Fa no sɛ wo anaa obi a wunim no reyɛ amemene mu oprehyɛn. Na nnuruyɛfo a wɔyɛ oprehyɛn no pɛ sɛ woyi ntini a ɛnyɛ ne kwan so no fi hɔ pɛpɛɛpɛ sɛnea wobetumi, ɛnte saa? Ɛnnɛ yɛreka ano aduru soronko bi a ɛba mmoa wɔ tebea a ɛte saa mu, nanso ɛyɛ ɔkwan soronko kakra so ho asɛm. Eyi te sɛ "nkrabea" a ɛkyerɛ oduruyɛfo a ɔyɛ oprehyɛn no kwan sen aduru a ɛsa yare bi.
Dɛn ne Aminolevulinic Acid?
Sɛ yɛbɛka no tiawa a, eyi yɛ mmoa kɛse sen aduru, na ɛboa oduruyɛfo a ɔyɛ oprehyɛn no ma ohu baabi pɔtee a nkwammoaa a ɛnyɛ ne kwan so wɔ. Brand din a wɔde frɛ eyi ne `Gleolan`.
Eyi yɛ adwuma wɔ ɔkwan a ɛyɛ anigye yiye so. Sɛ wonom saa aduru yi nnɔnhwerew kakraa bi ansa na woayɛ wo oprehyɛn a, ɛkɔ mu na ɛbata wo nipadua mu nkwammoaa a ɛnyɛ ne kwan so no bi ho (titiriw amemene mu kokoram nkwammoaa). Afei, wɔ oprehyɛn dan mu no, sɛ oduruyɛfo a ɔyɛ oprehyɛn no hyerɛn kanea soronko bi a ɛyɛ bruu wɔ nkwammoaa no so a, efi ase hyerɛn pink. Ɛte sɛ nea wɔde kyerɛwdua a wɔde si so dua ahyɛ wɔn agyirae . Eyi ma ɛyɛ mmerɛw ma oduruyɛfo a ɔyɛ oprehyɛn no sɛ obehu saa nkwammoaa yi na ayi afi hɔ koraa sɛnea obetumi a ɔrensɛe ntini a ɛte apɔw.
Ɛno kyerɛ sɛ, sɛ́ anka eyi bɛsa yare no yare no, ɛyɛ biribi a ɛboa ma wohu afã horow a yare no wom no pɛpɛɛpɛ na woyi fi hɔ.
Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na wode eyi adi dwuma
Ansa na wɔde ano aduru yi bɛma wo no, ɛho behia sɛ w’aduruyɛfo kuw no hu w’akwahosan ho abakɔsɛm a edi mũ. Ɛho hia titiriw sɛ wobɛka akyerɛ wɔn sɛ wowɔ tebea horow a edidi so yi mu biara a:
| Wo tebea no | Dɛn nti na ɛno ho hia? |
|---|---|
| Porphyria tebea a ɛwɔ nipadua no mu | Eyi yɛ tebea a ɛntaa nsi. Ɔhaw ahorow betumi aba wɔ ano aduru yi ho. |
| Honam ani hwɛbea a ɛma hann anaa honam ani nyarewa afoforo te | Saa ano aduru yi ma honam ani yɛ mmerɛw kɛse wɔ hann ho, na ebetumi ama tebea bi a ɛwɔ hɔ dedaw no asɛe kɛse. |
| Nneɛma a ɛma obi ho yɛ no hyew | Hwɛ hu sɛ wobɛka akyerɛ yɛn sɛ wo ho nyɛ wo den wɔ saa aduru yi, nnuru a wɔfrɛ no porphyrins, nnuru afoforo, nnuan, nnuru a wɔde yɛ nneɛma, anaa nneɛma a wɔde siesie nneɛma ho a. |
| Nyinsɛn a obi benyin anaasɛ ɔrebɔ mmɔden sɛ obenyinsɛn | Esiane sɛ wonnya nnyaa nkɛntɛnso a ebetumi anya wɔ akokoaa no so ho nsɛm a edi mũ nti, ɛho hia sɛ wɔbɔ oduruyɛfo no amanneɛ wɔ eyi ho. |
| Akokoaa a wɔma no nufu | Ɛho hia sɛ wohwehwɛ nnuruyɛfo afotu efisɛ wonnya nsii so dua sɛ ebia saa ano aduru yi kɔ nufusu mu anaa. |
Ɔkwan bɛn so na wode ano aduru yi di dwuma?
Eyi nyɛ aduru a wubetumi de akɔ fie.
- Eyi yɛ ano aduru a nnuruyɛfo kuw bi ma wo nom wɔ ayaresabea anaa ayaresabea .
- Wɔtaa de eyi ma wo nnɔnhwerew 2 kosi 4 ansa na wɔayɛ oprehyɛn.
- Ebia ɛho behia sɛ wɔhwɛ yiye titiriw bere a wɔde eyi rema mmofra nkumaa no.
Na sɛ aduru no dodow kɔ soro nso ɛ?
Wɔde eyi ma wɔ ayaresabea tebea mu enti hokwan a ɛwɔ hɔ sɛ eyi bɛba no sua koraa. Nanso, sɛ wususuw sɛ biribi ato wo a, ɛsɛ sɛ wobɔ Ɔman Awuduru Ho Amanneɛbɔbea a ɛwɔ Ɔman Ayaresabea anaa Emergency Treatment Unit (ETU) a ɛwɔ ayaresabea hɔ no amanneɛ ntɛm ara.
Nnuru afoforo a ebetumi ne eyi adi nkitaho (Drug Interactions) .
Ɛho hia paa sɛ wobɛka nnuru a worenom nyinaa (a vitamin ne nhabannuru ka ho) kyerɛ wo duruyɛfo. Nnuru bi betumi aka sɛnea ano aduru yi yɛ adwuma. Hwɛ yiye titiriw wɔ nnuru a ɛma wo honam ani yɛ mmerɛw wɔ hann ho no ho.
| Nnuru a wɔde di dwuma no fã | Nhwɛso ahorow |
|---|---|
| Nnuru bi a ɛma nsu fi nipadua mu | chlorothiazide , .hydrochlorothiazide , indapamide , metolazone |
| Asikreyare nnuru bi | glipizide , glyburide |
| Nnuru bi a ekum ɔyare mmoawa | sulfamethoxazole , tetracyclines |
| Phenothiazines a wɔde yɛ nnuru | chlorpromazine , prochlorperazine , thioridazine |
| Foforɔ | St. John’s wort, vitamin A ne nnuru a ɛfa ho, vitamin E |
Ade a ɛho hia sen biara a ɛsɛ sɛ wohwɛ so bere a woanom ano aduru yi awie ne
Eyi ne ade a ɛho hia sen biara . Sɛ wonom saa ano aduru yi wie a, wo honam ani yɛ nea ɛyɛ hann kɛse. Eyi kyerɛ sɛ ebia ɛnyɛ owia hann nko na wo honam ani ne w’ani bɛyɛ wɔn ade, na mmom akanea a ɛhyerɛn wɔ wo fie nso.
- Ɛsɛ sɛ wokwati owia hann tẽẽ koraa anyɛ yiye koraa no nnɔnhwerew 48 .
- Wɔ dan mu mpo no, kwati owia hann tẽẽ (kanea a wɔde hwɛ ade, akanea a wɔde kenkan ade) wɔ wo nipadua so. Ma dan no mu kanea nyɛ kusuu.
- Sɛ ɛsɛ sɛ wupue a, hyɛ ahwehwɛ a wɔde hwɛ owia, kyɛw, ne ntade a ɛkata wo nipadua so koraa .
- Ɛyɛ papa sɛ wode aduru a ɛbɔ wo ho ban fi owia ho bedi dwuma, nanso ɛnnɔɔso. Ɛho hia nso sɛ wode ntade kata wo ho.
- Mfa owia akanea anaa mpa a wɔde hyɛ wo honam ani hwɛbea nni dwuma esiane biribiara nti.
Dɛn ne nsunsuanso bɔne a ebetumi afi mu aba?
Te sɛ aduru biara no, eyi betumi de ɔhaw ahorow bi aba, ɛwom sɛ ɛnyɛ obiara na onya bi de.
| Nneɛma a ɛsɛ sɛ wobɔ w’aduruyɛfo kuw no amanneɛ ntɛm ara | |
|---|---|
| Nneɛma a ɛma obi ho yɛ no hyew | Honam ani akisikuru, ɛyaw, anim, anofafa, tɛkrɛma anaa menewa a ɛho ahonhon. |
| Mpɛn pii no enhia aduruyɛ (nanso sɛ ɛkɔ so a, ka kyerɛ wo duruyɛfo) . | |
| Nneɛma afoforo a ɛde ba |
|
Saa nsɛm a wɔahyehyɛ yi nka nsunsuanso bɔne a ebetumi aba nyinaa ho. Sɛ wuhu biribi a ɛyɛ soronko a, wo ne wo duruyɛfo nkasa.
Nkrasɛm a Wɔde Kɔ Fie
- Aminolevulinic acid nyɛ aduru a ɛsa yare bi, na mmom ano aduru titiriw bi a ɛboa oduruyɛfo a ɔyɛ oprehyɛn no ma ohu nkwammoaa a ɛnyɛ ne kwan so bere a wɔreyɛ oprehyɛn no.
- Wonom eyi nnɔnhwerew kakraa bi ansa na wɔayɛ wo oprehyɛn, wɔ ayaresabea. Wɔremma wo kwan sɛ wode bɛkɔ fie.
- Ka aduruyɛ mu tebea foforo biara a wowɔ (titiriw porphyria) ne nnuru a wonom nyinaa kyerɛ wo duruyɛfo.
- Nea ɛho hia: Wo honam ani ne w’ani bɛte hann nka kɛse bere a woanom saa aduru yi awie no, enti hwɛ hu sɛ anyɛ yiye koraa no wobɛkwati hann a ano yɛ den ne owia hann nnɔnhwerew 48 .
- Sɛ wunya akisikuru ho sɛnkyerɛnne biara (honam ani akisikuru, ɛho ahonhon) a, bɔ nnuruyɛfo kuw no amanneɛ ntɛm ara.
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