ MCTD?
Wan pan de big chalenj wit dis na wae de sik nɔr kin apia wan tɛm. Dɛn kin apia as tɛm de go, wan afta di ɔda wan. So i kin tranga smɔl fɔ no am as MCTD insay di fɔs stej dɛm. Lɛ wi tek wan luk pan de men sayn dɛm wae yu go si.
| Di sayn we de sho se di sik de | Simpul ɛksplen |
|---|---|
| Fɔ fil taya pasmak ɛn nɔ gɛt layf | Fɔ fil taya bad bad wan ivin we yu nɔ du natin. Fɔ fil lɛk fɔ de na bed ɔl di de. |
| Fiva we nɔ gɛt bɛtɛ gred | Ivin if yu nɔ gɛt ay fiva, yu kin fil lɛk se yu de gɛt ɔt frɔm insay yu bɔdi, ɛn yu bɔdi kin at. |
| Pen na di jɔyn ɛn mɔsul dɛn | Jɔyn dɛn kin at ɛn swel fɔ no patikyula rizin. Di mɔsul dɛn kin wik ɛn dɛn kin gɛt pen. |
| Di tin we Raynaud bin du | We yu put am na kol (e.g. na AC rum, pul sɔntin na frij), di blɔd we de flɔ to di finga dɛn, fut finga dɛn, nos, ɛn yes dɛn kin go dɔŋ, we kin mek dɛn nɔ gɛt layf, ɛn afta dat dɛn kin tɔn blu/pɔpul. We dɛn wam dɛn bak, dɛn kin tɔn rɛd ɛn kam bak to nɔmal. |
| Finga dɛn we ful-ɔp | Di finga dɛn tan lɛk sosish ɛn dɛn kin swel. Sɔntɛnde, dis kin go afta sɔm dez. Bɔt pan sɔm pipul dɛn, as tɛm de go, di skin na di finga dɛn kin stif, tan, ɛn i nɔ kin izi fɔ bɛn (sclerodactyly). |
| Skin rash we de kɔmɔt na di skin | Rɛd ɔ rɛd-brawn spat ɔ pat kin apia, mɔ na di nɛk. |
Aw MCTD kin fil we pɔsin de flay?
Pɔsin wae gɛt MCTD nɔr kin fil di sem ɔltɛm. Sɔmtɛm de sik kin stɔp ɛn nɔrmal. Bɔt ɔda tɛm dɛn, di sik kin wɔs wantɛm wantɛm. Wi de kol dis wan `flare-up`. Dɛn tɛm ya, yu sik kin wɔs smɔl.
- I kin gɛt bad bad pen ɛn swel na di jɔyn dɛn. Jɔs lɛk pɔsin we gɛt rεumatoid at, di jɔyn dɛn kin so stif ɛn pen so dat i nɔ kin ebul fɔ bɛn in finga dɛn na mɔnin.
- Di tin we Raynaud kin du kin rili bad. Ivin if yu kol smɔl, i kin mek di finga dɛn nɔ gɛt bɛtɛ trɛnk wantɛm wantɛm, nɔ gɛt layf, ɛn dɛn kin chenj dɛn kɔlɔ.
- Yu kin fil taya bad bad wan , lɛk se yu dɔn gɛt fiva fɔ sɔm dez, yu mɔsul dɛn kin at ɛn yu kin fil se yu wik tumɔs fɔ du ɛnitin.
Wetin kin mek pɔsin gɛt MCTD? Udat dɛn de pan denja pas ɔlman?
Infakt, di wan dɛn we de stɔdi bɔt dis nɔ dɔn fɛn yet di rayt tin we kin mek pɔsin gɛt MCTD. Nɔto sik we dɛn kin pas dairekt frɔm mama ɛn papa to pikin dɛn, we min se na frɔm in mama ɛn papa dɛn kin gɛt am. Bɔt dɛn dɔn si se if pɔsin na di famili gɛt ɔda kɔnektiv tisu sik, ɔda pipul dɛnsɛf kin gɛt dis sik smɔl.
Apat frɔm dat, a saspek se sɔm tin dɛn we de na do kin de inflɔws dis bak.
- Sɔm vayral infɛkshɔn dɛn .
- If yu gɛt sɔm kemikal dɛn , lɛk polivinyl klorayd ɛn silika.
Pan ɔl we dis sik kin kam pan ɛni ej, dɛn kin si am mɔ pan uman dɛn we ol bitwin 20 ɛn 30 ia .
Us kɔmplikɛshɔn dɛn kin apin bikɔs ɔf MCTD?
MCTD nɔto jɔs wan sik we de mek pɔsin gɛt jɔyn dɛn. If dɛn nɔ trit am, i kin pwɛl di impɔtant ɔgan dɛn ɛn mek i gɛt siriɔs prɔblɛm dɛn. So, i rili impɔtant fɔ mek wi no bɔt dis.
Mɛmba se nɔto ɔl dɛn prɔblɛm ya go apin to ɔlman we sik, bɔt i impɔtant fɔ no bɔt di prɔblɛm dɛn we kin apin.
Di men prɔblɛm dɛn we kin apin na:
- Pulmonary hypertension: Dis na di kɔmplikeshɔn we denja pas ɔl fɔ MCTD. Fɔ tɔk am simpul wan, na di prɛshɔn we de go ɔp na di blɔd vesel dɛn we de kɛr blɔd frɔm di at to di lɔng. Dis kin put bɔrku strɛs pan di at ɛn kin mek yu gɛt siriɔs prɔblɛm lɛk at pwɛl hat. Dis kɔndishɔn na di men tin we kin mek pipul dɛn we gɛt MCTD day.
- Intastitial lכng sik: Inflamεshכn εn skata na di lכng tisu, we kin mek i at fכ brith.
- At sik
- Kidni dɛn we dɔn pwɛl
- Di dijestiv trakt we dɔn pwɛl
- Anemia we nɔ gɛt bɛtɛ blɔd
- Tisu day (nɛkrɔsis) .
- I nɔ de yɛri fayn igen
Aw dɔktɔ dɛn kin no dis sik kɔrɛkt wan?
As wi bin dɔn tɔk bifo tɛm, di sayn dɛm fɔ MCTD kin apia wan afta di ɔda wan as tɛm de go, ɛn dis kin mek i nɔ izi fɔ dɔktɔ dɛm fɔ no if i gɛt am. I kin tek ia fɔ kɔnfɔm se na MCTD. Wan dɔktɔ de we spɛshal pan dɛn sik ya, we dɛn kɔl rεumatɔlɔjis . If yu gɛt dɛn sik ya, yu dɔktɔ go mɔs sɛn yu to wan pan dɛn spɛshal pipul ya.
fכ men tin dεm de we de εp fכ difrεnt MCTD frכm כda kכnektiv tisu sik dεm:
1. di hכy lεvεl fכ wan antibodi we dεn kכl anti-U1-RNP na di bכdi: dεn kin no dis wit spεshal bכdi tεst. Dis antibodi na spεsifi k to MCTD pasεnshכn dεm.
2. Nɔ gɛt siriɔs prɔblɛm wit di kidni ɛn sɛntral nɛvɔ sistɛm: Dɛn prɔblɛm ya kin apin na lupus (SLE). Bɔt dɛn nɔ kin bɔku na MCTD.
3. Prεsεns fכ siriכs at at εn pulmonari haypatεnshכn: Dis simptom dεm kin kכmכn pan MCTD pas na lupus כ sklerodama nכmכ.
4. Raynaud in fenomen ɛn finga swel: Pan ɔl we na 25% nɔmɔ pan di wan dɛn we gɛt lupus gɛt dɛn simptom ya, dɛn kin rili kɔmɔn pan di wan dɛn we gɛt MCTD.
Wetin na di tritmɛnt dɛm fɔ MCTD?
Fɔs, no mɛrɛsin nɔ de fɔ MCTD. Bɔt nɔ wɔri. Bɔrku tritmɛnt de wae kin ɛp yu fɔ kɔntrol yu sik, fɔ mek yu nɔr gɛt prɔblɛm, ɛn liv nɔrmal layf. Di tritmɛnt dipen pan di kayn sik wae yu gɛt, aw yu sik kin tranga, ɛn di ɔgan dɛm wae gɛt dis sik.
| Di kayn drɔg we dɛn kin yuz | Fɔnkshɔn ɛn yus |
|---|---|
| Kɔtikosterɔyd dɛn Eks: prɛdnisɔn | Dɛn tin ya de wok bay we dɛn de ridyus di inflamɛns na di bɔdi ɛn kɔntrol di imyun sistɛm in malfunction. Dɛn kin gi dɛn smɔl smɔl if di sik nɔr tranga, ɛn dɛn kin gi am pasmak if i bad. |
| Di mɛrɛsin dɛn we dɛn kin yuz fɔ fɛt malaria Fɔ ɛgzampul: haydroksiklɔrokin | Dɛn tin ya kin ɛp fɔ mek yu nɔ gɛt flawa ɛn kɔntrol di smɔl smɔl sik dɛn. |
| Di wan dɛn we de blok di chanɛl dɛn we gɛt kalsiɔm | Dɛn tin ya kin ɛp fɔ kɔntrol di tin we Raynaud kin du bay we dɛn kin rilaks di mɔsul dɛn we de na di wɔl dɛn na di blɔd vesel dɛn, ɛn dis kin mek di blɔd flɔ izi wan. |
| Ɔda tin dɛn we de mek pɔsin nɔ ebul fɔ fɛt di sik | If di men ɔgan dɛn lɛk di lɔng ɛn kidni dɛn dɔn pwɛl, i kin nid fɔ gi pawaful mɛrɛsin dɛn lɛk dɛn wan ya fɔ kɔntrol di we aw di imyun sistɛm de wok mɔ. |
| Di mɛrɛsin dɛn we de mek pɔsin nɔ gɛt ay blɔd | Dɛn tin ya impɔtant fɔ kɔntrol di pulmonari haypatɛyshɔn. |
Aw yu go tek kia ɔf yusɛf?
Apat frɔm we yu de tek di mɛrɛsin we yu dɔktɔ gi yu, if yu chenj smɔl smɔl na yu layf, dat kin mek i izi fɔ liv wit dis sik.
- Yuz pen kil: Fɔ smɔl pen ɛn inflamɛns, yu kin tɔk to yu dɔktɔ bɔt fɔ tek nɔ-stɛroyd anti-inflammatory drugs (NSAID) - lɛk ibuprofen - fɔ ɛgzampul. Bɔt nɔ ɛva yuz dɛn tin ya ɔltɛm if yu nɔ go to dɔktɔ .
- Protekt yu an frɔm di kol: Dis rili impɔtant if yu gɛt Raynaud in phenomenon. Wear glɔv pan kol de. Kip yu an dɛn wam we yu de na AC rum. Tek tɛm we yu de pul tin dɛn na frij.
- Nɔ smok kpatakpata: Smok kin mek di blɔd vesel dɛn kɔnstrikt mɔ, ɛn dis kin mek di tin we de apin to Raynaud wɔs.
- Ridyus strɛs: Strɛs na wan men tin we kin mek pɔsin gɛt Raynaud. So tray fɔ mek yu maynd kol bay we yu de du tin dɛn lɛk fɔ du ɛksɛsayz fɔ blo ɛn fɔ tink gud wan. If nid de, i go fayn bak fɔ mek yu go to pɔsin we de gi advays to pɔsin we de gi advays bɔt aw pɔsin de tink.
Liv wit MCTD fɔ lɔng tɛm
Bikɔs MCTD na sik we kin de fɔ lɔng tɛm, i impɔtant fɔ lan fɔ liv wit am. Ɛspɛshali we yu de tek mɛrɛsin lɛk kɔtikosterɔyd fɔ lɔng tɛm, sɔm sayd ɛfɛkt dɛn kin de.
- We di bon dɛn wik bikɔs ɔf ɔstioporosis.
- di tisu dεm we de day bikɔs di bכdi de dכn to di tisu dεm.
- Di mɔsul dɛn we wik.
- I izi fɔ gɛt infɛkshɔn.
Yu fɔ go to yu dɔktɔ di tɛm we dɛn dɔn sɛtul fɔ manej ɛn wach dɛn sayd ɛfɛkt ya. Fɔ fala di dɔktɔ in instrɔkshɔn dɛn di rayt we.
If uman we gɛt MCTD de plan fɔ bɔn pikin, i impɔtant fɔ tɔk to in dɔktɔ fɔs . Di sik kin wɔs we uman gɛt bɛlɛ. Dɔn bak, di pikin dɛn we mama dɛn we gɛt MCTD bɔn kin gɛt smɔl wet we dɛn bɔn dɛn.
Ustɛm a fɔ go to dɔktɔ?
If yu gɛt ɛni wan pan di sayn dɛn we wi dɔn tɔk bɔt na dis atikul, mɔ if dɛn de ambɔg yu ɛvride, yu fɔ rili go to dɔktɔ. If yu gɛt ɛni nyu jɔyn ɔ mɔsul pen, swel na yu finga dɛm, ɔ sayn dɛm fɔ `Raynaud's phenomenon`, go to dɔktɔ.
We yu go si dɔktɔ, yu kin aks dɛn kwɛstyɔn ya:
- Wetin na di kɔz fɔ mi sik dɛn?
- A gɛt pas wan kɔnɛktiv tisu sik?
- Us kayn tɛst dɛn a nid fɔ du?
- Wetin na di tritmɛnt fɔ mi sik?
- Wetin a go du fɔ mek di sik nɔ wɔs?
We yu de liv wit dis sik, yu kin wɔnda aw yu layf go tan lɛk insay 10 ia. Data sho se wit di rayt tritmɛnt, lɛk 80% pan di sik pipul dɛn kin liv at le 10 ia afta dɛn dɔn no se dɛn gɛt di sik. Bɔt na yu yon dɔktɔ nɔmɔ go ebul fɔ gi yu di bɛst ɛn kɔrɛkt tin bɔt dis. Bikɔs i kin dipen pan bɔku tin, lɛk di kayn we aw yu sik ɛn di ɔgan dɛn we i afɛkt.
Mɛsej we dɛn kin kɛr go na os
- MCTD na wan kɔmpleks ɔtoimyun sik we de kam togɛda wit sɔm ɔda sik dɛn lɛk lupus, sklerodama, ɛn polymyositis.
- Sɔm sayn dɛm we tan lɛk se nɔ gɛt natin fɔ du wit dɛnsɛf kin apin, lɛk we yu jɔyn dɛn kin pen, yu taya pasmak, yu finga dɛn kin swel, ɛn yu finga dɛn kin chenj kɔlɔ we kol (Raynaud’s).
- Pan ɔl we dɛn nɔ go ebul fɔ mɛn dis sik ɔltogɛda, fayn tritmɛnt dɛn de we go ebul fɔ kɔntrol di sayn dɛm, mek yu nɔ gɛt prɔblɛm, ɛn mek yu liv nɔmal layf.
- I impɔtant fɔ mek yu go to spɛshal dɔktɔ, lɛk dɔktɔ we de mɛn yu bɔdi fɔ ɛp yu fɔ no if yu gɛt di sik ɛn fɔ mek yu trit am.
- Fɔ go to dɔktɔ di rayt tɛm, fɔ avɔyd fɔ smok, fɔ protɛkt yusɛf frɔm di kol, ɛn fɔ kɔntrol strɛs na impɔtant tin fɔ mek yu ebul fɔ kɔntrol di sik.
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