I mahara ahau he mamae puku, engari he mate pukupuku GIST tēnei? (Pukupuku Stromal Gastrointestinal)

He mamae puku noa iho tō puku i ētahi wā? He ngenge rawa rānei tō puku, kāore he take? Tērā pea kei te whakaaro koe he mea e pā ana ki tāu e kai ana i ēnei rā, he mate gastritis rānei. Koinei te āhua i te nuinga o te wā. Engari, ahakoa he onge, ka taea hoki e ēnei tohu te tohu i tētahi mate pukupuku onge, kāore i te tino kitea. Koinei tā tātou e kōrero ai i tēnei rā. Ko GIST tēnā, ko Gastrointestinal Stromal Tumor rānei. Kaua e mataku ina rongo koe i te ingoa, ka kōrerohia e mātou ngā mea katoa i roto i te reo māmā me te mārama.

He kupu ngāwari noa iho, he aha tēnei GIST?

Ko te GIST he whakarāpopototanga mō te Gastrointestinal Stromal Tumor . Me wehewehe ēnei kupu.

• Puku: E pā ana tēnei ki tō tātou pūnaha nakunaku. Arā, ko te ara e haere ai te kai e kainga ana e tātou - te waha, te korokoro, te puku, te whekau iti, me te whekau nui.
• Stromal: E pā ana tēnei ki tētahi momo kiko motuhake e kitea ana i roto i ngā pakitara o ō tātou whekau, ā, he tautoko hoki mō aua whekau.
• Puku: Kua rongo pea koe i tēnei. Ko te tikanga he puku.

He whakarāpopototanga noa iho, he pukupuku matepukupuku te GIST e tīmata ana i roto i tētahi momo pūtau motuhake i roto i te pakitara o tētahi okana i roto i tō tātou pūnaha nakunaku (ko te puku, ko te whekau iti rānei te nuinga o te wā).

He momo mate pukupuku onge tēnei, nō te rōpū sarcomas kiko ngohengohe. I roto i ngā pakitara o ō tātou whekau, kei reira ngā pūtau motuhake e kiia nei ko ngā "pūtau interstitial o Cajal." Whakaarohia ēnei pūtau hei kaiwhakaoho i ō tātou whekau. Ka āwhina ēnei pūtau ki te whakahaere i ngā whakahekenga auau e hiahiatia ana hei pana i te kai mā roto i ngā whekau. Ka puta ngā pukupuku GIST ina he hapa kei roto i ēnei pūtau, ka wehea e rātou me te kore e taea te whakahaere.

I ētahi wā, he rite te iti o ēnei whēwhe ki te ūkui pene. Ina iti, ka noho tonu mō ngā tau maha, kāore he tohu e puta. Heoi, ka tipu haere ētahi whēwhe, ā, ka tīmata te whakaputa tohu e whakararuraru ana i a tātou.

He aha ngā tohu pea o te GIST?

I te nuinga o te wā, ka kitea noatia ēnei pukupuku i te wā o te matawai, i te pokanga rānei mō tētahi atu take, kāore he tohu. Engari ki te puta mai ngā tohu, ka pēnei te āhua. Me whakatakoto e tātou ki tētahi ripanga ngāwari ki te mārama.

He aha i whanake ai tēnei GIST? He aha te take?

I te nuinga o te wā, ko te tino take o te GIST he panonitanga o tētahi o ō tātou ira. Whakaarohia ngā ira i roto i tō tātou tinana hei pukapuka tohutohu mō tō tātou tinana kia tipu me te mahi. He whārangi kei roto i tēnei pukapuka tohutohu e kīia nei ko `(KIT gene)`. E ai ki ngā tohutohu kei runga i tēnei whārangi, ko ngā pūtau e kīia nei ko `(interstitial cells of Cajal)` i kōrerohia e tātou i mua ake nei ka hangaia, ka whakahaeretia hoki.

Engari i ētahi wā, ka hē te tuhi o tētahi reta, o tētahi kupu rānei i tēnei whārangi `(ira KIT)`. He rite ki tētahi hapa pato. I roto i te rongoā, ka kiia tēnei he `(whakarerekētanga)`. Nā tēnei hapa, ka tukuna e te ira KIT ngā tohutohu hē hei whakaputa i tētahi pūmua motuhake e kiia nei ko `(KIT CD117)`. Nā tēnei pūmua hē, ka whiwhi tonu aua pūtau i tētahi tohu kia "wehe tonu, wehe tonu." Koinā te wā ka tipu haere aua pūtau me te kore e taea te whakahaere, ka hanga he pukupuku.

He maha ngā wā ka puta noa mai ēnei huringa ira i roto i ō tātou oranga. Ara, ehara i te mea i whānau mai me tātou.

Heoi, he tino onge te hononga o tēnei āhuatanga ki ngā āhuatanga ira e tukuna iho ana i tētahi whakatipuranga ki tētahi whakatipuranga. Ko ētahi o ēnei āhuatanga ko:

• Te mate GIST whānau: He tino onge tēnei mate. I tēnei wā, ka riro i te tamaiti te ira KIT hapa mai i tētahi o ngā mātua. I tēnei wā, ka puta pea ngā pukupuku GIST i te wā taitamariki, ka puta pea rānei i te neke atu i te kotahi te pukupuku.
• Neurofibromatosis momo 1: He mate ira anō hoki tēnei. Ka puta he pukupuku i roto i te kiko io o te tinana. He nui ake te tūponotanga o te hunga whai mate pēnei ki te pāngia e te GIST i te taupori whānui.
• Te mate Carney-Stratakis: He mate tino onge tēnei, he mate tuku iho. Ko te hunga whai mate pēnei ka nui ake te tūponotanga ki te whakawhanake i te GIST.

Me pēhea te tātaritanga a ngā tākuta i te GIST?

Ina haere koe ki te tākuta me ngā tohu kua whakahuatia ake nei, ka pātai tuatahi ia ki a koe mō ō tohu. Kia pēhea te roa o te noho, me pēhea te āhua, me ērā atu mea. Kātahi ka tirotirohia koe e ia. Hei tāpiri, ka tūtohu ia i ētahi whakamātautau hei whakatau i te tino pūtake o te mate.

Ngā whakamātautau matua i mahia

• Te tirotiro i te pito o runga: Koinei te whakamātautau tuatahi e mahia ana. He māmā noa iho, ka whakauruhia he ngongo me te kāmera iti e piri ana ki roto mā te waha, ā, ka tirohia te korokoro, te puku, me te wāhanga tuatahi o te whekau iti. Ka taea e tēnei te tirotiro tika mō ngā pukupuku me te toto.
• Matawai CT: Ka tangohia ngā whakaahua whakawhiti-wāhanga o roto o tō tātou tinana. He rite ki te tapahi i tētahi poro taro. Ka taea e tēnei te whakaatu mārama i te rahi o te pukupuku, tōna wāhi, me te mea kua horapa ki ētahi atu whekau, pērā i te ate.
• Te koiora:Koinei te whakamātautau tino nui hei whakaū i te mate 100% o te wā. I te wā o te endoscopy, i tētahi atu tikanga rānei, ka tangohia he wahi kiko iti rawa mai i te pukupuku whakapae. Kātahi ka tirohia te kiko i raro i te karuārai i roto i te taiwhanga hei tirotiro mēnā he pūtau GIST.
• Matawai PET: I ētahi wā, inā koa mēnā he whakapae kua horapa te mate pukupuku ki ētahi atu wāhanga o te tinana, ka taea pea tēnei whakamātautau te mahi.

He aha ngā maimoatanga mō te GIST?

Ko te maimoatanga mō te GIST e whakawhirinaki ana ki te rahi o te pukupuku, tōna wāhi, me te horapa atu ki ētahi atu wāhi. E rua ngā momo maimoatanga matua.

1. Pokanga:

I te nuinga o te wā, ko te rongoā pai mō ngā pukupuku GIST ko te tango katoa i te pukupuku mā te pokanga. Mena he iti te pukupuku, ā, kāore anō kia horapa ki ētahi atu wāhi, mā te pokanga anake ka taea te whakaora katoa i te mate.

2. Te Whakaora Whaiaro:

Koinei te mea tino hou rawa atu mō te maimoatanga GIST. He rerekē ēnei rongoā i te chemotherapy noa, he rite ki ngā "poma atamai". Ka aro tika atu rātou ki te pūmua KIT hapa i kōrerohia e tātou i mua ake nei. Nō reira, he iti noa te kino ki ngā pūtau hauora.

• I mua i te pokanga: Mena he tino nui te puku, ā, he uaua ki te pokanga, ka tukuna tuatahitia tēnei maimoatanga kua tohua, kātahi ka mahia te pokanga i muri i te mimiti haere o te puku.
• I muri i te pokanga: Mena he tūponotanga ka hoki anō te mate i muri i te pokanga, ka hoatu hoki ēnei rongoā hei whakaiti i taua tūponotanga.
• Mena kua horapa te mate pukupuku: Mena kua horapa rawa te puku, kāore e taea te tango, me tango pea e koe ēnei rongoā mō te toenga o tō oranga hei whakahaere i te mate me te whakaiti i ngā tohu.

He aha ngā mea ka taea e koe te tumanako atu ina noho koe me te mate GIST?

I muri i te maimoatanga, ka pai ake pea ngā tohu, ā, i ētahi wā ka ora katoa te mate. Heoi, he mate pea te GIST ka hoki mai anō. Nō reira, he mea nui kia noho tonu te whakapā atu ki tō tākuta mate pukupuku, māna koe e tiaki ahakoa kua oti te maimoatanga.

Ka whai wā tirotiro anō koe me tō tākuta i ia 3 ki te 6 marama. I ēnei wā, ka whakahaerehia he whakamātautau hei tirotiro i ngā tohu o te hokinga mai anō o te mate.

• Ngā matawai CT
• Ngā matawai MRI
• Ngā matawai PET

Ka whakahaerehia e mātou ngā whakamātautau pēnei hei whakarite kei te pai ngā mea katoa.

Nā te mea he mate onge te GIST, he mea noa te ohorere me te mataku ina rongo koe mōna. Engari kia maumahara, he tino whai hua ngā maimoatanga mō tēnei mate ināianei. Kāore koe i te mokemoke. Kei reira tō tīma hauora, tō whānau, me ō hoa katoa hei āwhina i a koe. Akohia tēnei mate, pātai atu, ā, kia pai te aro atu ki te maimoatanga.