He maremare maroke tonu tāu, kua roa nei e mau ana mō ngā rā, mō ngā wiki pea? He uaua ki a koe te manawa, ahakoa e hikoi ana i te tawhiti poto, e mahi ana i ngā mahi o te whare, e piki arawhata rānei? I te nuinga o te wā, ka whakaarohia ēnei mea he "mātao noa iho." Engari i ētahi wā, kei muri i ēnei tohu, tera pea he mate pūkahukahu kāore anō kia rangona, engari me tino āwangawanga tātou. I tēnei rā, kei te kōrero tātou mō tētahi mate pēnei, ko te NSIP, ko te Nonspecific Interstitial Pneumonia rānei.
He aha te NSIP (Nonspecific Interstitial Pneumonia)?
Ahakoa te āhua uaua o te ingoa, kia māmā noa iho. He mumura anō hoki te NSIP o ngā pukahukahu. Engari he rerekē paku tēnei i te niumōnia noa e rangona pinepinetia ana e tātou.
Whakaarohia ō pūkahukahu he okana i hangaia mai i ngā miriona o ngā pēke hau iti, rite ki te karepe (alveoli). Ina manawa tātou, ka uru te hāora ki ngā pūkahukahu, ka tomo ki te toto mā roto i ēnei alveoli. I roto i te NSIP, kāore te mumura e puta i roto i ngā alveoli tonu, engari i roto i ngā āputa i waenganui i a rātou me ngā kiko e karapoti ana i ngā oko toto . Koinei te mea e kiia nei e tātou i roto i te rongoā ko te "mate pūkahukahu interstitial".
He maha ngā wā ka kitea tēnei āhuatanga i roto i te hunga e pāngia ana e te mate hononga kiko (CTD). Ka taea hoki te hono atu ki ētahi atu āhuatanga hauora. He rerekē ki te niumōnia noa iho, e memeha haere ana i roto i ētahi rā torutoru, ka roa pea te wā, ā, i ētahi wā ka puta he koha tuturu ki ngā pukahukahu.
E rua ngā momo matua o ngā NSIP.
E rua ngā momo matua o te NSIP e wehea ana e ngā tākuta, i runga i te momo kino o ngā pukahukahu. He mea nui kia mōhio koe ki ēnei momo e rua, nā te mea ko te maimoatanga me te matapae ka whakawhirinaki ki te momo.
| Momo NSIP | He whakamārama māmā |
|---|---|
| NSIP Waea Pūkoro | Ko te mea ka tupu i roto i tēnei, ka mumura ngā pūtau i waenganui i ngā pēke hau i kōrerotia i mua ake nei. Ko te tikanga ka pupuhi aua pūtau. Koinei te momo e pai ake ana i ngā momo NSIP e rua, ā, ka pai te urupare ki te maimoatanga.Ka taea te whakaora rawa mā te maimoatanga tika. |
| NSIP Pūmua | I roto i tēnei, ka matotoru, ka pakari, ka whara te kiko o te pukahukahu. Ka kiia tēnei he fibrosis . He mate kino tēnei, nā te mea kāore e taea te whakakore i te whara e puta ana. Heoi, mā te maimoatanga, ka taea te whakahaere i te tere o te puta o tēnei whara. |
He rerekē tēnei i te niumōnia noa?
Āe, tino tika. He mea tino nui kia mārama ki tēnei rerekētanga.
- Pneumonia: He mumura tēnei o ngā pēke hau (ngā pēke āhua karepe) i roto i ngā pukahukahu . Tērā pea ka kī tonu i te wai, i te wai rānei. He maha ngā wā ka puta mai tēnei i te mate kitakita, i te mate huaketo rānei.
- Te niumōnia interstitial (pērā i te NSIP): I roto i tēnei, ka puta te mumura i ngā āputa i waenganui i ngā pēke hau. Ko te tikanga o tēnei kua pakaru te hanganga me te anga o ngā pukahukahu. He maha ngā wā, kāore e kitea he tino take mō te NSIP.
Ko tētahi atu mea, ko te 'Usual Interstitial Pneumonia (UIP)' tētahi atu ingoa e whakamahia ana mō te mate 'Idiopathic Pulmonary Fibrosis (IPF).' He mate kino, he mate kore e taea te whakaora te IPF e puta ai he koha i roto i ngā pukahukahu. Heoi, ko te NSIP, inā koa ko te Cellular NSIP, ka taea te whakaora mā te maimoatanga. Nō reira, kaua e whakapoauau i ngā mea e rua.
He aha ngā tohu o te NSIP?
Kāore pea ngā tohu o te NSIP e tino kitea i te tīmatanga, ā, ka piki haere te kino haere i roto i te wā. He mea nui kia mōhio koe ki ēnei tohu.
- Maremare maroke: Koinei te tohu matua, te tohu tino kitea. He maremare pumau, whakarihariha, kāore he huware.
- Te poto o te manawa: I te tīmatanga, ka kitea pea i te wā e whakakorikori tinana ana, e hikoi tere ana rānei. Heoi, i te haere whakamua o te mate, ka uaua pea te manawa ahakoa e tū noa ana.
- Te manawa uaua: Te āhua me te mea me whakapau kaha koe ki te manawa.
- Ngenge: Te ngenge tonu, te ngenge rawa ahakoa kāore he mahi e mahia ana.
- Ngā matihao kua pākia: He mea onge tēnei, engari tera pea he porotaka ngā matihao o ētahi tāngata, ā, he pupuhi hoki ngā maikuku.
Mena kei a koe ēnei tohu, inā koa te maremare maroke me te poto o te manawa, mō ētahi wiki, mēnā rānei kei te kino haere, kaua e warewaretia, engari me toro atu ki te tākuta.
He aha ngā take o te NSIP? He aha ngā āhuatanga mōrearea?
Ki te pono, kāore anō ngā tohunga kia tino mōhio he aha te take o te NSIP. Engari ina tirohia te hunga whai mate nei, ka kitea e rātou he mate hauora kē atu ō rātou. Ko te tikanga, ahakoa ehara i te mea pono ko ēnei mate te take o te NSIP, he hononga kaha kei waenganui i a rātou.
Ka piki ake te mōrearea o te whakawhanake i te NSIP i ēnei mea e whai ake nei.
| Tauwehenga mōrearea | Whakaahuatanga |
|---|---|
| Ira tangata me te tau | Ko te nuinga o te wā ka kitea tēnei mate i waenga i ngā wāhine i waenga i te 40 me te 50 tau te pakeke . |
| Ngā Mate Hononga o te Tio | Koinei te hononga matua ki te NSIP. He mate pūnaha ārai mate ēnei e whakaekehia ai e te pūnaha ārai mate o te tinana ōna ake kiko. Hei tauira, ko te Rheumatoid Arthritis , te Lupus , me te Scleroderma (he mate e whakamātotoru ana i te kiri). |
| Ngā mate huaketo | Tērā pea ka pā mai ētahi mate huaketo. Hei tauira: HIV me te Hepatitis . |
| Ngā tauhohenga ki ētahi rongoā | Ka taea hoki e ētahi rongoā te whakararu i ngā pukahukahu hei pānga taha. Ka kiia tēnei ko te "pneumonia interstitial i puta mai i te rongoā". Ko ētahi tauira ko te chemotherapy mō te mate pukupuku, te radiotherapy, me ētahi rongoā mō te mate ngakau. |
Me pēhea te tautuhi a te tākuta i tēnei mate?
Ina haere koe ki te tākuta, ka whakarongo tuatahi ia ki ō tohumate. Me kōrero anō hoki koe ki te tākuta mō ētahi atu mate hauora kei a koe me ngā rongoā e tangohia ana e koe. Kātahi ka whakahau ia i ētahi whakamātautau hei tātaritanga i te mate.
- Ngā whakamātautau mahi a ō pūkahukahu: Ko te tikanga me manawa koe ki roto i tētahi mīhini, e ine ana i te nui o te hau ka taea e ō pūkahukahu te ngongo me te tere o tō manawa ki waho.
- X-ray o te uma: Mā tēnei ka āwhina i te māramatanga taketake mēnā he āhuatanga rerekē kei roto i ngā pukahukahu.
- Matawai CT (Matawai Tomography Rorohiko): Ka taea e tēnei te whakaputa i ngā whakaahua toru-ahu, he mārama ake i te hihi-X. He mea nui te matawai CT hei aromatawai tika i te whānuitanga o te kino o te pukahukahu me tōna āhua (pūtau, pūtau rānei).
- Pūnaha tirotiro manawa: Ka tukuna he ngongo iti, he rama, me te kāmera mā te waha, mā te ihu rānei, ki roto i ngā pukahukahu hei tirotiro i te roto o ngā ara manawa. Mēnā e tika ana, ka taea te tango i tētahi tauira o ngā pūtau hei whakamātautau.
- Biopsy: Koinei te whakamātautau pai rawa atu hei whakaū i te mate 100%. I roto i tēnei, ka tangohia he wahi kiko iti rawa mai i te pukahukahu mā te pokanga, ā, ka tirohia i raro i te karu hiko.
He aha ngā maimoatanga mō te NSIP?
E rua ngā whāinga matua a ngā tākuta i te wā e rongoā ana i te NSIP. Ko tētahi he whakaiti i te mumura o ngā pukahukahu. Ko tētahi he whakahaere i ngā mate hauora e pā ana ki tēnei mate (pērā i te mate rumatiki) e puta ai te NSIP.
I ngā wā tino kino, ka whakamahia hoki ētahi atu maimoatanga hei whakapakari i ngā pukahukahu me te whakarato i te nui o te hāora e tika ana ki te tinana.
- Ngā rongoā:
- Ngā corticosteroids pēnei i te prednisolone: He rongoā momo steroid ēnei e tere ai te whakaiti i te mumura.
- Ngā rongoā ārai mate: Ko ngā rongoā pēnei i te 'Azathioprine', 'Cyclophosphamide', me te 'Mycophenolate' ka mahi mā te whakahaere i te mahi a te pūnaha ārai mate o te tinana, me te aukati i te kino o ōna ake pukahukahu.
- Ngā rongoā ārai-fibrotic: Ka whakamahia ngā rongoā pēnei i te 'Pirfenidone' me te 'Nintedanib' ki te hunga whai Fibrotic NSIP. Ka whakaroa ēnei i te tere o te hanga i ngā koha i roto i ngā pukahukahu.
- Rituximab: He rongoā "koiora" tēnei e whakamahia ana mō ngā mate kiko honohono.
- Ētahi atu Whakaora:
- Te whakaora i ngā pūkahukahu: He kaupapa whakakori tinana me te tohutohu motuhake tēnei e āwhina ana ki te whakahaere i ngā uauatanga manawa me te whakapakari i te tinana.
- Whakaora hāora: Ka tukuna te hāora mā te ngongo ki te hunga he iti te taumata hāora i roto i te toto.
- Te whakawhitinga pukahukahu: Koinei te kōwhiringa whakamutunga e whakaarohia ana mō te hunga he tino kino te mate kua kore e angitu i ngā maimoatanga katoa.
Ka pēhea rā te āhua o te oranga me tēnei mate?
Ko te whakautu ki tēnei pātai e whakawhirinaki ana ki te momo NSIP kei a koe.
He tino pai te tirohanga mō te tangata whai NSIP pūtau . Mēnā he tika te maimoatanga, ka taea te ora katoa. E tata ana ki te 100% te ōrau oranga mō ngā tau e rima. Heoi, me tango e koe he rongoā i raro i te tirotiro a te tākuta mō ētahi marama.
I roto i te NSIP fibrotic , kāore e taea te whakatika i te kino o ngā pukahukahu. He pumau te whara. Nō reira he ahua kino tēnei. Kaua e manukanuka. Ka taea e te maimoatanga te whakaroa i te haere whakamua o te mate me te whakaroa i te oranga. E whakaatu ana ngā rangahau ka taea e te tangata te ora mō te toharite o te 6 ki te 14 tau i muri i te tautuhi mate.
He aha ngā pātai me pātai atu e au ki te tākuta?
Mena kua tāpaetia koe kei te mate NSIP, he mea noa te maha o ngā pātai kei roto i tō hinengaro. Ina haere koe ki te kite i tō tākuta, kaua e wareware ki te pātai i ēnei pātai.
- He take motuhake kei reira e pāngia ai ahau e tēnei āhuatanga?
- He aha te momo kei a au, Cellular, Fibrotic rānei?
- He aha ngā kōwhiringa maimoatanga e pai ana mōku?
- He pānga taha kei roto i ēnei maimoatanga?
- He pēhea te tūponotanga ka kino haere tēnei mate i roto i te wā?
- Ka taea e au te whakaroa i te kino atu o ngā pukahukahu?
- He aha ngā mea me tino tūpato ahau ki ai i roto i tōku ao o ia rā, me te kai me te inu?
- Āhea ahau me kite anō i te tākuta?
Mā te pātai i ēnei pātai, me te mārama hoki ki tō āhua, ka tino āwhina i a koe ki te tautoko i tō maimoatanga.
Karere Tangohia ki te Kāinga
- Ehara te NSIP i te niumōnia noa iho. He mate e pā ana ki te kiko i waenganui i ngā pēke hau o ngā pukahukahu.
- Ko te maremare maroke tonu me te poto o te manawa i te wā e whakakorikori tinana ana ngā tohu matua. Kaua e warewarehia ēnei.
- E rua ngā momo matua o te NSIP: Cellular (ka taea te rongoā) me Fibrotic (he nui te mate, engari ka taea te whakahaere).
- Mena he mate hononga tōu (hei tauira, te rumatiki), kia tūpato koe ki ngā tohu e pā ana ki ō pukahukahu.
- He mea tino nui kia tere tonu te toro atu ki tētahi tākuta whai tohu kia tika ai te tātaritanga me te maimoatanga. Me whai i ngā tohutohu a te tākuta.
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