Ese ufite Phenylketonuria, cyangwa PKU nkuko twese tuyizi, indwara ituma aside amine phenylalanine yiyongera mu maraso yawe? Rero, ushobora kuba uzi neza ko Pegvaliase ari urushinge rwihariye rutangwa kugira ngo rugenzure iki gipimo. Ushobora kuba ufite ibibazo byinshi mu mutwe wawe kuri uyu muti. Ntugahangayike, uyu munsi turaganira kuri uyu muti, imikorere yawo, ingaruka mbi n'uburyo bwo kuwukoresha mu buryo bwizewe mu buryo bworoshye ushobora kumva.
Mu magambo make, uyu muti witwa Pegvaliase ni uwuhe?
Ibi ni byo bisobanuro byoroshye. Abantu barwaye PKU bafite ikibazo aho imibiri yabo idashobora kwangirika neza, cyangwa gusya, ikintu cyitwa phenylalanine. Ibi bikiyongera mu maraso bigashobora kwangiza ubwonko n'imitsi.
Rero, icyo inshinge ya Pegvaliase ikora ni uko ifasha umubiri wawe gusenya iyi phenylalanine umubiri wawe udashobora gusenya. Hanyuma ihagarika kwiyongera mu maraso yawe kandi urugero rw'imiti rukagenzurwa. Uyu muti ubusanzwe ucuruzwa ku izina rya Palynziq .
Ibintu ugomba kubwira muganga wawe mbere yo gukoresha uyu muti
Mbere yuko utangira uyu muti, ugomba kuvugana na muganga wawe mu buryo buboneye kandi bw’ukuri kuri ibi bintu. Ntukabihishe, kuko ni ingenzi cyane ku mutekano wawe.
- Allergie: Niba ufite allergie iyo ari yo yose, atari kuri Pegvaliase gusa, ahubwo no ku yindi miti, ibiryo, irangi, cyangwa imiti irinda kwangirika, menya neza ko wabibwiye muganga wawe.
- Gutwita: Niba utwite cyangwa uteganya kubyara vuba, ugomba kubimenyesha muganga wawe.
- Niba uri umubyeyi wonsa: Niba uri umubyeyi wonsa, menya neza ko ubimenyesheje umwana wawe.
Ashingiye kuri aya makuru, muganga azagena niba uyu muti ukubereye cyangwa utagukwiriye, ndetse n'uburyo bwo kwirinda bugomba gutangwa.
Ni gute wakoresha umuti neza?
Uru ni ubwoko bw'urushinge ushobora gutera munsi y'uruhu uri mu rugo. Ariko ntugahangayike. Muganga wawe cyangwa umuforomo wabyigiye azagusobanurira neza kandi neza uburyo bwo kurutanga n'uburyo bwo gutegura umuti.
- Fata gusa urugero rwanditswe na muganga wawe: Fata urugero rwanditswe na muganga wawe, ku gihe cyagenwe neza. Ntureke gufata umuti kugeza igihe muganga wawe akubwiye guhagarika.
- Guta inshinge n'inshinge mu buryo bwizewe: Ibi ni ingenzi cyane. Ntukigere ujugunya inshinge n'inshinge zakoreshejwe mu myanda.Bigomba gushyirwa mu gikoresho cya pulasitiki cyihariye kandi kinini (agasanduku k'ibishari). Niba udafite, baza muganga wawe uko wabibona.
- Amabwiriza Adasanzwe: Uzahabwa agapapuro k'amabwiriza yihariye (MedGuide) igihe uhawe uyu muti. Soma witonze buri gihe. Ntugatinye kubaza muganga wawe niba hari icyo utumva.
Wibuke ko uyu muti ari uwawe gusa. Ntukigere uwusangira n'undi muntu uwo ari we wese.
Ibintu ugomba kwitondera cyane cyane mu gihe ufata imiti
Muganga wawe azasuzuma buri gihe uko umeze mu gihe ufata uyu muti. Ibi bishobora kuba birimo n'amaraso.
Icy'ingenzi cyane: Witondere ingaruka zikomeye z'ubwivumbure!
Ikintu kimwe ugomba kwitondera cyane mu gihe ukoresha uyu muti ni uko ushobora kugira allergie ikomeye, cyangwa anaphylaxis. Iki ni ikibazo gikomeye gishobora gushyira ubuzima mu kaga.
Kubera iyi ngaruka, muganga wawe azakwandikira umuti utera epinephrine auto-injection . Ni igikoresho gisa n'ikaramu. Wowe n'umuntu wo mu muryango wawe muzabwirwa uburyo n'igihe cyo kugikoresha mu gihe habayeho allergie.
Ni ngombwa kubigumana igihe cyose. Bigumane hafi yawe aho ujya hose, ndetse n'igihe uri mu rugo.
Nanone, buri gihe gumana ikarita y'umufuka w'umurwayi uhabwa kandi uyigaragaze ku muganga wese n'umuforomo bakuvura.
Ni izihe ngaruka mbi zishobora kubaho?
Kimwe n'indi miti iyo ari yo yose, iyi ishobora kugira ingaruka mbi. Zimwe ni izihutirwa, izindi ni izisanzwe. Reka tubisobanure.
| Ingaruka/ibimenyetso | Ibisobanuro n'icyo gukora |
|---|---|
| Ingaruka mbi zikomeye zigomba kumenyeshwa muganga ako kanya | |
| Indwara zikomeye z'ubwivumbure cyangwa indwara ya angioedema | Uruhu rushyushye, uduheri, uburyaryate, kubyimba mu maso, mu maso, mu minwa, mu rurimi, mu maboko cyangwa mu birenge, kugorwa no kumira, no guhumeka bigoranye. Niba hari kimwe muri ibi kibayeho, menyesha muganga wawe vuba kandi ujye kwa muganga wita ku bitaro bya hafi. |
| Uburyo bwo gutera umuti | Kubabara mu gituza, guhumeka nabi, guhumeka nabi, gucika intege, kumva umeze nk'uzunguza. Shaka ubufasha bwihuse kwa muganga. |
| Ingaruka mbi ubusanzwe zitari mbi, ariko zigomba kumenyeshwa muganga mu gihe zikomeje | |
| Ibibazo by'igogora | Impiswi, kubabara mu gifu, kuruka. |
| Izindi ndwara zisanzwe | Kuzunguza umutwe, kubabara mu ngingo, no kubabara mu ngingo. |
| Kubabara aho bateye inshinge | Kubabara, gutukura, cyangwa kubyimba aho bateye urushinge. |
Uru rutonde ntirukubiyemo ingaruka zose zishobora kubaho. Byongeye kandi, niba uhuye n'ikintu kidasanzwe, vugana na muganga wawe ku bijyanye nacyo.
Bite ho iyo mfashe imiti myinshi cyangwa nkabura kurya?
Gukoresha ingano irenze urugero
Tekereza ko niba ukeka ko wafashe uyu muti urenze urugero, hari ibintu bibiri ugomba guhita ukora.
1. Jya mu Ishami rishinzwe Ubuvuzi bwihutirwa (ETU) ry’ibitaro biri hafi yawe.
2. Hamagara Ikigo cy'Igihugu gishinzwe gutanga amakuru ku burozi mu Bitaro by'Igihugu bya Colombo.
Niba wabuze dose y'umuti (Dose yabuze)
Ntugahangayike. Ntugafate dose ebyiri kugira ngo wishyure dose wabuze. Ibyo bishobora guteza akaga. Icyo ugomba gukora ni ukwibagirwa dose wabuze hanyuma ugafata dose ikurikira ku gihe cyagenwe.
Ni gute wabika imiti neza?
Kugira ngo umuti ukomeze kuba mwiza, ni ngombwa cyane kuwubika neza.
- Uburyo bwiza: Kubibika muri firigo ni byiza. Ariko ntukigere ubishyira muri firigo. Ibyo bivuze ko utabikonjesha.
- Ubushyuhe bw'icyumba: Niba bibaye ngombwa, ishobora kubikwa ku bushyuhe bw'icyumba kugeza kuri dogere selisiyusi 25 (dogere selisiyusi 77) mu gihe cy'iminsi 30. Ariko, niba ubikoze, ibisigaye nyuma y'iminsi 30 bigomba kujugunywa. Ntibyemewe kubisubiza muri firigo.
- Izindi ngingo: Buri gihe shyira umuti mu ipaki yawo y'umwimerere. Urinde urumuri. Ubishyire kure y'abana n'amatungo. Tara umuti warengeje igihe.
Ubutumwa bwo kujyana mu rugo
- Pegvaliase ni urushinge rwihariye rutangwa kugira ngo rugenzure urugero rwa phenylalanine mu maraso y'abantu bafite PKU.
- Ingaruka zikomeye mu gihe ukoresha uyu muti ni ingaruka zikomeye z'ubwivumbure. Kubwibyo , buri gihe ujye witwaza epinephrine auto-injection muganga aguhaye.
- Mbere yo gutangira gufata imiti, bwira muganga wawe indwara zawe zose, ubwivumbure, n'indi miti ufata.
- Kurikiza amabwiriza neza y'uburyo bwo gukoresha umuti n'uburyo bwo gukuramo inshinge.
- Niba ubonye ibimenyetso bidasanzwe, cyane cyane kugorwa no guhumeka, kubyimba, cyangwa kubabara mu gatuza, shaka ubufasha bwa muganga byihutirwa.
- Niba ufite ikibazo cyangwa gushidikanya kuri uyu muti, ntutinye kubibwira muganga wawe.
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