Sɔntɛnde, yu kin fil taya, yu nɔ kin blo fayn, ɔ yu leg dɛn kin swel? Bɔku tɛm wi kin fɔgɛt bɔt dɛn sik ya, ɛn tink se na jɔs nɔmal taya ɔ sɔntin we kin apin we wi de wok tranga wan. Bɔt sɔmtɛm, biɛn dɛn sayn ya, wan at sik kin de wae nɔr kin bɔrku ɛn nɔr kin bɔrku. Dat na wan pan di sik dɛm we wi go tɔk bɔt tide, dat na Restrictive Cardiomyopathy (RCM) . Nɔ wɔri, wi go tɔk bɔt dis simpul wan ɛn di we we yu go ɔndastand.
Fɔ tɔk am simpul wan, wetin na Restrictive Cardiomyopathy?
Dis nem kin tan lɛk se i kɔmplikt smɔl, bɔt lɛ wi brok am simpul wan ɛn ɔndastand am.
Wi at na wan wɔndaful ɔgan. I gɛt 4 men chɛmba dɛn. di tu chεmba dεm we de כp dεn kכl dεm di atria , εn di tu big, strכng chεmba dεm we de dכn kכl dεm di vεntrikl dεm . Di tu chɛmba dɛn we de dɔŋ de du di men wok fɔ pɔmp blɔd ɔlsay na wi bɔdi. Fɔ mek dis wok wok fayn, dɛn nid fɔ strɛch di mɔsul dɛn we de na di chɛmba dɛn tayt, ful-ɔp wit blɔd, dɔn dɛn fɔ kɔntrakt dɛn wit pawa fɔ push di blɔd fɔ go bifo.
Imajin wan brand nyu rɔba bɔl. Aw i kin chenj chenj? Na so di sɛl dɛn na di at we gɛt wɛlbɔdi fɔ bi. Dɛn fɔ swel fayn fayn wan we blɔd kam insay, tek di blɔd insay, dɔn dɛn fɔ kɔntrakt fayn fayn wan we dɛn nid fɔ pɔmp am kɔmɔt.
Insay wan sik we dɛn kɔl Restrictive Cardiomyopathy , di mɔsul wɔl dɛn na dɛn sɛl ya kin stif . Lɛk wan ol rɔba we dɛn dɔn dray wit di san. Bikɔs di sɛl dɛn stif dis kayn we, di sɛl dɛn nɔ kin ebul fɔ strɛch fayn ɛn ful-ɔp wit blɔd. Dis min se dɛn nɔ kin ebul fɔ tek di blɔd we kin kam insay di at. We di bכdi we de kam insay di at dכn dכn, di bכdi we dεn de pכmp na di bכdi de dכn bak. Dis na di men prɔblɛm fɔ dis sik.
Dis sik de pan di grup we gɛt at mɔsul sik dɛn we dɛn kɔl Cardiomyopathy . Bɔt dɛn kin tek am se na di kayn we we nɔ bɔku pan dɛn. Na lɛk 5% nɔmɔ pan ɔl di wan dɛn we gɛt Kadiomayopathy de sɔfa wit dis kɔndishɔn.
Aw dis sik kin mek yu fil? (Sayn dɛn)
We dis sik bigin, yu nɔr kin gɛt ɛni sayn. Bɔt as tɛm de go, as di blɔd we de go na di at de go dɔŋ, di sayn dɛn we de sho se di at nɔ de wok fayn kin bigin fɔ sho. Dɛn tin ya kin apin wan bay wan ɔ bɔku wan wan tɛm.
Lɛ wi si wetin na dɛn sayn dɛn de na di tebul we de dɔŋ ya.
| Di sayn we de sho se di sik de | Wan simpul ɛksplen |
|---|---|
| I nɔ izi fɔ blo (Dyspnea) . | Yu kin fil smɔl fɔ blo, mɔ we yu de du layt wok, waka, ɔ ledɔm. dis kin bi we wata we de kכmכt na di lכng dεm we di at nכ ebul fכ pכmp blכd fayn fayn wan. |
| Swel na di leg, ankles, ɛn fut (Edima) . | biכs fכ di wik we di at in pכmp akshכn, wata de bigin fכ kכmכt na di lכw pat dεm na di bכdi. I kin mek bak pɔsin blo. |
| Taya pasmak ɛn taya (Fatigue) . | Di blɔd we de gi di bɔdi in ɔgan dɛn di ɔksijɛn ɛn di tin dɛn we dɛn nid kin go dɔŋ, so yu kin fil taya ɔltɛm ɛn yu nɔ kin ebul fɔ du ɛnitin. |
| Di we aw pɔsin de blo | Yu kin fil lɛk se yu at de bit wantɛm wantɛm, yu chɛst de bit, ɔ yu kin fil lɛk se yu nɔ de bit. |
| Diziz ɔ Faint | Dis sik kin kam bikɔs di blɔd nɔ de go na di bren, mɔ we pɔsin tinap wantɛm wantɛm. |
| Chɛst de pen | Chɛst kin tayt ɔ pen we yu de du ɛksɛsayz ɔ we yu de rɛst. |
De impɔtant tin na dat, dɛn kin si dɛn sik ya bak pan bɔku ɔda mɛrɛsin dɛn. So if yu gɛt wan ɔ mɔ pan dɛn tin ya, di bɛst tin fɔ du na fɔ nɔ panik ɛn go to dɔktɔ fɔ advays.
Wetin mek dis kin apin? (Rizin dɛn)
Bɔrku tɛm, Restrictive Cardiomyopathy kin apin as sayd ɛfɛkt fɔ ɔda mɛdikal kɔndishɔn. Dat min se ɔda sik kin pwɛl di at mɔsul ɛn mek i stif. Sɔntɛnde, dɛn nɔ kin ebul fɔ fɛn ɛni patikyula rizin.
Dis na sɔm pan di men rizin dɛn:
- Amyloidosis: Dis na we wan abnכmal protin we di bכdi de mek (amyloid) de put insay difrεn כgan dεm, inklud di at. we dis protin de put insay di at, di wכl dεm na di at mכsul kin tik εn stif.
- Sarcoidosis: Dis na di kכndyushכn we sכm sכm sכm inflammatory sεl dεm (granulomas) de fכm na difrεn pat dεm na di bכdi. We dɛn tin ya fɔm na di at, dɛn kin pwɛl di at mɔsul ɛn mek i stif.
- εmokromatosis: Dis na kכndyushכn we di bכdi de gεt bכku ayron, we kin kכmכt na כgan dεm lεk di at. Dis kin pwɛl di at bak.
- Kɔnεktiv tisu sik dεm: Kכndishכn dεm lεk sklεrodama kin mek di at mכsul dεm stif bak.
- Sɔm tritmɛnt dɛn fɔ kansa: Sɔm mɛrɛsin dɛn we de agens kansa (kimotɛrapi) ɛn redyushɔn tɛrapi kin mek di at mɔsul pwɛl bak as sayd ɛfɛkt.
Aw dɔktɔ kin fɛn dis?
We yu tɛl yu dɔktɔ bɔt yu sik, di fɔs tin we i go du na fɔ tek tɛm chɛk yu. Dɛn go lisin to yu at, mɛzhɔ yu blɔd prɛshɔn, ɛn chɛk fɔ si if yu leg dɛn dɔn swel.
Dɔn, dɛn kin se dɛn fɔ du bɔku tɛst fɔ no if dɛn no di sik ɛn fɔ no wetin mek i gɛt am.
| Tɛst | Wetin dɛn de op fɔ frɔm dis? |
|---|---|
| Ekokardiogram we dɛn kin du | Dis na di tɛst we impɔtant pas ɔl. I tan lɛk we dɛn de du ɔltra saund skan na di at. I kin si klia wan if di at in chɛmba dɛn de ful-ɔp wit blɔd fayn fayn wan ɛn if dɛn wɔl tik ɔ stif. |
| Blɔd ɛn urine tɛst | Dɛn tin ya kin ɛp fɔ no di tin we mek i apin. Fɔ ɛgzampul, dɛn kin yuz blɔd tɛst fɔ chɛk fɔ si if pɔsin gɛt wan sik lɛk ɛmokromatosis. |
| Chɛst X-ray, Kadyak CT, At MRI | Dɛn kayn skan ya kin gi mɔ dip infɔmeshɔn bɔt di sayz, shep, ɛn di we aw di at tan. |
| Mayokardial Bayopsi we dɛn kin du | Sɔntɛnde, dɛn kin tek wan rili smɔl pat pan di at mɔsul ɛn chɛk am wit maykroskɔp. dis rili imכtant fכ kכnfכm di εksakכt kכz, lεk amyloidosis כ sarcoidosis. |
| Ɔda tɛst dɛn | Dɛn kin du tɛst dɛn lɛk ECG (Electrocardiogram) ɛn Exercise Stress Test bak as nid de. |
Wetin na di tritmɛnt dɛm fɔ dis?
No patikyula tritmɛnt nɔ de fɔ Restrictive Cardiomyopathy. Tu men gol dɛn de fɔ tritmɛnt:
1. Fɔ trit di ɔndalayn sik we mek dis sik.
2. Kɔntrol di sayn dɛm we dɔn de ɛn mek layf izi.
Fɔ ɛgzampul:
- If dis sik na sarcoidosis , dɛn kin gi am mɛrɛsin lɛk kɔtikosterɔyd fɔ am.
- If na bikɔs ɔf ɛmokromatosis (ayɔn ɔvalɔd), dɛn kin du wan tritmɛnt we dɛn kɔl therapeutic phlebotomy fɔ pul sɔm blɔd fɔ pul di ayron we pasmak na di bɔdi.
- Naw nyu mɛrɛsin dɛn de fɔ sɔm kayn amyloidosis .
Apat frɔm dat, yu dɔktɔ kin tɛl yu fɔ ɛp yu fɔ kɔntrol di sayn dɛn we de sho se yu at pwɛl:
- Diuretics: Dɛn kin kɔl dɛn tin ya ‘wata pills’. Dɛn kin ɛp di bɔdi fɔ pul di wata we pasmak tru di urine, we kin ɛp fɔ mek di leg dɛn nɔ swel ɛn nɔ blo shɔt.
- Mεdikeshכn dεm we de kכntrol yu at rεt: If yu at bit nכ de bit, dεn kin gi yu mεdikeshכ n lεk beta-bl כk כ kalsiכm chanεl blכk fכ kכntrכl am.
- Blɔd prɛshɔn mɛrɛsin dɛn.
Sɔm pasɛnt dɛn we gɛt dis sik we rili bad kin nid fɔ transplant dɛn at . Dɔktɔ dɛn kin se bak fɔ kia fɔ di pɔsin we sik , we kin ɛp di pɔsin fɔ fil fayn ɛn nɔ kin mek i nɔ fil fayn bikɔs i gɛt di sik.
Aw wi go gɛt wɛlbɔdi wit dis tin we de apin?
Na nɔmal tin fɔ fil fɔ fred we yu kam fɔ no se yu gɛt dis sik. Bɔt if yu tek di rayt tritmɛnt ɛn chenj smɔl smɔl na yu layf, yu go ebul fɔ ridyus di lod we de pan yu at ɛn liv bɛtɛ layf.
Di we aw pipul dɛn de liv dɛn layf kin chenj
- Sɔl kɔntrol: Ridyus di sɔl we yu de ad to yu it. Sɔl kin mek wata kɔntinyu fɔ de na di bɔdi, we kin mek i swel ɛn i nɔ kin izi fɔ blo. Di it dɛn we dɛn kin put insay tin, sos we dɛn kin bay na stɔ, ɛn sosish kin gɛt bɔku sɔl.
- It fayn it: It mɔ fresh vɛjitebul, frut, ɛn it dɛn we gɛt fayv. Ridyus animal fat, swit, ɛn tin dɛn we dɛn mek wit flawa.
- Ɛksesaiz: Aks yu dɔktɔ us kayn ɛksesaiz we fayn fɔ yu. Sɔntɛm i nɔ fayn fɔ du ɛksɛsayz we yu de tray tranga wan, bɔt bɔku tɛm i kin fayn fɔ du ɛksɛsayz we yu nɔ gɛt bɛtɛ trɛnk lɛk fɔ waka.
- Ridyus strɛs: Stret nɔr fayn fɔ di at. Rilaks yu maynd wit tin dɛn lɛk fɔ tink gud wan, fɔ ɛksesaiz fɔ blo, ɛn fɔ du sɔntin we yu lɛk fɔ du.
Mɛmba ɔltɛm fɔ fala yu dɔktɔ in instrɔkshɔn dɛn di rayt we. Tek yu mɛrɛsin di rayt tɛm. If yu gɛt ɛnitin we de mɔna yu, nɔ ɛva fred fɔ tɔk to yu dɔktɔ.
Ustɛm yu nid fɔ go to dɔktɔ kwik kwik wan?
If yu gɛt Restrictive Cardiomyopathy, sɔm sayn dɛn de we yu fɔ no mɔ bɔt. Dɛn tin ya kin bi imejensi.
If yu gɛt ɛni wan pan dɛn sik ya, go na di ɔspitul Imejɛnsi Dipatmɛnt (ETU) we de nia yu wantɛm wantɛm:
- I kin pen bad bad wan ɔ wantɛm wantɛm na in chɛst
- Wantɛm wantɛm, i nɔ kin izi fɔ yu fɔ blo
- Faint ɔr nɔr de no natin
Dɛn tin ya kin bi sayn fɔ siriɔs strɛs pan di at, so fɔ go fɔ tritmɛnt ɛn nɔ west tɛm kin sev yu layf.
Mɛsej we dɛn kin kɛr go na os
- Restrictive Cardiomyopathy na wan sik we nɔ kin apin so ɔltɛm we di mɔsul dɛn na di ɔda chɛmba dɛn (chambers) na di at kin stif ɛn nɔ kin ebul fɔ ful-ɔp wit blɔd fayn fayn wan.
- I nɔ izi fɔ blo, yu leg dɛn kin swel, yu taya pasmak, ɛn yu at nɔ kin bit ɔltɛm na sɔm pan di men sayn dɛm.
- Bɔrku tɛm, de kɔz fɔ dis sik na ɔda mɛrɛsin lɛk Amyloidosis ɔ Sarcoidosis.
- Di tritmɛnt na fɔ kɔntrol di sayn dɛm we dɛn de trit di kɔz.
- Yu kin liv fayn layf bay we yu fala di it dɛn we nɔ gɛt bɔku sɔl, du ɛksɛsayz lɛk aw yu dɔktɔ tɛl yu fɔ du, ɛn tek di mɛrɛsin dɛn we yu dɔn tɛl yu fɔ du di rayt tɛm.
- If yu gɛt siriɔs pen na yu chɛst, i nɔ izi fɔ yu fɔ blo, ɔ yu fɔdɔm, go na ɔspitul in Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm.
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