Yu smɔl pikin gɛt cleft palata? (Submucous Cleft Palate) - Lɛ wi tɔk bɔt dis!

yu pikin kin gεt milk we de kכmכt na in nos sכmtεm we i de gi in bεlε? Ɔ i kin gɛt ia pen bɔku tɛm? Yu tink se i nɔ kin izi fɔ am fɔ kɔl sɔm wɔd dɛn? pan ɔl we dɛn tin ya na tin dɛn we sɔm tɛm dɛn nɔ kin pe atɛnshɔn to, sɔm tɛm dis kin bi bikɔs ɔf wan sik we dɛn kɔl Submucous Cleft Palate (SMCP) . Una nɔ wɔri, mama ɛn papa, wi go tɔk bɔt dis simpul wan, insay wan we we una go ɔndastand.

Wetin na di Sabmyukɔs Klɛft Palat (SMCP)?

Fɔ tɔk am simpul wan, Submucous Cleft Palate (SMCP) na wan cleft we de na di ruf na di mɔt. Bɔt i nɔ tan lɛk nɔmal kleft palata. di wכd "sכbmכkus" min "כnda di mכkus mεmbran." Di ruf na yu mɔt we dɛn kɔl palata , gɛt tu pat. Di had palata na di frɔnt ɛn di saf palata na di bak. insay SMCP, di mכsul dεm na di sכft palata, we de כnda di tכn mεmbran we de pan tap di ruf, nכ de kam togεda fayn fayn wan. dis kin apin di tεm we di pikin de divεlכp we di pikin de insay di bεlε.

Tink bɔt am lɛk se dɛn de kɔba sɔntin wit klos, bɔt sɔntin nɔ tay fayn ɔnda di klos. Na dat mek yu nɔ de si am wantɛm wantɛm frɔm do. Nɔto ɔlman kin sho sayn fɔ dis. Bɔt dis sik kin mek yu pikin gɛt prɔblɛm wit in tɔk , i kin gɛt infɛkshɔn na in yes ɔltɛm , ɛn i nɔ kin izi fɔ it we i smɔl.

Aw dis sik kin kɔmɔn?

Submucous Cleft Palate na wan sik we nɔ kin apin so ɔltɛm . I kin afɛkt wan rili smɔl pasɛnt pan di pikin dɛn we dɛn bɔn. Bɔt sɔm pikin dɛn nɔ kin sho ɛni klia sayn, so di rial nɔmba fɔ di pikin dɛn we gɛt dis sik kin pas smɔl. Dis na bikɔs no klia sayn nɔ de we de sho se pɔsin de na do, so sɔntɛnde dɛn kin no am tu let.

Aw a go no if mi pikin gɛt dis sik?

I ayd ɔnda di mɛmbran, so i at fɔ si wantɛm wantɛm. Bɔt, si if yu dɔn notis ɛni wan pan dɛn tin ya bɔt yu pikin:

• Yu bin gɛt ɛni prɔblɛm fɔ gi pikin in bɛlɛ we yu bin smɔl? (e.g., milk we de kכmכt na di nos, we de tek lכng tεm fכ finish di bεlε)
• Bɔku tɛm yu kin gɛt yu yes we de at ɔ yu yes infɛkshɔn?
• Yu fil se i nɔ kin izi fɔ am fɔ kɔl sɔm wɔd ɛn lɛta dɛn?

If yu notis ɛnitin lɛk dis, tɛl yu pikin in dɔktɔ we de mɛn pikin so dat i go tek tɛm chɛk yu pikin in palata.

Wetin na di sayn dɛm fɔ wan Submucous Cleft Palate?

Bɔrku men sayn dɛm de wae yu kin si pan pikin wae gɛt dis sik.

Di sayn dɛm wae yu kin si pan yu pikin:

• I nɔ izi fɔ mek yu pikin gi pikin milk: Ɛspɛshali we yu smɔl, we yu de gi yu pikin bɔtul ɔ we yu de gi am in bɛlɛ, i kin at fɔ lɛ i lat. I kin tek lɔng tɛm pas di nɔmal pikin fɔ dɔn fɔ gi am tin fɔ it. Sɔntɛnde , milk ɔ fɔmula kin kɔmɔt na di nos.I pɔsibul. Imajin, we yu de gi yu pikin in bɛlɛ, bɔku tɛm smɔl milk kin kɔmɔt na yu nos. If dis nɔ jɔs apin wan ɔ tu tɛm, bɔt ɔltɛm, yu nid fɔ wɔri.
• Infεkshכn na in yes bכku tεm: dεn pikin ya kin gεt infεkshכn na in yes bכku tεm, lεk di yes we de at εn di yes we de kכmכt frכm wata.
• I nɔ kin izi fɔ tɔk: Sɔm lɛta ɛn wɔd dɛn kin at fɔ kɔl dɛn klia wan.
• Nasal speech: We yu de tɔk, i kin tan lɛk se di wɔd dɛn de kɔmɔt na yu nos , lɛk pɔsin we gɛt bad kol.
• di briz we de kכmכt na di nos we i de tכk: I kin fil lεk di briz de kכmכt na di nos we di pikin de tכk.

Di sayn dɛm we dɔktɔ kin si we i de chɛk pikin in mɔt na:

We dɔktɔ de chɛk insay pikin in mɔt, dɛn kin si tin dɛn lɛk:

• Bifid Uvula: di sכmכl pat we lεk tכng (uvula) we de hang na di bak pat pan wi trot kin lεk se i split insay tu.
• blu/grey we de sho na di midul pan di sכft palata (`(Zona Pellucida)`) : yu kin si blu כ greysh kכla כnda di mεmbran na di midul pan di sכft palata.
• wan ‘V’ shep grov na di had palata : yu kin si wan sכm 'V' shep grov na di bak pat pan di had palata na di fכnt pan di כp palata.

Di nos we de snor ɛn di briz we de kɔmɔt na di nos we yu de tɔk, na wan sik we dɛn kɔl Velopharyngeal Dysfunction (VPD) . Fɔ tɔk am simpul wan, dis kin apin we di bak pat pan di saf saf palata nɔ kin lɔk fayn we i de tɔk. Dɔn, di sawnd ɛn di briz we fɔ kɔmɔt na di mɔt kin kɔmɔt na di nos. Nɔto ɔlman wae gɛt Submucous Cleft Palate gɛt dis sik, bɔt dis na di men prɔblɛm wae de afɛkt aw pɔrsin de tɔk.

Wetin na di tin dɛn we kin mek pɔsin gɛt Submucous Cleft Palate?

Sɔntɛm bɔku rizin dɛn de fɔ dis. Di men wan:

• di jεnεtik fכs tin dεm (`(Jεnεtiks)`): Dis kכndyushכn kin kכz bay di jεnεtik inflכεns dεm we dεn gεt frכm di mama εn papa.
• di tin dεm we de apin na di envayroment: Dis kin bi bak we di mama de gεt sכm tin dεm we di pikin de insay di bεlε (e.g., sכm mεdikeshכn dεm, tabak, rɔm, tכxik kεmikכl dεm).

Aw fɔ no if yu gɛt Submucous Cleft Palate?

Yu pikin in pikin dɔktɔ go fɔs chɛk yu pikin in mɔt. If i saspek SMCP, dɛn go rifer yu pikin to speech thérapist , otolaryngologist ɔ ENT spɛshal, ɔ ɔspitul dɔktɔ we spɛshal pan cleft palates. SMCP kin tranga fɔ no bikɔs i nɔ kin izi fɔ si am ɛn i nɔ kin mek yu gɛt ɛni siriɔs sayn.

Dis tim we gɛt spɛshal dɔktɔ dɛn kin kam togɛda fɔ no di kayn prɔblɛm ɛn us kayn tritmɛnt we fit pas ɔl.

Fɔ kɔnfirm dis sityueshɔn mɔ, yu kin du dɛn tɛst ya bak:

• Nasopharyngoscopy: Dis na fɔ put smɔl tiub we gɛt kamɛra tru di nos ɛn chɛk di bak ɛn sayd dɛn na di trot . Yu kin si sɔm pan di lɛsin dɛn klia wan we yu si am dis we.
• Vidiofluoroskopi: Dis tan lɛk ɛks-ray tɛst . I de mek yu ebul fɔ wach aw di pikin de muv we di pikin de tɔk ɔ swɛla sɔntin, lɛk se na vidio.

Aw dɛn kin trit wan Submucous Cleft Palate?

Di tritmɛnt de dipen pan di kayn prɔblɛm wae yu pikin de gɛt wit de sik. Sɔm pikin dɛn kin gɛt prɔblɛm fɔ tɔk ɔ gɛt infɛkshɔn na dɛn yes, ɛn ɔda wan dɛn nɔ kin gɛt ɛni sayn atɔl.

• If nɔr sayn de: If di pikin nɔr de fil fayn ɔr gɛt prɔblɛm fɔ tɔk, bɔrku tɛm dɛn nɔr nid tritmɛnt. Bɔt, dɔktɔ dɛn go kɔntinyu fɔ wach di pikin.
• If yu gɛt prɔblɛm wit yu tɔk (Velopharyngeal Dysfunction): If yu gɛt sɔm sayn dɛn lɛk fɔ snor na yu nos, lɛk di nos we wi bin dɔn tɔk bɔt, ɔ di briz we de kɔmɔt na yu nos we yu de tɔk, yu kin nid fɔ du ɔpreshɔn (`(Palatoplasty)`) . Dis ɔpreshɔn kin min fɔ mek di saf pat na di palata fayn ɛn lɔk di say we opin. Dɔn we yu de tɔk, di palata kin lɔk fayn fayn wan, ɛn dis kin mek briz ɛn sawnd nɔ kɔmɔt na yu nos.
• Spich Therapy: Bɔku tɛm, pikin go nid speech therapy fɔ lan aw fɔ kɔl sɔm sawnd dɛn kɔrɛkt wan. Sɔntɛnde, ɔpreshɔn nɔmɔ kin kɔrɛkt di sik, ɛn i nɔ kin nid fɔ gɛt tritmɛnt fɔ tɔk.
• Fɔ yu yes infɛkshɔn: If yu gɛt infɛkshɔn na yu yes ɔltɛm, yu kin put smɔl smɔl tiub dɛn na yu yes fɔ mek i nɔ gɛt am, fɔ mek yu yɛri fayn, ɛn ɛp fɔ mek yu tɔk fayn.

Impɔtant: Stɔdi dɔn sho se pikin dɛn we gɛt Submucous Cleft Palate nɔ fɔ gɛt adenoidectomy , bikɔs dis ɔpreshɔn kin mek dɛn gɛt prɔblɛm wit dɛn tɔk ɔ mek dɛn nɔ ebul fɔ du nyu velopharyngeal .

Yu tink se mi pikin go nid ɔpreshɔn?

I nɔ min se i nid fɔ du ɔpreshɔn. If di pikin nɔ gɛt prɔblɛm fɔ tɔk, bɔku tɛm dɛn nɔ kin se dɛn fɔ du ɔpreshɔn pan am. Bifo dat, dɔktɔ dɛn go de wach di pikin fɔ sɔm ia fɔ si if ɛni prɔblɛm de kam.

Mi pikin go nid fɔ gɛt tɛrapi fɔ tɔk?

Yɛs, bɔku tɛm di pikin go nid fɔ gɛt tɛrapi fɔ tɔk.Wan dɔktɔ we de stɔdi bɔt aw pɔsin de tɔk go chɛk yu pikin fɔ no us prɔblɛm dɛn we de mek i gɛt prɔblɛm wit in tɔk we di palata skata. sכm prכblεm dεm de kכz fכ di fכshal kכz dεm (i.e., chenj dεm na di strכkchכ fכ di palata). Dɛn kin kɔrɛkt dɛn tin ya we dɛn du ɔpreshɔn. Bɔt sɔm prɔblɛm dɛn we i kin gɛt we i de tɔk kin kɔmɔt frɔm bad abit dɛn we di pikin dɔn gɛt. Spich therapy impɔtant fɔ chenj dɛn abit dɛn de ɛn tich dɛn aw fɔ kɔl wɔd dɛn kɔrɛkt wan.

Yu tink se dɛn kin mek yu nɔ gɛt wan Submucous Cleft Palate?

Dis cleft palata na wan sik we dɛn bɔn wit . So, i nɔ kin izi fɔ mek wi nɔ gɛt am kpatakpata. Bɔt lɛk aw wi bin dɔn tɔk, tin dɛn we de apin na di say we dɛn de, kin afɛkt dis bak, so as mama, if yu nɔ yuz sɔm mɛrɛsin dɛn, drɔgs, rɔm, ɛn ɔda pɔyzin kemikal dɛn we i gɛt bɛlɛ, dat kin mek di pikin gɛt dis sik te to sɔm mak.

Us kwɛstyɔn dɛn yu fɔ aks yu pikin in dɔktɔ?

Afta dɛn dɔn no se yu pikin gɛt Submucous Cleft Palate , i nɔmal fɔ gɛt bɔku kwɛstyɔn dɛn fɔ aks yu dɔktɔ. Na sɔm kwɛstyɔn dɛn we yu go want fɔ aks:

• Wetin na di rizin fɔ dis?
• Yu tink se mi pikin go nid ɔpreshɔn?
• Mi pikin go nid fɔ gɛt tɛrapi fɔ tɔk?
• Dis sik dɔn afɛkt di we aw mi pikin de yɛri?
• Aw lɔng di tritmɛnt kin tek?
• Tin dɛn de we a kin du na os fɔ ɛp mi pikin?

So, if yu pikin gɛt prɔblɛm wit in tɔk, in yes kin at bɔku tɛm, ɔ i nɔ kin izi fɔ am fɔ suk ɔ fɔ gi am tin na bɔtul we i bin smɔl, i kin gɛt sɔbmukɔs cleft palate . I kin tranga fɔ no if i gɛt am, bɔt sɔm pikin dɛn kin gɛt sɔm sayn dɛn. Tɔk to yu pikin in dɔktɔ we de mɛn pikin dɛn ɛn mek dɛn chɛk yu pikin in mɔt ɛn in trot. Bɔrku tɛm, dɛn kin kɔrɛkt di sik ɔltogɛda wit tɔk tɛrapi ɔr ɔpreshɔn.

Di impɔtant tin dɛn we wi nid fɔ lan frɔm dis (Take-Home Message) .

• Submucous Cleft Palate na wan cleft na di כp palata, we ayd fכ si, dεn de dכn di tכn mεmbran.
• If yu pikin gɛt milk we de kɔmɔt na in nos we i de drink, if i de at na in yes ɔltɛm, if in tɔk nɔ klia, ɔ if i de mek sawnd na in nos , i rili impɔtant fɔ mek dɔktɔ chɛk am.
• Dis sik kin tranga smɔl fɔ no , bɔt we dɛn dɔn no di sik kɔrɛkt wan, tritmɛnt dɛn de.
• Nɔto ɔl pikin nid ɔpreshɔn. Fɔ sɔm pikin dɛn, di tritmɛnt we dɛn de yuz fɔ tɔk nɔmɔ kin du fɔ dɛn.
• Nɔ wɔri. If yu gi yu pikin di rayt advays ɛn tritmɛnt we go mek i fil fayn. Tɔk to yu dɔktɔ bɔt dis opin wan.

Mɛmba se nɔto yu wangren de. Ɔda mama ɛn papa dɛn de we kin gɛt dis kayn tin. If yu no di rayt we ɛn sɔpɔt yu pikin, yu go ebul fɔ gi yu pikin di bɛst tin fɔ du.

`Kleft palata, sabmyukɔs cleft palata, prɔblɛm fɔ tɔk, prɔblɛm fɔ gi pikin bɔbi, infɛkshɔn na di yes, palatoplasty, pikin dɛn wɛlbɔdi