Omwana wo omuto alina omubiri omugumu, ogukaluba mu ngeri eyeewuunyisa? Kyandiba nga yali Spastic Cerebral Palsy? Ka twogere ku nsonga eno!

Wali okirabye nti omubiri gw’omwana wo gukalubye katono, oba ng’ebitundu bye biwulira nga bikalubye mu ngeri eyeewuunyisa? Wali okirabye nti bw’atandika okutambula, amagulu ge gafukamira munda n’atambula ng’akasero? Oba alabika ng’asigadde mabega katono ku baana abalala ng’akula? Bino biyinza okuba obubonero bw’embeera eyitibwa Spastic Cerebral Palsy. Teweeraliikiriranga, kino tujja kukyogerako mu bujjuvu.

Obulwadde bw’okusannyalala kw’obwongo obuyitibwa Spastic Cerebral Palsy kye ki?

Mu ngeri ennyangu, Cerebral Palsy kibinja kya mbeera z’obusimu ezikosa obwongo n’enkola y’obusimu. Kino kizibuwalira okufuga entambula y’omubiri n’enyimirira. Obulwadde bwa Spastic Cerebral Palsy kye kika ky’obulwadde bw’okusannyalala kw’obwongo obusinga okubeerawo . Mu mbeera eno, ebinywa by'omwana bikaluba (kino kye tuyita ``Spasticity'') ne bifiirwa okukyukakyuka. Oluusi, singa okukaluba kuno kuba kwa maanyi, kuyinza okukuluma. Ate era, omwana ayinza okunyiga ebinywa mu bwangu, nga tasobola kufugibwa, oba okusannyalala kw’ebinywa.

Teebereza omwana wo bw’agolola omukono okukwata akazannyo, omukono gwe gukankana n’atasobola kugukwata bulungi. Oba bw’atambula, agezaako okutambulira ku bigere mu kifo ky’okukuuma ebigere bye nga biwanvuye ku ttaka. Oluusi, bw’agololera omukono mu bwangu okukwata ekintu ng’omupiira, ayinza okuwulira obulumi. Ebintu nga bino osobola okubiraba mu mbeera eno.

Bika ki ebikulu eby’obulwadde bwa Spastic Cerebral Palsy?

Waliwo ebika bisatu ebikulu eby’obulwadde bwa Spastic Cerebral Palsy. Ka tulabe kye bali.

Obulwadde bw’okusannyalala (spastic diplegia/diparesis).

Kino okusinga kikwata ku magulu g'omwana . Ebinywa mu bisambi n’amagulu binywezebwa ekizibu okutambula. Oyinza okuba nga walabye abaana abamu nga batambula nga amagulu gabasika munda ate amaviivi gakwatagana (nga akasero). Ekyo kye kibaawo mu mbeera eno. Kino era tukiyita ‘okutambula okusala’ .

Obulwadde bw’okuzimba ebitundu by’omubiri (spastic hemiplegia/hemiparesis).

Mu mbeera eno, obubonero bukwata ku ludda lumu lwokka olw’omubiri gw’omwana . Kwe kugamba, oba oludda olwa ddyo oba olwa kkono. Omukono, ekigere, oba emikono n’amagulu gombi ku ludda olwo biyinza okukosebwa.

Obulwadde bw’okusannyalala kw’ebitundu bina (spastic quadriplegia/quadriparesis).

Eno y’engeri y’obulwadde buno esinga okuba ey’amaanyi . Bukwata emikono gyombi, amagulu gombi ne mu maaso . Abaana abamu era bayinza okufuna obubonero obulala, gamba ng’obulema mu kuyiga (okulwawo okutegeera) n’okukonziba.

Bubonero ki obulaga obulwadde bwa Spastic Cerebral Palsy?

Okay, kati ka tulabe obubonero omwana bw’ayinza okulaga mu mbeera eno.

• Ebinywa ebinywezeddwa
• Ebinywa ebikaluba, okukendeera mu kukyukakyuka
• Obulumi mu binywa
• Okutambula kw’ebinywa mu ngeri etaali ya kyeyagalire oba okusannyalala

Obubonero buno buleetera ebitundu by’omubiri ebikoseddwa okutambula nga biwuuma nnyo era nga tebiweweevu. Obubonero buno buyinza okuba obutono mu baana abamu, naye mu balala buyinza okuba obw’amaanyi .

Bubonero ki obusooka obw’obulwadde bwa Spastic Cerebral Palsy?

Oluusi wabaawo obubonero obuyinza okuzuulibwa nga bakyali bato. Omusawo wo ajja kufaayo nnyo ku bino ng’akebera omwana wo.

• Okwongera tone mu bitundu by’omubiri ( kino osobola okukizuula ng’omusawo akeberebwa)
• Obuzibu okugaziya ennyondo mu bujjuvu
• Okulwawo okumaliriza ebikulu mu nkulaakulana (okugeza, okwekulukuunya, okutambula, okukwata ekintu) .
• Obuzibu mu kukwasaganya emirimu
• Okukaluubirirwa okutambula oba entambula etali ya bulijjo (okugeza, okukoona amaviivi go wamu ng’otambula) .
• Okutambulira ku bigere byokka

Lwaki obulwadde bwa Spastic Cerebral Palsy bubaawo?

Embeera eno mu butuufu eva ku kwonooneka kw’amakubo g’obwongo agafuga ebinywa n’entambula. Okwonooneka kuno kuyinza okuva ku butabeera na mukka gwa oxygen mu bwongo, obuvune ku bwongo, oba , si bulijjo nnyo, enkyukakyuka mu buzaale (enkyukakyuka mu DNA).

Waliwo embeera eziwerako obwongo mwe buyinza okwonooneka oba obutaba na mukka gwa oxygen ng’oli lubuto, ng’ozaala oba nga wayiseewo akaseera katono ng’omaze okuzaala:

• Okukendeera kw'omusaayi mu bwongo (e.g., embeera eyitibwa ``ischemic stroke'')
• Okuvaamu omusaayi mu bwongo (e.g., embeera eyitibwa hemorrhagic stroke) .
• Obwongo okwonooneka olw’obulwadde
• Obuvune ku bwongo obuva ku buvune (TBI) .

Okugatta ku ekyo, omwana atera okulwala obulwadde bwa Spastic Cerebral Palsy singa:

• Okuzaalibwa nga tannatuuka
• Obuzito obutono mu kuzaalibwa
• Obulwadde bwa jaundice obw’amaanyi obutajjanjabwa bulungi
• Obulwadde obukwata maama, omwana ali mu lubuto oba nnabaana ng’ali lubuto
• Okuzaala abaana abawerako mu lubuto, gamba ng’abalongo oba abaana basatu (Multiples) .
• Ebizibu ebiva mu lubuto (okugeza, embeera ez’amaanyi nga nnabaana okukutuka oba okukutuka kwa nnabaana) .
• Okukwatibwa eddagala ery’obutwa eriyinza okwonoona obwongo (okugeza, okumala ebbanga eddene ng’olina mercury mu by’ennyanja) .

Bizibu ki ebirala ebiyinza okubaawo olw’obulwadde bwa Spastic Cerebral Palsy?

Embeera eno tekoma ku kukosa binywa bya mwana. Ebizibu ebirala biyinza okubaawo. Mu bino mulimu:

• Okukaluubirirwa okwogera n’okuwuliziganya
• Ebizibu ebikwata ku busobozi bw‟okuyiga (Obulema mu magezi) .
• Okukonziba
• Okubulwa okulaba
• Okubulwa okuwulira

Obulwadde bwa Spastic Cerebral Palsy buzuulibwa butya?

Embeera eno etera okuzuulibwa mu baana abawere oba abato. Omutendera ogusooka mu kuzuula obulwadde kwe kuba nti omusawo wo oba omuzaalisa akebere omwana wo mu mubiri.

Omusawo ajja kukebera amaanyi g’ebinywa by’omwana wo, entambula ye, obukugu mu kukola emirimu n’okukwatagana. Era ajja kukubuuza oba omwana wo akula bulungi okusinziira ku myaka gye (e.g., yeekulukuunya oba atambula).

Okukebera kwa ngeri ki okukakasa embeera eno?

Singa okukebera omubiri kulaga nti obulwadde bw’okusannyalala kw’obwongo obuyitibwa spastic cerebral palsy bwe buyinza okuvaako, omusawo ayinza okulagira okukeberebwa ebifaananyi okunoonya ebitundu by’obwongo ebyonooneddwa. Era bayinza okulagira okukeberebwa okusobola okugaana embeera endala eziyinza okuvaako obubonero obufaananako bwe butyo.

• Okugezesebwa kwa MRI (Magnetic Resonance Imaging).
• CT scan (`(CT scan - Okukebera Tomography mu kompyuta)`)
• Okukebera omusaayi
• Okukebera obuzaale

Obulwadde bwa Spastic Cerebral Palsy bujjanjabwa butya?

Ekigendererwa ekikulu eky’okujjanjaba embeera eno kwe kulongoosa obusobozi bw’omwana okutambula. Wadde nga tekisobola kuwona ddala, obubonero busobola okufugibwa omwana n’ayambibwa okubeera n’obulamu obulungi.

Bino wammanga bye bikozesebwa ng’enkola z’obujjanjabi:

• Dduyiro w’okugolola buli lunaku awaka okutangira okunywezebwa kw’ebinywa okweyongera okumala ekiseera
• Obujjanjabi bw‟omubiri, obujjanjabi bw‟emirimu, ne/oba obujjanjabi bw‟okwogera
• Okukozesa ebisiba eby’enjawulo, ebisiba oba ebisiba okuyamba okugolola ebinywa ng’okwata emikono oba amagulu mu mbeera y’emu
• Okukozesa ebyuma ebiyamba nga ebitambula oba obugaali
• Eddagala okukendeeza ku kukaluba kw’ebinywa n’okusannyalala (nga `(Baclofen)`, `(Diazepam)`, `(Clonazepam)`, `(Dantrolene)` ne `(Tizanidine)`)
• Empiso z’obutwa bwa Botulinum (era ezimanyiddwa nga Botox®) ziyamba okuwummuza ebinywa.
• Enzijanjaba ya baclofen mu mubiri (intrathecal baclofen therapy) nkola eddagala mwe liweebwa butereevu mu mugongo.
• Selective dorsal rhizotomy, enkola y’okulongoosa okukendeeza ku kukaluba kw’ebinywa

Ttiimu y’abasawo ejja kusalawo enteekateeka y’obujjanjabi esinga obulungi eri omwana wo. Kino kiyinza okwawukana okusinziira ku mwana.

Omwana alina obulwadde bwa Spastic Cerebral Palsy awangaala ki?

Emirundi egisinga, obulwadde bwa Spastic Cerebral Palsy tebukosa butereevu bulamu bwa mwana. Kyokka singa obubonero buba bwa maanyi era nga tebujjanjabwa bulungi , ebizibu ebibaawo oluusi bisobola okukosa obulamu bw’omwana. Jjukira nti wadde tewali ddagala eriwonya embeera eno, ng’ofunye obujjanjabi, omwana asobola okubeera n’obulamu obulungi.

Embeera eno yeeyongera okwonooneka okumala ekiseera? (Kigenda mu maaso?)

Obulwadde bwa Spastic Cerebral Palsy si bulwadde obugenda mu maaso. Kino kitegeeza nti ebinywa bye bimu ebyakosebwa mu buto bikyakosebwa mu bulamu obw’oluvannyuma. Tekikosa binywa bipya. Kyokka singa tebujjanjabwa, okukaluba kw’ebinywa ebikoseddwa kuyinza okweyongera okumala ekiseera.

Obujjanjabi bukulu nnyo kubanga okukendeeza ku kukaluba kw’ebinywa kiyinza okuyamba ennyo enkola y’omwana (nga okutambula, okukyusa engoye, n’okukwata ebintu). Era kiyinza okukendeeza ku bulumi. Omwana ajja kwetaaga obuwagizi bwa ttiimu y’abasawo obulamu bwe bwonna okusobola okubeera n’embeera eno.

Ddi lwe nnina okulaba omusawo?

Bw’olaba obubonero bwonna obulaga nti omwana wo ayinza okuba n’obulwadde bwa Spastic Cerebral Palsy, laba omusawo mu bwangu. Weeraliikirira nnyo naddala singa olaba enkyukakyuka oba okulwawo mu ntambula y’omwana wo n’enkula ye.

Bibuuzo ki bye nnina okubuuza omusawo wange?

Oyinza okuba n’ebibuuzo bingi ng’otegedde ku mbeera y’omwana wo. Bino bye bimu ku bibuuzo by’oyinza okubuuza omusawo wo:

• "Osobola okunnyamba okutegeera obulwadde bw'omwana wange?"
• "Okuteesa ku bujjanjabi bwa ngeri ki?"
• "Ebigendererwa by'obujjanjabi bye biruwa?"
• "Waliwo ebizibu byonna ebiva mu bujjanjabi buno?"
• "Nkole obujjanjabi bw'omubiri oba obw'emirimu okumala bbanga ki?"
• "Okulongoosa kujja kulongoosa obubonero bw'omwana wange?"

Ebintu ebikulu by’olina okujjukira (Take-Home Message)

Obulwadde bwa Spastic Cerebral Palsy buyinza okuba embeera esoomooza omwana n’ab’omu maka ge kubanga obwongo n’ebinywa by’omwana tebiwuliziganya bulungi. Obubonero buno buyinza okukosa obusobozi bw’omwana okutambula obulungi era nga yeetongodde.

Kyokka wadde tekisobola kuwona, ekirungi, waliwo obujjanjabi obw’enjawulo obuyinza okuddukanyizibwa. Okujjanjaba omubiri, okujjanjaba emirimu, okujjanjaba okwogera, n’okukozesa eddagala bisobola okutumbula omutindo gw’obulamu bw’omwana. Ojja kwetaaga okusigala ng’okwatagana ne ttiimu y’abasawo y’omwana wo. Ggwe oba famire yo bwe muba mulina ekibuuzo kyonna ku nsonga eno, totya kubuuza musawo.

` Spastic Cerebral Palsy, Spastic Cerebral Palsy, Cerebral Palsy, Okukaluba kw’ebinywa, Okusannyalala, Obusimu bw’abaana, Obuzibu mu ntambula, Enkula y’omwana