Kodi mwana wanu ali ndi vuto lachilendo ngati ili? Tiyeni tiphunzire za Rasmussen's Encephalitis!

Kodi mudamvapo za matenda achilendo omwe amakhudza mbali imodzi yokha ya ubongo ndipo amakula pakapita nthawi? Mwina mwana wanu amakhala ndi matenda otupa nthawi zambiri, kufooka mbali imodzi ya thupi, komanso kuvutika kulankhula? N'zomveka kuchita mantha mukamva za chinthu chonga chimenecho. Lero tikambirana za matenda osowa koma ofunikira. Amatchedwa Rasmussen's Encephalitis.

Kodi Rasmussen's Encephalitis ndi chiyani?

Mwachidule, Rasmussen's Encephalitis ndi kutupa kwa nthawi yayitali kwa chimodzi mwa zigawo ziwiri za ubongo wathu, ndiko kuti, mbali imodzi ya ubongo . Kunena zoona, maselo a ubongo amatupa ndi kufiira. Izi zimatchedwanso Rasmussen syndrome.

Pamene mbali imodzi ya ubongo yatupa motere, imayamba kupangitsa kuti munthu azimva kupweteka nthawi zambiri. M'mawu azachipatala, timatchanso khunyu. Izi si vuto lokhalo, limayamba kuwononga ubongo pang'onopang'ono, ndipo kuwonongekako kumakhala kovuta kukonza. Pakapita nthawi, ntchito ya mbali imodzi ya thupi imachepa poyerekeza ndi mbali yowonongeka ya ubongo. Tangoganizirani, izi zakhudza mbali yakumanja ya ubongo, kenako mbali yakumanzere ya thupi ikhoza kutaya mphamvu zake, kukhala ndi vuto lolankhula, komanso kuiwala.

Matendawa adapezeka koyamba ndi dokotala wotchedwa Theodore Rasmussen mu 1958. Chifukwa chake, amatchedwa Rasmussen encephalitis pomulemekeza.

Kodi vutoli ndi losowa bwanji?

Uwu ndi matenda osowa kwambiri . Malinga ndi ofufuza, anthu awiri okha pa anthu 100,000 aliwonse ndi omwe ali ndi mwayi wokhala ndi matendawa. Izi zikutanthauza kuti ndi osowa kwambiri.

Matendawa nthawi zambiri amakhudza ana aang'ono azaka zapakati pa 2 ndi 10. Komabe, nthawi zina achinyamata ndi akuluakulu amathanso kudwala matendawa.

Kodi zizindikiro za Rasmussen's Encephalitis ndi ziti?

Chizindikiro choyamba cha matendawa nthawi zambiri chimakhala kukwawa. Kukwawa kumeneku kungabwere m'njira zosiyanasiyana.

Zizindikiro zoyambirira

• Kugwidwa kwakukulu kwa tonic-clonic: Pachifukwa ichi, minofu mbali zonse ziwiri za thupi imachepa mwamphamvu, ndipo pakhoza kukhala kutaya chidziwitso.
• Kugwidwa ndi khunyu : Pankhaniyi, mumadziwa zomwe zikuchitika. Mungamve kupweteka m'dzanja limodzi kapena phazi limodzi, kapena dzanzi m'dera lina.
• Kugwidwa ndi khunyu komwe kumayamba mbali imodzi ya ubongo, zomwe zimapangitsa kuti munthu asadziwe bwino, kapena kusokonezeka maganizo.

Chofunika kwambiri ndi chakuti, ngati inu kapena mwana wanu muli ndi vuto la kukomoka ngati limeneli,Muyenera kupita kwa dokotala mwamsanga. Ndicho chinthu chomwe muyenera kuchita.

Chinthu china n’chakuti kufooka pang’ono m’dzanja kapena mwendo wa mwana kungakhalenso chizindikiro choyamba cha matendawa.

Zizindikiro zomwe zimawonekera pakapita nthawi

Khunyu loyamba limawonjezeka pang'onopang'ono. Pafupifupi theka la anthu omwe ali ndi matenda a Rasmussen encephalitis amakhala ndi vuto lotchedwa `(Epilepsia Partialis Continua - EPC)`. Izi zikutanthauza kuti khunyu limapitirira kwa masekondi angapo kapena mphindi zochepa. Khunyu izi zimakhala zovuta kwambiri kuziletsa ndi mankhwala wamba (osachiritsika).

Zizindikiro zotsatirazi zimayamba kuonekera mkati mwa miyezi ingapo, kapena chaka chimodzi kapena ziwiri, pambuyo poti bere layamba kuchira:

• Kuchepa pang'onopang'ono kwa luso la maganizo : Izi zikutanthauza kuti zinthu monga kuganiza, kumvetsetsa, ndi kukumbukira zimatha kuchepa.
• Kutaya pang'onopang'ono kuyenda mbali imodzi ya thupi (hemiparesis): Mwachitsanzo, dzanja lamanja ndi mwendo wakumanja zimatha kuchita dzanzi. Pakapita nthawi, izi zimatha kupitirira mpaka kufa ziwalo kwathunthu (hemiplegia).
• Aphasia : Izi zimachitika pamene matendawa amakhudza mbali ya ubongo yomwe imayang'anira kulankhula (nthawi zambiri mbali yakumanzere).
• Kutaya kwathunthu kwa masomphenya mbali imodzi (hemianopsia): Kuli ngati kutaya masomphenya mbali imodzi yokha ya diso.

Kwa anthu ambiri, miyezi 8 mpaka 12 yoyamba pambuyo poti Rasmussen encephalitis yayamba ndiyo yoipitsitsa . Pambuyo pake, matendawa angawoneke ngati akuchepa kapena kutha. Komabe, kuwonongeka kwa ubongo kumakhala kosatha ndipo sikungabwezeretsedwe.

Kodi chifukwa chake ndi chiyani?

Kunena zoona, asayansi sakudziwabe chomwe chimayambitsa Rasmussen encephalitis . Koma ali ndi mfundo ziwiri zazikulu:

1. Matenda a Autoimmune : Apa ndi pamene chitetezo chathu chamthupi, chomwe chimatiteteza ku matenda, chimaukira maselo athu abwino molakwika. Chifukwa chake, Rasmussen encephalitis imaganiziridwa kuti ndi matenda ofanana ndi a autoimmune omwe amaukira mbali imodzi yokha ya ubongo.

2. Matenda : N'zotheka kuti kachilombo kosadziwika kalowe muubongo ndi kuyambitsa vutoli. Komabe, ofufuza afufuza ubongo wa anthu omwe adadwala matendawa, koma sanapezebe kachilombo kena.

Kodi matendawa amapezeka bwanji? (Kuzindikira)

Madokotala amazindikira matenda a Rasmussen encephalitis kutengera zizindikiro za mwana wanu komanso zotsatira za mayeso angapo apadera.

• Kujambula kwa MRI (Magnetic Resonance Imaging - MRI): Izi zitha kuwonetsa ngati minofu ya ubongo mbali imodzi ya ubongo wa mwana yafooka kapena yachepa. Ngati mbali imodzi ya ubongo ikufooka pang'onopang'ono kwa miyezi ingapo kapena zaka zingapo, ndi chizindikiro chachikulu cha matendawa.
• Mayeso a EEGElectroencephalography (EEG): Izi zingathandizenso kuzindikira vutoli. Kuyezetsa kwa EEG kumalemba momwe magetsi amagwirira ntchito muubongo. Izi zingathandize kudziwa momwe khunyu likuchitikira komanso ngati ubongo ukugwira ntchito molakwika.

Choncho, madokotala amatsimikiza za Rasmussen encephalitis mwa kuphatikiza zizindikiro ndi kufufuza zomwe zapezeka, monga kufooka kwa mbali imodzi ya ubongo .

Kodi mankhwala a Rasmussen's Encephalitis ndi ati?

Mwatsoka, palibe mankhwala a Rasmussen encephalitis, kotero cholinga chachikulu cha chithandizo ndikuwongolera zizindikiro ndikuchepetsa kutupa muubongo.

Zotsatirazi zitha kuchitika ngati chithandizo:

Mankhwala oletsa kugunda kwa mtima

Mankhwalawa sangaletse kwathunthu kugwidwa ndi khunyu komwe kumachitika chifukwa cha Rasmussen encephalitis. Komabe, angathandize kuchepetsa kuchuluka ndi kuopsa kwa khunyu .

Chithandizo cha Immunotherapy

Chithandizo cha immunotherapy, chomwe chimaphatikizapo kupereka mankhwala omwe amasintha magwiridwe antchito a chitetezo chamthupi, chingathandize kuwongolera kuukira ndikuchepetsa kuwonongeka kwa ubongo kuchokera ku chitetezo chamthupi kumayambiriro kwa matendawa.

Opaleshoni ya ubongo

Njira yothandiza kwambiri yowongolera kusagwirizana kwa Rasmussen encephalitis ndi opaleshoni ya ubongo . Izi zimatchedwa hemispherectomy. Opaleshoni iyi imaphatikizapo kulekanitsa gawo la ubongo wa mwana lomwe lakhudzidwa, kutanthauza, kulekanitsa mbali imeneyo ya ubongo ndi mbali inayo, kapena kuichotsa kwathunthu.

Nthawi zambiri, ana omwe amachitidwa opaleshoniyi amakhala kale ndi vuto lalikulu la kutayika kwa ntchito m'mbali mwa ubongo yomwe yakhudzidwa. Chifukwa chake, chiopsezo chowonjezereka cha kutayika kwa ntchito pambuyo pa opaleshoni ndi chochepa. Madokotala amangoganizira za opaleshoni pokhapokha ngati ubwino wake ukuposa zoopsa zake .

Kodi tsogolo la matendawa ndi lotani? (Zomwe zidzachitike mtsogolo)

Matenda a Rasmussen encephalitis amatha kusiyana malinga ndi munthu . Kwa anthu ena, matendawa amatha kusiya kufalikira pambuyo pa opaleshoni ndipo nthawi zambiri matendawa amatha kukhazikika.

Komabe, anthu ambiri amatha kukhala ndi ziwalo zina, kulephera kuzindikira bwino zinthu, komanso kuvutika kulankhula. Nthawi zambiri matendawa amatha kufalikira kumadera ena a ubongo.

Kodi Rasmussen's Encephalitis ingapewedwe?

Popeza Rasmussen encephalitis ndi matenda osowa kwambiri ndipo chifukwa chenicheni sichikudziwikabe, palibe chomwe tingachite kuti tipewe matendawa .

Popeza ndi vuto losowa kwambiri, n'zovuta kwa asayansi kuliphunzira. Koma nkhani yabwino ndi yakuti pali mankhwala omwe angathandize kuchepetsa khunyu ndi zizindikiro zina. Pakhoza kukhala mayesero azachipatala omwe mwana wanu angatenge nawo mbali. Ndizachibadwa kumva kutopa kwambiri mukalandira matenda ngati awa. Koma kumbukirani, gulu lachipatala la mwana wanu lilipo kuti likuthandizeni inu ndi mwana wanu m'njira iliyonse yomwe mungathe .

Tiyeni tikumbukire (Uthenga Wopita Nawo Kunyumba)

Rasmussen's Encephalitis ndi matenda osowa kwambiri, koma omwe angakhale oopsa muubongo.

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* Pankhaniyi, kutupa kumachitika mbali imodzi ya ubongo, zomwe zimapangitsa kuti munthu azidwala mutu pafupipafupi, azifa ziwalo mbali imodzi ya thupi, komanso azivutika kulankhula.

* Ana aang'ono ndi omwe amakhudzidwa kwambiri.

* Ngati muwona zizindikiro, pitani kwa dokotala nthawi yomweyo.

* Chithandizo chingathetse zizindikiro.

* Simuli nokha pa nthawi ngati iyi, funani thandizo kwa madokotala ndi anthu omwe ali pafupi nanu.

Ndikukhulupirira kuti izi zikuthandizani. Ngati muli ndi mafunso aliwonse, musazengereze kulankhula ndi dokotala.

Rasmussen encephalitis, matenda a ubongo, khunyu, kulimba thupi, ana, kutupa kwa ubongo, matenda a mitsempha