I chau reng em? I rilru a hah em em? Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) a ni thei bawk!

Ni tam zawkah pawh i chau hle a, i chau hle bawk em? A châng chuan khum aṭanga tho tûrin chak lo lutukin i inhria em? I mut tha a, nilengin i chawlh pawhin he hahna hi a reh lo em ni? Tichuan hei hi i tan thil pawimawh tak a ni mai thei. Vawiin hian natna pakhat `Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) tih kan sawi dawn a, chu chu mi thenkhat chuan `Chronic Fatigue Syndrome (CFS)) tih mai mai an ti bawk

Hei hi eng nge ni `ME/CFS`? A awlsam zawngin...

A awlsam zawngin ME/CFS hi i chau lutuk leh i chau lutuk a, nitin hnathawh tur i tih theih loh phah a, a chang chuan khum atanga tho chhuakin hna tenau te pawh i thawk thei lo. A pawimawh ber chu he hahna hi eng ang pawhin chawlh hahdam emaw, mut emaw pawh nise a reh lo. Tin, he hahna hi taksa tihchakna tlemte pawh i tih chuan a na zual a, emaw, rilru lama harsatna i neih chuan (entir nan, thil engemaw i ngaihtuah tam chuan). Heng symptoms te hi thla ruk emaw a aia rei emaw a awm tlangpui.

Doctor-te chuan he natna hi hming dang an vuah \hin a, chungte chu:

• ``Myalgic Encephalomyelitis (ME) natna a awm a ni'' tih hi a ni.
• ``Systemic Exertion Intolerance Disease (SEID) natna a ni a, a rilru a hah lutuk a, a rilru a buai em em bawk a.

He thu hi i hriat chuan lungngai suh, hei hi dinhmun inang chungchang a ni.

Hetiang dinhmun hi engtiang chiahin nge `ME/CFS` tia koh a nih?

Hei hi a takah chuan i ngaihtuah aia tam zawk a ni. Khawvel puma mi maktaduai tam takin he natna hi an tuar a ni. Mahse thil lungchhiatthlak tak chu, mi tam takin he natna hi an tuar a, mahse uluk taka hriat chian a ni lo. A chhan pakhat chu a chungchanga hriatna a awm loh vang a ni. A dang pakhat chu mi thenkhatin damdawi lam panna kawnga harsatna an tawh hi a ni.

`ME/CFS` natna lan chhuahna chu engte nge ni? Hengte pawh hi i nei em tih en rawh...

ME/CFS chhinchhiahna ber chu extreme, persistent fatigue a ni . Chu chu thla ruk aia rei, chawlh hahdam emaw, muthilh emaw avanga reh loh hahna tihna a ni.

Chu bakah, symptoms te pawh i hmu thei bawk:

• Mut lama harsatna: Mut that theih loh te, i harh lai pawha harh emaw, eng anga mut pawh nise hahdam taka inhriatna te.
• Lu na: Lu na fo, a chang chuan na tak tak.
• Joint pain: Taksa ruh natna.
• Muscle pain: Muscle na, taksa na.
• Ngaihtuahna harsatna: Thil chiang taka ngaihtuah harsa, ngaihtuahna seng harsa, hriatrengna hloh. Mi thenkhat chuan hei hi "brain fog" an ti bawk.

Heng bakah hian natna lan chhuahna dang a awm thei bawk:

• Mit hmuhna lama harsatna a awm.
• Khua a vawt tih hriat, zanah pawh thawk hah pawh a ni mai thei.
• Lymph node a lo hring chhuak.
• Pum natna: Irritable Bowel Syndrome (IBS) ang chi symptoms, pum na, chaw ei, pum na, chaw ei kham emaw, riltam emaw.
• Depression, thinrimna, hlauhna leh lungkhamna te.
• Ke ruh leh ke ruh natna, ka chhunga natna.
• Luak chhuak, lu hah, a chang chuan muhil.

Ngaihtuah teh, i khawsik laia i natna leh natna ang kha i nei a, chutah thla tam tak, kum tam tak pawh ni thei, i chau tawh a nih chuan engtin nge ni ang? Chu chu ME/CFS nei mi pakhatin a hriat dan a ni.

A pawimawh ber chu heng symptoms te hi mi tin a inang lo thei a ni. Mi thenkhat chuan tlem an nei tlem thei a, thenkhat chuan an nei tam zawk thei bawk. Tin, heng symptoms te hi ni engemaw zatah a tlem a, ni dangah chuan a tam zawk thei bawk.

Of particular note is a condition called `Post-Exertional Malaise (PEM).` Hei hian a awmzia chu taksa tihchakna tlemte (e.g., hla vak lo kal, in lama hna tlemte tih) emaw, rilru lama thawhrimna (e.g., exam atana zir, thutlukna pawimawh siam) emaw i tih chuan, i symptoms (a bik takin hahna) chu darkar tam tak, emaw ni tam tak pawh, a hnuah a na hle tihna a ni. Hei hi `ME/CFS`-a thil pawimawh tak a ni.

Engvangin nge he `ME/CFS` hi a lo thanglian? Eng nge a chhan?

Doctor-te chuan ME/CFS hi eng nge a thlen tih chiang takin an la hre lo. Mahse, zirchianna chuan a chhan awm thei engemaw zat a hmuchhuak a:

• Thisen sang hniam .
• Rimtawng .
• Infection (e.g. virus infection) a kai hnuah.
• Immune system changes : Hengte hi natna leh stress laka kan taksa venhimtu system inthlak danglamna a ni.
• Kan taksain chakna a siam chhuah leh hman dan a inthlak danglam .

Hengte hi tunlaia ngaihtuahna lian ber berte ni mah se, zirchian belh zel a ni.

Tute nge ME/CFS vei theihna chance sang zawk?

Hetiang dinhmun hi tu chungah pawh lo awm thei mahse, mi thenkhat chu an hlauhawm zawk a ni:

• Hmeichhia hian mipa aiin he natna hi an hmu tam zawk.
• Naupang leh puitling tleirawlah a awm thei a, mahse puitling kum 40 leh 60 inkarah a awm tam ber .
• Genetic link a awm thei tih hmuhchhuah a ni . Chumi awmzia chu i chhungkuaa mi tu emaw chuan he natna hi a neih chuan nang pawhin i vei theihna chance a sang zawk thei tihna a ni. Mahse, a nghawngtu gene dik tak erawh chu hriat chian a la ni lo.

ME/CFS vang hian eng harsatna dang nge awm thei?

Hetiang dinhmun avanga hahna nasa tak hian mi thenkhat tan nitin hna thawh a harsa hle thei a, thil theih loh pawh a siam thei bawk. Research atanga a lan dan chuan ME/CFS vei zinga a chanve vel chuan full-time emaw part-time emaw hna an thawk chhunzawm thei lo.

Ngaihtuah teh, zîngah tho chhuakin tea no khat pawh i siam thei lo a, i fate i enkawl thei lo a, hnathawhna lamah i kal thei lo a nih chuan nun hi eng ang taka harsa nge a nih ang?

Tin, ME/CFS avanga lungngaihna pawh a awm bawkDepression a awm thei. I chau reng a, i hrehawm reng a, i duh ang thil i tih theih loh lai pawhin i lungngaih hi thil pangngai a ni. I rilru a hah a nih chuan i doctor nen sawiho rawh. A enkawl dan tha tak tak a awm.

Engtin nge doctor-te hian he natna `ME/CFS` an tih hi an hriat chhuah?

ME/CFS hriat theihna tur test bik a awm lo. Doctor chuan i natna chu a enfiah ang a, i natna lan chhuah dan ngun takin a ngaithla ang a, i rilru hriselna a enfiah ang.

Doctor chuan thisen test leh zun test te pawh a ti thei a, chutiang bawka natna lan chhuah theihna tur natna dang a awm loh nan a hmang thei bawk.

Doctor-te’n ME/CFS (diagnostic criteria) i neih an rinhlelh hian thil pawimawh engemaw zat an en thin. Anni chu:

• Thla 6 tal hahna nasa tak a awm tur a ni .
• He hahna hi chawlh emaw mut emaw hnuah pawh a tlahniam lo .
• Mut hahdam tak, hahdam tak neih harsat .
• Taksa emaw rilru emawa thawhrimna nen hahna a pung (hei hi a hmaa kan sawi tawh `Post-Exertional Malaise - PEM` kha a ni).
• A châng chuan, ding emaw, ṭhut emaw laiin lungawi lohna (`orthostatic intolerance`) leh/ emaw ngaihtuahna leh hriatrengna lama harsatna (`cognitive function`) a awm thei bawk .

Heng zawng zawng hi a ngaihtuah hnuah chauh doctor chuan ME/CFS i neih leh neih loh a rel thin.

ME/CFS enkawlna tur engte nge ni?

ME/CFS enkawlna tum ber chu i natna lan chhuah dan tihtlem leh a pangngai thei ang bera nun puih hi a ni. Mi thenkhat chuan an natna an neih hmain an hriselna famkim an nei leh thei tawh lo mai thei. Mahse, enkawlna hian hahdamna nasa tak a pe thei a ni.

Enkawl dan tlangpui engemaw zat a awm a:

1. Mut dan thlak danglam (`Mut dan a inthlak`) .

2. Damdawi chi hrang hrang

3. Activity management (‘pacing’ an ti bawk) .

Heng zinga pakhat zel hi chipchiar deuhin han sawi ila .

1. Mut dan thlak danglam (mut that dan thiam - `Sleep Hygiene`) .

I doctor-in damdawi a pek hmain, i mut ṭhat theih nân thil awlsam tak tak tih tûrin a fuih thei che a, chu chu:

• Hun ruatah mu la, hun ruatah harh rawh. Nitin hun khata hetianga tih hian i taksa darkar chu a thawk tha thei ang.
• Nitin i mut a nih chuan minute 30 aia rei mut suh. Chhun lama mut rei lutuk hian zan mut a harsat phah thei a ni.
• I khum leh mutna pindan chu mut leh mipat hmeichhiatna hmanna atan chauh hmang ang che. TV en te, phone hman te, khumah ṭhu chunga hnathawh te chu pumpelh rawh. Electronics te chu mutna pindan atanga paih chhuah a tha.
• Mut hmaa chaw tam tak ei loh tur.Tin, mut hmain zu leh caffeine (tea leh coffee-a awm) ei loh tur a ni.

Hei hi `mut faina` emaw `mut dan tha` kan tih chu a ni.

2. Damdawi chi hrang hrang

I natna lan chhuah dan azirin i doctor chuan a hnuaia damdawi te hi a rawn rawt thei ang:

• Natna atan: Natna tidamtu `Nonsteroidal anti-inflammatory drugs (NSAIDs)` ang chi te.
• Mut, natna leh hahna atan: Antidepressant thenkhat, antidepressant (tricyclics) ang chi te.
• Depression leh natna tihziaawmna atan: Damdawi `Selective serotonin reuptake inhibitors (SSRI)` leh `Serotonin-norepinephrine reuptake inhibitors (SNRI)` ang chi te.
• Infection a awm chuan: Antivirals.
• Immune system hnathawh \ha zawk: Intravenous immunoglobulin (IVIG).
• Chauhna atan: `Corticosteroids` (hengte hi uluk taka hman tur a ni a, damdawi lam thurawn chauhvin hman tur a ni).

Heng damdawi zawng zawng hian mi zawng zawng tan hna a thawk vek lo. I doctor chuan eng damdawi nge i tan a tha ber tih a rel ang. Damdawi thar pawh zirchian mek a ni.

3. Hnathawh enkawl dan (`Hnathawh enkawl dan` - 'pacing') .

Kan sawi tawh ang khan ME/CFS symptoms hi taksa emaw rilru lama thawhrimna (Post-Exertional Malaise - PEM) hian a tizual a ni. Hei hi enkawlna atan doctor-te chuan "pacing" tih dan an zirtir thin. "Pacing" tih awmzia chu i chawlh leh activity level balance tihna mai a ni.

"Pacing" i practice lai hian i "limitations" te chu eng nge ni tih i hre chhuak thin. Heng tihkhawtlai te hi fence angin ngaihtuah rawh. I taksain a tuar theih zat him chhunga awm reng i tum tur a ni. Heng ramri pawn lama i pen chuan, chu chu i huam chin piah lama i in nawr chuan i taksa chuan a tuar thei tawh lovang tihna a ni. Hei hian i symptoms a ti na zual thei.

I doctor chuan i taksa leh rilru lama i theihna chu eng nge ni tih a hriat theih nan a pui thei che a ni. I thiltih leh i thiltih hnua i rilru put hmangte diary emaw, journal emaw-a ziah chu a ṭangkai thei a ni. I huam chin i hriat hnu chuan, chutiang chin chhunga awm reng turin i thiltih tur chu i ruahman thei ang.

Entirnan, minute 15 kal hnua i chau tih i hriat chuan a tuk zingah minute 10 chauh kal leh chawlh hahdam i tum tur a ni. "Pacing" neihna kawng pawimawh tak chu i taksa thu tlem tlem te ngaihthlak a, i theihna chin hriat hi a ni.

Exercise hahthlak tak tak, aerobic exercise ang chi hian ME/CFS symptoms a ti na zual thei. Chuvangin, i doctor nen eng exercise nge i tana him leh tha ber tih sawi rawh.

ME/CFS hi ven theih a ni em?

Vanduaithlak takin tunah hian ME/CFS ven dan tur hriat a la awm lo.

ME/CFS vei chuan eng nge a beisei ang?

ME/CFS hi damdawi a awm lo. Mahse, symptoms chu mut thlak danglam, activity management (pacing), leh damdawi hmanga enkawl theih a ni. Enkawlna tum ber chu a theih ang anga symptoms tihtlem leh nunphung tihchangtlunna tura puih a ni.

ME/CFS vei tam tak tan Cognitive Behavioral Therapy (CBT) hi a \angkai hle tih hmuhchhuah a ni. An natna lan chhuah dan leh anmahni hruaitu ngaihtuahna leh nungchang te chu a hmachhawn tha zawk theih nan a pui thin.

I chakna level aia tam hna thawk lo turin i fimkhur hle a ngai a ni. Taksa leh rilru lama i chau tawh chuan "pacing" - chu chu a inkara chawlh lak te, taksa hnathawh leh rilru hnathawh inthlak danglam te hi a \angkai hle thei a ni.

I doctor chuan ME/CFS vei midangte nen support group-ah tel ve turin a rawt thei bawk. Heng pawlte hian fuihna tam tak, thu hriat tur tam tak an pe thei che a, i dinhmun nena inzawm thil tawn leh thil tawn te insem theihna hun remchang tam tak an pe thei che a ni.

ME/CFS tan eng nge hmalam hun?

Enkawlna a awm chuan ME/CFS symptom tam zawk hi eng emaw chen chu a tha chho zel a ni. Mahse, mi thenkhat chu an natna lan chhuah hmaa an hriselnaah an kir leh kim ngai lo mai thei. He dinhmun hian mi tinte a nghawng dan hi a inang lo hle. I dinhmun leh i hmalam hun tur chungchang doctor nen inbiakna neih a tha ber.

Engtikah nge Doctor i hmuh ang?

ME/CFS (a bik takin thla ruk aia rei hahna) i neih chuan doctor pan ngei ngei tur a ni. I doctor chuan i natna lan chhuah dan chu a zirchiang ang a, hahdamna i hmuh theih nan enkawlna ruahmanna a siam ang.

A châng chuan khum aṭanga tho tûra i chau lutuk hian Doctor hmuh chu thil lian tak a ni thei. Chutiang hunah chuan i natna lan chhuah danin a nghawng dan tur chu phone hmangin doctor hnenah hrilhfiah hreh suh. I doctor hian ‘virtual appointment’ pawh a pe thei che a, chutiang chuan nangmah ngeiin i in atanga i inzawm theih nan.

He natna hi hriat hmasak a, enkawl tan chuan hahdamna i hmu nghal thei a ni.

Doctor hnenah eng zawhna nge ka zawh ang?

Doctor hmu tura i kal hian hetiang zawhna hi i zawt thei ang:

• Eng ang enkawlna nge min rawt?
• Enkawlna hian side effect a nei em?
• Engtin nge ka activity limit te hi ka hmuh theih ang?
• Ka dam tawk a nih chuan ka tih theih chin piah lamah hna ka thawk thei ang em?
• Engtin nge ka mut dan (`sleep hygiene`) ka tihchangtlun theih ang?

Hetiang zawhna hi zawt la, i dinhmun hriatthiamna tha zawk nei rawh.

Take-Home Thuchah hnuhnung ber

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) hi nunna atana hlauhawm tak leh harsa tak a ni. Mahse, nangmah chauh i ni lo.He dinhmun hi i hriatthiam a, uluk taka i enkawl chuan a natna lan chhuah dan chu i thunun thei a, nun tha zawk i hmang thei bawk.

• Chawlh hahdamna nen a reh lo persistent fatigue i neih chuan , ngaihthah suh. Damdawi lam thurawn zawng rawh.
• "Pacing" tih technique hi zir la, i chakna level chu uluk takin hmang rawh.
• Zan mut hahdam tum ang che .
• Ṭanpuina i mamawh chuan, chhûngte, ṭhiante, leh doctor-te hnêna ṭanpuina dîl chu zak suh .
• Support group te hian rilru chakna nasa tak an pe thei che a ni.

He thu hi i tangkaipui ngei ka beisei. Hrisel takin awm rawh!

` Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, ME/CFS, hahna, chau rei tak, exercise hnua natna, mut theih lohna, taksa na, Sinhala hriselna