Kodi mukudziwa za Lupus (Systemic Lupus Erythematosus - SLE)? Tiyeni tikambirane za izo!

Kodi nthawi zina mumamva kutopa kosayerekezeka, kupweteka kwa thupi, kupweteka kwa mafupa, kapena ziphuphu pakhungu lanu? Ngati mukumana ndi zinthuzi osati kamodzi kapena kawiri kokha, koma kangapo nthawi imodzi, chifukwa chake chingakhale matenda otchedwa lupus. Musadandaule, ngakhale kuti dzinali lingamveke ngati nkhani yaikulu, ndi vuto lomwe lingathetsedwe kwambiri ngati mwadziwitsidwa bwino ndikulandira chithandizo choyenera. Lero, tikambirana za lupus m'njira yosavuta yomwe mungamvetse.

Kodi Lupus ndi chiyani? Tiyeni timvetse mosavuta.

Mwachidule, lupus ndi matenda omwe amayamba chifukwa cha kulephera kwa chitetezo chamthupi. Nthawi zambiri, chitetezo chathu chamthupi chimatiteteza ku matenda ndi majeremusi. Koma chomwe chimachitika m'thupi la munthu amene ali ndi lupus ndikuti chitetezo chamthupichi chimaukira molakwika maselo ndi minofu yathanzi ya thupi lawo. Tangoganizirani, zomwe zimachitika apa zili ngati gulu lankhondo lomwe limateteza dziko lathu, molakwika likuukira anthu a dziko lathu. Madokotala amatcha izi kuti 'matenda odziteteza '.

Chitetezo cha mthupi chikayamba kuukira motere, kutupa , komwe kumatanthauza kutupa, kufiira, ndi kupweteka, kumatha kuchitika m'malo osiyanasiyana a thupi. Izi zitha kukhudza gawo lililonse la thupi. Mwachitsanzo:

• Khungu lanu
• Magazi
• Mipata
• Impso
• Ubongo
• Mtima
• Mapapu

Ndikofunikira kwambiri kuonana ndi dokotala ngati mwawona kupweteka kwatsopano, ziphuphu pakhungu, kapena kusintha kwa khungu lanu, tsitsi lanu, kapena maso anu.

Kodi mitundu ikuluikulu ya lupus ndi iti?

Madokotala akamanena za lupus, nthawi zambiri amatcha ``Systemic Lupus Erythematosus (SLE)''. Uwu ndiye mtundu wofala kwambiri wa lupus. ``SLE'' amatanthauza kuti vutoli limakhudza thupi lanu lonse. Palinso mitundu ina ingapo:

• Matenda a lupus m'matupi: Mu mtundu uwu wa lupus, matendawa amakhudza khungu lanu lokha .
• Lupus yoyambitsidwa ndi mankhwala: Mankhwala ena angayambitse zizindikiro za lupus ngati zotsatira zoyipa. Komabe, nthawi zambiri izi zimakhala zakanthawi kochepa . Izi zikutanthauza kuti zizindikiro zimatha pambuyo poti mankhwala asiya.
• Lupus ya makanda obadwa kumene: Izi zimachitika kawirikawiri. Nthawi zina makanda obadwa kumene amatha kukhala ndi lupus. Si makanda onse obadwa kwa amayi omwe ali ndi lupus omwe angadwale lupus, koma pakhoza kukhala chiopsezo chochepa.

Kodi zizindikiro za lupus ndi ziti?

Lupus ndi matenda omwe amadziwonetsera m'njira zosiyanasiyana. Izi zikutanthauza kuti zizindikiro zimatha kusiyana malinga ndi munthu , ndipo kuopsa kwa matendawa kumasiyananso. Anthu ena ali ndi zizindikiro zoopsa kwambiri, pomwe ena ali ndi zizindikiro zochepa.

Zizindikiro za lupus nthawi zambiri sizipitirira.. Zimabwera ndi kupita. Timatcha nthawi ya zizindikiro zowonjezeka kuti "kuphulika." Mu nthawi zimenezi, zizindikiro zimatha kukhala zoopsa kwambiri moti simungathe kuchita ntchito zanu za tsiku ndi tsiku. Palinso nthawi ya zizindikiro zocheperako kapena zosachepa. Izi zimatchedwa "kukhululukidwa."

Zizindikiro nthawi zambiri zimakula pang'onopang'ono . Poyamba, chizindikiro chimodzi kapena ziwiri zokha zimatha kuwoneka, koma pambuyo pake zizindikiro zina zitha kuwoneka kapena zomwe zilipo zitha kusintha.

Nazi zina mwa zizindikiro zodziwika bwino:

• Kupweteka kwa mafupa, kupweteka kwa minofu, kupweteka pachifuwa (makamaka mukapuma mpweya wambiri)
• Mutu
• Matuza pakhungu (nthawi zambiri matuza ofanana ndi a gulugufe omwe amadutsa m'masaya ndi mphuno mbali zonse ziwiri za nkhope - "matuza a gulugufe" - amatha kuwoneka)
• Malungo
• Kutaya tsitsi
• Zilonda pakamwa
• Kutopa kosatha (kumva kutopa nthawi zonse)
• Kuvuta kupuma (`(Dyspnea)`)
• Ma glands otupa
• Kutupa kwa manja, mapazi, kapena nkhope
• Chisokonezo
• Magazi amaundana

Lupus nthawi zina ingayambitse mavuto ena azaumoyo, monga:

• Kumva kuwala kwa dzuwa (photosensitivity )
• Maso ouma
• Kuvutika maganizo kapena mavuto ena amisala
• Matenda a khunyu ('Kugwidwa')
• Kuchepa kwa hemoglobin m'magazi (anemia)
• Matenda a Raynaud (kuyera, kuyera kwa zala ndi zala zakutsogolo m'nyengo yozizira)
• Kuchepa kwa mafupa (osteoporosis)
• Matenda a mtima
• Matenda a impso

Kodi n’chiyani chimayambitsa lupus?

Akatswiri sakudziwabe chomwe chimayambitsa lupus , koma kafukufuku wapeza kuti zinthu zina zingathandize kuti lupus ikule.

• Zinthu zokhudza majini: Muli ndi mwayi waukulu wopeza matenda a lupus ngati muli ndi kusintha kwina (masinthidwe a majini) m'majini anu. Izi zikutanthauza kuti ngati wina m'banja mwanu ali ndi matendawa, muli ndi mwayi wochepa woti nawonso adwale matendawa.
• Mahomoni: Kuyankha kwa thupi ku mahomoni ena, makamaka estrogen, kumaganiziridwa kuti kumathandizira kukula kwa lupus. Ichi ndichifukwa chake lupus imapezeka kwambiri mwa akazi.
• Zinthu zokhudzana ndi chilengedwe: Zinthu zomwe zili m'malo omwe mumakhala, mwachitsanzo, kuipitsidwa kwa mpweya ndi dzuwa, zingakhudze chiopsezo chanu cha lupus.
• Mbiri ya thanzi lanu: Ngati ndinu wosuta fodya, muli ndi nkhawa zambiri, kapena muli ndi matenda ena odziteteza ku matenda a autoimmune, chiopsezo chanu chotenga lupus chingachuluke.

Ndani ali pachiwopsezo chachikulu chotenga lupus?

Aliyense akhoza kudwala lupus, koma magulu ena ali pachiwopsezo chachikulu:

• Akazi: Makamaka akazi azaka zapakati pa 15 ndi 44.
• Anthu akuda.
• Anthu a ku Spain.
• Anthu aku Asia (ifenso tili m'gulu ili).
• Anthu a ku America, anthu a ku Alaska, ndi anthu a ku First Nations.
• Anthu okhala ku Pacific Island.
• Anthu omwe ali ndi kholo limodzi lomwe lili ndi lupus.

Kodi lupus imapezedwa bwanji?

Kuzindikira matenda a lupus nthawi zina kumakhala kovuta pang'ono. Chifukwa chakuti kumakhudza ziwalo zosiyanasiyana za thupi, zizindikiro zimatha kukhala zosiyanasiyana. Dokotala amazindikira matenda a lupus mwa kuchita mayeso akuthupi ndikuchita mayeso ena .

Dokotala kapena namwino adzamvetsera mosamala zizindikiro zanu. Auzeni zonse zomwe mukudziwa zokhudza nthawi yomwe munayamba kukhala ndi zizindikiro, kusintha komwe mwazindikira, ndi matenda aliwonse omwe mudadwalapo kale komanso mankhwala aliwonse omwe mukumwa pakadali pano.

Musaope kuuza dokotala wanu chilichonse chomwe chimakupangitsani kumva ngati chachilendo, ngakhale chitakhala chaching'ono. Palibe amene amadziwa bwino thupi lanu kuposa inu.

Kodi ndi mayeso otani omwe amachitidwa kuti adziwe matenda a lupus?

Palibe mayeso amodzi omwe angatsimikizire kuti muli ndi lupus. Madokotala nthawi zambiri amagwiritsa ntchito njira yodziwira matenda osiyanasiyana kuti athetse matenda ena . Izi zikutanthauza kuti amachita mayeso angapo kuti adziwe chomwe chikuyambitsa zizindikiro zanu ndikuwonetsetsa kuti matenda ena si omwe ali ndi vuto asanaganize kuti muli ndi lupus. Mayeso ena omwe angagwiritsidwe ntchito pa izi ndi awa:

• Kuyezetsa magazi: Kuyezetsa magazi kumeneku kumayesa momwe chitetezo cha mthupi lanu chikugwirira ntchito, kaya muli ndi matenda, matenda monga kuchepa kwa magazi m'thupi, kapena kuchepa kwa maselo a m'magazi.
• Kusanthula mkodzo: Izi zimathandiza kufufuza mkodzo wanu ngati muli ndi zizindikiro za matenda kapena matenda ena.
• Mayeso a Antinuclear Antibody (ANA): Awa ndi mayeso a ma antibodies. Ma antibodies ndi zizindikiro za mapuloteni zomwe zimasonyeza mbiri ya thupi lathu yolimbana ndi matenda. Anthu ambiri omwe ali ndi lupus ali ndi ma antibodies ambiri a ANA. Izi zikusonyeza kuti chitetezo cha mthupi chimagwira ntchito mopitirira muyeso.
• Kuyeza khungu kapena impso: Nthawi zina kachidutswa kakang'ono ka minofu kamatengedwa kuchokera pakhungu kapena impso ndikukayang'aniridwa pogwiritsa ntchito maikulosikopu kuti awone ngati kawonongeka ndi chitetezo cha mthupi.

Kodi mankhwala a lupus ndi ati?

Dokotala wanu adzakulangizani chithandizo cha lupus kuti muchepetse ndikusamalira zizindikiro zanu . Zolinga zazikulu apa ndi izi:

• Kuchepetsa kuwonongeka kwa ziwalo za thupi.
• Kuchepetsa mphamvu ya lupus pa moyo wanu watsiku ndi tsiku.
• Kuletsa kuphulika kwa moto.
• Kuchepetsa kuopsa kwa zizindikiro panthawi ya kukulirakulira kwakukulu.

Odwala ambiri a lupus amafunika kuphatikiza mankhwala angapo.Mungafunike mankhwala ena otsatirawa:

• Hydroxychloroquine: Iyi ndi mankhwala omwe ali mgulu lotchedwa disease-modifying antirheumatic drug (DMARD). Amathandiza kuchepetsa zizindikiro za lupus ndikuletsa kupitirira kwa matendawa.
• Mankhwala oletsa kutupa osagwiritsa ntchito steroidal (NSAIDs): Awa ndi mankhwala omwe amapezeka popanda chilolezo cha dokotala (OTC) omwe amachepetsa ululu ndi kutupa (kutupa). Dokotala wanu adzakuuzani mtundu wa NSAID womwe ndi woyenera kwa inu komanso nthawi yomwe muyenera kumwa. Musamwe mankhwalawa kwa masiku opitilira 10 popanda upangiri wa dokotala.
• Corticosteroids: Awa ndi mankhwala amphamvu omwe dokotala amatipatsa kuti achepetse kutupa. Prednisone ndi corticosteroid yomwe imagwiritsidwa ntchito kwambiri pochiza lupus. Angaperekedwe ngati mapiritsi kapena jakisoni mwachindunji m'malo olumikizirana mafupa.
• Mankhwala Oletsa Kutupa kwa Thupi: Mankhwalawa amagwira ntchito pochepetsa ndi kulamulira ntchito ya chitetezo cha mthupi lanu, kuthandiza kupewa kuwonongeka kwa minofu ndi kutupa.

Kuwonjezera pa mitundu ikuluikulu ya mankhwala amenewa, mungafunike chithandizo chosiyana cha zizindikiro zinazake zomwe muli nazo kapena mavuto ena azaumoyo omwe amayamba chifukwa cha lupus (monga kuchepa kwa magazi m'thupi, kuthamanga kwa magazi, mafupa owonda).

Kodi mungayembekezere chiyani ngati muli ndi lupus?

Lupus ndi matenda omwe munthu amakhala nawo kwa moyo wake wonse ('chronic') . Izi zikutanthauza kuti muyenera kuthana ndi zizindikiro za lupus moyo wanu wonse.

Lupus ndi yosayembekezereka kwambiri. Izi zikutanthauza kuti momwe imakukhudzirani ingasinthe nthawi ndi nthawi. Chifukwa chake, muyenera kupita kwa dokotala nthawi zonse kuti muwone kusintha kwa zizindikiro zanu.

Pamene mukuphunzira kukhala ndi lupus, muyenera kugwira ntchito ndi gulu la madokotala . Dokotala wa banja lanu (wopereka chithandizo chachikulu) adzakulangizani akatswiri omwe mukufuna. Nthawi zambiri, mudzawonana ndi katswiri wa nyamakazi - dokotala yemwe ndi katswiri wodziwa bwino matenda odziteteza ku matenda a autoimmune. Akatswiri ena omwe mukufuna adzadalira zizindikiro zanu komanso momwe zikukhudzira thupi lanu.

Kodi lupus ingachiritsidwe kwathunthu?

Mwatsoka, pakadali pano palibe mankhwala a lupus . Komabe, dokotala wanu angakuthandizeni kupeza njira zosiyanasiyana zomwe zingakuthandizeni kuwongolera zizindikiro zanu ndikukuthandizani kuti muchepetse zizindikirozo - nthawi yomwe mulibe zizindikiro kapena zizindikiro zochepa kwambiri.

Kodi lupus ingapewedwe?

Popeza akatswiri sakudziwa bwino chomwe chimayambitsa lupus, palibe njira yopewera vutoli . Ngati kholo lanu limodzi lili ndi lupus, lankhulani ndi dokotala wanu za chiopsezo chanu.

Kodi mungatani kuti mupewe kufalikira kwa lupus?

Ngakhale kuti lupus singathe kupewedwa, pali zinthu zingapo zomwe mungachite kuti muchepetse ndikuletsa kuphulika kwa matenda. Izi zikuphatikizapo kupewa zinthu zomwe zimapangitsa kuti zizindikiro zanu zikhale zovuta kwambiri.

• Pewani kukhala padzuwa: Kwa anthu ena, kukhala padzuwa kwa nthawi yayitali kungapangitse kuti zizindikiro za lupus zikule kwambiri. Choncho, chepetsani nthawi yomwe mumakhala panja nthawi yomwe dzuwa limatentha kwambiri (nthawi zambiri pakati pa 10 koloko m'mawa ndi 4 koloko madzulo). Ngati mutuluka panja, valani malaya a manja aatali, chipewa, ndi zovala zoteteza ku dzuwa. Gwiritsani ntchito mafuta oteteza ku dzuwa okhala ndi SPF yosachepera 50 .
• Khalani otanganidwa: Kupweteka kwa mafupa nthawi zina kungapangitse kuti zikhale zovuta kusuntha kapena kuchita masewera olimbitsa thupi. Komabe, kuyenda pang'onopang'ono ndi kuchita masewera olimbitsa thupi ndi njira zabwino kwambiri zochepetsera zizindikiro monga kupweteka ndi kuuma. Kuyenda, kukwera njinga, kusambira, yoga, ndi tai chi zonse ndi njira zabwino zoyendetsera thupi lanu popanda kukakamiza mafupa anu kwambiri. Funsani dokotala wanu za masewera olimbitsa thupi omwe ndi otetezeka kuti muchite.
• Gonani mokwanira ndipo samalirani thanzi lanu la maganizo: Kukhala ndi lupus nthawi zina kungakhale kovuta. Kugona mokwanira (maola 7-9 kwa munthu wamkulu) komanso kuchepetsa kupsinjika maganizo kungathandize anthu ena kupewa kukwiya msanga. Katswiri wa zamaganizo kapena mlangizi wina wa zaumoyo wamaganizo angakuthandizeni kupanga njira zothanirana ndi vutoli.

Kodi ndiyenera kupita kwa dokotala liti?

Ngati mukupeza zizindikiro zatsopano, kapena ngati mukumva kuti zizindikiro zanu zikusintha, pitani kwa dokotala nthawi yomweyo. Ngakhale kusintha pang'ono kwa zizindikiro zanu kungakhale kofunikira.

Ngati mukuona kuti chithandizo chomwe mukupeza panopa sichikuchepetsa zizindikiro za lupus zomwe muli nazo, uzani dokotala wanu . Ngati mukuvutika kwambiri ndi lupus kapena ngati zizindikiro zanu zikuipiraipira, uzani dokotala wanu. Dokotala wanu angakuthandizeni kusintha chithandizo chanu ngati pakufunika kutero.

Pakagwa mwadzidzidzi, ndiye kuti, ngati mukumva zizindikiro ngati izi, pitani kuchipatala nthawi yomweyo kapena imbani 1990:

• Ngati simungathe kupuma.
• Ngati pali ululu waukulu.
• Ngati mukuganiza kuti muli ndi zizindikiro za matenda a mtima.

Ndi mafunso ati omwe ndiyenera kufunsa dokotala wanga?

Mukapita kwa dokotala, ndi bwino kufunsa mafunso ngati awa:

• Kodi ndili ndi lupus kapena matenda ena odziteteza okha?
• Ndi mankhwala amtundu wanji omwe ndikufunika?
• Kodi ndiyenera kukuonani kangati ('nthawi yokumana ndi dokotala')?
• Kodi ndiyenera kuwona akatswiri ena?
• Kodi mungandiuze za magulu othandizira kapena mautumiki ena azaumoyo omwe angandithandize?

Pomaliza, zomwe muyenera kukumbukira (Uthenga Wopita Nawo Kunyumba)

Lupus nthawi zina ingakhale vuto lokhumudwitsa komanso lofooketsa. Kukhala ndi ululu, kutupa, komanso kusasangalala m'thupi lonse sikophweka. Koma musaiwale kudziyamikira . Kukhala ndi matenda osatha ndi ntchito yovuta, choncho muyenera kuzindikiridwa chifukwa cha khama lomwe mumachita pothana ndi zizindikiro zanu tsiku lililonse.

Ngati mukuganiza kuti zingakhale zothandiza kulankhula ndi wina za maganizo anu, funsani dokotala wanu za chithandizo cha matenda amisala ndi magulu othandizira.

Musaope kulankhula ndi dokotala wanu ndikufunsa mafunso. Ngakhale kusintha pang'ono kwa zizindikiro zanu kungakhale chizindikiro chakuti lupus ikukukhudzani mosiyana. Kumbukirani, ngati mukuona kuti chinachake sichili bwino m'thupi lanu, ndinu woweruza wabwino kwambiri.

Lupus , SLE, matenda odziteteza ku matenda a autoimmune, kupweteka kwa mafupa, ziphuphu pakhungu, chithandizo cha lupus, zizindikiro za lupus