Reka twige ku binini bya Mitapivat (PYRUKYND) mu magambo yoroshye (ibinini bya Mitapivat)

Ese wowe cyangwa umuntu uzi ufite ikibazo cyo kubura amaraso mu maraso giterwa no kubura enzyme yitwa pyruvate kinase deficiency? Iyi ni indwara idasanzwe. Muri bene iyo mimerere, muganga wawe ashobora kuba yaragundikiye ikinini cyitwa Mitapivat. Ushobora kumva urujijo gato iyo wumvise iri zina. Rero, uyu munsi turaganira ku buryo bworoshye kandi bwuje ineza kuri uyu muti witwa Mitapivat (izina rya PYRUKYND).

Mu magambo make, iyi Mitapivat ni iki?

Mitapivat ni umuti wihariye utangwa mu kuvura indwara yo kubura amaraso mu maraso iterwa n'indwara yitwa pyruvate kinase deficiency. Noneho ushobora kwibaza uti "Kubura amaraso mu maraso ni iki?"

Biroroshye cyane. Dufite ubwoko bw'uturemangingo tw'amaraso twitwa uturemangingo dutukura tw'amaraso mu mubiri wacu. Utu turemangingo dutwara umwuka wa ogisijeni mu mubiri wacu wose. Ubusanzwe, utwo turemangingo dutukura tw'amaraso tubaho iminsi igera ku 120. Ariko, mu mubiri w'umuntu ufite ikibazo cyo kubura pyruvate kinase, utwo turemangingo dutukura tw'amaraso turasenyuka kandi tukangirika vuba cyane. Ibyo nibyo byitwa hemolytic anemia.

Rero, icyo Mitapivat ikora ni uguhagarika isenyuka ryihuse ry’uturemangingo dutukura tw’amaraso. Mu by’ukuri, iha utwo turemangingo imbaraga kandi ikongera igihe cyo kubaho kwatwo. Ibi bikora iki?

• Umubare w'uturemangingo dutukura mu mubiri uriyongera.
• Ibimenyetso byo kubura amaraso nko kunanirwa, umunaniro ukabije, no kubura umwuka biragabanuka.
• Gukenera guterwa amaraso kenshi nabyo biragabanuka.

Ibyo bivuze ko uyu muti uzagufasha kunoza ubuzima bwawe.

Ibintu ugomba kubwira muganga wawe mbere yo gufata uyu muti

Mbere yo gukoresha umuti uwo ari wo wose, ni ngombwa cyane guha muganga wawe ibisobanuro byuzuye by'ubuzima bwawe. Mbere yo gutangira gufata Mitapivat, banza ubwire muganga wawe niba ufite kimwe muri ibi bikurikira:

• Indwara y'umwijima: Niba ufite indwara y'umwijima yari isanzweho, tubwire ibyayo.
• Allergie :Niba ufite ikibazo cy'ubwivumbure kuri Mitapivat, undi muti uwo ari wo wose, ibiryo, irangi, cyangwa imiti irinda ubushyuhe, menya neza ko ubitumenyesha.
• Gutwita : Niba utwite cyangwa urimo gushaka gusama vuba, ganira na muganga wawe ku bijyanye nabyo.
• Niba uri umubyeyi wonsa: Niba uri umubyeyi wonsa, ugomba no kubimenyesha muganga.

Ashingiye kuri aya makuru, muganga wawe azafata icyemezo niba uyu muti ukubereye cyangwa niba ingano yawo igomba guhinduka.

Ni gute wakoresha umuti neza?

Kugira ngo umuti ugufashe neza, ni ngombwa cyane kuwukoresha neza.

• Uyu muti ni ikinini unywa ukoresheje umunwa. Gerageza kuwufata mu gihe kimwe buri munsi , nk'uko muganga wawe yabigutegetse.
• Mirira ikinini cyose n'amazi. Ntuzigere ugimenagura, ugisya cyangwa ngo ugihekenya.
• Komeza gufata uyu muti kugeza igihe muganga wawe azakubwiriye guhagarika. Ntugahagarike bitunguranye, nubwo waba wumva umeze neza.
• Bishobora kuba ngombwa kwitonda cyane iyo uyu muti uhawe abana. Kubwibyo, kurikiza amabwiriza ya muganga uko bikwiye.

Wakora iki niba ufashe imiti myinshi? (Ingano irenze urugero)

Tekereza ko wafashe uyu muti urenze urugero rwatanzwe ku bushake. Niba ibyo bibaye, ntutinde. Jya mu bitaro bikuru by’ubutabazi bwihutirwa (ETU) by’ibitaro biri hafi yawe ako kanya. Ubundi buryo, hamagara ikigo cy’igihugu gishinzwe amakuru ku burozi mu bitaro by’igihugu bya Colombo kugira ngo ubagire inama.

Bite ho nintakaza urugero rw'umuti?

Kubera akazi kenshi k'ubuzima, hari igihe ushobora kubura umuti. Niba ibyo bibaye, dore icyo wakora:

• Fata umuti wawe vuba ubyibuka.
• Ariko, niba wabuze dose ho amasaha arenga 4, jya usimbuka iyo dose burundu. Fata dose yawe ikurikira ku gihe cyagenwe.
• Ntugafate dose ebyiri kugira ngo wishyure dose watakaje kubera impamvu iyo ari yo yose.

Indi miti ishobora kugira ingaruka kuri uyu muti

Imiti imwe n'imwe ufata ishobora kugira ingaruka kuri Mitapivat. Ibi bishobora guhindura uburyo Mitapivat ikora cyangwa bikongera ingaruka mbi. Kubwibyo, menya neza ko wabwiye muganga wawe imiti yose ufata (harimo na vitamine, imiti y'ibimera, n'imiti yandikiwe n'abandi baganga).Bwira muganga wawe.

Dore imiti imwe n'imwe ishobora kugira ingaruka kuri Mitapivat.

Icy'ingenzi: Uru rutonde ntabwo rukubiyemo ibintu byose. Bwira muganga wawe niba unywa itabi, unywa inzoga, cyangwa ukoresha ibindi biyobyabwenge.

Ibintu ugomba kwitondera mu gihe ufata imiti

Mu gihe ufata uyu muti, muganga wawe azahora asuzuma ubuzima bwawe.

• Jya mu nama za muganga zagenwe. Ibi ni ingenzi cyane kugira ngo urebe uko uhagaze n'uko imiti ikora.
• Niba ibimenyetso byawe bitagenze neza, cyangwa birushijeho kuba bibi, bwira muganga wawe.
• Ushobora gusabwa gukora isuzuma ry'amaraso mu gihe ufata uyu muti. Ntukirengagize ibi bizamini kandi ubikore buri gihe.

Ni izihe ngaruka mbi zishobora kubaho?

Kimwe n'indi miti yose, Mitapivat ishobora gutera ingaruka mbi, nubwo atari buri wese uzibona. Ingaruka zimwe na zimwe zishobora kuba zikomeye, bityo ni ngombwa kuzimenya.

Uru rutonde ntirukubiyemo ingaruka zose zishobora kubaho. Niba ubonye izindi bimenyetso bidasanzwe, vugana na muganga wawe ku byerekeye izo ngaruka.

Ni gute wabika imiti mu buryo butekanye?

• Bika ahantu abana n'amatungo batagera .
• Bika ahantu hari ubushyuhe bw'icyumba (hagati ya dogere selisiyusi 20 na 25).
• Bika umuti mu gikoresho cy'umwimerere wakiriwemo.
• Ntuzigere ukoresha imiti yarengeje igihe . Ijugunye mu buryo bwizewe.

Mu gihe ukuraho imiti yarengeje igihe cyangwa idakenewe, ni byiza kugisha inama muganga wawe. Bishobora kuba byiza kuyijugunya mu myanda. Niba ari uko bimeze, kuramo ibinini mu icupa, ubivange n'ikawa yakoreshejwe, itaka, cyangwa umwanda w'injangwe, hanyuma ubishyire mu gikapu gifunze neza hanyuma ubijugunye mu myanda.