Tonsefe tikudziwa kuti matenda ena amatha kuchiritsidwa ku pharmacy. Koma pali matenda ena osowa, apadera omwe amachiritsidwa kuchipatala, moyang'aniridwa ndi madokotala mwachindunji. Hemin ndi imodzi mwa mankhwala otere, omwe amagwiritsidwa ntchito pazochitika zapadera kwambiri, ndipo amaperekedwa kudzera m'mitsempha. Lero, tiyeni tikambirane mwachidule za katemera wa Hemin uyu, zomwe amachita, omwe amaperekedwa kwa iwo, ndi zinthu zomwe muyenera kudziwa za iye.
Kodi Hemin ndi mankhwala amtundu wanji?
Mankhwala otchedwa Hemin awa amagwiritsidwa ntchito pochiza matenda osowa otchedwa `Acute Intermittent Porphyria.` Dzinali ndi lovuta pang'ono, choncho tiyeni tilifotokoze mosavuta.
Imeneyi ndi matenda a majini. Kunena zoona, imayamba chifukwa cha vuto lomwe limachitika popanga gawo la magazi athu lotchedwa 'Heme'. 'Heme' iyi ndi yofunika kwambiri pa hemoglobin m'maselo ofiira a magazi athu. Pamene njirayi yasokonekera, mankhwala oopsa amasonkhana m'thupi, zomwe zimayambitsa zizindikiro zosiyanasiyana monga kupweteka kwambiri m'mimba ndi mavuto a mitsempha.
Choncho, mankhwala awa otchedwa Hemin (dzina la mankhwala likhoza kukhala `Panhematin`) amawongolera kusowa kwa kupanga `Heme` ndikuchepetsa zizindikiro. Mwanjira ina, awa ndi mankhwala omwe amakhudza njira yoyambira yomwe imayambitsa matendawa.
Zinthu zoti muuze dokotala wanu musanagwiritse ntchito mankhwalawa
Popeza iyi ndi mankhwala enieni, ndikofunikira kwambiri kudziwitsa dokotala wanu za mbiri yonse ya thanzi lanu musanayambe kulandira chithandizo. Onetsetsani kuti mwawauza izi makamaka:
- Mavuto okhudza magazi kuundana: Ngati muli ndi vuto lililonse lokhudza magazi kuundana (monga, kutuluka magazi komwe sikutha msanga), tiuzeni za vutolo.
- Ziwengo: Ngati muli ndi vuto lililonse la ziwengo, osati mankhwala otchedwa Hemin okha, komanso latex, mankhwala ena, zakudya, komanso utoto wina, onetsetsani kuti mwatiuza za izi.
- Mimba: Ngati muli ndi pakati kapena mukufuna kutenga mimba, ndikofunikira kudziwitsa dokotala wanu.
- Ngati ndinu mayi woyamwitsa: Ngati ndinu mayi woyamwitsa, muyeneranso kuuza dokotala wanu musanayambe kulandira chithandizo.
Kodi katemera wa Hemin amaperekedwa bwanji?
Mankhwala awa si omwe mungapite nawo kunyumba. Ndi mankhwala omwe amaperekedwa ngati madzi amchere mumtsempha (kulowetsedwa) ndi katswiri wazachipatala wodziwa bwino ntchito kuchipatala kapena kuchipatala. Ogwira ntchito zachipatala nthawi zonse aziyang'anira matenda anu pamene mukulandira chithandizochi.
Kodi mumapereka mankhwala awa kwa ana?
Mankhwalawa nthawi zambiri amatha kuperekedwa kwa ana aang'ono opitirira zaka 16 pazochitika zina zapadera. Koma amachitidwa mosamala kwambiri komanso pazifukwa zapadera. Chifukwa chake, ngati mukupereka mankhwalawa kwa mwana wanu, ndikofunikira kukambirana bwino ndi dokotala wa ana ndikumvetsetsa chilichonse bwino.
Nanga chimachitika ndi chiyani ngati mwamwa mankhwala ochulukirapo?
Popeza mankhwalawa amaperekedwa moyang'aniridwa ndi dokotala, mwayi woti munthu agwiritse ntchito mankhwala ochulukirapo ndi wochepa kwambiri. Komabe, ngati mukuganiza kuti mwagwiritsa ntchito mankhwala mopitirira muyeso, funsani nthawi yomweyo ku National Poisons Information Centre ku Colombo National Hospital kapena ku Emergency Treatment Unit (ETU) ya chipatalacho.
Mankhwalawa aperekedwa kwa inu nokha. Musagawane ndi wina aliyense pazifukwa zilizonse.
Kodi pangakhale mavuto ndi mankhwala ena? (Kuyanjana)
Inde, izi zingayambitse mavuto ndi mankhwala ena. Izi ndizofunikira makamaka ngati mukumwa mankhwala omwe amaletsa magazi kuundana, monga warfarin.
Mndandanda uwu si wokwanira. Chifukwa chake, onetsetsani kuti mwauza dokotala wanu za mankhwala onse omwe mukumwa (kuphatikizapo mankhwala olembedwa ndi dokotala ndi omwe amagulitsidwa kunja kwa ofesi ya dokotala, mavitamini, mankhwala azitsamba, ndi zowonjezera), komanso ngati mumasuta fodya, mumamwa mowa, kapena mumagwiritsa ntchito mankhwala ena. Mukatero ndiye kuti mungalandire chithandizo mosamala.
Zotsatirapo zomwe zingachitike panthawi ya chithandizo
Monga mankhwala ena aliwonse, katemera wa Hemin angayambitse zotsatira zina zoyipa. Zina mwa izi zimafuna chisamaliro chachangu, pomwe zina nthawi zambiri sizimakhala zoopsa. Tiyeni tiwone izi patebulo.
| Zotsatira zoyipa za katemera wa Hemin | |
|---|---|
| Zinthu zoti muuze dokotala wanu kapena ogwira ntchito zachipatala nthawi yomweyo | |
| Matenda a ziwengo | Kukwiya pakhungu, kuyabwa kapena ziphuphu, kutupa kwa nkhope, milomo kapena lilime. |
| Kusintha kwa kukodza | Kuchepa kapena kusintha kwina kwa kuchuluka kwa mkodzo. |
| Kutuluka magazi kosazolowereka | Kutupa kapena kutuluka magazi mosavuta komwe sikutha. |
| Kutopa kosazolowereka | Kumva kutopa kwambiri kapena kufooka. |
| Zinthu zomwe nthawi zambiri sizili zazikulu, koma ziyenera kunenedwa ngati zikupitirira | |
| Malungo ochepa | Kumva kutentha pang'ono m'thupi. |
| Ululu pamalo obayira jakisoni | Ululu kapena kutupa mozungulira malo obayira jakisoni. |
Mndandandawu sungakhale ndi zotsatirapo zonse zomwe zingachitike, kotero ngati mukukumana ndi vuto lililonse lachilendo, musaope kulankhula ndi dokotala wanu za vutoli.
Uthenga Wopita Nawo Kunyumba
- Hemin ndi mankhwala apadera omwe amaperekedwa kuchipatala kuti athetse vuto losowa, lobadwa nalo lotchedwa `Acute Intermittent Porphyria`.
- Musanayambe chithandizo, ndikofunikira kuti muuze dokotala wanu za matenda anu onse, ziwengo, ndi mankhwala onse omwe mukumwa.
- Mankhwalawa amaperekedwa kudzera mu mtsempha (IV infusion) ndi dokotala wodziwa bwino ntchito yake. Mankhwalawa si oti munthu atenge kunyumba.
- Dziwani zotsatirapo zoyipa monga ziwengo ndi kutuluka magazi kosazolowereka. Ngati muwona chilichonse chonga ichi, dziwitsani ogwira ntchito zachipatala nthawi yomweyo.
- Ngati muli ndi mafunso okhudza mankhwalawa, kaya ndi ang'onoang'ono bwanji, chonde funsani dokotala wanu.
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