ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯗꯥ ꯅꯣꯔꯎꯗ ꯄ꯭ꯔꯣꯁꯤꯗ꯭ꯌꯨꯑꯣꯔ ꯂꯩꯒꯗ꯭ꯔꯥ? ꯃꯁꯤꯒꯤ ꯃꯇꯥꯡꯗꯥ ꯌꯥꯝꯅꯥ ꯂꯥꯏꯅꯥ ꯋꯥꯔꯤ ꯁꯥꯁꯤ꯫

ꯗꯣꯛꯇꯔꯁꯤꯡꯅꯥ ꯅꯍꯥꯛꯀꯤ ꯏꯆꯥꯅꯨꯄꯤ ꯑꯗꯨꯗꯥ ꯀꯃꯞꯂꯦꯛꯁ ꯑꯣꯏꯕꯥ ꯀꯣꯟꯖꯤꯅꯤꯑꯦꯜ ꯍꯥꯔꯠ ꯀꯟꯗꯤꯁꯟ ꯑꯃꯥ ꯂꯩ ꯍꯥꯌꯅꯥ ꯍꯥꯌꯔꯀꯄꯥ ꯃꯇꯃꯗꯥ ꯅꯍꯥꯛꯅꯥ ꯀꯌꯥ ꯌꯥꯝꯅꯥ ꯂꯥꯡꯇꯛꯅꯈꯤꯕꯒꯦ ꯑꯃꯁꯨꯡ ꯁꯣꯀꯈꯤꯕꯒꯦ? ꯃꯈꯣꯌꯅꯥ ꯑꯗꯣꯃꯗꯥ ‘ꯅꯣꯔꯎꯗ ꯄ꯭ꯔꯣꯁꯤꯖꯔ’ ꯑꯃꯥ ꯂꯩꯕꯥ ꯃꯊꯧ ꯇꯥꯏ ꯍꯥꯌꯅꯥ ꯍꯥꯌꯔꯀꯄꯥ ꯃꯇꯃꯗꯥ ꯑꯗꯣꯝꯅꯥ ꯋꯥꯍꯩ ꯑꯗꯨ ꯐꯥꯑꯣꯕꯥ ꯈꯉꯕꯥ ꯉꯃꯗꯕꯥ ꯌꯥꯏ꯫ ꯃꯁꯤ ꯌꯥꯝꯅꯥ ꯀꯃꯟ ꯑꯣꯏ꯫ ꯑꯁꯤꯒꯨꯝꯕꯥ ꯃꯇꯝ ꯑꯁꯤꯗꯥ ꯋꯥꯍꯪ ꯂꯤꯁꯤꯡ ꯑꯃꯥ ꯋꯥꯈꯂꯗꯥ ꯂꯥꯀꯏ꯫ ꯋꯥꯈꯜ ꯋꯥꯕꯥ ꯂꯩꯔꯣꯏ, ꯑꯩꯈꯣꯌꯅꯥ ꯃꯁꯤꯒꯤ ꯃꯇꯥꯡꯗꯥ ꯌꯥꯝꯅꯥ ꯂꯥꯏꯅꯥ ꯋꯥꯔꯤ ꯁꯥꯒꯅꯤ, ꯑꯗꯣꯝꯅꯥ ꯈꯉꯕꯤꯕꯥ ꯌꯥꯕꯥ ꯃꯑꯣꯡꯗꯥ꯫

ꯅꯣꯔꯎꯗ ꯄ꯭ꯔꯣꯁꯤꯖꯔ ꯍꯥꯌꯕꯁꯤ ꯀꯔꯤꯅꯣ?

ꯌꯥꯝꯅꯥ ꯂꯥꯏꯅꯥ ꯍꯥꯌꯔꯕꯗꯥ, ꯅꯣꯔꯎꯗ ꯄ꯭ꯔꯣꯁꯤꯖꯔ ꯑꯁꯤ ꯌꯥꯝꯅꯥ ꯀꯝꯞꯂꯦꯛꯁ ꯑꯣꯏꯕꯥ ꯀꯣꯟꯖꯤꯅꯤꯑꯦꯜ ꯍꯥꯔꯠ ꯗꯤꯐꯦꯛꯇ ꯑꯃꯒꯥ ꯂꯣꯌꯅꯅꯥ ꯄꯣꯀꯄꯥ ꯑꯉꯥꯡꯁꯤꯡꯒꯤ ꯄꯨꯟꯁꯤ ꯀꯟꯅꯕꯥ ꯄꯥꯡꯊꯣꯀꯄꯥ ꯑꯍꯥꯅꯕꯥ ꯑꯃꯁꯨꯡ ꯈ꯭ꯕꯥꯏꯗꯒꯤ ꯆꯥꯎꯕꯥ ꯁꯔꯖꯔꯤꯅꯤ꯫ ꯑꯩꯈꯣꯌꯅꯥ ꯍꯥꯔꯠ ꯀꯟꯗꯤꯁꯟ ꯑꯁꯤꯕꯨ ꯍꯥꯏꯄꯣꯞꯂꯥꯁ꯭ꯇꯤꯛ ꯂꯦꯐꯠ ꯍꯥꯔꯠ ꯁꯤꯟꯗꯣꯝ (HLHS) ꯍꯥꯌꯅꯥ ꯀꯧꯏ꯫

ꯍꯧꯖꯤꯛ ꯌꯦꯡꯕꯤꯌꯨ, ꯍꯀꯆꯥꯡ ꯐꯕꯥ ꯊꯝꯃꯣꯌ ꯑꯃꯗꯥ ꯃꯔꯨꯑꯣꯏꯕꯥ ꯆꯦꯝꯕꯔ ꯃꯔꯤ ꯂꯩ꯫ ꯔꯥꯏꯠ ꯁꯥꯏꯗ ꯑꯁꯤꯅꯥ ꯍꯀꯆꯥꯡꯒꯤ ꯑꯣꯛꯁꯤꯖꯦꯟ ꯌꯥꯎꯗꯕꯥ ꯏ ꯑꯗꯨ ꯂꯪꯁꯇꯥ ꯊꯥꯗꯣꯀꯄꯒꯤ ꯊꯧꯗꯥꯡ ꯂꯧꯏ꯫ ꯂꯪꯁꯇꯒꯤ ꯑꯣꯛꯁꯤꯖꯦꯟ ꯌꯥꯝꯅꯥ ꯌꯥꯎꯕꯥ ꯏ ꯑꯗꯨ ꯍꯥꯔꯇꯀꯤ ꯂꯦꯃꯍꯧꯔꯤꯕꯥ ꯁꯔꯨꯛ ꯑꯗꯨꯗꯥ ꯂꯥꯀꯏ꯫ ꯂꯦꯃꯍꯧꯔꯤꯕꯥ ꯃꯐꯝ ꯑꯁꯤꯅꯥ ꯑꯣꯛꯁꯤꯖꯦꯟ ꯌꯥꯝꯅꯥ ꯌꯥꯑꯣꯕꯥ, ꯁꯦꯡꯂꯕꯥ ꯏ ꯑꯁꯤ ꯍꯀꯆꯥꯡ ꯄꯨꯝꯕꯗꯥ ꯄꯝꯄ ꯇꯧꯕꯒꯤ ꯊꯧꯗꯥꯡ ꯂꯧꯔꯤ꯫

ꯑꯗꯨꯝ ꯑꯣꯏꯅꯃꯛ, HLHS ꯂꯩꯕꯥ ꯑꯉꯥꯡ ꯑꯃꯒꯤ ꯊꯝꯃꯣꯌꯒꯤ ꯂꯦꯃꯍꯧꯔꯤꯕꯥ ꯁꯔꯨꯛ ꯑꯗꯨ ꯃꯄꯨꯡꯐꯥꯅꯥ ꯆꯥꯎꯈꯠꯄꯥ ꯉꯃꯗꯦ꯫ ꯃꯁꯤꯅꯥ ꯇꯥꯀꯄꯗꯤ ꯍꯀꯆꯥꯡꯗꯥ ꯑꯁꯦꯡꯕꯥ ꯏ ꯄꯝꯄ ꯇꯧꯔꯤꯕꯥ ꯃꯔꯨꯑꯣꯏꯕꯥ ꯁꯔꯨꯛ ꯑꯗꯨꯅꯥ ꯊꯕꯛ ꯇꯧꯗꯦ꯫ ꯃꯔꯝ ꯑꯗꯨꯅꯥ ꯑꯁꯤꯒꯨꯝꯕꯥ ꯑꯉꯥꯡ ꯑꯁꯤ ꯍꯤꯡꯕꯗꯥ ꯑꯋꯥꯕꯥ ꯑꯣꯏꯔꯤ꯫

ꯃꯁꯤ ꯗꯣꯛꯇꯔꯁꯤꯡꯅꯥ ꯅꯣꯔꯎꯗ ꯄ꯭ꯔꯣꯁꯤꯖꯔ ꯄꯥꯡꯊꯣꯀꯄꯥ ꯃꯇꯃꯅꯤ꯫ ꯃꯁꯤꯒꯤ ꯊꯧꯑꯣꯡ ꯑꯁꯤꯅꯥ ꯍꯥꯟꯅꯗꯒꯤ ꯐꯖꯅꯥ ꯊꯕꯛ ꯇꯧꯔꯤꯕꯥ ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤ ꯊꯝꯃꯣꯌꯒꯤ ꯑꯔꯣꯏꯕꯥ ꯁꯔꯨꯛ ꯑꯗꯨꯅꯥ ꯂꯦꯃꯍꯧꯔꯤꯕꯥ ꯃꯐꯝ ꯑꯗꯨꯅꯥ ꯇꯧꯒꯗꯕꯥ ꯊꯕꯛ ꯑꯗꯨ ꯇꯧꯕꯥ ꯌꯥꯍꯜꯂꯤ꯫ ꯍꯥꯌꯕꯗꯤ, ꯍꯥꯔꯇꯀꯤ ꯏꯒꯤ ꯈꯣꯡꯖꯦꯜ ꯑꯁꯤ ꯍꯣꯡꯗꯣꯛ-ꯍꯣꯡꯖꯤꯟ ꯇꯧꯗꯨꯅꯥ ꯔꯥꯏꯠ ꯚꯦꯟꯇꯤꯂꯦꯇꯔꯅꯥ ꯂꯪꯁꯇꯥ ꯏ ꯄꯝꯄ ꯇꯧꯏ, ꯑꯗꯨꯒꯥ ꯃꯇꯝ ꯑꯗꯨꯃꯛꯇꯗꯥ ꯑꯣꯛꯁꯤꯖꯦꯟ ꯌꯥꯎꯕꯥ ꯏ ꯑꯗꯨ ꯍꯀꯆꯥꯡ ꯄꯨꯝꯅꯃꯛꯇꯥ ꯄꯝꯄ ꯇꯧꯏ꯫

ꯃꯁꯤꯒꯤ ꯁꯔꯖꯔꯤ ꯑꯁꯤ ꯀꯅꯥꯒꯤ ꯃꯊꯧ ꯇꯥꯕꯒꯦ?

ꯃꯁꯤꯒꯤ ꯁꯔꯖꯔꯤ ꯑꯁꯤ ꯃꯔꯨꯑꯣꯏꯅꯥ ꯑꯩꯈꯣꯌꯅꯥ ꯃꯃꯥꯡꯗꯥ ꯋꯥꯔꯤ ꯁꯥꯈꯤꯕꯥ HLHS ꯀꯟꯗꯤꯁꯟ ꯂꯩꯕꯥ ꯑꯉꯥꯡꯁꯤꯡꯒꯤꯗꯃꯛ ꯃꯊꯧ ꯇꯥꯏ꯫ ꯑꯉꯥꯡꯁꯤꯡ ꯑꯁꯤꯅꯥ ꯄꯣꯀꯄꯒꯤ ꯑꯍꯥꯅꯕꯥ ꯅꯨꯃꯤꯠ ꯑꯅꯤꯒꯤ ꯃꯅꯨꯡꯗꯥ ꯁꯔꯖꯔꯤ ꯑꯁꯤ ꯃꯊꯧ ꯇꯥꯏ꯫

ꯈꯟꯗꯨꯅꯥ ꯌꯦꯡꯎ, ꯑꯉꯥꯡ ꯑꯗꯨꯅꯥ ꯃꯤꯔꯣꯜꯂꯤꯉꯩ ꯃꯇꯃꯗꯥ, ꯍꯥꯔꯇꯀꯤ ꯑꯔꯨꯝꯕꯥ ꯑꯁꯤ ꯄ꯭ꯔꯣꯕ꯭ꯂꯦꯝ ꯑꯃꯥ ꯑꯣꯏꯗꯦ ꯃꯔꯃꯗꯤ ꯃꯁꯤꯅꯥ ꯅꯥꯀꯣꯡꯗꯒꯤ ꯑꯣꯛꯁꯤꯖꯦꯟ ꯂꯧꯏ꯫ ꯄꯣꯀꯄꯥ ꯃꯇꯨꯡꯗꯁꯨ, ꯑꯍꯥꯅꯕꯥ ꯅꯨꯃꯤꯠ ꯈꯔꯅꯤꯒꯤ ꯃꯅꯨꯡꯗꯥ, ꯃꯔꯨꯑꯣꯏꯕꯥ ꯏꯒꯤ ꯈꯣꯡꯖꯦꯜ (aorta and pulmonary artery) (ꯄꯦꯇꯦꯟꯇ ꯗꯛꯇꯁ ꯑꯥꯔꯇꯦꯔꯤꯑꯣꯁ)ꯒꯤ ꯃꯔꯛꯇꯥ ꯂꯩꯕꯥ ꯍꯥꯔꯇꯀꯤ ꯑꯄꯤꯀꯄꯥ ꯇꯤꯎꯕꯒꯨꯝꯕꯥ ꯁꯔꯨꯛ ꯑꯃꯥ ꯍꯥꯡꯗꯣꯛꯇꯨꯅꯥ ꯂꯩ꯫ ꯃꯁꯤꯅꯥ ꯍꯀꯆꯥꯡꯗꯥ ꯏ ꯈꯔꯥ ꯆꯦꯅꯕꯥ ꯌꯥꯍꯜꯂꯤ꯫

ꯑꯗꯨꯝ ꯑꯣꯏꯅꯃꯛ, ꯇꯤꯎꯕ ꯑꯁꯤ ꯃꯍꯧꯁꯥꯅꯥ ꯅꯨꯃꯤꯠ ꯈꯔꯅꯤꯒꯤ ꯃꯅꯨꯡꯗꯥ ꯊꯤꯡꯖꯤꯜꯂꯤ꯫ ꯃꯗꯨꯗꯥ ꯑꯉꯥꯡ ꯑꯗꯨꯅꯥ ꯁ꯭ꯕꯔ ꯍꯣꯅꯕꯗꯥ ꯑꯋꯥꯕꯥ ꯃꯥꯌꯣꯛꯅꯔꯤ, ꯑꯃꯁꯨꯡ ꯃꯍꯥꯛꯀꯤ ꯄꯨꯟꯁꯤ ꯑꯗꯨ ꯌꯥꯝꯅꯥ ꯈꯨꯗꯣꯡꯊꯤꯅꯤꯉꯥꯏ ꯑꯣꯏ꯫ ꯃꯔꯝ ꯑꯗꯨꯅꯥ ꯗꯣꯛꯇꯔꯁꯤꯡꯅꯥ ꯃꯍꯥꯀꯄꯨ ꯇ꯭ꯌꯨꯕ ꯑꯁꯤ ꯊꯤꯡꯖꯤꯟꯅꯕꯥ ꯑꯈꯟꯅꯕꯥ ꯍꯤꯗꯥꯛ ꯑꯃꯥ ꯄꯤꯔꯤ꯫ ꯃꯁꯤꯒꯤ ꯃꯅꯨꯡꯗꯥ ꯑꯉꯥꯡ ꯑꯗꯨ ꯅꯣꯔꯎꯗ ꯑꯣꯄꯔꯦꯁꯟ ꯑꯁꯤꯒꯤꯗꯃꯛ ꯁꯦꯝ ꯁꯥꯔꯤ꯫

ꯀꯔꯤꯒꯨꯝꯕꯥ ꯃꯇꯃꯗꯥ, ꯃꯇꯝ ꯆꯥꯗꯅꯥ ꯄꯣꯀꯄꯥ, ꯄꯣꯀꯄꯒꯤ ꯑꯔꯨꯝꯕꯥ ꯅꯦꯝꯕꯥ ꯅꯠꯠꯔꯒꯥ ꯑꯇꯩ ꯁꯥꯊꯤꯕꯥ ꯍꯀꯁꯦꯂꯒꯤ ꯄ꯭ꯔꯣꯕ꯭ꯂꯦꯃꯁꯤꯡ ꯂꯩꯕꯥ ꯑꯉꯥꯡꯁꯤꯡꯒꯤ ꯑꯣꯏꯅꯗꯤ, ꯁꯔꯖꯔꯤ ꯑꯁꯤ ꯑꯃꯨꯛ ꯍꯟꯅꯥ ꯑꯣꯏꯊꯣꯀꯄꯥ ꯉꯃꯗꯕꯥ ꯌꯥꯏ꯫ ꯑꯁꯤꯒꯨꯝꯕꯥ ꯀꯦꯁꯁꯤꯡ ꯑꯁꯤꯗꯥ ꯗꯣꯛꯇꯔꯁꯤꯡꯅꯥ ꯑꯇꯣꯞꯄꯥ ꯃꯇꯝ ꯈꯔꯒꯤ ꯑꯣꯏꯕꯥ ꯄꯥꯝꯕꯩꯁꯤꯡ ꯁꯤꯖꯤꯟꯅꯕꯥ ꯌꯥꯏ꯫

ꯁꯔꯖꯔꯤꯒꯤ ꯃꯅꯨꯡꯗꯥ ꯀꯔꯤ ꯊꯣꯀꯏ?

ꯃꯁꯤ ꯌꯥꯝꯅꯥ ꯀꯝꯞꯂꯦꯛꯁ ꯑꯣꯏꯕꯥ ꯁꯔꯖꯔꯤ ꯑꯃꯅꯤ ꯑꯃꯁꯨꯡ ꯃꯁꯤꯗꯥ ꯄꯨꯡ ꯀꯌꯥ ꯆꯪꯏ, ꯀꯔꯤꯒꯨꯝꯕꯥ ꯃꯇꯃꯗꯥ ꯅꯨꯃꯤꯠ ꯑꯃꯥ ꯐꯥꯑꯣꯕꯥ ꯆꯪꯏ꯫ ꯗꯣꯛꯇꯔꯅꯥ ꯏꯆꯝ ꯆꯝꯕꯥ ꯋꯥꯍꯟꯊꯣꯛ ꯑꯃꯗꯥ ꯇꯧꯔꯤꯕꯥ ꯊꯕꯀꯁꯤꯡ ꯑꯁꯤ ꯃꯈꯥꯗꯥ ꯄꯤꯔꯤ:

1. ꯍꯥꯔꯇꯀꯤ ꯃꯊꯛꯀꯤ ꯆꯦꯝꯕꯔ (atria)ꯒꯤ ꯃꯔꯛꯇꯥ ꯂꯩꯕꯥ ꯍꯣꯜ ꯑꯃꯥ ꯆꯥꯎꯊꯣꯀꯍꯅꯕꯥ: ꯃꯁꯤꯅꯥ ꯂꯪꯁꯇꯒꯤ ꯑꯣꯛꯁꯤꯖꯦꯟ ꯌꯥꯎꯕꯥ ꯏ ꯑꯗꯨ ꯍꯥꯔꯇꯀꯤ ꯑꯔꯣꯏꯕꯥ ꯃꯐꯃꯗꯥ ꯍꯦꯟꯅꯥ ꯐꯖꯅꯥ ꯆꯦꯅꯕꯥ ꯉꯃꯍꯜꯂꯤ꯫

2. ꯃꯔꯨꯑꯣꯏꯕꯥ ꯑꯥꯔꯇꯦꯔꯤ (aorta) ꯑꯗꯨ ꯑꯃꯨꯛ ꯍꯟꯅꯥ ꯁꯦꯃꯖꯤꯅꯕꯥ (aorta): ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤ ꯑꯄꯤꯀꯄꯥ, ꯑꯁꯣꯛ-ꯑꯄꯟ ꯊꯣꯀꯍꯅꯕꯥ ꯌꯥꯕꯥ ꯑꯦꯑꯣꯔꯇꯥ ꯑꯗꯨ ꯄꯂꯃꯣꯅꯥꯔꯤ ꯑꯥꯔꯇꯦꯔꯤ, ꯂꯪꯁꯇꯥ ꯏ ꯄꯨꯕꯥ ꯑꯥꯔꯇꯦꯔꯤ ꯑꯗꯨꯒꯥ ꯁꯝꯅꯍꯜꯂꯤ ꯑꯃꯁꯨꯡ ꯑꯈꯟꯅꯕꯥ ꯄꯦꯆ ꯑꯃꯥ ꯊꯥꯗꯨꯅꯥ, ꯑꯆꯧꯕꯥ, ꯃꯄꯥꯉ꯭ꯒꯜ ꯀꯅꯕꯥ ꯕ꯭ꯂꯗ ꯚꯦꯁꯦꯜ ꯑꯃꯥ ꯁꯦꯝꯃꯤ꯫

3. ꯑꯅꯧꯕꯥ ꯑꯥꯔꯇꯦꯔꯤ ꯑꯗꯨ ꯔꯥꯏꯠ ꯚꯦꯟꯇꯤꯂꯦꯇꯔꯒꯥ ꯁꯝꯅꯍꯅꯕꯥ: ꯍꯧꯖꯤꯛꯇꯤ ꯅꯧꯅꯥ ꯁꯦꯃꯒꯠꯄꯥ ꯑꯆꯧꯕꯥ ꯑꯦꯑꯣꯔꯇꯥ ꯑꯁꯤ ꯍꯥꯔꯇꯀꯤ ꯑꯃꯠꯇꯥ ꯉꯥꯏꯔꯕꯥ ꯊꯕꯛ ꯇꯧꯕꯥ ꯁꯔꯨꯛ ꯑꯣꯏꯔꯤꯕꯥ ꯔꯥꯏꯠ ꯚꯦꯟꯇꯤꯂꯦꯇꯔꯒꯥ ꯁꯝꯅꯍꯜꯂꯦ꯫ ꯍꯧꯖꯤꯛꯇꯤ ꯔꯥꯏꯠ ꯁꯥꯏꯗꯅꯥ ꯍꯀꯆꯥꯡ ꯄꯨꯝꯕꯗꯥ ꯏ ꯄꯝꯄ ꯇꯧꯕꯥ ꯉꯝꯂꯦ꯫

4. ꯂꯪꯁꯇꯥ ꯏ ꯊꯥꯅꯕꯥ ꯁꯟꯇ ꯑꯃꯥ ꯊꯝꯕꯥ: ꯍꯧꯖꯤꯛꯇꯤ ꯏ ꯄꯨꯝꯅꯃꯛ ꯑꯅꯧꯕꯥ ꯑꯦꯑꯣꯔꯇꯥꯒꯤ ꯈꯨꯠꯊꯥꯡꯗꯥ ꯍꯀꯆꯥꯡꯗꯥ ꯆꯠꯂꯤꯕꯥ ꯃꯔꯝꯅꯥ, ꯂꯪꯁꯇꯥ ꯏ ꯊꯥꯅꯕꯥ ꯇꯣꯉꯥꯅꯕꯥ ꯂꯝꯕꯤ ꯑꯃꯥ ꯁꯦꯝꯕꯥ ꯃꯊꯧ ꯇꯥꯏ꯫ ꯃꯁꯤ ꯁꯟꯇ ꯀꯧꯕꯥ ꯑꯄꯤꯀꯄꯥ ꯇꯤꯎꯕ ꯑꯃꯥ ꯁꯤꯖꯤꯟꯅꯗꯨꯅꯥ ꯄꯥꯡꯊꯣꯀꯏ꯫ ꯃꯁꯤ ꯑꯅꯧꯕꯥ ꯑꯦꯑꯣꯔꯇꯥꯗꯒꯤ ꯄꯂꯃꯣꯅꯥꯔꯤ ꯑꯥꯔꯇꯦꯔꯤꯁꯤꯡꯗꯥ (Blalock-Taussig ꯅꯠꯠꯔꯒꯥ BT shant) ꯅꯠꯠꯔꯒꯥ ꯔꯥꯏꯠ ꯚꯦꯟꯇꯤꯂꯦꯇꯔꯗꯒꯤ ꯄꯂꯃꯣꯅꯥꯔꯤ ꯑꯥꯔꯇꯦꯔꯤꯁꯤꯡꯗꯥ (Sano shant) ꯁꯝꯅꯍꯜꯂꯤ꯫

ꯁꯔꯖꯔꯤ ꯄꯨꯝꯅꯃꯛ ꯑꯁꯤꯒꯤ ꯃꯅꯨꯡꯗꯥ, ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤ ꯍꯥꯔꯠ ꯑꯃꯁꯨꯡ ꯂꯪꯁ ꯑꯁꯤ ꯃꯇꯝ ꯈꯔꯒꯤ ꯑꯣꯏꯅꯥ ꯀꯥꯔꯗꯤꯑꯣꯄꯂꯃꯣꯅꯥꯔꯤ ꯕꯥꯏꯄꯥꯁ ꯀꯧꯕꯥ ꯑꯈꯟꯅꯕꯥ ꯃꯦꯁꯤꯟ ꯑꯃꯅꯥ ꯑꯣꯄꯔꯦꯠ ꯇꯧꯏ꯫

ꯁꯔꯖꯔꯤꯒꯤ ꯃꯇꯨꯡꯗꯥ ꯀꯔꯤ ꯑꯣꯏꯒꯅꯤ?

ꯁꯔꯖꯔꯤ꯫

ꯅꯍꯥꯛꯅꯥ ꯎꯒꯅꯤ ꯃꯗꯨꯗꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤ ꯍꯀꯆꯥꯡꯒꯥ ꯁꯝꯅꯕꯥ ꯇꯤꯎꯕꯁꯤꯡ ꯑꯃꯁꯨꯡ ꯋꯥꯌꯥꯔ ꯀꯌꯥ ꯂꯩ꯫ ꯃꯈꯣꯌ ꯑꯁꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯗꯥ ꯃꯊꯧ ꯇꯥꯕꯥ ꯍꯤꯗꯥꯛ-ꯂꯥꯡꯊꯛ, ꯑꯣꯛꯁꯤꯖꯦꯟ, ꯆꯤꯟꯖꯥꯛ ꯄꯤꯅꯕꯥ ꯑꯃꯁꯨꯡ ꯍꯀꯆꯥꯡꯒꯤ ꯊꯕꯛ-ꯊꯧꯔꯃꯁꯤꯡ ꯂꯦꯞꯇꯅꯥ ꯌꯦꯡꯁꯤꯟꯅꯕꯥ ꯁꯤꯖꯤꯟꯅꯩ꯫ ꯃꯈꯣꯌꯕꯨ ꯎꯕꯗꯥ ꯂꯥꯡꯇꯛꯅꯒꯅꯨ , ꯃꯈꯣꯌ ꯄꯨꯝꯅꯃꯛ ꯑꯉꯥꯡꯒꯤ ꯌꯥꯏꯐꯅꯕꯥ ꯂꯩꯔꯤ꯫

ꯁꯔꯖꯔꯤꯒꯤ ꯃꯇꯨꯡꯗꯁꯨ, ꯑꯩꯈꯣꯌꯅꯥ ꯃꯃꯥꯡꯗꯥ ꯈꯟꯅꯈꯤꯕꯒꯨꯝꯅꯥ, ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤ ꯈꯣꯡ ꯑꯃꯁꯨꯡ ꯊꯕꯥꯛꯇꯥ ꯑꯣꯛꯁꯤꯖꯦꯟ ꯌꯥꯝꯅꯥ ꯌꯥꯎꯕꯥ ꯑꯃꯁꯨꯡ ꯑꯣꯛꯁꯤꯖꯦꯟ ꯅꯦꯝꯕꯥ ꯏ ꯌꯥꯎꯕꯅꯥ ꯃꯔꯝ ꯑꯣꯏꯗꯨꯅꯥ ꯈꯔꯥ ꯅꯤꯜ ꯈꯣꯡꯕꯥ ꯌꯥꯏ꯫ ꯃꯁꯤ ꯃꯇꯝ ꯑꯁꯤꯗꯥ ꯅꯣꯔꯃꯦꯜ ꯑꯣꯏ꯫

ꯏꯟꯇꯦꯟꯁꯤꯚ ꯀꯦꯌꯔ ꯌꯨꯅꯤꯇꯇꯥ ꯆꯥꯎꯔꯥꯛꯅꯥ ꯅꯨꯃꯤꯠ ꯑꯃꯥ ꯂꯦꯞꯂꯕꯥ ꯃꯇꯨꯡꯗꯥ, ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤ ꯐꯤꯚꯝ ꯐꯒꯠꯂꯀꯄꯥ ꯃꯇꯃꯗꯥ, ꯅꯍꯥꯀꯄꯨ ꯆꯥꯡ ꯅꯥꯏꯅꯥ ꯋꯥꯔꯗ ꯑꯃꯗꯥ ꯇ꯭ꯔꯥꯟꯁꯐꯔ ꯇꯧꯒꯅꯤ꯫ ꯅꯍꯥꯛꯅꯥ ꯌꯨꯃꯗꯥ ꯆꯠꯠꯔꯤꯉꯩꯒꯤ ꯃꯃꯥꯡꯗꯥ, ꯗꯣꯛꯇꯔꯁꯤꯡ ꯑꯃꯁꯨꯡ ꯅꯔꯁꯁꯤꯡꯅꯥ ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨ ꯀꯔꯝꯅꯥ ꯌꯦꯡꯁꯤꯅꯒꯗꯒꯦ, ꯃꯍꯥꯀꯄꯨ ꯀꯔꯝꯅꯥ ꯍꯤꯗꯥꯛ-ꯂꯥꯡꯊꯛ ꯄꯤꯒꯗꯒꯦ ꯑꯃꯁꯨꯡ ꯀꯔꯤ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯌꯦꯡꯁꯤꯅꯒꯗꯒꯦ ꯍꯥꯌꯕꯒꯤ ꯃꯇꯥꯡꯗꯥ ꯃꯄꯨꯡꯐꯥꯅꯥ ꯈꯪꯍꯜꯂꯛꯀꯅꯤ꯫

HLHS ꯀꯟꯗꯤꯁꯅꯒꯤꯗꯃꯛꯇꯥ ꯃꯄꯨꯡꯐꯥꯕꯥ ꯁꯔꯖꯤꯀꯦꯜ ꯁꯤꯔꯤꯖ꯫

ꯅꯣꯔꯎꯗꯀꯤ ꯊꯧꯑꯣꯡ ꯑꯁꯤ ꯈꯣꯉꯆꯠ ꯑꯁꯤꯒꯤ ꯑꯍꯥꯅꯕꯥ ꯈꯣꯉꯊꯥꯡ ꯈꯛꯇꯅꯤ꯫ HLHSꯅꯥ ꯅꯥꯕꯥ ꯑꯉꯥꯡ ꯑꯃꯅꯥ ꯅꯣꯔꯃꯦꯜ ꯑꯣꯏꯕꯥ ꯄꯨꯟꯁꯤ ꯑꯃꯥ ꯍꯤꯡꯅꯕꯒꯤꯗꯃꯛ, ꯃꯈꯣꯌꯅꯥ ꯁꯔꯖꯔꯤ ꯑꯍꯨꯃꯒꯤ ꯁꯤꯔꯤꯖ ꯑꯃꯥ ꯄꯥꯡꯊꯣꯀꯄꯥ ꯃꯊꯧ ꯇꯥꯏ꯫

ꯑꯣꯏꯊꯣꯀꯄꯥ ꯌꯥꯕꯥ ꯔꯤꯁ꯭ꯛ ꯑꯃꯁꯨꯡ ꯀꯃꯞꯂꯤꯀꯦꯁꯅꯁꯤꯡ ꯑꯗꯨ ꯀꯔꯤꯅꯣ?

ꯑꯆꯧꯕꯥ ꯁꯔꯖꯔꯤ ꯑꯃꯍꯦꯛꯇꯒꯥ ꯃꯥꯟꯅꯅꯥ, ꯅꯣꯔꯎꯗ ꯄ꯭ꯔꯣꯁꯤꯗ꯭ꯌꯨꯑꯣꯔ ꯑꯁꯤꯅꯥ ꯔꯤꯁ꯭ꯛ ꯈꯔꯗꯤ ꯄꯨꯔꯀꯏ꯫ ꯅꯍꯥꯛꯀꯤ ꯗꯣꯛꯇꯔꯅꯥ ꯍꯥꯌꯔꯤꯕꯁꯤꯡ ꯑꯁꯤ ꯅꯍꯥꯀꯄꯨ ꯈꯪꯍꯜꯂꯛꯀꯅꯤ꯫ ꯊꯣꯀꯄꯥ ꯌꯥꯕꯥ ꯃꯔꯨꯑꯣꯏꯕꯥ ꯀꯃꯞꯂꯤꯀꯦꯁꯅꯁꯤꯡꯗꯤ:

• ꯕ꯭ꯂꯗ ꯚꯦꯁꯦꯂꯁꯤꯡ ꯁꯣꯟꯊꯕꯥ: ꯁꯔꯖꯔꯤꯒꯤ ꯃꯇꯨꯡꯗꯥ, ꯔꯤꯀꯟꯁꯠꯔꯛꯁꯟ ꯇꯧꯔꯕꯥ ꯑꯦꯑꯣꯔꯇꯥ ꯅꯠꯠꯔꯒꯥ ꯂꯪꯁꯇꯥ ꯏ ꯄꯨꯕꯥ ꯑꯥꯔꯇꯦꯔꯤ ꯑꯗꯨ ꯁꯣꯟꯊꯕꯥ (stenosis) ꯑꯣꯏꯕꯥ ꯌꯥꯏ꯫
• ꯁꯟꯊꯤꯒꯤ ꯄ꯭ꯔꯣꯕ꯭ꯂꯦꯃꯁꯤꯡ: ꯂꯪꯁꯇꯥ ꯏ ꯊꯥꯕꯥ ꯁꯟꯊꯤ ꯑꯗꯨ ꯕ꯭ꯂꯣꯛ ꯇꯧꯕꯥ ꯅꯠꯠꯔꯒꯥ ꯃꯑꯣꯡ ꯆꯨꯝꯅꯥ ꯊꯕꯛ ꯇꯧꯗꯕꯥ ꯌꯥꯏ꯫
• ꯍꯥꯔꯇꯀꯤ ꯂꯥꯌꯅꯥ (abnormal heartbeat) : ꯍꯥꯔꯇꯀꯤ ꯔꯤꯗꯝ (arrhythmia) ꯑꯁꯤ ꯍꯣꯡꯂꯀꯄꯥ ꯌꯥꯏ꯫
• ꯍꯥꯔꯇꯀꯤ ꯐꯉ꯭ꯀꯁꯟ ꯁꯣꯟꯊꯕꯥ: ꯍꯥꯔꯇꯀꯤ ꯄꯝꯄ ꯇꯧꯕꯥ ꯉꯝꯕꯥ ꯅꯠꯠꯔꯒꯥ ꯃꯁꯤꯒꯤ ꯚꯜꯌꯨꯁꯤꯡꯒꯤ ꯐꯉ꯭ꯀꯁꯟ ꯁꯣꯟꯊꯕꯥ ꯌꯥꯏ꯫
• ꯅ꯭ꯌꯨꯔꯣꯗꯤꯚꯦꯂꯄꯃꯦꯟꯇ ꯊꯦꯡꯊꯕꯥ: ꯕ꯭ꯔꯦꯟ ꯗꯤꯚꯦꯂꯄꯃꯦꯟꯇꯗꯥ ꯑꯀꯥꯌꯕꯥ ꯄꯤꯕꯒꯤ ꯆꯥꯡ ꯌꯥꯝꯅꯥ ꯋꯥꯡꯏ, ꯃꯗꯨꯅꯥ ꯇꯝꯕꯗꯥ ꯅꯠꯠꯔꯒꯥ ꯂꯃꯆꯠ-ꯁꯥꯖꯠꯀꯤ ꯄ꯭ꯔꯣꯕ꯭ꯂꯦꯃꯁꯤꯡ (Neurodevelopmental delay) ꯊꯣꯀꯍꯜꯂꯤ꯫

ꯔꯤꯖꯜꯇ ꯑꯃꯁꯨꯡ ꯁꯔꯚꯥꯏꯕꯦꯂꯤꯇꯤ ꯑꯁꯤ ꯀꯔꯝꯅꯥ ꯑꯣꯏꯔꯤꯕꯒꯦ?

ꯃꯁꯤ ꯃꯃꯥ-ꯃꯄꯥ ꯈꯨꯗꯤꯡꯃꯛꯀꯤ ꯈ꯭ꯕꯥꯏꯗꯒꯤ ꯆꯥꯎꯕꯥ ꯋꯥꯍꯪꯅꯤ꯫ ꯑꯆꯨꯝꯕꯥ ꯑꯗꯨꯗꯤ, ꯱꯹꯸꯰ꯒꯤ ꯃꯌꯥꯏ ꯆꯜꯂꯀꯄꯗꯥ ꯁꯔꯖꯔꯤ ꯑꯁꯤ ꯈꯉꯗꯣꯀꯄꯥ ꯃꯃꯥꯡꯗꯥ, HLHSꯅꯥ ꯄꯣꯀꯄꯥ ꯑꯉꯥꯡꯁꯤꯡꯒꯤ ꯂꯥꯌꯦꯡ ꯑꯃꯠꯇꯥ ꯂꯩꯔꯃꯗꯦ꯫ ꯅꯣꯔꯎꯗ ꯄ꯭ꯔꯣꯁꯤꯖꯔ ꯑꯁꯤ ꯑꯉꯥꯡꯁꯤꯡ ꯑꯁꯤ ꯍꯤꯡꯅꯕꯒꯤ ꯈꯨꯗꯣꯡꯆꯥꯕꯥ ꯑꯃꯅꯤ꯫

ꯁ꯭ꯇꯦꯇꯤꯁ꯭ꯇꯤꯀꯦꯂꯒꯤ ꯃꯇꯨꯡ ꯏꯟꯅꯥ, ꯁꯔꯖꯔꯤ ꯑꯁꯤꯒꯤ ꯃꯇꯨꯡꯗꯥ ꯍꯣꯁ꯭ꯄꯤꯇꯥꯂꯗꯥ ꯍꯤꯡꯕꯒꯤ ꯆꯥꯡ ꯑꯁꯤ ꯹꯰%ꯅꯤ꯫ꯁꯔꯖꯔꯤꯒꯤ ꯃꯇꯨꯡꯗꯥ ꯆꯍꯤ ꯃꯉꯥꯒꯤ ꯑꯣꯏꯅꯥ ꯍꯤꯡꯕꯒꯤ ꯆꯥꯡ ꯑꯁꯤ ꯶꯰% ꯑꯃꯁꯨꯡ ꯷꯵%ꯒꯤ ꯃꯔꯛꯇꯥ ꯂꯩ꯫ ꯑꯉꯥꯡ ꯈꯔꯗꯤ, ꯅꯨꯡꯉꯥꯏꯇꯕꯥ ꯋꯥꯐꯝ ꯑꯃꯅꯥ, ꯑꯅꯤꯁꯨꯕꯥ ꯁꯔꯖꯔꯤꯒꯤ ꯁ꯭ꯇꯦꯖ ꯑꯗꯨ ꯌꯧꯗ꯭ꯔꯤꯉꯩꯗꯥ ꯈꯪꯍꯧꯗꯅꯥ ꯁꯤꯏ꯫

ꯑꯗꯨꯝ ꯑꯣꯏꯅꯃꯛ, ꯀꯔꯤꯒꯨꯝꯕꯥ ꯁꯔꯖꯔꯤ ꯑꯍꯨꯝ ꯑꯁꯤ ꯃꯥꯌꯄꯥꯛꯅꯥ ꯄꯥꯡꯊꯣꯛꯂꯕꯗꯤ, ꯑꯉꯥꯡꯁꯤꯡ ꯑꯁꯤ ꯅꯍꯥ ꯑꯣꯏꯔꯤꯕꯥ ꯑꯍꯜ ꯑꯣꯏꯔꯀꯄꯥ ꯌꯥꯏ꯫ ꯃꯈꯣꯌꯅꯥ ꯁ꯭ꯀꯨꯂꯗꯥ ꯆꯠꯄꯥ, ꯁꯥꯟꯅꯕꯒꯤ ꯑꯃꯁꯨꯡ ꯅꯣꯔꯃꯦꯜ ꯑꯣꯏꯕꯥ ꯄꯨꯟꯁꯤ ꯑꯃꯥ ꯍꯤꯡꯅꯕꯒꯤ ꯈꯨꯗꯣꯡꯆꯥꯕꯥ ꯐꯪꯒꯅꯤ꯫

ꯑꯩꯅꯥ ꯀꯗꯥꯏꯗꯥ ꯗꯣꯛꯇꯔꯒꯥ ꯎꯅꯒꯗꯒꯦ?

ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨ ꯌꯨꯃꯗꯥ ꯄꯨꯔꯛꯂꯕꯥ ꯃꯇꯨꯡꯗꯥ ꯅꯍꯥꯛꯀꯤ ꯑꯆꯧꯕꯥ ꯊꯧꯗꯥꯡ ꯑꯃꯥ ꯂꯩ꯫ ꯃꯈꯥꯗꯥ ꯄꯤꯔꯤꯕꯥ ꯋꯥꯐꯃꯁꯤꯡ ꯑꯁꯤꯒꯤ ꯃꯇꯥꯡꯗꯥ ꯅꯍꯥꯛꯅꯥ ꯌꯥꯝꯅꯥ ꯆꯦꯀꯁꯤꯅꯕꯥ ꯃꯊꯧ ꯇꯥꯏ꯫ ꯀꯔꯤꯒꯨꯝꯕꯥ ꯅꯍꯥꯛꯅꯥ ꯑꯁꯤꯒꯨꯝꯕꯥ ꯀꯔꯤꯒꯨꯝꯕꯥ ꯑꯃꯥ ꯎꯔꯕꯗꯤ, ꯈꯨꯗꯛꯇꯥ ꯅꯍꯥꯛꯀꯤ ꯗꯣꯛꯇꯔꯗꯥ ꯐꯣꯟ ꯇꯧ꯫

• ꯀꯔꯤꯒꯨꯝꯕꯥ ꯑꯉꯥꯡ ꯑꯗꯨ ꯃꯑꯣꯡ ꯆꯨꯝꯅꯥ ꯑꯔꯨꯝꯕꯥ ꯍꯦꯅꯒꯠꯂꯛꯠꯔꯕꯗꯤ꯫
• ꯀꯔꯤꯒꯨꯝꯕꯥ ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤ ꯑꯣꯛꯁꯤꯖꯦꯅꯒꯤ ꯆꯥꯡ ꯑꯗꯨ ꯅꯍꯥꯛꯀꯤ ꯗꯣꯛꯇꯔꯅꯥ ꯍꯥꯌꯔꯀꯄꯥ ꯂꯦꯚꯦꯜ ꯑꯗꯨꯗꯒꯤ ꯍꯦꯜꯂꯕꯗꯤ (ꯅꯍꯥꯀꯄꯨ ꯌꯨꯃꯗꯥ ꯑꯣꯛꯁꯤꯖꯦꯟ ꯂꯦꯄꯊꯣꯛꯅꯕꯥ ꯗꯤꯚꯥꯏꯁ ꯑꯃꯥ ꯄꯤꯈ꯭ꯔꯕꯅꯤ)꯫
• ꯀꯔꯤꯒꯨꯝꯕꯥ ꯑꯉꯥꯡ ꯑꯗꯨꯅꯥ ꯄꯤꯔꯤꯕꯥ ꯍꯤꯗꯥꯛ-ꯂꯥꯡꯊꯀꯁꯤꯡ ꯑꯗꯨ ꯐꯖꯅꯥ ꯔꯦꯁ꯭ꯄꯣꯟꯁ ꯇꯧꯗ꯭ꯔꯕꯗꯤ꯫
• ꯀꯔꯤꯒꯨꯝꯕꯥ ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯕꯨ ꯀꯔꯝꯅꯥ ꯌꯦꯡꯁꯤꯅꯕꯤꯒꯗꯒꯦ ꯍꯥꯌꯕꯒꯤ ꯃꯇꯥꯡꯗꯥ ꯅꯍꯥꯛꯅꯥ ꯋꯥꯍꯪ ꯑꯃꯠꯇꯥ ꯍꯪꯂꯕꯗꯤ ꯅꯠꯠꯔꯒꯥ ꯆꯤꯡꯅꯕꯥ ꯂꯩꯔꯕꯗꯤ꯫

HLHS ꯑꯁꯤ ꯌꯥꯝꯅꯥ ꯊꯨꯅꯥ ꯊꯣꯀꯄꯥ ꯀꯟꯗꯤꯁꯟ ꯑꯃꯅꯤ ꯃꯔꯝ ꯑꯗꯨꯅꯥ, ꯃꯁꯤꯒꯤ ꯃꯈꯜ ꯑꯁꯤꯒꯤ ꯁꯔꯖꯔꯤ ꯑꯁꯤ ꯌꯥꯝꯅꯥ ꯇꯣꯏꯅꯥ ꯄꯥꯡꯊꯣꯀꯄꯥ ꯑꯦꯛꯁꯄꯤꯔꯤꯑꯦꯟꯁ ꯂꯩꯕꯥ ꯗꯣꯛꯇꯔ ꯑꯃꯁꯨꯡ ꯍꯣꯁ꯭ꯄꯤꯇꯥꯜ ꯑꯃꯥ ꯈꯅꯕꯁꯤ ꯌꯥꯝꯅꯥ ꯃꯔꯨꯑꯣꯏ꯫ ꯅꯍꯥꯛꯅꯥ ꯈꯪꯗꯕꯥ ꯋꯥꯐꯝ ꯑꯃꯍꯦꯛꯇꯒꯤ ꯃꯇꯥꯡꯗꯥ ꯅꯍꯥꯛꯀꯤ ꯗꯣꯛꯇꯔꯗꯥ ꯍꯟꯖꯤꯟ ꯍꯟꯖꯤꯟ ꯍꯪꯕꯗꯥ ꯂꯥꯡꯇꯛꯅꯒꯅꯨ ꯅꯠꯠꯔꯒꯥ ꯂꯥꯡꯇꯛꯅꯒꯅꯨ꯫