Yu dɔktɔ kin dɔn tɛl yu ɔ sɔmbɔdi na yu famili se yu ɔ sɔmbɔdi na yu famili gɛt wan sik we dɛn kɔl `Mycosis Fungoides` ɔ `Sezary Syndrome`, ɛn yu nid fɔ bigin tek wan mɛrɛsin we dɛn kɔl `Mogamulizumab`. Na nɔmal tin fɔ mek yu fred smɔl ɛn fred we yu yɛri dis kayn strenj nem. Bɔt nɔ wɔri. Lɛ wi tɔk bɔt dis mɛrɛsin, wetin i de du, ɛn wetin yu nid fɔ tek tɛm wit we yu de tek dis tritmɛnt na simpul we we yu go ɔndastand.
Us kayn mɛrɛsin na Mogamulizumab?
Fɔ tɔk am simpul wan, `Mogamulizumab` na spɛshal drɔg we de insay di `monoclonal antibody` klas. I kin kam ɔnda di brand nem `POTELIGEO`. Okay, naw yu go probabli de wanda wetin dis `monoclonal antibody` bi.
Tink bɔt wi bɔdi in imyun sistɛm lɛk ami we de protɛkt wan kɔntri. Dis ami de fɛt jem ɛn vayrɔs dɛn we de mek pɔsin gɛt sik. Bɔt sɔntɛnde, di kansa sɛl dɛn kin ayd ɛn gro we dis ami nɔ kech dɛn. Wan drɔg lɛk `Mogamulizumab` de ɛp wi yon imyun sistɛm, tren am fɔ no dɛn kansa sɛl dɛn we ayd, atak dɛn, ɛn pwɛl dɛn. In ɔda wɔd, dis na we fɔ trit kansa bay we wi de yuz wi bɔdi in yon difens sistɛm.
Dɛn kin yuz dis mɛrɛsin mɔ fɔ mɛn non-Hodgkin lymphoma, we na wan kayn kansa we kin afɛkt di skin, ɛn bak fɔ mɛn mycosis fungoides ɛn Sezary syndrome.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin dis tritmɛnt
Bifo yu bigin dis tritmɛnt, i rili impɔtant fɔ tɛl yu dɔktɔ bɔt sɔm tin dɛn. Bikɔs da infɔmeshɔn de kin chenj di tritmɛnt we dɛn de gi yu, di doz we dɛn de gi yu, ɛn di we aw dɛn de wach yu. So if ɛni wan pan dɛn tin ya apin to yu, mek shɔ se yu tɛl yu dɔktɔ bɔt am.
- Prɔblɛm fɔ di imyun sistɛm: If yu gɛt ɔda sik dɛn we gɛt fɔ du wit di imyun sistɛm.
- Infɛkshɔn: If yu gɛt ɛni infɛkshɔn naw (fɔ ɛgzampul, Epatitis B vayrɔs).
- Liva sik: If yu gɛt ɛni sik we gɛt fɔ du wit liva.
- Lɔng ɔr yu nɔr kin ebul fɔ blo fayn: If yu gɛt lɔng sik ɔr yu nɔr kin ebul fɔ blo fayn.
- Stem-sɛl transplant: If yu dɔn du stem-sɛl transplant frɔm ɔda pɔsin (dona), ɔ yu de plan fɔ du wan tumara bambay.
- Alɛji: If yu gɛt alɛji fɔ Mogamulizumab, ɛni ɔda mɛrɛsin, it, tin dɛn we de mek yu nɔ pwɛl, ɔ day.
- Bɛlɛ: If yu gɛt bɛlɛ, yu de tray fɔ gɛt bɛlɛ, ɔ yu ivin tink smɔl se yu gɛt bɛlɛ.
- Fɔ gi pikin in bɛlɛ: If yu na mama we de gi pikin in bɛlɛ.
I rili impɔtant fɔ yu yon sef fɔ tɔk dɛn tin ya ɛn nɔ ayd dɛn.
Aw yu kin gɛt di mɛrɛsin ɛn ɔda tin dɛn?
Dis mɛrɛsin nɔto sɔntin we yu kin yuz na os. na injεkshכn (wan `infushכn`) we dεn de gi insay di bכdi tru wan vein. So, na ɔspitul ɔ klinik na pɔsin we tren fɔ mɛn pipul dɛn kin gi am.
Di tin we impɔtant pas ɔl na fɔ nɔ mis di de ɛn di tɛm we yu fɔ tek yu mɛrɛsin. If fɔ sɔm rizin yu nɔ ebul fɔ kam da tɛm de, kɔl yu dɔktɔ ɔ klinik wantɛm wantɛm ɛn mek dɛn no.
Wetin fɔ du if yu tek bɔku mɛrɛsin?
Dis na mɛrɛsin we dɛn kin gi na ɔspitul, so di chans fɔ mek dis apin nɔ kin bɔku. Bɔt if yu tink se yu dɔn tek di mɛrɛsin pasmak, ripɔt am wantɛm wantɛm to di ɔspitul in Imejɛnsi Tritmɛnt Yunit (ETU) . Yu kin kɔl bak di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital fɔ advays if nid de.
I kin miks wit ɔda mɛrɛsin dɛn?
Dɛn nɔr dɔn stɔdi dis mɛrɛsin gud gud wan fɔ si aw i kin miks wit ɔda mɛrɛsin dɛn. So, gi yu dɔktɔ wan kɔmplit list fɔ ɔl di mɛrɛsin dɛn we yu de tek (inklud di mɛrɛsin dɛn we dɛn kin gi yu ɛn di mɛrɛsin dɛn we yu kin bay, we dɛn kin yuz ɛbul, ɛn vaytamɛn dɛn) . Dɔn bak, tɛl yu dɔktɔ if yu de smok ɔ drink rɔm.
Tin dɛn we yu fɔ tink bɔt we yu de du tritmɛnt
Di mɛdikal tim go wach yu gud gud wan ɔl di tɛm we yu de tek dis mɛrɛsin.
- Alɛji: Dis mɛrɛsin kin mek sɔm pipul dɛn gɛt siriɔs alɛji. Fɔ ridyus dis risk, yu dɔktɔ kin disayd fɔ gi yu ɔda mɛrɛsin (lɛk piritan) bifo i gi yu di `Mogamulizumab` vaysin. So fala yu dɔktɔ in instrɔkshɔn dɛn di rayt we.
- Bɛlɛ: Dis rili impɔtant . Nɔ gɛt bɛlɛ fɔ ɛni rizin we yu de tek dis mɛrɛsin, ɛn fɔ 3 mɔnt afta yu dɔn stɔp di mɛrɛsin . Dis mɛrɛsin kin ambɔg di pikin we nɔ bɔn yet bad bad wan. If yu de plan fɔ gɛt bɛlɛ, tɔk to yu dɔktɔ bɔt am ɛn gɛt advays bɔt di tɛm we sef.
Wetin na di sayd ɛfɛkt dɛn we di mɛrɛsin kin gɛt?
Lɛk ɛni mɛrɛsin, dis mɛrɛsin kin mek sɔm bad bad tin dɛn apin. Nɔto ɔlman kin gɛt dɛn. Bɔt i impɔtant fɔ no bɔt dɛn. Lɛ wi sheb dɛn to tu kategori.
| Sayd ɛfɛkt we pɔsin kin gɛt | Tɔk bɔt |
|---|---|
| Sayd ɛfɛkt dɛn we yu fɔ ripɔt to yu dɔktɔ ɔ nɔs wantɛm wantɛm | |
| Siriɔs alɛji riakshɔn dɛn | Skin rash, it, swel na di fes, lip ɔ tong. |
| I nɔ kin izi fɔ yu fɔ blo | I nɔ izi fɔ blo, yu kin fil se yu chɛst tayt. |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva, kol, kɔf, trot we de at, pen we yu de pis. |
| Siriɔs chenj dɛn na di skin | Skin de rεd, blista, pεl (ivin insay di mכt). |
| Ɔda siriɔs sayn dɛn | Bɛlɛ kramp bad bad wan, dayarɛa, diziz, flush, taya pasmak. |
| Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Bɔdi pen | Bak pen, bon pen, mɔsul pen. |
| Sɔl dɛn na yu mɔt | Smɔl smɔl sɔri dɛn we de insay di mɔt. |
If yu gɛt ɛni ɔda kayn sik we nɔ kɔmɔn we dɛn nɔ tɔk bɔt na dis list, duya tɛl yu dɔktɔ bɔt dɛn bak.
Mɛsej we dɛn kin kɛr go na os
- Mogamulizumab na spɛshal mɛrɛsin we de ɛp wi yon imyun sistɛm fɔ trit sɔm kayn kansa na di skin.
- Bifo yu bigin fɔ trit yu, tɛl yu dɔktɔ bɔt ɔl yu mɛrɛsin ɛn di mɛrɛsin dɛn we yu de tek.
- Ripɔt ɛni sayd ɛfɛkt we di mɛrɛsin kin gɛt, mɔ we yu gɛt alɛji, fiva, ɔ we yu skin chenj, to di mɛdikal tim wantɛm wantɛm.
- Nɔ gɛt bɛlɛ we yu de tek dis mɛrɛsin ɛn fɔ 3 mɔnt afta yu dɔn stɔp. Dis rili impɔtant.
- Tɔk wit yu dɔktɔ opin wan bɔt ɛni kwɛstyɔn, wɔri, ɔ fred we yu gɛt. Dɛn de de fɔ ɛp yu.
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