Spinal Muscular Atrophy (SMA) vaccine Onasemnogene Abeparvovec chungchang zawng zawng hi a awlsam zawngin sawi ila

Doctor-in i fate hian Spinal Muscular Atrophy (SMA) tih natna a nei tih a hrilh che khan i mangang hle ngei ang. Subject sensitive tak a ni. Mahse tunah chuan medical science hian hma a sawn nasa hle. Chutiang dinhmun enkawlna kawng thar, hlawk tak tak hmuhchhuah a ni. Onasemnogene Abeparvovec hi chutiang hmasawn tak, vawi khata gene therapy hman thin zinga mi a ni. Brand name Zolgensma hmanga hriat lar tak a ni. Chuvangin vawiinah hian he damdawi, a thiltih, fimkhur tur thil, leh a side effects te hi i hriatthiam theih tur awlsam takin i sawi ang u.

Hei hi eng damdawi nge ni? Eng thil chiah nge thleng?

A awlsam zawngin, Onasemnogene Abeparvovec hi damdawi a ni a , Spinal Muscular Atrophy (SMA) tih hming pu damdawi a ni. SMA hi genetic disease a ni a, kan taksa peng hrang hrangte chu zawi zawiin a chak lo va, a tichhe zauh zauh thin. Hei hi taksa ruh hriselna atana pawimawh protein siamtu gene a chhiat vang a ni.

He damdawi hian a tih chu gene chhia chu chu protein dik taka siam thei gene copy hrisel tak hmanga thlak hi a ni. Hei hi gene therapy an ti a . He gene hrisel tak hi taksaa a luh chuan protein pawimawh tak chu a siam tan ta a ni. Hei hian taksa ruh chak lohna a titawp a, a natna lan chhuah dan pawh a thunun thei bawk.

He damdawi hi i ei hmaa doctor hnena hrilh tur thil

Hei hi enkawlna bik tak a nih avangin medical team te hnenah i fa hriselna dinhmun kimchang taka sawifiah a pawimawh hle. Enkawlna i tan hmain heng thilte hi a bik takin doctor hnenah hrilh hmasa phawt ang che:

• Tuna hri kai mek: Naupangin khawsik, khawsik, khuh ang chi natna a neih chuan.
• Liver natna: Thin natna eng emaw i neih chuan.
• Dehydration: Taksaah tui tlakchhamna a awm chuan.
• Allergy: He damdawi emaw damdawi dang emaw ei tur dang emaw allergy i neih chuan.
• Naupai emaw, nau hnute pek emaw: He enkawlna hi naupang tê tê tê tê têa tih a ni tlangpui a, chuvangin hei hi a inzawm lo a, mahse engti kawng pawha tleirawl hnena pek a nih chuan hei hi hriat a pawimawh hle.

Engtin nge damdawi hi pek a nih?

Hei hi home remedy a ni lo. Hospital emaw specialized clinic emaw-ah pek a ni a, doctor leh nurse-te awmna medical team enkawlna kimchang hnuaiah pek a ni.

Hei hi thisen kal tlanga infusion a ni. Saline ang maiin vein-ah darkar khat vel chhung pek a ni. He enkawlna hi nausen piang tharte pawh pek theih a ni. Mahse, fimkhur bik leh enkawl reng a ngai a ni.

I overdose a nih chuan engtin nge i tih ang?

Hei hi damdawi ina medical team-in an pek avangin overdose a awm theihna chance a tlem hle. Mahse, thil thleng nia i rinhlelh chuan medical team-te hnenah hriattir nghal rawh. Chutiang a nih loh chuan Colombo National Hospital-a National Poisons Information Center-ah call rawh . A nih loh leh naupang chu damdawi in hnai ber Emergency Treatment Unit (ETU)-ah hruai rawh.

Enkawl lai leh enkawl hnua ngaihtuah tur thil

Hetianga enkawlna kan dawn hnu hian a bik taka fimkhur tur thil tlemte a awm.

Damdawi lam enkawl reng reng

Enkawl zawhah naupang dinhmun hi Doctor ten an enfiah reng dawn a ni. Thisen test hi liver function ang chi thil enfiah nan tih fo theih a ni .

Hri kai theihna a awm

He damdawi hian taksa hriselna (immune system)-ah eng emaw chen nghawng a nei thei a, chu chuan hri kai theihna a tipung a ni.

• Khawsik, khawsik, khuh, ril na ang chi symptoms i neih chuan doctor ko nghal rawh.
• I duh angin damdawi pe suh.
• I fa chu damlote lakah a hla thei ang bera dah la.

Taksa tui midangte hnena darh zel tur venna (a pawimawh hle!) .

He enkawl lai hian hei hi i ngaihven tur pawimawh ber a ni. Gene therapy pek a nih hnuah naupang taksa tui ( hmui, zun, leh bawlhhlawh ang chi)-ah chuan thla khat vel chhung chu enkawlna hnuhma a awm thei a ni . Hengte hi midang taksaa a luh palh loh nan i ven a ngai a ni.

• Kut sil dan: I fa taksa tui i inhnaih apiangin sahbawn leh tui hmangin uluk takin kut sil thin la, a bik takin diaper i thlak hnuah.
• Gloves hman: A theih chuan naute diaper i thlak dawnin disposable gloves ha la.
• Nappies leh bawlhhlawh paih dan: Naute nappies bawlhhlawh, zun hring leh thil dang te chu plastic bag tha taka khar chhungah dah la, bawlhhlawh paihna pangngai nen paih rawh.

Point dang pawh

• Thisen chhuah theihna: Hliam tenau tak pawh hian he hun chhung hian thisen chhuahna a tipung thei. Chuvangin ha i sil dawnin toothbrush nem tak hmang thin ang che. Ha enkawltu i hmuh chuan i fain he enkawlna hi a lo nei tawh tih hrilh ngei ang che.
• Tumor awm theihna: 1.1.He damdawi avang hian taksaah hian tumor lo awm theihna chance a tlem hle. Chung zinga a tam zawk chu cancer (benign) an ni lo. Mahse, i fa taksa khawi hmunah pawh tumor thar emaw, lump emaw i hmuh chuan doctor hnenah hrilh nghal rawh.

A side effects te chu engte nge ni?

Damdawi dang ang bawkin he enkawlna hian side effect a nei thei a ni. Ṭhenkhat chu a serious a, a then chu a common. Hengte hi hriat chian a pawimawh.

He list-ah hian side effect awm thei zawng zawng a tel lo. Chu bâkah, i fa chungchânga thil danglam emaw, danglam emaw i hmuh chuan chu chu i doctor hnênah pawh sawipui rawh.