Tikudziwa kuti Matenda a Sickle Cell si vuto losavuta kuthana nalo. Mutha kuganiza momwe zimakhalira zovuta kukhala ndi ululu ndi zovuta zomwe zimayambitsidwa ndi matendawa. Chifukwa chake, njira yokhayo yochiritsira matendawa kwathunthu ndikuyika mafupa. Koma ichi si chinthu chomwe chingachitike nthawi imodzi. Ngati mukuganiza zoyika mafupa otere kwa inu kapena mwana wanu, tiyeni tikambirane za izi mwatsatanetsatane, mwachidule.
Kodi chikuchitika ndi chiyani kwenikweni?
Mwachidule, kusamutsa mafupa kumaphatikizapo kuchotsa maselo ofiira a m'magazi a thupi lanu, otchedwa maselo oyambira a hematopoietic, ndikuyika m'malo mwa maselo oyambira athanzi. Taganizirani izi ngati kuchotsa ogwira ntchito omwe ali ndi vuto mufakitale yopanga magazi m'thupi lanu ndikuyika ogwira ntchito athanzi omwe amagwira ntchito bwino. Pambuyo pake, thupi lanu limasiya kupanga maselo ofanana ndi sikelo omwe amayambitsa matendawa.
Mu njira imeneyi, madokotala amaika maselo athanzi ochokera kwa wopereka wathanzi kudzera mu chubu cha IV, nthawi zambiri ngati madzi amchere omwe amaperekedwa mumtsempha womwe uli m'dzanja lanu. Akalowa m'thupi lanu, maselowa amayenda mwachindunji kupita ku mafupa anu, komwe amakhazikika ndikuyamba kupanga maselo athanzi amagazi.
Ngakhale izi zingamveke ngati zosavuta, kusamutsa mafupa ndi njira yayitali komanso yovuta yomwe imafuna chisamaliro chachikulu. Imafuna kukonzekera ndi kutsatira kwa miyezi ingapo.
Momwe njira yayikuluyi imachitikira
Mukapeza wopereka chithandizo woyenera, muyenera kukhala m'chipatala kwa milungu ingapo. Pambuyo pake, madokotala adzakuyang'anirani kwa miyezi ingapo. Tiyeni tiwone momwe izi zimagwirira ntchito pang'onopang'ono.
| Gawo / Kutalika | Kufotokozera zomwe zikuchitika |
|---|---|
| Gawo 1: Kukonzekera kuyika mwana wosabadwayo (masabata 1-2) | Mudzalowa m'chipatala milungu iwiri musanaikidwe. Kumeneko mudzalandira chithandizo cha chemotherapy.Mankhwala amaperekedwa. Mankhwala amphamvu awa amawononga maselo a m'mafupa m'thupi lanu omwe amapanga maselo amagazi olakwika. Amafooketsanso chitetezo chamthupi chanu. Amachita izi kuti asaukire ndikukana maselo atsopano omwe aikidwa m'thupi. Nthawi zina chithandizo cha radiation chingaperekedwenso. |
| Gawo 2: Chitani opaleshoni yoika munthu m'thupi (tsiku limodzi) | Kenako, madokotala amaika maselo athanzi ochokera kwa woperekayo m'thupi lanu kudzera mu IV. Maselo amenewa adzalowa m'malo mwa mafupa akale ndikuyamba kupanga magazi abwino. |
| Gawo 3: Kuchira pambuyo poika mwana m'mimba (mwezi umodzi mpaka miyezi 6-12) | Mudzafunika kukhala m'chipatala kwa pafupifupi mwezi umodzi mutatenga opaleshoni yoikamo. Panthawiyi, gulu lachipatala lidzayesa nthawi zonse kuti litsimikizire kuti maselo atsopano akugwira ntchito bwino. Mukatsimikizira kuti opaleshoniyo yayenda bwino ndipo maselo atsopano agwira ntchito bwino, mudzatha kutuluka m'chipatala. Komabe, zingatenge miyezi 6 mpaka 12 kapena kuposerapo kuti maselo anu a magazi ndi chitetezo cha mthupi chibwerere bwino. Panthawiyi, dokotala wanu adzayang'anira thanzi lanu mosamala kwambiri. |
Kodi mungapeze bwanji wopereka ndalama woyenera?
Anthu omwe ali oyenerera kuikidwa mafupa nthawi zambiri ndi omwe adakumana ndi mavuto aakulu kapena omwe ali ndi ululu waukulu chifukwa cha matenda a sickle cell. Dokotala wanu choyamba adzaonetsetsa kuti muli ndi thanzi labwino kuti muchite opaleshoni. Muyeneranso kulankhula ndi katswiri wa zamaganizo kapena wogwira ntchito zachitukuko kuti atsimikizire kuti mwakonzeka m'maganizo mwanu pa nthawi yayitaliyi.
Chimodzi mwa zovuta zazikulu pankhaniyi ndikupeza wopereka chithandizo yemwe angafanane bwino ndi mafuta anu a m'mafupa.
- Abale ndi Alongo: Kuyezetsa magazi kungathe kudziwa ngati mafuta a m'mawere a m'bale wanu, mlongo wanu, kapena kholo lanu ndi ofanana. Pakati pa 20% ndi 30% ya ana omwe amafunika kuikidwa m'thupi ali ndi m'bale kapena mlongo yemwe ali ndi mafuta ofanana a m'mawere.
- Ma National Registries: Pali ma National Registries a anthu omwe adzipereka kupereka mafuta a m'mafupa. Muthanso kuyesa kupeza ofanana nawo kudzera mwa iwo.
- Magazi a m'chingwe: Ngati muli ndi magazi a m'chingwe osungidwa mwana wanu atabadwa, maselo oyambira omwe ali mmenemo angagwiritsidwenso ntchito pa izi.
Kodi zoopsa zake ndi ziti?
Monga momwe zimakhalira ndi opaleshoni yaikulu iliyonse, kuyika mafupa enaake kumabweretsa zoopsa komanso mavuto ena. Ndikofunikira kudziwa izi pasadakhale.
| Chiwopsezo | Kufotokozera ndi zomwe muyenera kudziwa |
|---|---|
| Kukana | Izi zimatchedwa Matenda a Graft-versus-Host (GVHD) . Izi zikutanthauza kuti maselo athanzi omwe angobzalidwa kumene amayamba kuukira ziwalo zanu. Matendawa amatha kukhudza munthu m'modzi pa anthu khumi aliwonse. Pali mankhwala oletsa matendawa, koma nthawi zina ngati mankhwalawo sagwira ntchito, amatha kuwononga ziwalo ngakhale kufa. |
| Matenda | Chifukwa chemotherapy yomwe imaperekedwa musanayikidwe imafooketsa chitetezo cha mthupi, mutha kutenga matenda mosavuta kuchokera ku mabakiteriya ndi mavairasi. Dokotala wanu adzakupatsani mankhwala oletsa izi. |
| Mavuto azakudya | Mankhwala a chemotherapy angayambitse mavuto monga kusowa chilakolako cha chakudya, kusanza, ndi kutsegula m'mimba, zomwe zingayambitse mavuto azakudya. |
| Kuwonongeka kwa chiwindi | Mitsempha yamagazi m'chiwindi imatha kuwonongeka. Izi zimatchedwa Matenda Odziteteza ku Veno . Pafupifupi munthu m'modzi pa anthu makumi awiri aliwonse akhoza kukumana ndi kuwonongeka kwakukulu kumeneku. |
| Kusabereka | Kawirikawiri, mankhwala operekedwa musanaikidwenso akhoza kubweretsa kusabereka. Imeneyi ndi nkhani yovuta, choncho kambiranani ndi dokotala wanu pasadakhale ndipo dziwani zomwe mungachite. |
Nanga bwanji ngati kusamutsa mwana sikunapambane?
Ndi zonsezi, tiyenera kuyembekezera zabwino. Pa anthu pafupifupi asanu ndi anayi mwa khumi , kuikidwa kwa maselo a magazi abwino kumayamba kupangidwa, ndipo matenda a sickle cell amachiritsidwa kwathunthu. Imeneyo ndiye nkhani yabwino kwambiri.
Komabe, nthawi zina, ngati opaleshoni yoikamo mwana yalephera, madokotala angafunike kubwereza njirayi. Kapena angafunike kubwezeretsanso maselo anu akale m'thupi lanu. Ngati zimenezo zitachitika, matenda a sickle cell adzabwereranso.
Uthenga Wopita Nawo Kunyumba
- Njira yokhayo yochiritsira matenda a sickle cell ndi kuyika mafupa mumsampha.
- Imeneyi ndi njira yovuta yomwe imaphatikizapo mankhwala a chemotherapy, kukhala m'chipatala kwa nthawi yayitali, komanso miyezi yambiri yochira.
- Vuto lalikulu pankhaniyi ndikupeza wopereka chithandizo yemwe ali woyenera kwa inu.
- Pali zoopsa zazikulu zokhudzana ndi njirayi, monga GVHD, matenda opatsirana, komanso kutayika kwa mphamvu yobereka. Koma opaleshoni zambiri zoberekera zimapambana.
- Ndikofunikira kukambirana mozama komanso momasuka za ubwino ndi kuipa kwa matendawa ndi dokotala wanu musanasankhe ngati njira yoyenera yothandizira iyi ndi yanu kapena mwana wanu.
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