So wowɔ yare bi a wɔfrɛ no Multiple Sclerosis (MS)? Sɛ saa a, ebia wo duruyɛfo akyerɛw wo aduru bi a wɔfrɛ no Fingolimod. Ebia wunim aduru yi denam ne din Gilenya so. Ebia nsɛmmisa pii bɛba yɛn adwenem bere a yɛde aduru yi redi dwuma no. Enti, ɛnnɛ yɛbɛka saa aduru yi ho asɛm, nea ɛyɛ ankasa, ne nneɛma a ɛsɛ sɛ yɛhwɛ yiye wɔ ho bere a yɛde redi dwuma no.
Dɛn na ɛba wɔ aduru yi ho ankasa?
Sɛ yɛbɛka no tiawa a, Multiple Sclerosis (MS) yɛ tebea a yɛn nipadua no ankasa nipadua mu tumi a ɛko tia nyarewa no di mfomso tow hyɛ yɛn ankasa amemene ne yɛn ntini ahorow so, na ɛde sɛnkyerɛnne ahorow ba.
Saa aduru yi a wɔfrɛ no Fingolimod no yɛ adwuma denam nipadua no mu tumi a ɛko tia nyarewa a ɛyɛ adwuma boro so a ɛma ɛyɛ brɛoo so, te sɛ nea ɛma kar a ɛretu mmirika brɛ ase no. Eyi ma yare no ho sɛnkyerɛnne no mu yɛ den kyɛ na ɛtew sɛnea ɛyɛ hyew no so.
Nanso, ɛsɛ sɛ yɛkae sɛ eyi nyɛ MS aduru . Eyi yɛ aduru a ɛboa ma wodi yare no so.
Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na woafi ase anom nnuru
Wo duruyɛfo bebisa wo w’akwahosan ho asɛm ansa na wakyerɛw saa aduru yi ama wo. Sɛ wowɔ tebea horow a edidi so yi mu biara a, hwɛ hu sɛ wobɛka akyerɛ a woremfa biribiara nsie . Eyi yɛ w’ankasa ahobammɔ nti.
| So wowɔ saa tebea horow yi? | Dɛn nti na ɛho hia sɛ yɛbɔ ho amanneɛ? |
|---|---|
| Asikyireyareɛ | Saa aduru yi tumi ka aniwa, na asikreyare nso tumi ka aniwa. |
| Koma mu yare, mogya mmoroso, anaa koma a ɛbɔ daa | Esiane sɛ fingolimod tumi ma koma bɔ brɛoo nti, ebetumi ayɛ asiane ama nnipa a wɔwɔ saa tebea horow yi. |
| Mmɛn mu yare | Esiane sɛ aduru no betumi aka mmerɛbo no nti, sɛ wowɔ mmerɛbo mu yare dedaw a, ɛsɛ sɛ wususuw ho. |
| Nyarewa te sɛ akisikuru, anaasɛ sɛ woanya nnuru a wɔde bɔ wo ho ban nnansa yi ara a | Esiane sɛ saa aduru yi brɛ nipadua no mu tumi a ɛko tia nyarewa no ase nti, ɛma asiane a ɛwɔ hɔ sɛ obi benya ɔyare mmoawa no yɛ kɛse. |
| Ahurututu mu nyarewa (te sɛ ayamtu) . | Ɛtɔ mmere bi a, aduru no betumi aka ɔhome no. |
| Sɛ woanyinsɛn, worebɔ mmɔden sɛ wubenyinsɛn, anaa worema nufu a | Eyi ho hia paa. Saa aduru yi betumi apira akokoaa a ɔwɔ awotwaa mu no kɛse. |
Ɔkwan bɛn so na wɔde aduru no bedi dwuma yiye?
Eyi yɛ aduru a wode ka nsu ho. Ɛho hia yiye sɛ wobɛnom aduru no bere koro mu da biara . Sɛ wote nka sɛ wo yafunu ayɛ wo yaw a, fa aduru no ka aduan ho. Ɛsɛ sɛ wokɔ so nom aduru no kosi sɛ wo duruyɛfo bɛka akyerɛ wo sɛ gyae.
Amanneɛbɔ titiriw a ɛfa dodow a edi kan a wɔde ma ho
Eyi ho hia paa. Da a wobɛnom aduru yi dodow a edi kan no, wɔbɛhwɛ wo wɔ ayaresabea anaa ayaresabea wɔ aduruyɛfo hwɛ ase anyɛ yiye koraa no nnɔnhwerew 6. Wɔbɛhwɛ wo nso sɛ wɔma wo dodow kɔ soro, anaasɛ wugyae aduru no nom kakra na afei wufi ase bio a. Nea enti a ɛte saa ne sɛ saa aduru yi betumi ama wo koma bɔ brɛoo mpofirim, enti hwɛ hu sɛ asiane biara nni ho sɛ wobɛyɛ saa.
Na sɛ mepa nnuru dodow bi nso ɛ?
Nha wo ho. Sɛ wopa dodow bi a, frɛ wo duruyɛfo bere a wokae ara pɛ na bisa nea ɛsɛ sɛ woyɛ akyi. Mfa nnuru abien prɛko pɛ da.
Na sɛ menom nnuru pii nso ɛ?
Sɛ wonom nnuru pii wɔ akwanhyia mu a, mma wo ho nnyɛ wo hu na kɔ ayaresabea Emergency Department (ETU) a ɛbɛn wo no ntɛm ara. Sɛ ɛho hia a, wubetumi nso afrɛ Ɔman Awuduru Ho Amanneɛbɔbea a ɛwɔ Colombo Ɔman Ayaresabea hɔ akɔhwehwɛ afotu.
Nneɛma a ɛsɛ sɛ wususuw ho bere a worenom aduru no
- Aduruyɛ mu nhwehwɛmu daa: Bere a worenom aduru yi no, wo duruyɛfo bɛhwɛ wo daa. Ɔbɛka akyerɛ wo sɛ wɔnyɛ wo mogya mu nhwehwɛmu na wɔnyɛ w’ani mu nhwehwɛmu. Ɛho hia paa sɛ wobɛma wɔayɛ no bere ano na woanhuruw. Sɛ wuhu nsakrae bi wɔ w’ani so, te sɛ aniwa a ɛyɛ kusuu a, frɛ wo duruyɛfo ntɛm ara.Ka kyerɛ oduruyɛfo no.
- Honam ani kokoram ho asiane: Saa aduru yi betumi ama honam ani kokoram ho asiane no ayɛ kɛse kakra, titiriw melanoma. Enti, hwɛ wo honam ani daa. Sɛ wuhu sɛ akisikuru foforo bi, akisikuru, anaa nsakrae bi aba akisikuru a ɛwɔ hɔ dedaw no kɛse, ne nsusuwii, anaa ne kɔla mu a, ka kyerɛ wo duruyɛfo . Tew owia a wobɛbɔ no so. Sɛ wokɔ abɔnten a, hyɛ ntade a ɛkata wo nipadua so yiye na fa ade pa a ɛbɔ wo ho ban fi owia ho di dwuma.
- Nyinsɛn ne awo ano aduru:
- Nnuru a wubegyae: Nnyae w’aduru nom mpofirim da a wunnya wo duruyɛfo afotu. Saa a wobɛyɛ no betumi ama wo MS ho sɛnkyerɛnne no mu ayɛ den mpofirim. Ebia wubenya mmerɛwyɛ wɔ wo akwaa mu na ɛbɛyɛ den sɛ wobɛnantew.
- Fingolimod yɛ aduru a ɛko tia MS na ɛma yare no ho sɛnkyerɛnne no mu yɛ den brɛoo, nanso ɛnyɛ yare no ano aduru.
- Hwɛ hu sɛ wobɛka nnuru afoforo a wonom nyinaa ne ayaresa tebea biara a wowɔ ho asɛm akyerɛ wo duruyɛfo.
- Ɛsɛ sɛ wɔde nnɔnhwerew 6 hwɛ aduruyɛ mu da a wɔde aduru no ma nea edi kan no.
- Bɔ wo ho ban fi owia ho na hwɛ wo honam ani daa bere a worenom aduru no.
- Saa aduru yi yɛ asiane kɛse wɔ nyinsɛn mu. Enti, ɛho hia sɛ wode awo ano aduru a etu mpɔn di dwuma bere a worenom aduru no ne asram 2 bere a woagyae no.
- Nnyae nnuru nom anaasɛ ɛnsesa dodow a wode ma no da a wunnya wo duruyɛfo afotu.
- Sɛ ɔhaw bi a emu yɛ den bi ba a, ka kyerɛ wo duruyɛfo ntɛm ara.
Saa aduru yi mfata wo sɛ worebɔ mmɔden sɛ wubenyinsɛn, anaasɛ wowɔ adwenem naayɛ ketewaa bi mpo sɛ woanyinsɛn a. Fingolimod betumi ama awo mu dɛmdi a emu yɛ den aba akokoaa a ɔhyɛ yafunu mu. Enti, ɛsɛ sɛ wode awo ano aduru a etu mpɔn kɛse di dwuma bere a worenom aduru no ne asram 2 bere a woagyae aduru no akyi . Wo ne wo duruyɛfo nka eyi ho asɛm.
Dɛn ne nsunsuanso bɔne a ebetumi afi mu aba?
Te sɛ aduru biara no, Fingolimod betumi de ɔhaw ahorow aba nnipa binom so. Eyinom bi betumi ayɛ aniberesɛm, na afoforo nso betumi ayɛ nea emu nyɛ den.
| Nkɛntɛnso a Ɛfa Ho | Features a ɛsɛ sɛ wuhu |
|---|---|
| Nneɛma bɔne a anibere wom a ɛsɛ sɛ wobɔ wo duruyɛfo amanneɛ ntɛm ara | |
| Nneɛma a ɛma obi ho yɛ no hyew | Honam ani akisikuru, ɛyaw, anim, anofafa, tɛkrɛma anaa menewa a ɛho ahonhon. |
| Mmɛn a wɔapirapira | Ɛyaw a ɛba yafunu no nifa so atifi, aduan ho akɔnnɔ a ɛyera, akisikuru, honam ani anaa aniwa a ɛyɛ kɔkɔɔ, nsu a ɛyɛ kɔkɔɔ/biribiri tuntum, ɔbrɛ a ɛyɛ soronko. |
| Koma a ɛbɔ so tew | Adwene a ɛyɛ basaa, akisikuru, ɛyɛ den sɛ ɔbɛhome, mmerɛwyɛ a ɛyɛ soronko. |
| Nyarewa a wɔde nyarewa ba | Atiridiinini, atiridiinini, ɔfe, menewam yaw, akuru a ɛnsa. |
| PRES yare a ɛma obi nya ɔyare no | Tiyɛ a emu yɛ den a efi ase mpofirim, adwene mu naayɛ, n’ani a ɛsakra, akisikuru (eyinom betumi ayɛ Posterior Reversible Encephalopathy Syndrome (PRES) ho sɛnkyerɛnne). |
| Nsunsuanso bɔne a mpɛn pii no ɛnyɛ aniberesɛm, nanso sɛ ɛkɔ so a, ɛsɛ sɛ wɔbɔ ho amanneɛ kyerɛ oduruyɛfo | |
| Tipaeɛ | Tiyɛ a ɛyɛ yaw wɔ ɔkwan a ɛkɔ akyiri so. |
| Yafunu mu yare ne akisikuru | Yafunu mu yaw, yafunu mu yaw. |
| Akyi yaw | Ɛyaw a ɛba akyi ne akwaa mu. |
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