Yu dɔktɔ dɔn gi yu ɔ sɔmbɔdi na yu famili, sɔntɛm yu pikin, wan mɛrɛsin we dɛn kɔl Sodium Phenylbutyrate? Di nem kɔmplikt smɔl, so yu kin kɔnfyus smɔl ɛn want fɔ no wetin na dis mɛrɛsin. Nɔ fred ɛnitin. Insay dis atikul, wi go tɔk rili simpul ɛn fayn bɔt wetin dis mɛrɛsin de fɔ, aw fɔ yuz am, ɛn wetin wi nid fɔ tek tɛm.
Wetin kin rili apin wit dis mɛrɛsin?
Fɔ tɔk am simpul wan, dɛn kin yuz dis mɛrɛsin we dɛn kɔl sodium phenylbutyrate fɔ mɛn tin dɛn we dɛn kɔl yuria saykl dizayd (UCD) .
Imajin, afta wi dɔn dayjɛst di it dɛn we gɛt bɔku prɔtin we wi de it, wan dɔti we dɛn kɔl amonia de kɔmɔt na wi bɔdi. pan hεlty pכsin, di bכdi gεt wan prכsεs we de kכnvכlt dis amonia to wan tin we nכ de du bad we dεn kכl yuria εn i de kכmכt na di urine. Dis na wetin wi kɔl di yuria saykl. Bɔt pan pɔsin we gɛt yuria saykl disɔda (UCD), dɛn nɔ kin du dis fayn fayn wan. Wetin kin apin na dat di denja amonia kin gɛda na di bɔdi, mɔ na di blɔd. Dis kin rili ambɔg di bren ɛn di nervɔs sistɛm.
Dis na di say we wan mɛrɛsin we dɛn kɔl sodium phenylbutyrate de kam insay.Dis drɔg de wok bay we i de ridyus di bad bad amonia we de bɔku na di bɔdi, we de ridyus di risk fɔ gɛt siriɔs wɛlbɔdi prɔblɛm.
Di tin we impɔtant pas ɔl: Dis nɔto mɛrɛsin fɔ di sik. Bɔt dis mɛrɛsin kin ɛp fɔ kɔntrol di sik ɛn liv fayn layf.
Tin dɛn fɔ tɛl yu dɔktɔ bifo yu tek mɛrɛsin
I impɔtant fɔ mek yu dɔktɔ no bɔt yu kɔmplit wɛlbɔdi biznɛs bifo yu gi yu dis mɛrɛsin. If yu gɛt ɛni wan pan di sik dɛn we de dɔŋ ya, mek shɔ se yu tɛl yu dɔktɔ bɔt am.
- If yu gɛt dayabitis.
- If yu de fala di it we nɔ gɛt bɔku sɔl.
- If yu gɛt at prɔblɛm.
- If yu gɛt sik na yu kidni.
- If yu gɛt smɔl potashɔm lɛvɛl na yu blɔd.
- If yu gɛt liva sik.
- If yu leg, yu anklɛ, ɔ yu an dɛn de swel.
- If yu bin dɔn gɛt alɛji fɔ dis mɛrɛsin ɔ ɛni ɔda mɛrɛsin, it, ɔ day.
- If yu gɛt bɛlɛ ɔ yu de op fɔ gɛt bɛlɛ.
- If yu na mama we de gi pikin in bɛlɛ.
Bay dis infɔmeshɔn, di dɔktɔ go mek di tritmɛnt plan we go fayn fɔ yu.
Aw a fɔ yuz dis mɛrɛsin?
Dis na mɛrɛsin we kin kam insay di fɔm fɔ granul. So, i rili impɔtant fɔ mek wi ɔndastand gud gud wan aw fɔ yuz am.
- Kɔrɛkt doz: Ɔltɛm tek di doz nɔmɔ we yu dɔktɔ tɛl yu fɔ tek. Wan spɛshal spun de we dɛn mek fɔ mɛzhɔ dis mɛrɛsin. Yuz am. Nɔ mɛzhɔ wit ti spɔnj dɛn we yu kin yuz na os, bikɔs dɛn nɔ kɔrɛkt.
- Tɛm fɔ tek am: Gɛt di abit fɔ tek di mɛrɛsin di sem tɛm ɛvride.
- Aw fɔ tek: Yu kin drink dis paoda we dɛn miks am dairekt wit wata, frut jus, ɔ pikin fɔmula we nɔ gɛt prɔtin. Ɔda we de fɔ du dat, yu kin miks wan ti spɔnj pan am to saf it lɛk apul sos.
- I rili impɔtant: Swɛla di mɛrɛsin jɔs afta i miks. Nɔ chew di mɛrɛsin paoda ɔ di it we dɛn miks wit di mɛrɛsin.
- Di it: Dɛn kin gi dis mɛrɛsin wit spɛshal it we nɔ gɛt bɔku prɔtin . Yu dɔktɔ kin tɛl yu bak fɔ tek vaytamɛn ɔ ɔda tin dɛn we de ɛp yu fɔ it. Fɔ fala dɛn instrɔkshɔn dɛn de jɔs.
- Fɔ pikin dɛn: If yu de gi pikin dis mɛrɛsin, fala yu dɔktɔ in instrɔkshɔn dɛn fayn fayn wan. Sɔntɛm spɛshal tin dɛn de fɔ tek tɛm wit.
Wetin fɔ du if yu tek wan doz pasmak ɔ yu fɔgɛt fɔ tek wan doz?
Ovadosage
If yu tink se yu dɔn tek bɔku mɛrɛsin, nɔ delay. Go na di ɔspitul we de nia yu Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm. Ɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital fɔ advays.
If yu mis wan doz fɔ mɛrɛsin (Missed Dose) .
If yu fɔgɛt fɔ tek wan doz, tek am jɔs lɛk aw yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz, skip di doz we yu mis ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek dabl doz.
Sɔm sayd ɛfɛkt dɛn we dis mɛrɛsin kin gɛt
Lɛk ɛni mɛrɛsin, dis wan kin gɛt sɔm bad bad tin dɛn. Nɔ wɔri, nɔto ɔlman go gɛt dɛn. Bɔt i impɔtant fɔ no bɔt dɛn.
| Sayd ɛfɛkt we pɔsin kin gɛt | Tɔk bɔt |
|---|---|
| 🚨 If yu gɛt dɛn sik ya, tɛl yu dɔktɔ wantɛm wantɛm. | |
| Alɛji Riakshɔn dɛn | Skin rash, it, swel na di fes, lip, tong ɔ trot. |
| Prɔblɛm dɛn we de na di nervɔs sistɛm | Diziz, nɔ de balans we yu de waka, kɔnfyushɔn, i nɔ izi fɔ tɔk. |
| di potashכm lεvεl dεm we dεn dכn dכn | Mɔsul dɛn de pen ɔ stif, wik we nɔ kɔmɔn, at bit fast ɔ nɔ de bit ɔltɛm, kɔnstipɛshɔn. |
| Di bɔdi we de swel | Di anklɛ, an, ɔ fut kin swel. |
| 🙂 If dɛn sik ya de kɔntinyu ɔ de mɔna yu, tɛl yu dɔktɔ. | |
| Di bɔdi we de smɛl | Di mɛrɛsin kin mek yu bɔdi smɛl difrɛn frɔm aw i kin smɛl. |
| Chenj in teist | Fɔd kin te difrɛn we. |
| Fɔ uman dɛn | Menstrual saykl we nɔ de ɔltɛm ɔ we yu de gɛt spat. |
| Fil fɔ it | Di want fɔ it we nɔ de igen. |
Mɔ tin dɛn fɔ no
Ɔda mɛrɛsin dɛm wae kin miks wit dis mɛrɛsin
Ɔda mɛrɛsin dɛm wae yu kin de tek kin intarakt wit dis mɛrɛsin, mɔr lɛk:
- Halopɛridɔl we dɛn kɔl
- Probenecid we dɛn kɔl Probenecid
- Steroid mɛrɛsin dɛn lɛk Prednisone ɔ Cortisone
- Valproik asid we dɛn kɔl
Dis list nɔ kɔmplit. So tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek, lɛk vaytamɛn dɛn, ɛbul mɛrɛsin dɛn, ɛn sɔpɔtmɛnt dɛn .
Di we aw dɛn kin kip ɛn trowe mɛrɛsin
- Di say we dɛn de kip am: Kip am usay pikin ɛn animal dɛn we yu lɛk nɔ go ebul fɔ rich. Stɔr na rum tɛmpracha (20-25 sɛlshiɔs) fa frɔm mɔstɔ, ɛn kip di bɔtul tayt tayt wan. Trowe ɛni mɛrɛsin we lɛf 45 dez afta yu opin di bɔtul.
- Aw fɔ trowe am: Dɛn fɔ trowe di mɛrɛsin dɛn we dɛn nɔ yuz ɔ we dɔn pas fayn fayn wan. I bɛtɛ fɔ aks yu dɔktɔ bɔt dis. If yu de trowe dɛn na dɔti, miks di mɛrɛsin wit sɔntin lɛk kɔfi grɔn ɔ dɔti ɛn put am insay bag we dɛn tay tayt.
We yu de tek dis mɛrɛsin, yu dɔktɔ go ɔda fɔ du blɔd tɛst fɔ chɛk yu blɔd amonia lɛvɛl ɛn ɔda tin dɛn. I rili impɔtant fɔ mek dɛn du dɛn tɛst ya kɔrɛkt wan.
Mɛsej we dɛn kin kɛr go na os
- Sodium phenylbutyrate na spɛshal mɛrɛsin we dɛn fɔ yuz ɔnda dɔktɔ in advays nɔmɔ. Nɔ ɛva sheb am wit ɔda pipul dɛn.
- Fɔ mek dis mɛrɛsin go wok fayn, yu fɔ fala di it we dɛn tɛl yu fɔ it we nɔ gɛt bɔku prɔtin.
- We yu bigin fɔ tek di mɛrɛsin, tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn we yu de yuz.
- Yu fɔ no bɔt ɛni siriɔs sayd ɛfɛkt (espɛshali alɛji, diziz, swel). If ɛni wan pan dɛn tin ya apin, go to dɔktɔ wantɛm wantɛm.
- If yu mis wan doz, nɔ ɛva tek tu doz wan tɛm.
- If yu gɛt ɛni kwɛstyɔn bɔt dis mɛrɛsin, nɔ fred fɔ aks yu dɔktɔ.
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