I chhungkuaah emaw, i hriat emaw, pianpui mitdelna nei an awm em? A châng chuan hengte hi thlah khat atanga thlah khata thlah kal zel, thlahtu natna (genetic diseases) avanga lo awm a ni. Ni tin, mit hmuhna a tlahniam thei a, a tawpah chuan hmuh theih loh khawpin a lo awm ta a ni. Chuvangin, vawiin hian hetiang mit natna hmuh tur awm lo, thlahtute atanga lo chhuak, damdawi lam science lama enkawlna thar ber, hmasawn ber ber kan sawi dawn a ni. A hming chu Voretigene Neparvovec a ni.
A awlsam zawngin Voretigene Neparvovec chu eng nge ni?
Hei hi kan hman tlangpui pill, capsule, ointment ang damdawi a ni lo. Hei hi Gene Therapy an ti a . Hei hi brand hming chu LUXTURNA a ni .
He enkawlna hi kan mit retina tichhe thei hereditary vision impairment bik enkawlna atan hman a ni. A bik takin kan taksaa RPE65 gene chhiatna avanga mit lama harsatna awm chu a enkawl a ni.
Chuti a nih chuan, he gene therapy hi eng nge ni?
Kan taksaa thil awm zawng zawngte hnathawh dan tur thupek ziakna lehkhabu lian tak a awm tih han ngaihtuah teh. He lehkhabu hi kan genes a ni . A châng chuan he lehkhabu phek khat, chu chu gene pakhatah hian tihsual, tihsual a awm thei. RPE65 an tih gene-a tihsual hi chutiang thil pakhat a ni.
He enkawlna hi Voretigene Neparvovec tia koh a ni a, virus hlauhawm lo chu carrier atan hmangin gene dik lo chu gene dik lo nei cell-ah a dah lut a ni. Page pakhat chu instruction dik lo hmanga thlak a, page thara instruction dik tak hmanga thlak ang mai a ni. Hemi hnu hian mit cell te chu an thawk tha leh thei a, hei hmang hian mit hloh chu eng emaw chen chu a lo awm leh thei a, mit hmuhna hloh belh zel pawh a titawp thei bawk.
Hei hi medical science lama hmasawnna lian tak a ni tak zet a ni. Tun hmaa tihdam theih loh natna enkawlna hlawhtling tak a awm tawh tih hi beiseina ropui tak awmchhun a ni.
Hetiang enkawlna i neih hmaa i doctor hnena i hrilh tur thilte
Hei hi enkawlna bik tak a nih avangin i doctor-in i hriselna chanchin kimchang a hriat a pawimawh hle. A hnuaia mite hi hrilh ngei ang che:
- Mit natna dang: Mit natna dang emaw, mit lama harsatna i neih tawh zawng zawng (e.g. cataracts, glaucoma).
- Allergy: He damdawi (voretigene neparvovec), damdawi dang, ei tur, dye, emaw, preservatives emaw allergy i neih chuan min hrilh teh.
- Naupai leh naupai lai: 1.1.Naupai, naupai tum emaw, nau hnute i pek emaw a nih chuan doctor hnenah hriattir ngei ngei tur a ni .
He damdawi hi engtin nge i hman?
Hei hi home remedy a ni lo. Hei hi mit chhunga injection a ni . Hei hi mit surgeon training bik nei chuan damdawi in operation room ang maia controlled tak, thianghlim takah a ti thin. Chuvangin ngaihtuahawm a awm lo, i himna chu a theih ang anga enkawl a ni.
Hei hi naupang tê tête hnênah pêk theih a ni em?
Awle. He enkawlna hi naupang kum khat lek, dinhmun remchang hnuaiah pek theih a ni. Mahse, a chungchanga thutlukna hnuhnung ber chu i fa enfiahtu naupang enkawltu leh mit surgeon-in a siam a ni. Hetiang enkawlna hi naupang i pek a nih chuan medical team te nen uluk taka sawipui a, engkim sawifiah a pawimawh hle.
Damdawi i ei tam lutuk chuan eng nge thleng ang?
Hei hi damdawi inah pek a nih avangin, doctor-te enkawlna kim hnuaia pek a nih avangin, ‘overdose’ a awm theihna chance a tlem hle. Amaherawhchu, chutiang thil thleng nia rinhlelhna a awm chuan damdawi in thawktute chuan hma an la nghal ang. A tlangpuiin, chutiang a nih chuan , Colombo National Hospital-a National Poisons Information Center emaw, Emergency Treatment Unit (ETU) hnai ber emaw hnenah hriattir a ni.
Enkawl lai leh enkawl hnua ngaihtuah tur thil
Enkawl lai leh enkawl zawhah doctor ten uluk takin an lo vil reng ang che. Mawhphurhna ropui tak i nei bawk.
I mit hmuhnaah inthlak danglamna i hmuh chuan - mit hmuhna tlahniam, mit hmuhna fiah lo, i mit hmaa hmun dum a lo inphah, êng laka invenna sang, emaw mit na emaw, a sen emaw te hi - doctor hnenah hrilh nghal rawh Hei hi a pawimawh hle.
Side effect awm thei te chu engte nge ni?
Damdawi dang ang bawkin, a side effect awm thei thenkhat a awm. A bik takin a hnuaia mite hi hre reng ang che.
| Side effects awm thei chu doctor hnenah hriattir nghal tur a ni | |
|---|---|
| Side effect a awm thei | Hrilhfiahna |
| Allergy natna a awm thei | Skin rash, itching, swelling of body, a bik takin hmai, hmui emaw lei emaw a hring. |
| Mit atanga thisen chhuak | Mit chhung emaw pawnah emaw thisen chhuak. |
| Vision a danglam thin | Blurred vision, mit hmaa black dots emaw net emaw a lo inphah lai hmuh, êng eng mawi tak tak hmuh. |
| Mit na a na | Mit na reng reng emaw, na tak emaw. |
| Mit pressure a sang chho zel | Mit chhunga pressure awm tih hriat. Hei hi Doctor-in a enfiah ang. |
| Mit natna (cataract) a awm | Enkawl hnuah mit hmuhna a fiah lo. |
He list-ah hian side effect zawng zawng a tel lo mai thei. Symptom danglam tak tak i neih chuan i doctor nen sawiho rawh.
Take-Home Thuchah a ni
- Voretigene neparvovec (LUXTURNA) hi RPE65 gene a chhiatna avanga mit natna thlahtute tan gene therapy bik a ni.
- He enkawlna hi damdawi inah mit surgeon specialist-in a ti a, mit lamah injection a inject a ni .
- Enkawl hmain doctor hnenah i damdawi lam dinhmun zawng zawng, allergy zawng zawng, leh naupai leh naupai loh chungchang kimchang takin hrilh rawh.
- Enkawlna i neih zawh chuan i mit hmuhna, mit na, a nih loh leh i sen loh i neih chuan i doctor hnenah hriattir nghal rawh .
- Hei hi mi zawng zawng tan enkawlna a ni lo. He enkawlna hi i tan a tha em tih chu damdawi lam enfiahna uluk tak hnuah a ni ang.
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