Emicizumab injection chungchang pawh hriat i duh em? Kan sawi dawn nia!

Hemophilia A vangin thisen chhuah fo chungchangah pawh harsatna i nei em? Cut te tak te atang pawhin thisen chhuah tihtawp harsa i ti em? Chutiang a nih chuan vawiin hian i nunah danglamna nasa tak thlen thei damdawi thar, thisen chhuahna control-na atana pui thei tur chungchang kan sawi dawn a ni. He damdawi hming hi Emicizumab a ni. Chuvangin, a chungchang chipchiar zawkin i en ang u?

Emicizumab hi eng damdawi nge ni?

A awlsam zawngin sawi ila, Emicizumab hi injection bik a ni a, hemophilia A vei te chu thisen chhuah loh nan emaw, thisen chhuak tawh an nih chuan thisen chhuahna control nan emaw a pui thin. Hemophilia A i vei hian i taksain i thisen zam tura puitu protein pawimawh tak (factor VIII) a tlachham tih i hria em? Chuvangin he damdawi hian chu tlakchhamna chu kawng danglam deuhin a siam that theih nan a pui a, i thisen a tikhawlo thei a ni. Bridge chhe tawh chu hun eng emaw chen atan thil dang hmanga thlak ang mai a ni.

He damdawi hi a chang chuan i doctor-in damdawi lam thil dang vangin a hmang thei bawk. Chuvangin, he damdawi hi engvangin nge i tana an pek tih chiang taka hriat i duh chuan i doctor emaw, damdawi dawr emaw hnenah damdawi i lei na hmun zawt ngei ang che.

He damdawi, Emicizumab hi Hemlibra tih hming puin market-ah a awm tam ber a ni. Chu hming chu i lo hre tawh mai thei.

He damdawi hi ka hman hmaa ka doctor hnena ka hrilh tur pawimawh ber berte chu engte nge ni?

Ni e, hei hi a pawimawh hle. He emicizumab injection i tan hma hian i care team hnenah thil engemaw zat i hrilh tur a awm. A chhan chu i himna tur an ngaihtuah a ngai a ni.

• He damdawi, Emicizumab emaw a thil tel emaw allergy i neih chuan min hrilh hmasa phawt ang che .
• Tin, damdawi dang, ei tur, dye, preservative dang allergy i neih chuan min hriattir dawn nia . Thil tenawm tak pawh ni se, min hriattir a tha.
• Tunah hian naupai i nih chuan, emaw, nakin lawka naupai i beisei a nih pawhin hei hi i sawi ngei tur a ni .
• Nu hnute pe lai i nih chuan chu chu i doctor hnenah pawh hrilh bawk ang che.

He thu hi i doctor tan chuan i tana enkawlna tha ber leh him ber thlan kawngah a pui hle ang.

Engtin chiah nge he damdawi hi ka hman ang?

Hei pawh hi hriatthiam tur a ni. Emicizumab hi vun hnuaia injection a ni. Chu chu vun hnuaia thau layer-ah inject a ni tihna a ni a, taksa ruh chhung thuk takah inject a ni lo. Diabetes tan insulin injection i hmu tawh mai thei a, chutiang bawk chu a ni.

Lungngai suh, i doctor emaw, nurse emaw, health worker trained dang emaw chuan he damdawi siam dan tur leh nangmah (a nih loh leh i tanpuitu tur) he injection hi i pek dan tur chiang takin a zirtir ang che. An hrilh che ang chiah khan i ti tur a ni.

• Damdawi hi a hun taka ei a pawimawh hle. I doctor-in a hrilh ang chiah khan ei thin ang che, ni engemaw zat danah, a hun dik takah ei thin ang che.
• I doctor-in a pek aia tam ei ngai suh, a nih loh leh ei tam zawk ngai suh.

Pawimawh tak: I needle leh syringe hman tawhte chu bawlhhlawh bawmah paih ngai suh. Chutianga tih chu bawlhhlawh paihtu tân emaw, mi dang tân emaw a hlauhawm thei a ni. Sharps container bik a awm a, chu chu sharps nghet taka khar theih tur dahna tur atana siam a ni . I pharmacist emaw doctor emaw hnenah pakhat dil rawh. A khat huna him taka paih dan tur an hrilh ang che.

He damdawi hi naupang te te hnenah i pek chuan eng nge thleng ang?

I doctor chuan i fain hemophilia A a vei avangin emicizumab pek a ngai tih a rel a nih chuan i naupang enkawltu doctor nen sawiho rawh. He damdawi hi naupangte hnenah thil bik thenkhatah pek theih a nih laiin, an kum a zirin hriat tur tlemte a awm. I doctor chuan heng zawng zawng hi a hrilhfiah ang che.

Damdawi i ei tam palh a nih chuan engtin nge i tih ang?

Chutiang a nih chuan, chu chu he damdawi hi i ei tam lutuk nia i hriat chuan tihkhawtlai suh la, poison control center hnai ber emaw, damdawi in emergency room emaw call nghal rawh. A nih loh leh chutah chuan kal nghal mai rawh. A hun taka thil tih hi a pawimawh hle.

Hriat reng tur tha ber chu he damdawi hi nangmah tan chauh a ni. I damdawi chu midangte hnenah eng vangin nge insem lo la, nangmah ang natna inang an nei a nih pawhin.

Damdawi ei tur appointment i neih loh chuan engtin nge i tih?

Aw, a thleng thei. Mi zawng zawng hian a chang chuan an damdawi ei hi an theihnghilh thin. Emicizumab dose i miss a nih chuan i hriatreng veleh ei nghal rawh. Mahse, i hriatreng hunah i dose leh tur hun a lo thleng dawn tawh a nih chuan (entir nan, ni 7 danah i ei tur damdawi i ei leh tur atanga ni 3 chhunga a nih chuan), i missed dose chu skip la, a hun pangngaiah a lo awm leh tur chu ei rawh. Double dose ei ngai suh, chu chu missed dose leh a dang dose pahnih hi a rualin ei tur tihna a ni. I chiang lo a nih chuan i doctor emaw pharmacist emaw zawt la.

He damdawi nena inzawm thei damdawi dang a awm em?

Ni e, hei hi hriat a tha. Damdawi thenkhat chu emicizumab hi ei dun a nih chuan a inzawm thei a ni. A awlsam zawngin, heng damdawi pahnih hi ei dun a nih chuan an thawhrimna a nghawng thei a, a nih loh leh side effect a tipung thei bawk.

A bik takin, hemophilia enkawlna dang thenkhat nena emicizumab hman hian fimkhur a ngai hle. Entirna thenkhat chu:

• Prothrombin complex concentrate (aPCC) hmanga tihchak a ni.
• Factor VIIa, a inzawm lehna (recombinant) a ni
• Factor VIII (factor VIII) te hi a awm a.

He damdawi hi emicizumab nena ei a nih chuan natna khirh tak thrombotic microangiopathy (TMA) tih leh thisen zam a awm theihna a awm. Chuvangin, thisen chhuak nghal mai avanga enkawlna dang i mamawh chuan emicizumab i ei thu i doctor hrilh a pawimawh.

He list hi a kimchang lo hle. Chuvangin, i damdawi ei zawng zawng – i doctor-in a pek chauh ni lovin, damdawi dawr atanga i lei vitamin, herbal remedies, painkillers, leh dietary supplements te pawh i doctor hnenah hrilh vek a pawimawh. Tin, zu i in emaw, zu i in emaw, ruihhlo i hman emaw chuan i doctor hnêna hrilh chu i ṭha ber a ni . Thil thenkhat chu i damdawi nen a inzawm thei.

He damdawi hi ka ei dawnin eng thil dang nge ka hriat tur?

Emicizumab i ei lai hian i doctor chuan i hriselna enfiah turin thisen test hrang hrang a ti mai thei. Heng test te hi damdawi in a thawk tha em tih leh harsatna a awm leh awm loh enfiah nan hman thin a ni. Chuvangin, heng test te hi tih fo a pawimawh hle.

He damdawi hian eng side effect nge a neih theih?

Ngaihtuah teh, damdawi kan ei apiang hian side effect tenau te a nei thei a ni lawm ni? Chu chu thil pangngai a ni. Emicizumab hian a thlen thei bawk. Mahse lungngai suh, a tam zawkah chuan hengte hi a pawi lo va, ni engemaw zat hnuah a reh mai ang. Amaherawhchu, a bik taka fimkhur ngai thil engemaw zat a awm.

I doctor emaw healthcare provider emaw hnena i hrilh nghal tur side effects te chu:

Heng symptoms te hi i neih chuan doctor hnenah a rang thei ang bera hrilh la, a nasat theih avangin.

• Allergic reaction: vun rawng chhuak nghal, hives, hmai, hmui, lei emaw kawr emaw a hring (chu chuan thawk harsatna a thlen thei).
• Thisen zam chhinchhiahna: Hei hi a hlauhawm hle thei. Chuvangin heng chhinchhiahnate hi hre reng ang che:
• Thâwk harsa emaw, rilru na emaw.
• I zun chhuah zat a tlahniam nghal emaw, a inthlak danglam emaw.
• Mit a inthlak danglam (e.g. mit a fiah nghal lo, mit pahnih a hmu thei).
• Lu na na tak, rang tak, na tak.
• Kut emaw ke emaw (a bik takin groin area-ah) na, a hring, a sen emaw, khawih chuan lum emaw a awm.
• Pum natna nasa tak.
• Hmai, kut, ke (a bik takin taksa sir khatah) rang taka natna emaw, chak lohna emaw a awm.
• Thusawi harsa emaw, thumal slurred ang maia hriat emaw.
• Mit emaw vun emaw var (jaundice) a rawn sen (jaundice).

Hetiang thil i hmuh chuan damdawi lam thurawn i la nghal tur a ni.

Side effects nasat loh tlangpui, mahse a awm reng emaw, a tibuai che emaw a nih chuan doctor hnenah hriattir tur a ni:

Chûngte chu ni engemaw zât chhûngin a reh ṭhîn a, mahse a awm reng emaw, i rilru hahna nasa tak a thlen emaw chuan i doctor hnênah hrilh rawh .

• Kawthalo
• Fever leh chak lohna hriatna
• Lu na
• Joint natna
• Muscle na, ruh natna ang chi
• Injection pekna hmunah hian natna engemaw zat, a sen, a hring emaw, a hring deuh emaw a awm thei. Hei hi ni khat emaw ni hnih emaw chhungin a reh tlangpui.

He list-ah hian a lang lo a nih pawhin, he damdawi hi i ei hnua thil thar emaw, thil danglam emaw i hriat chuan, i doctor nen inbiakna neih hlau suh.

Engtin nge he damdawi hi uluk taka ka dahkhawm ang?

Damdawi tha taka dahkhawm a pawimawh hle bawk.

• He damdawi hi naupang tê tête khawih theih lohna leh an hmuh theih lohna hmunah dah fo ang che.
• He damdawi hi in lama i hman chuan, a dah dan tur (e.g., refrigerator-ah emaw, room temperature-ah emaw) chiang takin thupek i dawng ang. Chu thupekte chu ngun takin zawm rawh.
• Damdawi bottle emaw box-a ziah expiry date pel tawh chu hmang suh. I pharmacist hnenah engtin nge a paih dan tur dik tak zawt rawh.

A tawp berah chuan thu pawimawh tlemte (Take-Home Message) .

Okay, chuvangin kan sawiho atang khan Emicizumab injection hi in hriatthiam ka beisei. Hriat reng tur pawimawh thenkhat chu hetiang hi a ni:

• Emicizumab hi damdawi pawimawh leh tangkai tak a ni a, hemophilia A i vei chuan i thisen chhuahna control nan a pui thei a ni.
• He damdawi hi doctor-in a sawi angin a hun takah leh a dose dik takah ei a pawimawh hle.
• He damdawi, a hman dan tur, a side effects emaw, thil dang emaw chungchanga zawhna emaw, ngaihtuahna emaw i neih chuan, i doctor, nurse, pharmacist emaw, healthcare provider dang emaw zawh chu hlau lo la, zak suh. I tanpui turin an awm reng a ni.
• Side effects te chu fimkhur reng ang che.Kan sawiho tawh side effect na tak tak i neih chuan doctor thurawn la hmasa phawt ang che.
• Needle leh syringe hman tawhte chu sharps container-ah him takin paih ngei ngei tur a ni.
• I damdawi chu midangte hnenah hlan suh.

He thuziak hian thu bulpui ṭhenkhat chauh a pe che tih hre reng ang che. Mi zawng zawng hi kan danglam vek a, chuvangin i dinhmun atana tha ber chu i doctor chauhin a hria. Chuvangin, a hnenah inbia fo la, a thurawn zawm fo bawk ang che. Hriselna tha neih duhsakna kan hlan e!

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